Lenire — Bimodal Stimulation Treatment by Neuromod

[threefirefour]

I recently participated in a clinical trial and it made worse, so this really gives me more hope for Lenire as my appointment is coming up.

What was the trial?

 

[ChrisBoyMonkey]

What was the trial?

OTO-313. It's poison. It spread tinnitus to my quiet ear and made the ringing louder overall.

 

[Autumnly]

Did you initially have an appointment at the Dublin location as well?

No, I only applied in Hannover.

 

[Mathieulh]

I still have no news whatsoever from Neuromod after their initial reply from August 2nd and that's after multiple enquiries. I applied in last July! This is utterly ridiculous. There should not be a business that cannot/does not have enough staff to reply to e-mails in several months (if ever), and yes, I did check my spam.

 

[ChrisBoyMonkey]

I still have no news whatsoever from Neuromod after their initial reply from August 2nd and that's after multiple enquiries. I applied in last July! This is utterly ridiculous. There should not be a business that cannot/does not have enough staff to reply to e-mails in several months (if ever), and yes, I did check my spam.

Send them another email or call them. They're open right now so they should answer.

 

[Mathieulh]

Send them another email or call them. They're open right now so they should answer.

I sent them another e-mail no later than yesterday, I guess I will give them a call and see how that goes.

 

[Mathieulh]

I sent them another e-mail no later than yesterday, I guess I will give them a call and see how that goes.

Well, I managed to book an appointment for next May.

 

[AfroSnowman]

@Cojackb What setting have they used with you? Which one are you on now?

 

[valeri]

@Cojackb,

I'm in Australia and wanted to ask how did you cope with such a long flight between the UK and New Zealand?

Any bad effect on your tinnitus?

Thanks!

 

[ChrisBoyMonkey]

@Agrajag364 I reached out to the San Jose ATA / BTA Neuromod event and it's only for researchers.

I still think it's awesome that it's happening, I'm happy Neuromod is trying to break the ice of the old standard of care. Things like this are exactly what we need.

 

[Niatoolit]

Anyone got any reply from the German clinic? I sent an email immediately after I received the announcement email from Neuromod. Unfortunately, no reply yet.

 

[acute]

Anyone on Tinnitus Talk doing Lenire and taking benzodiazepines daily?

I would like to know if taking this type of medication potentially disqualifies from being eligible for Lenire. Or, if it doesn't disqualify, if the medication makes Lenire less effective.

Thank you.

I have sent an email to Neuromod asking about this, anyway. We may know the answer soon.

 

[LongWait]

My appointment is in April. I'd like to see more real world data, as my opinion has been swayed,plus I'm concerned about any worsening as 2 years,down the line,I'm coping better with this awful torture.

 

[BigNick]

In the last few months I've had my final appointment with Neuromod, packed up my life in the UK and moved back out to New Zealand to pick up where I left off about a year ago.

During this time I'd not touched my device very much at all and due to a significant spike (for reasons unrelated to Neuromod) I've not touched it again quite recently.

HOWEVER, once I'd settled back in over here I got stuck into the treatment doing two 30 minute sessions a day. For the first time since I took up the treatment, I experienced two individual windows of almost silence in the same week as continuing the treatment.

I'd say for me, this is evidence enough that the treatment can have a positive effect. I've never experienced moments of quiet like that throughout the last year, which would suggest the likelihood of it being a coincidence to be very slim.

The other thing I'd like to add is the way my tinnitus behaves on the newest program. During the sessions my tinnitus fluctuates and "reacts" with momentary spikes and changes in tone/frequency. This is something that's not happened with any other program that Neuromod applied to my device. This further reinforces what Neuromod say about finding the right settings for each person... it is a matter of trial and error but you'll know once you're there!

Unfortunately due to my own negligence and changes in tinnitus following on from very long flights, my commitment to the treatment has wavered. I fully intend to get back on top of this but have some habituating to do first!

I think taking a break from it and starting over might be a good move. Dr. O'Neill said that we habituate to the treatment at six weeks hence why it's less effective thereafter. So taking a break and starting over might be worth a try as seems to be your experience.

 

[JohnAdams]

Dr. O'Neill said that we habituate to the treatment at six weeks hence why it's less effective thereafter.

I'd really like to see their data regarding this.

 

[Martin69]

Anyone got any reply from the German clinic? I sent an email immediately after I received the announcement email from Neuromod. Unfortunately, no reply yet.

Same here. No reply.

 

[all to gain]

I wonder when a knock-off version of Lenire will hit the market. It's bound to happen eventually.

 

[UKBloke]

wonder when a knock-off version of Lenire will hit the market. It's bound to happen eventually.

 

[ChrisBoyMonkey]

I wonder when a knock-off version of Lenire will hit the market. It's bound to happen eventually.

They came out before Lenire. They're called Levo and Desyncra

 

[all to gain]

They came out before Lenire. They're called Levo and Desyncra

Yeah, but they aren't cheap. I mean more of a model that can be bought on Aliexpress lol

 

[LongWait]

I would like to ask @JohnAdams would he take an appointment and use the device? As things stand.

 

[Bartoli]

I wonder when a knock-off version of Lenire will hit the market. It's bound to happen eventually.

When the patent expires I'd say. If it's scientifically proven to work (post peer review and all) I'd still buy the real thing. Credit where credit is due...

 

[Lurius]

I just wanted to thank @hans799 for his Lenire user review yesterday. I had tears in my eyes when I was reading the review from Redknight, now also tears in my eyes when I read yours. Those two words, "Lenire works", that's all I need right now. I began to doubt after so much negativity in this thread. But now I believe again and I don't think it's going to change. So let me just say this - köszönöm!

 

[GregCA]

They came out before Lenire. They're called Levo and Desyncra

Those are not bimodal.

 

[all to gain]

When the patent expires I'd say. If it's scientifically proven to work (post peer review and all) I'd still buy the real thing. Credit where credit is due...

Yeah, if it is shown to work I would have to get one.

Must admit though that I haven't been that impressed so far. However, I'm not following it really closely.

 

[E2-E4]

I just wanted to thank @hans799 for his Lenire user review yesterday. I had tears in my eyes when I was reading the review from Redknight, now also tears in my eyes when I read yours. Those two words, "Lenire works", that's all I need right now. I began to doubt after so much negativity in this thread. But now I believe again and I don't think it's going to change. So let me just say this - köszönöm!

Signed up just to say this. These positive user reviews and specifically hans799's are such a fresh and welcome optimistic breath of air.

 

[MRItechssuck]

Help me Lenire, you are my only hope.

 

[Ruse]

Help me Lenire, you are my only hope.

I was really hoping to see Dr. Ross O'Neill photoshopped into this. Maybe my expectations are too high?

 

[ajc]

The British Tinnitus Association is not convinced Lenire is effective.

https://www.tinnitus.org.uk/tinnitus-and-lenire

 

[MRItechssuck]

I'm not convinced The British Tinnitus Association is effective.