You can be severely deaf in the highs but not the lows. I guess I figured 80 dB and up across the board. That seems weird to me, why wouldn't they post that before people travelled? I know it's subjective but still that just stinks of something. Maybe they can play around with the device, who knows?
Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
Member- Dec 9, 2018
- 1,568
- Tinnitus Since
- 1992
- Cause of Tinnitus
- Loud music
Here's your answer.
It's a startup. Startups are understaffed and inexperienced. Don't expect them to think of everything. This is all part of the growing pains.
Well, looks like I'm barely just unable to use Lenire. Lucky me. Oh well. All I can do now is pray my tinnitus doesn't get worse than it already is in the however many decades it takes for another treatment to come out. I'm going to assume the other devices like Lenire will have similar hearing requirements.
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I'm trying really hard to let the flow of information come in naturally from early lucky Lenire users. It's difficult. I'm extra curious if anyone else besides @Allan1967 has had any disturbing volume/sound changes. I'm convinced this is just going to part of the treatment for many individuals, but I'd also like to hear how many experience this.
Well looks like I don't qualify, pretty disappointing. Hopefully they change the hearing requirements after a while.
For the last year I've been banking so hard on Lenire. The thought of a potential treatment being available so soon helped me cope so much... and now I don't have that. I know there are other devices being worked on, but those will likely have similar hearing requirements. My tinnitus is on the higher end of moderate... I'm not sure how to cope now. It will be at least a decade until FX-322 comes out, assuming all goes well with the trials.
I'm just so crushed and depressed about this. I don't know how I'm going to be able to go back to college now. Or even get a job. I'm going to be stuck living with my parents and hiding in my room until a cure for this shit finally comes out. I'm going to be in my late 30s before I can start a life. What a waste.
I'm just so crushed and depressed about this. I don't know how I'm going to be able to go back to college now. Or even get a job. I'm going to be stuck living with my parents and hiding in my room until a cure for this shit finally comes out. I'm going to be in my late 30s before I can start a life. What a waste.
- Feb 6, 2018
- 1,169
- Tinnitus Since
- 11/2002; spike 2009; worse 2017-18
- Cause of Tinnitus
- Loud music - noise damage
You shouldn't give up on Lenire, you are ALMOST within the threshold.
Can you take another hearing test and see if you can improve? Hearing tests normally vary 5-10 dB for every tested frequency, so another test can give you a better result.
Or you could forge your hearing test result, I'm sure Neuromod won't verify the results with your provider. If you bring them a recent hearing test, they won't do another one on you at the assessment appointment.
I wasn't planning on trying Lenire until it came to America. Which is a good 1 to 2 years away I'd say... My hearing loss is partially hereditary, and likely to get worse in the 2 years it takes for Lenire to get here. Unfortunately, I think the Lenire ship has sailed for me.
I might take another hearing test when it gets here just to see... but I'm not hoping for anything.
I really think FX-322 will be here a lot sooner than 10 years. I'm thinking 3. They're moving super fast. You should check out the thread.
Even so, yes the Michigan device might be out as soon as late next year. Its requirements might not be as bad. Even so, they may just be sticking to high standards for the initial rollout.
And you never know, OTO-313 or some other less talked about potential treatment might just surprise us. The full on cure might have already been found by the University of Arizona, and if true you won't need hearing for it at all because it will be a drug.
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
It is heartbreaking after waiting so long. But you and @hopeful4future are so borderline with your audiograms and within the plus or minus margin of error.
I still don't understand why a few dB's worth of assistance with a hearing aid would not enable a person to take up the treatment. I hope Neuromod can answer that for us at some point.
It wouldn't hurt to email those audiograms to them and see what they say, especially when you are so close and perhaps politely quiz them on those issues.
I think tinnitus perception is far worse when the level of hearing is poor, because there is less ambient sound coming into the brain to distract you than those with better hearing.
People with poorer hearing are the very ones who deserve to be helped the most in my opinion and yet sadly Lenire excludes them.
AfroSnowman
Member
- Jul 23, 2019
- 1,071
- Tinnitus Since
- 04/2019
- Cause of Tinnitus
- Nonnatural energy source
Just want to give a shout out for those you giving a day by day description, both the highs and the lows, of doing Lenire. I am hanging on every post to read the first description of getting better. If they will ever get back in touch with me (two weeks, tick, tock), I hope to fly around the world for an appointment ASAP.
Speaking of flying around the world does anyone know what the 6 week and 12 week check-ins are for? Is it just a counseling, how is it going sort of thing, or do they adjust your therapy? For me I guess I would make the logistics work either way, but it would be infinitely easier and cheaper if I didn't have to return every 6 weeks.
Speaking of flying around the world does anyone know what the 6 week and 12 week check-ins are for? Is it just a counseling, how is it going sort of thing, or do they adjust your therapy? For me I guess I would make the logistics work either way, but it would be infinitely easier and cheaper if I didn't have to return every 6 weeks.
Dean Holloway
Member
- Nov 29, 2014
- 4
- Tinnitus Since
- 2004
- Cause of Tinnitus
- not known. some hearing loss
Hi all. Unfortunately my hearing loss has ruled me out of my appointment in October with Neuromod because one ear dips slightly under 40 dB. I am having another test but I expect it won't change, although my tinnitus means I don't always hear sounds clearly!
Does anybody know how Neuromod developed the MuteButton / Lenire or bimodal stimulation?
I mean Ross O'Neill studied Biomedical Engineering and later on Business Administration.
Right after, he founded Neuromod.
How somebody with such education can investigate the neuromodular mechanisms of tinnitus?
Did he ever study tinnitus, had any practice at ENT clinics or brain institutes?
Anybody here who has some history or background information on this? I think somebody must have a lot of education and experience before being able to develop a treatment for the brain, don't you think so?
I mean Ross O'Neill studied Biomedical Engineering and later on Business Administration.
Right after, he founded Neuromod.
How somebody with such education can investigate the neuromodular mechanisms of tinnitus?
Did he ever study tinnitus, had any practice at ENT clinics or brain institutes?
Anybody here who has some history or background information on this? I think somebody must have a lot of education and experience before being able to develop a treatment for the brain, don't you think so?
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
Have you actually shown Neuromod your audiogram? It falls out by the tiniest fraction. I cannot believe they could preclude you on such a small margin.
At the end of the day, they have RCT, which is good.
However, they say that the spike you might get during treatment is temporary, and has gone away with all participants....
So if temporary highs (spikes) reduce after treatment, I wonder why temporary lows (tinnitus level) do not then regress back to the mean???
However, they say that the spike you might get during treatment is temporary, and has gone away with all participants....
So if temporary highs (spikes) reduce after treatment, I wonder why temporary lows (tinnitus level) do not then regress back to the mean???
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
This is the man behind the science:
https://med.umn.edu/bio/ent-faculty-a-z/hubert-lim
He is probably the most totally qualified human on the planet right now to combat this issue.
- Oct 17, 2017
- 640
- Tinnitus Since
- 2005
- Cause of Tinnitus
- unknown - possibly hereditary
Hubert Lim joined Neuromod only this year, but Neuromod was founded in 2010.
I don't think Ross O'Neill (Neuromod Founder CEO) consulted Hubert Lim in the early days of Neuromod/MuteButton.
You are giving this Hubert Lim guy too much credit...
That is what I mean... From where did Ross O'Neill get his inspiration?
It sounds so odd that he immediately founded the company and started with the development and first prototypes or proof of concepts. I would expect a neurosurgeon or brain researcher to do this, but with some former trials and experiences by a great team.
But to me (just my feeling) it looks like he acted like a business man without that background.
I can be totally wrong, and this is why I am asking.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Also, I spoke to another forum member yesterday when he just returned from Neuromod, and he said he had *no* hearing loss according to Neuromod's measurement. I asked him about it since in an earlier measurement at his audiologist he did appear to have a dip at a certain frequency, and he said Neuromod's measurement (in a booth) is a lot more accurate. So it could be their reading is a lot more reliable.
- Jan 25, 2013
- 3,544
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
Did he use the same concept as Lenire? Is the Hubert Lim device available to the general public? I'm from southern MN and was wondering who was eligible to see him. I'm seeing a TMJ surgeon today in Savage regarding my left TMJ.
I've been trying to use the oral appliance from MN. Cranial but not sure that is helping.
- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
I'm in contact with others who have experienced the same however I can say that in the middle of the night I woke up and my ears were ringing a different tune almost. I fell asleep again, woke up to expect a noisy day, started that way but did my Lenire session early and today has been reasonably good, so as per Neuromod's advice, it does indeed fluctuate.
What I have noticed is I don't get that sudden switch in pitch... eeeeeeEEEEEEE.
If it does its increase it's gradual at the minute.
I'm mentally preparing for a downturn, but I'm inspired to push through.
My wife and @Cojackb's wisdom has help as has the forum here.
What's 12 weeks having had 22 years of this little turd floating around my head?
I have another question... Sorry if it's been asked.
The two testimonials on the website don't really talk about tinnitus becoming quieter, but instead they don't focus on it as much and "the intensity of the tone" has changed...
Does this mean pitch?
But it does reduce the tinnitus loudness level in some, yes?
The two testimonials on the website don't really talk about tinnitus becoming quieter, but instead they don't focus on it as much and "the intensity of the tone" has changed...
Does this mean pitch?
But it does reduce the tinnitus loudness level in some, yes?
- Jul 17, 2019
- 87
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Idiopathic/Bad shoes?
There were several of the videos which mentioned reduction in volume, removal of "spikes", reduction in intensity.
I honestly wouldn't put a great amount of stock in the testimonials. They seem to describe everything from a habituation device to an outright cure. As a younger Irishman my experience is the older Irish generation are particularly bad at describing any sort of technical detail. Instead relying on "Ah sure it's grand now"/"I don't hear it as much"/"Felt a bit better about it" <- These could mean literally anything.
You'd be forgiven for thinking several of the users were describing the device reversing their hearing loss!? Being able to hear the TV better was one of them.
I think for most people who do respond to the treatment it'll be somewhere in between but what that actually means will vary wildly depending on the individual...
While clever, I wouldn't do that because they probably exclude certain levels of hearing loss for a good reason. They definitely want your money but I just think that they know this therapy doesn't work for certain levels of hearing loss.
Anyone been in contact with Neuromod about when they might start booking new appointments?
I applied on June 28th and was "accepted" on the 12th of July, but have been told they are holding off on new appointments for a while.
The ambiguous wait is killing me, I wish I had applied sooner : (
I applied on June 28th and was "accepted" on the 12th of July, but have been told they are holding off on new appointments for a while.
The ambiguous wait is killing me, I wish I had applied sooner : (