El BUZZ
Member
As a middle age Spanish man I tell you that there are young Irishmen in the testimonial videos and that in any case, making generalities such as talking about every Irishman's mentality forged in the same way is plain dullard.
Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
Thankfully my hearing is perfect (I think my tinnitus is somatic).
Hopefully they aren't too strict on those of you with moderate hearing loss. I too recall Ross O'Neill saying only really severe hearing loss would be grounds for disqualification.
Hopefully they aren't too strict on those of you with moderate hearing loss. I too recall Ross O'Neill saying only really severe hearing loss would be grounds for disqualification.
Member- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
When I went for my initial assessment, the audiologist lady asked if I had a copy of my latest audiogram. I had intended taking a copy with me but I'd forgotten, so she did a hearing test. As I've posted before, it seemed pretty rudimentary and was definitely a lot shorter than most hearing tests I've had previously. In the light of the latest information coming out from Neuromod, I think I understand why now. I believe they were doing a basic test to potentially assess whether my hearing was (or wasn't) sufficient (without hearing aids) for the treatment. I understand they do a further hearing test at the second visit, which I'm expecting / hoping will be a bit more in depth to calibrate the device to my own hearing profile.
FWIW I don't think these people are out to make a quick buck or take advantage of our miserable existence. I think they do genuinely believe that their treatment can help a lot of people. Fingers crossed they're right.
FWIW I don't think these people are out to make a quick buck or take advantage of our miserable existence. I think they do genuinely believe that their treatment can help a lot of people. Fingers crossed they're right.
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- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
Just playing devil's advocate now; Lim has a doctorate in biomedical engineering - as does our Irish friend. Does that make them equally 'qualified'?
In response to the original poster's question, I'm sure I've seen somewhere that Mr. O'Neill's daughter suffers from hearing loss and / or tinnitus, which is what prompted him to focus on this area. Doesn't make him any more qualified, but he does have a vested interested in it beyond the gazillions he'll make if Lenire is a success.
- Jul 17, 2019
- 87
- Tinnitus Since
- 2017
- Cause of Tinnitus
- Idiopathic/Bad shoes?
I never said there weren't? In fact I specifically mentioned several of them.
You should probably try reading what I actually wrote rather than fabricating an opinion for me that I don't actually hold in an attempt to insult me. What I was saying was that the older Irish generation have a habit of being stoic and curt about technical issues or complaints and this comes across in the videos. It's quite hard to tell what a responder can expect exactly given the undetailed testimony of some of the videos. I was saying this purely as a response to someone that asked.
In addition to this which i didn't mention earlier it's important to remember these testimonials are from the first trial which had inferior results to the second. To my knowledge we don't have any detailed testimony from the second trial? Open to correction though.
If they were equally qualified there would've been no reason to bring him on board and offer him a financial stake in the company. Dr. Lim had something that they needed. Knowledge, experience or credibility.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
I'm pretty sure Lim was the PI behind the guinea pig study which formed the foundation for all of our current neuromodulation research.
I'm sure Neuromod within the upcoming years will have stuff added onto the device, or perhaps different variations of the device, like the temple stimulation/neck thing for different tinnitus if it becomes a well-rounded success. I understand everyone's confusion and plight, but you guys are the beta testers, the information you're getting from Neuromod now might not be the qualifications or guidelines they have a year from now. Hopefully, that's something to hold onto.
@JohnAdams
Not my idea at all. It was actually a tongue in cheek follow up to someone else's post. Lol, I'm the mother of a serving police officer, just couldn't do it John.
Not my idea at all. It was actually a tongue in cheek follow up to someone else's post. Lol, I'm the mother of a serving police officer, just couldn't do it John.
So they got back to me. They said they are trying to confirm their slots for the rest of the year to see if they can get me in for 2019, if not I'll have an early 2020 slot.
ajc
Member
- Feb 6, 2018
- 1,170
- Tinnitus Since
- 11/2002; spike 2009; worse 2017-18
- Cause of Tinnitus
- Loud music - noise damage
You are prepared to travel four times to Ireland?
Initial assessment, device fitting, two follow-up visits.
That's going to cost some serious moolah!
How do you bring the device back to the US? FDA regulations?
I was wondering how Lenire may work with the addition of psychedelics. A lot of people report their tinnitus going away during a mushroom trip. Microdosing increases neural plasticity so it may amplify the effects of Lenire. I'm happy to be the guinea pig on this one.
El BUZZ
Member
I've been thinking the same but personally I wouldn't do it.
Since my tinnitus onset I've microdosed myself two times when going through the darkest times of my mood.
What I did was grind a couple of Hawaiian mushrooms to even the concentration of Psilocybin. Then made 0.3 gram doses. Took a dose every four days. Six total intakes. Every time I had a very small trip similar to the feeling of having smoked a small joint of weed or having drank some beers (good ones). I could feel how my tinnitus changed during the trip and even the very first intake it disappeared for some hours. I can't express how excited I was. My tinnitus is really severe. Angle grinder chopping layers of aluminum sound.
At the end of the intakes my mood had changed A LOT and the impact of the tinnitus on my psyche was completely different not giving a damn shit about it. That effect lasted months. Not feeling depressed at all for around 7 months.
When bad vibes kicked in again I gave it another shot and it worked one more time.
Again I'd prefer to let Lenire work on its own as it has been intended.
- Jun 18, 2019
- 294
- Tinnitus Since
- 05/24/2019
- Cause of Tinnitus
- Chronic headphones use and acute noise induced trauma.
I hope I am wrong, but it doesn't look like you'd qualify, there is too much of a loss in the low frequencies on your audiogram.
For those who have a lot of lower frequency hearing loss, is this something you could sort of tell before you got the audiogram? I'm just wondering how much of a surprise those numbers were.
I'm not sure if Amitriptyline is considered an SSRI, trying to find out. However, I take and have been taking a very low dose of Amitriptyline for years and was still accepted by Lenire. This was disclosed during my assessment.
When did you apply for the Neuromod? I mean how many days had passed until they got back to you?
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
Me too - low daily dose of Amitriptyline for a couple of years now and they've accepted me.
Amitriptyline isn't an SSRI, but I don't think Neuromod have stated or indicated that they'll reject people outright if they're on SSRIs.
Lots of low frequency loss is definitely something you can tell. Distortion of words and general lack of sound mixed. 80 dB for myself and basically deaf to sound.
If Leniere doesn't change the thresholds I assume us CI candidates should look elsewhere.
If Leniere doesn't change the thresholds I assume us CI candidates should look elsewhere.
There is a distortion that I sometimes hear that kind of reminds me of MP3 aliasing so I associate it with high-frequency problems rather than low. My day of reckoning will probably be the audiogram. I feel for those who are being excluded
- Apr 12, 2019
- 29
- Tinnitus Since
- 12/2018
- Cause of Tinnitus
- Ear wax removal with suction by ENT
I have to say that the latest update on the Lenire User Experiences thread by @Cojackb is disheartening to say the least. I hope it's just a temporary spike/increase in the volume for that user. I remember in the interview video they mentioned some users did report having spikes of tinnitus after treatment.
I don't know what to think -_-
I don't know what to think -_-
I emailed the FDA to get more information about personal importation.
They basically said the same thing I posted earlier, and that the decision is made at the time of importation.
Lenire appears to match the criteria, but it almost seems like a gamble.
They basically said the same thing I posted earlier, and that the decision is made at the time of importation.
Lenire appears to match the criteria, but it almost seems like a gamble.
- Apr 12, 2019
- 29
- Tinnitus Since
- 12/2018
- Cause of Tinnitus
- Ear wax removal with suction by ENT
The surprise came when I had a hearing aid fitted and everything seemed super loud.
The audiologist explained that was what I should normally be hearing.
Thankfully it helped quieten the tinnitus for which I am ever grateful.
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