Learn from Others' Mistakes

My dear friend @kelpiemsp

I have addressed you in this way not to be condescending. You are new to tinnitus. In time you will learn that science has nothing to do with living and understanding tinnitus. If you want to know about this condition, then visit forums like this one and correspond with people that are: New to it, seasoned to it and veterans to it. This is the only way that you will learn how to cope and manage with tinnitus, in addition to your own personal experience.

Michael

31 years with tinnitus is new? Please tell me when I level up?
 
Headphones saved me. They saved my career, they saved my marriage, they saved my life. Listening to masking music through headphones has allowed me to continue doing my work, reduce my stress, give my brain a break, and did I say relax?

A similar thing happened to me. Thankfully I was able to keep making/playing music with my headphones after talking to many ENT/audiologists/neurotologist, who all recommended I kept playing with my headphones. It gave me an outlet and took me out of the very dark abyss I had fallen into.
 
A similar thing happened to me. Thankfully I was able to keep making/playing music with my headphones after talking to many ENT/audiologists/neurotologist, who all recommended I kept playing with my headphones. It gave me an outlet and took me out of the very dark abyss I had fallen into.
Are you sure all those ENTs/audiologists/neurotologists were veterans enough?

See, Michael Leigh, the tinnitus veteran, probably knows better than all those professionals combined. I would trust his advice over those amateurs you saw.
 
Since you have 30 years experience with tinnitus and recently got a spike, then you should know something has caused it. A prolonged spike, as I've mentioned in my post above, is usually the result of exposure to loud noise.

Michael

This just is not the case. Stress is a far bigger factor. All of my really traumatic spikes have been associated with stress or a traumatic experience.
 
This just is not the case. Stress is a far bigger factor. All of my really traumatic spikes have been associated with stress or a traumatic experience.

Stress can cause a continuous spike too. However, someone with your experience of 30 years should be able to manage stressful situations, although there are exceptions. If you have been listening to audio through headphones, even at low volume or going to clubs, parties, concerts where loud music is played. Any of these things will have caused the "spike" that you have and not stress. I am not a gambling person but I'd put money on it that it is exposure to loud sound that has caused your spike.. Think back to what you have been doing regarding being exposed to loud sounds or using headphones. There you will find the answer.

Michael
 
Stress can cause a continuous spike too. However, someone with your experience of 30 years should be able to manage stressful situations, although there are exceptions. If you have been listening to audio through headphones, even at low volume or going to clubs, parties, concerts where loud music is played. Any of these things will have caused the "spike" that you have and not stress. I am not a gambling person but I'd put money on it that it is exposure to loud sound that has caused your spike.. Think back to what you have been doing regarding being exposed to loud sounds or using headphones. There you will find the answer.

Michael
Talk me about stress when have died. Seriously, read my intro. If you can handle an out of body experience caused by ten minutes of being brain dead let me know. Or If your sister gets murdered. Clearly, then, you have not dealt with real stress.
 
Headphones saved me. They saved my career, they saved my marriage, they saved my life. Listening to masking music through headphones has allowed me to continue doing my work, reduce my stress, give my brain a break, and did I say relax?

I'm happy to hear how headphones have helped you so much. What I understand Michael saying, is that some people do fine with headphones, while others do not. And some have suffered permanent spikes in t as a result of using them. I think this is useful information that should be known by everyone who suffers with t. It seems like a sensible cautionary note by Michael, and I appreciate him sharing it.​
 
I hate tinnitus and I have a spike... who knows :(
 
Talk me about stress when have died. Seriously, read my intro. If you can handle an out of body experience caused by ten minutes of being brain dead let me know. Or If your sister gets murdered. Clearly, then, you have not dealt with real stress.

I agree you have undertaken a lot of stress and this can have a direct impact on the tinnitus, no doubt about it. Therefore, counselling with a Hearing Therapist or Audiologist, whose trained in tinnitus management may help you.

Michael
 
The above is not true when the other people have laughably little information about me and my life.

Bill we don't need to guess about you and your life. You post just how you DON'T have a life on this forum. Please tell us what you do for fun Bill? Besides creating paranoia on this forum and this useless BIASED thread to scare people. Please share Bill....what kind of life do you live?

Everything according to you causes ear damage/spikes/louder tinnitus. Hell, you even have said that 50BDbs can be damaging to the ears. BTW, please don't google answers and take 1 hour to post, post right away....

PS-Bill since you created this thread, please tell us what, we can do that is safe for our ears. try to help out and guide us Bill. You have 1 year of experience, you are solid on tinnitus and what we can and CANT do...
 
See, Michael Leigh, the tinnitus veteran, probably knows better than all those professionals combined. I would trust his advice over those amateurs you saw.

lol... @annV those health professionals that you mentioned know about the anatomy of the ear but most know nothing about tinnitus.
I rest my case
Michael
 
lol... @annV those health professionals that you mentioned know about the anatomy of the ear but most know nothing about tinnitus.
I rest my case
Michael

I been to MANY so called, tinnitus experts in my 30 years and their best answers were "Just live with it". I'd take Michael's advice or anyone's advice with years of experience over anyone else's. NOW if a Dr has tinnitus himself and has YEARS of experience, then i'd take his advice. Experience/suffering PAWNS theories any day :)

PS-I went to a new ENT last week and he was like "hmmmm you have tinnitus". I said "Yes".

He's like "how long"

I was like "30 years"

He's like "what can we do to cure it"

I was like "i said nothing and just LOLd" And i just smiled and did not bother to discuss the matter more :)
 
Why is my ENT Doctor useless?

Over the years I have read many posts at tinnitus forums. Therefore, it is of no surprise to see familiar questions and comments recurring especially by those that are new to this condition. Understandably, some people are in distress and are seeking help. They want reassurance that all will be well. Many want to hear the right answers to their questions or at least their version of it because anything less doesn't compute. Will it go away? How long does it take to habituate? Will I get my life back? When will a cure be found? The list goes on.

In addition to this, I often hear people say that their ENT doctor doesn't understand their tinnitus or what they are going through. After all, they are supposed to be the experts right? Sometimes it can leave a person feeling desperate and at a loss, not knowing what to do or where to go for help. This realisation, comes after having various tests have been done on their auditory system only to be told by their doctor, that no abnormalities where found. The advice given is to leave things as they are for now and see what happens.

Some people don't believe in the wait and see approach and have even said their ENT doctor is completely useless when no help has been offered. Whilst everyone is entitled to an opinion, I don't agree with this statement. However, I do understand how one can come to this conclusion, especially when the bedside manner of some doctors leaves a lot to be desired. This needs to improve if a patient is to feel proper care and consideration is being afforded to them, because we know that tinnitus can be very debilitating when severe and can affect one's emotions considerably.

The ear is a very delicate organ and if there is no underlying medical condition causing the tinnitus, such as: pain in the ears, deafness and dizziness or balance problems. The advice to wait and see what happens is usually correct. Many people learn to habituate within the first six months sometimes a little longer and it has been known go completely away. Too early an intervention could make matters worse.

In the early stages of tinnitus, it is not unusual to experience stress, anxiety and even some depression. These symptoms usually improve with time. Having a word with your GP about this can be beneficial, as medication can be prescribed to help you cope and they don't have to be taken long term. I am a believer in using sound enrichment; during the day and especially at night. Whether this is via a dedicated sound machine or playing low-level non-intrusive music by the bedside. The volume level set to just below the tinnitus.

ENT doctors are important health professionals and I have a lot of respect for their skill and expertise. They know all about the anatomy of the ear and are able to treat it medically or surgically. However, in my opinion they are not tinnitus experts, which I believe calls for another set of skills that the majority of them don't have. This is the ability to know, understand and empathize, with what a tinnitus patient is going through when the condition is loud and intrusive.

My consultant is an Audiovestibular physician whom I have a lot of respect for. She once told me that I know more about tinnitus than her. She explained because never having experienced it. For this reason, when there is no underlying medical condition causing the tinnitus a person is sometimes referred to a Hearing Therapist or Audiologist trained in tinnitus management.

This can involve counselling, wearing devices such as hearing aids or white noise generators. Treatments such as TRT, CBT and Mindfulness and relaxation therapy can also be helpful. These health professionals help their patients by showing them a way forward and demystifying a lot of the negativity that surrounds this condition. Not surprisingly, this level of understanding and empathy doesn't always come from training alone, for some of these people also have tinnitus. Over the years I have met quite a few Hearing Therapists and Audiologists at tinnitus Internet forums helping people. At some point they have relayed to me that they have tinnitus or were born with it as my hearing therapist was.

Michael
 
I been to MANY so called, tinnitus experts in my 30 years and their best answers were "Just live with it". I'd take Michael's advice or anyone's advice with years of experience over anyone else's. NOW if a Dr has tinnitus himself and has YEARS of experience, then i'd take his advice. Experience/suffering PAWNS theories any day :)

@fishbone People like you and I, who are tinnitus veterans and those seasoned to tinnitus, know that the majority of ENT doctors, only know about tinnitus from what their patients tell them. They are physicians not tinnitus experts, which my post above: Why is my ENT doctor useless, explains.

Michael
 
@fishbone People like you and I, who are tinnitus veterans and those seasoned to tinnitus, know that the majority of ENT doctors, only know about tinnitus from what their patients tell them. They are physicians not tinnitus experts, which my post above: Why is my ENT doctor useless, explains.

Michael

The thing is this, when he was like "lets cure it", I almost laughed out loud, but just smiled and did not get emotional over it and said nothing else. Now if it was a newcomer, they would have had a different reaction and most likely a negative one. I been through this game too long, to get rattled by Drs and hype and pie in the sky promises...
 
A similar thing happened to me.
You can hear your T over everything. How sure are that it is not the result of your actions?
Are you sure all those ENTs/audiologists/neurotologists were veterans enough?

See, Michael Leigh, the tinnitus veteran, probably knows better than all those professionals combined. I would trust his advice over those amateurs you saw.
https://www.tinnitustalk.com/thread...orum-more-useful-than-your-ents-advice.28006/
Please tell us what you do for fun Bill?
You had already asked this question several months ago, and I answered it.
please tell us what, we can do that is safe for our ears.
Early on (first 12 months), I would be very careful, and avoid even the moderate noises like that of a vacuum cleaner. I would wear hearing protection in places where shocks like slamming doors are likely to take place. After that, you would have to listen to your body and figure out what is and what is not ok. I would still stay away from loud music, power tools, etc. If you never get any spikes from those noises, perhaps you can afford to continue taking that risk, as your risk might be low.
 
You can hear your T over everything. How sure are that it is not the result of your actions?

Pretty sure. I've compared continuous months with and without headphones.
But my evidence is anecdotal and therefore doesn't mean much: what's more important is what people who have access to a much larger data set can offer in terms of statistics and recommendations. In my neck of the woods, we call them doctors and researchers.

In my opinion, equating headphone use to exposure to loud noise is the root of the flaws regarding dogmatic edicts about headphones. You don't have to be exposed to loud sounds just because you are wearing headphones.
 
I've compared continuous months with and without headphones.
It takes a lot more than a month for T to improve. You need to compare continuous years with and without headphones...
what's more important is what people who have access to a much larger data set can offer in terms of statistics and recommendations. In my neck of the woods, we call them doctors and researchers.
Yes, having access to results produced using a large data sets would be nice. Unfortunately, nobody used such a data set to answer this question (what can make T spike, what kinds of noises can interfere with recovery, etc). We need to use the data that we have as we can't use the data that we Wish we were to have.
 
It is also important to be aware of the fact that just because something sounds harmless (e.g., music at the mall, being at a movie theater while wearing hearing protection) does not mean that it is actually harmless. So if you begin experiencing symptoms such as ear fullness, you should not tell yourself "it is impossible for this to actually do me any harm", you should be aware that it is certainly possible for it to be dangerous.

Never suggested that people ignore their bodies.... Obviously if you're feeling discomfort from an activity you should probably stop doing it.

There are posts on this forum describing how one can adjust one's computer/TV settings to ensure that the sounds generated by the device do not exceed a certain threshold.

I'm aware of that, I have an application on my computer (which is connected to my entertainment center) that limits noise, I use it for shows and movies with a lot of shooting and explosions. However it is pain in the butt to configure because it must be set for every show. Not only that but often times the proper cutoff level to lower impulse noises also cuts into speech (speech being something many noise induced T sufferers have a hard time hearing), so then you have to turn up the volume. Definitely not an ideal system...

So if your cost is high and exceeds your expected benefit - you know what to do.

Bill I've seen you shame high school students for wanting to attend dance recitals with earplugs. You cherry pick quotes of yourself that make you sound less extreme but ignore the others. You flip flop constantly in an attempt to save face, because you're type of person that will never admit that you're wrong.
 

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