The 10-15 year timeframe for drug treatment is, I think, a pessimistic timeframe.
10 or 15 years? That is quite a pessimistic view. I am pretty sure it will be available before that.
What should we expect? - that they should publish the big trial they've been referring to for years now - they said they were about to publish in late 2018.
The % who worsen is such a critical decision for people in weighing up whether to get treatment - another reason they should not have started selling the device before trial publication.
It's now handed over to the Tinnitus Talk team for branding etc (and I've finished with it!). There is a summary PowerPoint highlighting the main results (8 pages) and a detailed word report with all you should want to know (70 pages).
So you saw improvements only after you used Lenire for four months, is that correct?
Yes. You can read my previous posts. I started when I was getting to a really bad state, and I wasn't even fully committed since I've been using it only 1 time per day. I should do it 2 times per day.
I had my 3rd review online with Neuromod on Tuesday. They organised for a courier (at their expense) to collect my device (which arrived in Ireland in 24 hours) and it is already on the way back to me.
So it's just when you are already their client, right? They don't do online assessments for new patients?
I think they considered it but since you have to do a hearing test it looks unlikely. But never say never.
Their hearing test is fairly standard - they do an audiogram, and a tinnitus loudness matching (they don't do tympanometry and other possibly damaging tests, mercifully). It would definitely be possible to get those done locally and just email them the results. So they can get this done if they want to.
I did not make any further progress with the 2nd settings. Because of the coronavirus I was not able to travel to Dublin and I decided to stop using it for the time being. I will start again next week with the first settings.
What is your general opinion of Lenire? How much has it helped you so far?My device has just safely returned
It has reduced greatly but it has not gone 100%.
It worked quite well with the first settings. My tinnitus improved no doubt. But the second settings did nothing for me so I am glad that I can now start again with the first settings.
I wonder if there isn't some correlation. Xanax might point to the neurological base of tinnitus which Neuromod's device can alter. I read though that these drugs lower brain nueroplasticity so it's better to stay off from them while using Lenire. On the other hand microdosing of some psychedelics increases neuroplasticity. Maybe Lenire + microdosing shrooms might be a more effective formula.
During my first, successful run with Lenire, I was on armodafinil at least every second day. It was for unrelated reasons (I was starting a new job and often didn't have enough time to sleep and I needed to eradicate fatigue), but it might have helped. Also, because of the new job, my brain was in "learning mode" all the time, that might have helped too.
Interesting. Maybe during Lenire session one should try to learn something. New language, knitting, ... Might sound funny but who knows.
Never heard of that and I've just read up on it on the NHS website - good lord, that sounds bad. Maybe there is something worse than tinnitus...
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