Posting in here as I'm one of the lucky (or maybe unlucky, if this doesn't work) people using Lenire.
I'm US based so traveled to Ireland to get this rather than wait for Susan Shore's device to launch.
I've completed my third day so far. I just do two sessions one after the other first thing in the morning, after my morning breakfast to get my 60 minutes in and before my morning exercise. It's not too bad. I just have to get up a little earlier.
I have noticed an increase in volume in my tinnitus. I'm not an expert but I'd guess I'm around 16 dB... Reason I say I'm not an expert is because I've only ever really had two tests for tinnitus, and those were both at Neuromod. At the initial appointment it was pretty loud, and I was told I was at 16 dB, which is the same as I seem to be now today, 3 days in... And it's been unrelenting staying that high. Then my other tinnitus loudness test was during the 2nd Neuromod appointment (device fitting). My tinnitus was having a good day that day and though it was there, I wasn't noticing it. They said I was rated at 12 dB during that test. I was also asked how bothersome my tinnitus was on the 12 dB day. I said zero! 4 dB does seem to make a massive difference. So if I can get it down to that, I'll take it! It doesn't need to be completely gone, just not as intrusive as it is, on the louder days such as today.
During my device fitting appointment last week, I was told this increase in volume may happen. So again not too concerned. I will say I had a lot of good days prior to starting treatment (probably due to being on a two week vacation in England (perfect timing to get those appointments at Neuromod in!), so this recent spike is more noticeable now that I'm back to my normal routine and back in the USA.
I deal with tinnitus ok. Of course I'd like it gone... I wouldn't be spending all this money if it didn't bother me. However when I first got it, I was all doom and gloom. Peaking with feeling down around this time last year. Doctor prescribed me some antidepressants, though I tried taking them, they gave me a very bad stomach, so I stopped taking them after a couple of days and just dealt with my tinnitus. I'm glad I didn't take the antidepressants, because I bounced back, and would have otherwise attributed feeling better to the meds, when it was just a natural return to a non-depressed / down state. Anyway, just giving my own psychological profile here, as I know it plays a fairly big part with tinnitus.
Today I'm at a fairly decent comfortable stage in my life, kinda happy if anything a little anxious perhaps. I have enough hobbies that can keep myself busy enough to completely forget about tinnitus for maybe a day, but it always comes back and never really lets go. I may even get a couple of days in, when it's not bothersome at all. I really REALLY appreciate those days. But who can blame us for being upset on the bad days. Who wants that damn high pitched squeal going on!
So anyway, that's my profile. I'll keep my experience up to date here in this thread, in hopes that it helps others make a decent decision if Lenire might be for them.
I really hope that we read loads of 'yeah it's gone /downgraded from whatever to whatever' from many of us here in this community! Even if it's not me, I'll be happy for you. And if it doesn't work on me, I'm sure there will be a cure down the road and will just get along with my tinnitus in the meanwhile.
Good luck all!
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