Darn! I guess I have a ways to go...I have been waiting since July lol... :/
Last I heard they just hired more staff and are about to start having a second room to use, so the wait shouldn't be as bad as it has been anymore.Darn! I guess I have a ways to go...
Yes but for the most part not at a cure level. It also doesn't work for some, but no one knows why not yet. You'll find some people reporting more improvements or of people they know on this regular thread than just on the User Experiences & Reviews thread.Haven't really been following this Lenire thread in the last month. Has Lenire been working or not?
June here...I have been waiting since July lol... :/
Hello Mr. Tech, I was just going back over the thread and just saw this. I appreciate it.Chris, if you got tinnitus in the military... what do they do or have they done... there must be quite a few cases being around all those noise makers?
How many people with PSTD have tinnitus I wonder? Out in the field I doubt tinnitus versus an IED matters... then soldiers come back and they are surrounded by relative calm... and now the noise.
Thank you for your service.
Do you remember the usernames of anyone who's tried Lenire and posted an outcome on this thread, but not the User Experiences thread?Yes but for the most part not at a cure level. It also doesn't work for some, but no one knows why not yet. You'll find some people reporting more improvements or of people they know on this regular thread than just on the User Experiences & Reviews thread.
It seems to average at a "knock you down a severity" type manner for most so long as there aren't other factors to worsen the tinnitus. Some have said it hasn't done much for them, most had other things going on that probably didn't help, and more have said it helped. One lucky guy did get to near cure status, if you take the time to look at the experiences thread or just a few posts back this one he talks about it. There is also someone who got worse but sadly he had reactive tinnitus and other things like exposure to a fire alarm and ear infection that probably had a lot to do with it getting worse.
@Clearance and @drcross to name a couple.Do you remember the usernames of anyone who's tried Lenire and posted an outcome on this thread, but not the User Experiences thread?
Thanks. I'm very much a believer in the value of anecdotal forum success or failure stories of newer medical treatments, but I think you have to be careful when it's second hand. Unless it's a screenshot or something.@Clearance and @drcross to name a couple.
We've also heard from users on this thread 4-5 anecdotal reports of improvement from patients not on the forum.
@El BUZZ posted a screenshot from a trusted friend of his using the device and having success.Thanks. I'm very much a believer in the value of anecdotal forum success or failure stories of newer medical treatments, but I think you have to be careful when it's second hand. Unless it's a screenshot or something.
Absolutely agreed. I compiled the anecdotes together myself and I would absolutely not include them unless I was sure they were legit.Thanks. I'm very much a believer in the value of anecdotal forum success or failure stories of newer medical treatments, but I think you have to be careful when it's second hand. Unless it's a screenshot or something.
Bummer! Thanks for the heads up...Sorry to disappoint you @alex1975 but this is the generic response a lot of us got when we applied back in summer, I hope it is true of course.
I wonder whether this is a cancellation?APPOINTMENT UPDATE:
Keep an eye on your emails everyone! I think new appointments should be rolling out soon. I have been on the waiting list since summer and I just got offered an appointment for late December of this year.
I was amongst the individuals who had received an email relaying that all 2019 appointments had been allocated and I was waiting on 2020 appointments to be released—got a very pleasant surprise this morning when I was offered a 2019 consultation appointment.
I haven't received the answer to the question yet, but what I'm thinking is that the changing the tone to less high pitch would make it less intrusive and easier to mask.About Drone Draper's report:
His comment about how his tinnitus "changed more in pitch and tone than in actual volume" replicates the numerous commentaries from Lenire's posted testimonials on You Tube.
I am still utterly mystified by such a comment.
It is akin to stating that an area of pain is changed in character but not less intense.
Was the pitch and tone different, and although just as loud, nonetheless a sound that was not as grating?
I don't particularly care if the changed sound approximated the Adagio in Beethoven's Spring Sonata; it would still be devastatingly intrusive if I knew it was constant and unalterable.
His caveat about not expecting major reductions, i.e. "some improvement but nothing miraculous", only makes me all the more confused when such "improvement" will not result in a really perceptible decrease in volume.
I played this shell game with myself once before with Desyncra.
Please notify me if I am misinterpreting this and should stand corrected.
I want as much as anyone else to develop a confidence about this.
As someone who also suffers mildly from a sub-type of arthritis I can tell you I'd much rather have my enthesitis in my forearm than in my IT band (I've had both). The level of pain is roughly the same but only one of them bothers me more due to how I sleep and cycle for exercise.It is akin to stating that an area of pain is changed in character but not less intense..
We're definitely though the looking glass now. I can understand being depressed about negative or non responsive reports. It was far too early for the grey clouds IMO but I can understand. But being depressed about positive reviews?Another testimonial, another depressing moment for me... only my personal opinion.
I tend to disagree, tone and pitch matters if it comes to level of annoyance, at least for me. I have 2 tinnitus sounds, both are of the same volume, low pitch hum in left ear and head cricket. I couldn't care less about the hum, while the cricket annoys me as hell. If the cricket was gone and hum stayed, and my tinnitus volume remained the same, but qualify of life would increase dramatically.About Drone Draper's report:
His comment about how his tinnitus "changed more in pitch and tone than in actual volume" replicates the numerous commentaries from Lenire's posted testimonials on YouTube.
I am still utterly mystified by such a comment.
It is akin to stating that an area of pain is changed in character but not less intense.
Was the pitch and tone different, and although just as loud, nonetheless a sound that was not as grating?
I don't particularly care if the changed sound approximated the Adagio in Beethoven's Spring Sonata; it would still be devastatingly intrusive if I knew it was constant and unalterable.
His caveat about not expecting major reductions, i.e. "some improvement but nothing miraculous", only makes me all the more confused when such "improvement" will not result in a really perceptible decrease in volume.
I played this shell game with myself once before with Desyncra.
Please notify me if I am misinterpreting this and should stand corrected.
I want as much as anyone else to develop a confidence about this.
Indeed...Another testimonial, another depressing moment for me...