I have been approved for Lenire directly at Neuromod in Ireland = I guess I passed all necessary checks at first visit and I'm good to start using Lenire. There won't be such need to undergo the same checks and pay 1000€?@Jan64
They said that the Lenire device will be 1900 €, which has to be paid directly to Lenire via credit card.
But they will do a complete diagnostic test before they start the treatment and they said that this will cost approx. 1000€.
This is for the first visit.
I can only say: This is Germany again. They charge whatever they can and take as much as they can from desperate people. This is all I know. Do not ask for any more details, because I do not know more.
Yes. Looks like it. And if they charge for the other appointments, too, one could end up with much more than 2900€.
Actually if you read through all the User Experience posts you'll find that it's a bit more complicated than that. As well as reported increased in loudness there have also been reported new tones. For example:
Overall in the User Experience thread the numbers who have had no change or change for the worse certainly is greater currently than those who have had change for the better.
The background static sounds like Tinnitus Mix lmao.
Yeah that's true but for worsening there really have only been three. They were Allan, Gee, and Ade.
To be honest, this really isn't that expensive. Yes, when you factor in flights and travel--but this isn't Neuromod's fault. They are working on expanding. This isn't some habituation device--and even if it was, it's still a lot cheaper than things that aim only to promote habituation such as the Levo system and Neuromonics, which can be up to $5,000 for sound therapy.
Exactly, my friend. You have the right mindset.
It sure seems like you should probably do it all in one trip and then have remote updates. All reports have the original settings set (I forget what they call the settings - SP?) at 1 to start, and then 4 at week 6, then back to 1 again at 12 weeks. The travel costs/time are the only thing that gives me pause.
That is exactly what I am scared about. We don't know what might happen to the brain if we use it more than 3 months. All the people who use Lenire more than 3 months are guinea pigs. I don't want to be a guinea pig.
I'm hoping for the same with them being able to reduce trips to their clinic. I'm in the US!
Please, everyone who won't be going to their scheduled appointments, cancel your appointment ASAP. There are too many people waiting for a slot since June. Many of us.
It being imperfect doesn't bother me. Those like Chris who keep saying we're expecting perfect cures are building strawmen. What bothers me is the results in the field being so far off from Neuromod's internal stats. As has been discussed weeks ago, that can change with more data on our side, but the longer it goes on the more a clear pattern emerges that should be seen as the final word. It's like no matter how many times you flip the galton board, it's going to produce a bell curve, more or less. If you only put a few balls in it, you can get weird random results, but a full assortment of balls will produce the bell curve each and every time. Once the dataset gets big enough you can't really expect the averages to suddenly change.
You're right, they said 66% of sufferers received clinical significant results in reduction. This is more or less mirrored in the overall internet data I got so far. We have that bell curve, the bell curve just shows that 45% of people had mild improvement. They said they had an overall reduction of ~7dB, which is fair. But as Josh1994's testimony shows, the probable error on our behalf was assuming 7 decibel reduction was a huge amount but it wasn't as major as we thought it was.
By any chance, has your data measured the claims that it works better for people with better hearing?
All I know is that I've been on the wait list since late July and I still don't have a date in hand yet.
How is it not Neuromod's fault when they still do not deliver any other option than to go to the one clinic in the world that dispatches this "treatment"?
It isn't Neuromod's fault that they don't have the capital to open up 500 clinics worldwide nor the manpower to train people for those locations. Nor is it their fault that people choose to travel for it. Honestly now. Neuromod could have taken a completely different tactic and only accepted people from the Republic of Ireland. I'm sure they've enough demand to fill the slots. But they didn't do that. Be thankful.
Now that we have a few more results from actual responders in the User Experiences thread and the result percentages are starting to favour Lenire better than before, I expect we'll see more of this "placebo" nonsense goalpost moving. Here's the thing chief.
Demonstrably untrue. That is all.
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