Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
Member
It has to be personalized and targeted to each individual... One size cannot fit all. That's why trained smart audiologists are crucial... Self-evident, to me at least.
- May 22, 2019
- 257
- Tinnitus Since
- 01/2019
- Cause of Tinnitus
- NIHL & TMJ
It will also be interesting to know whether the audiologist does matter. On the flip side there is also the possibility that the framework provided for the programming of the device by third party audiologists is very strict to ensure consistency.
I am genuinely interested as well as to how much of this is just trial and error and how much is targeted for specific sub types.
- Sep 17, 2017
- 231
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Medical mistake
We should know how many stimulation programs there are available for Lenire, in order to understand after how many failed attempts is someone deemed a non-responder.
El BUZZ
Member
As I previously said this is really good news. German reputation when it comes to medicine and therapies is a solid one. That is also going to help Neuromod to dispatch appointments more fluently. Anyway, I think there's a consensus on whether in a worst case scenario of Lenire working for just, let's say, 30% of the patients, it's still worth the shot to see if one belongs to that lucky club. Just my opinion.
I know people are in a more conciliatory mode but I take all this as another sign they should have done TENT-A3 and that early adopters are de-facto TENT-A3.
Director- Oct 24, 2017
- 849
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- one-sided hearing loss (of unknown origin)
Dearest Tinnitus Talk members and visitors,
We've made good progress with the audio editing of our podcast episode with Neuromod; @Markku has spent two full nights working on this, what a trooper! We have now sent it off to our wonderful volunteer @Liz Windsor for transcription. Then we'll create a list of topics and time stamps (enabling people to jump to their topic of interest), which @Autumnly is helping out with. Then we need to write marketing blurbs and encode the episode for upload to various platforms. So we're not there yet, but getting close
In the meantime, my call from last week led to us getting over a dozen new Patreon supporters! We value support of any size of course — particularly knowing that some of those who have donated are not well off at all! — but I do want to give special mention to @zhiyuan, who is supporting us with a very generous amount and thus became a "Super Patron" of the Tinnitus Talk Podcast.
We hope to reach our goal of 20 new supporters before publishing the Neuromod episode.
Read more about how to support us here.
Because we strongly value accessibility to information for tinnitus patients, we have decided to make the entire episode freely available to everyone.
But our Patreon supporters will get advance access to the podcast episode before the others.
A BIG THANK YOU FROM TINNITUS TALK TO ALL OUR SUPPORTERS AND VOLUNTEERS!!!
We've made good progress with the audio editing of our podcast episode with Neuromod; @Markku has spent two full nights working on this, what a trooper! We have now sent it off to our wonderful volunteer @Liz Windsor for transcription. Then we'll create a list of topics and time stamps (enabling people to jump to their topic of interest), which @Autumnly is helping out with. Then we need to write marketing blurbs and encode the episode for upload to various platforms. So we're not there yet, but getting close
In the meantime, my call from last week led to us getting over a dozen new Patreon supporters! We value support of any size of course — particularly knowing that some of those who have donated are not well off at all! — but I do want to give special mention to @zhiyuan, who is supporting us with a very generous amount and thus became a "Super Patron" of the Tinnitus Talk Podcast.
We hope to reach our goal of 20 new supporters before publishing the Neuromod episode.
Read more about how to support us here.
Because we strongly value accessibility to information for tinnitus patients, we have decided to make the entire episode freely available to everyone.
But our Patreon supporters will get advance access to the podcast episode before the others.
A BIG THANK YOU FROM TINNITUS TALK TO ALL OUR SUPPORTERS AND VOLUNTEERS!!!
- Oct 24, 2017
- 849
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- one-sided hearing loss (of unknown origin)
As a little aside from Neuromod/Lenire, one of our next Tinnitus Talk Podcast guests will be Prof. Thanos Tzounopoulos.
He is a researcher who focusses on developing a drug that alters the transport of potassium ions through channels in the nerve cell membrane to treat tinnitus. He was awarded a $2 million grant from the U.S. Department of Defense to develop his treatment.
We have a dedicated thread on him where you can read more.
Cheers,
Hazel
He is a researcher who focusses on developing a drug that alters the transport of potassium ions through channels in the nerve cell membrane to treat tinnitus. He was awarded a $2 million grant from the U.S. Department of Defense to develop his treatment.
We have a dedicated thread on him where you can read more.
Cheers,
Hazel
- Jun 15, 2019
- 157
- Tinnitus Since
- May 2019
- Cause of Tinnitus
- Likely infection/ear stress after walking pneumonia
Thank you! I'll become a Patreon Benefactor before the weekend is out, today if I have the time.
- Jun 15, 2019
- 157
- Tinnitus Since
- May 2019
- Cause of Tinnitus
- Likely infection/ear stress after walking pneumonia
The document posted to their website for TENT-A2 shows the different stimulation settings they used for that trial.
https://www.neuromoddevices.com/content/1-company/2-clinical-advancement/phase-ii-protocol.pdf
I find it interesting that none of their settings appear to follow the Dr. Shore's published data on effective timings. (Not saying their settings are ineffective but seems interesting.)
- Jun 11, 2019
- 2
- Tinnitus Since
- 2015
- Cause of Tinnitus
- don't know - stress maybe?
@Hazel, thank you for reminding everyone to become a Patreon if they can.
A small $2-5 per month times so many of us can make a big difference and help you guys in the incredible job you do on a daily basis.
I've only been here 6 months and I find tremendous value in what you do.
If I can respectfully ask everyone to make a small $2 donation/month, we can together advance this cause quicker... THANK YOU! MERCI!
A small $2-5 per month times so many of us can make a big difference and help you guys in the incredible job you do on a daily basis.
I've only been here 6 months and I find tremendous value in what you do.
If I can respectfully ask everyone to make a small $2 donation/month, we can together advance this cause quicker... THANK YOU! MERCI!
JohnK
Member
- Nov 10, 2015
- 311
- Tinnitus Since
- 10/26/2015 (habituated) 5/13/2019
- Cause of Tinnitus
- Doxycycline (2015) Otimize ear drops [neomycin] (2019)
AfroSnowman
Member
- Jul 23, 2019
- 1,075
- Tinnitus Since
- 04/2019
- Cause of Tinnitus
- Nonnatural energy source
@Redknight, @Liz Windsor, @Cojackb, @jacob21, @TinMan2019, @ruud1boy
I appreciate you are probably rather sick of the useless belly button gazing of this thread, but as I am waiting for my appointment to get scheduled in early 2020 and all the early Neuromod users have gone quiet, I am really interested in how it is going for the first wave of users now that we are getting 3 months-ish in.
If you don't mind me asking, at this point do you think that the treatment made a real difference for you?
I know everyone is different so the details in a lot of ways matter less to me than getting some confirmation one way or the other that this is indeed a viable treatment for at least some people.
Thanks.
I appreciate you are probably rather sick of the useless belly button gazing of this thread, but as I am waiting for my appointment to get scheduled in early 2020 and all the early Neuromod users have gone quiet, I am really interested in how it is going for the first wave of users now that we are getting 3 months-ish in.
If you don't mind me asking, at this point do you think that the treatment made a real difference for you?
I know everyone is different so the details in a lot of ways matter less to me than getting some confirmation one way or the other that this is indeed a viable treatment for at least some people.
Thanks.
- Dec 18, 2015
- 618
- 45
- Tinnitus Since
- 03/2015
- Cause of Tinnitus
- Noise induced, loud rock concert
@Mentos
Yes, Caroline also measured my minimum masking level.
She also told me that many people have reported their hyperacusis improving after using Lenire.
But it hasn't been officially tested during clinical trials.
She told me that she has worked for Neuromod since the beginning and she really trusts this device (she would have left to do something else if this device was not effective).
Attached is my audiogram.
Yes, Caroline also measured my minimum masking level.
She also told me that many people have reported their hyperacusis improving after using Lenire.
But it hasn't been officially tested during clinical trials.
She told me that she has worked for Neuromod since the beginning and she really trusts this device (she would have left to do something else if this device was not effective).
Attached is my audiogram.
Attachments
El BUZZ
Member
That belief is well spread all over the western world. An absolute shame. Boiron, the main homeopathic products producer, is a French company whose main target are European countries, Germany and Spain being at the top in the rank of main buyers. Bayer has been knees deep in shit with some of their releases along the history of pharmaceutical products and that has made the German market a particularly picky one. Besides that I am sure lots of Germans require the services of African witch doctors but we are talking different things here.
- Jun 23, 2019
- 98
- Tinnitus Since
- 1992 (got much worse in 2018)
- Cause of Tinnitus
- Loud noise exposure
@Rafalek73
She didn't tell me the exact value.
She just said my tinnitus was « easily » maskable.
In my mind it was around 30-35 dB.
She didn't tell me the exact value.
She just said my tinnitus was « easily » maskable.
In my mind it was around 30-35 dB.
Once it comes to tinnitus, clinics in Germany have no clue.
The only thing they do is TRT and earn a fortune with it.
- Dec 18, 2015
- 618
- 45
- Tinnitus Since
- 03/2015
- Cause of Tinnitus
- Noise induced, loud rock concert
I don't think I've ever seen such a good audiogram, your hearing is that of a newborn baby. My MML was around 10 dB above hearing threshold, with my 20-25 dB hearing loss it means I need 30-35 dB ambient noise to mask mine.
@Mentos
Lol! I think A New Born Baby can also hear high frequencies
Attached is my previous audiogram dated from April... Low frequencies were not so good.
Caroline told me that audiograms can fluctuate a bit according to middle ear at the moment of the test (ear plugged, pressure, cerumen plug...).
When I had my acoustic shock, I had a little hearing loss at 6000 Hz in the right ear. I haven't got it anymore.
How is your audiogram?
Did Caroline tell you that your profile is good for having positive results with Lenire?
Lol! I think A New Born Baby can also hear high frequencies
Attached is my previous audiogram dated from April... Low frequencies were not so good.
Caroline told me that audiograms can fluctuate a bit according to middle ear at the moment of the test (ear plugged, pressure, cerumen plug...).
When I had my acoustic shock, I had a little hearing loss at 6000 Hz in the right ear. I haven't got it anymore.
How is your audiogram?
Did Caroline tell you that your profile is good for having positive results with Lenire?
Attachments
I just ask myself this question.
We all know people who have hearing loss, even important and do NOT have tinnitus.
So, this theory about damaged nerve fibers creating dysfunctions in the auditory system does not apply to everyone?
We all know people who have hearing loss, even important and do NOT have tinnitus.
So, this theory about damaged nerve fibers creating dysfunctions in the auditory system does not apply to everyone?
- Sep 17, 2017
- 231
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Medical mistake
What are the red and blue at the bottom (at the 100 dB)?@Mentos
Lol! I think A New Born Baby can also hear high frequencies
Attached is my previous audiogram dated from April... Low frequencies were not so good.
Caroline told me that audiograms can fluctuate a bit according to middle ear at the moment of the test (ear plugged, pressure, cerumen plug...).
When I had my acoustic shock, I had a little hearing loss at 6000 Hz in the right ear. I haven't got it anymore.
How is your audiogram?
Did Caroline tell you that your profile is good for having positive results with Lenire?
- Jun 7, 2019
- 37
- Tinnitus Since
- 03/2019
- Cause of Tinnitus
- Overexposure to loud music
@Hazel & @Markku,
Just contributed on Patreon, and I see you're only 2 supporters away from your goal! Hopefully others can contribute as well as these podcasts have been very good and it gives some peace of mind that there are really other people out there doing something for this condition. Thank you for all your work!
(I don't have the same username there as I do here, which I hope isn't confusing)
@AliceW
I believe strongly my tinnitus is from nerve damage. Minimal hearing loss (I was told I have "the hearing of an 18 year old," and this is after years of warehouse work and going to concerts). I had pain in my ear associated with the tinnitus, and the pain returns whenever the tinnitus spikes, which I think is the nerve spasming or something of the like. Which is why I am hoping Lenire or Susan Shore's device do relax the nerve or "reduce the excitability."
Just contributed on Patreon, and I see you're only 2 supporters away from your goal! Hopefully others can contribute as well as these podcasts have been very good and it gives some peace of mind that there are really other people out there doing something for this condition. Thank you for all your work!
(I don't have the same username there as I do here, which I hope isn't confusing)
@AliceW
I believe strongly my tinnitus is from nerve damage. Minimal hearing loss (I was told I have "the hearing of an 18 year old," and this is after years of warehouse work and going to concerts). I had pain in my ear associated with the tinnitus, and the pain returns whenever the tinnitus spikes, which I think is the nerve spasming or something of the like. Which is why I am hoping Lenire or Susan Shore's device do relax the nerve or "reduce the excitability."
- Oct 24, 2017
- 849
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- one-sided hearing loss (of unknown origin)
Awesome, thanks Bob and everyone else who supports us, for setting this positive example!
As a volunteer-based organisation, any donation - big or small - allows us to keep working for you guys, for the tinnitus community. We need your support to keep this forum up-and-running, create the podcast, and more!
Loving the positive spirit and support from you guys!
They are my thresholds of tolerance to sounds (in France they measure it to diagnose hyperacusis).
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