LET'S MEET Together for a Celebration When a Cure Is Found!

[Marcini]

That's assuming a cure is even possible. There are many chronic conditions out there that may never be cured. Having said that, if there is a cure out there then we're closer than ever and tomorrow we'll be closer still.

 

[Mark McDill]

Count me in for sure!

 

[jimH]

That's assuming a cure is even possible. There are many chronic conditions out there that may never be cured.

True...we may have to settle for treatment(s) that can only reduce the severity of T & H. However, if you're at a level 8- 9, or 9-10, going down to a level 3-4 would be such a great relief!...

 

[Marcini]

@jimH Yes anything would be a blessing at this stage. A pill to stop T for 1 hour a day. Anything is better than nothing. Sadly nothing realistically on the horizon.

 

[1MW]

i'm crossing my fingers for the results of richard tyler's 100k music therapy experiment funded by the ATA to be released... hilarious and sad... I'm sure these hacks have to be intimidated by the work going on in actual brain biochemistry currently-- this should have been done 20 years ago but knowing who was on the scientific advisory panel its not suprising that it languised--- by the way - still tinnitus free- sat in an audiologists booth with noice-canceling headphones on for 5 minutes...heard nothing-- my story has reached certain highter ups in the tinnitus community and my audiologist said the general tendency from the people he has talked to regarding my case is that I just habituated

Please can you post your audiograms before with T and after cure that you are T free.
For Example:
before left : 125hz -> 10db, 250hz -> 0db .... etc
before right : 125hz -> 10db, 250hz -> 0db .... etc

after left : 125hz -> 10db, 250hz -> 0db .... etc
after right : 125hz -> 10db, 250hz -> 0db .... etc

Also what is the reason of your T ?
thanks

 

[RichL]

my story has reached certain highter ups in the tinnitus community and my audiologist said the general tendency from the people he has talked to regarding my case is that I just habituated

Ignorance at it's utmost!

by the way - still tinnitus free- sat in an audiologists booth with noice-canceling headphones on for 5 minutes...heard nothing

Awesome bro,
I hope this gives the people on here who are suffering the most, real hope that a cure is almost upon us!

 

[LEOW KW]

count me in!

 

[flkb]

I'd swim across the ocean if there was a cure. Lol
Some days I just wish I had someone who'd be here with me to chat with when my anxiety goes up.

 

[John G]

Did I miss the meeting?

I would definately meetup, even if I was broke, I would hitchhike across the globe to get there.

 

[glynis]

Would love meet up but I won't fly .....lots of love glynis

 

[Ron Robles]

I am in for sure.

 

[SilverSpiral]

i'm crossing my fingers for the results of richard tyler's 100k music therapy experiment funded by the ATA to be released... hilarious and sad... I'm sure these hacks have to be intimidated by the work going on in actual brain biochemistry currently-- this should have been done 20 years ago but knowing who was on the scientific advisory panel its not suprising that it languised--- by the way - still tinnitus free- sat in an audiologists booth with noice-canceling headphones on for 5 minutes...heard nothing-- my story has reached certain highter ups in the tinnitus community and my audiologist said the general tendency from the people he has talked to regarding my case is that I just habituated

WHAT CURED THIS GUYS TINNITUS?????

 

[MikeL1972]

There is a cure for polio. There is even now a cure for Hepatitis C. There is also a way to correct nearsightedness. Why not a cure for tinnitus as well?

 

[Nathalie]

I guess if they found a way to cure hair cell damage then that could cure tinnitus and hearing loss for many people out there (given their problems are due to hearing damage). I don't know if that would be possible however. I am planning on becoming a doctor and this will be my field of research. Imagine curing yourself and others along with you.

 

[wags]

I am planning on becoming a doctor and this will be my field of research.

I would also like to use my expertise to help find a cure for tinnitus, I don't know a lot of hearing companies hiring software engineers though... a transition into bioinformatics would be awesome.

 

[valeri]

WHAT CURED THIS GUYS TINNITUS?????

Trobalt/retigabine

 

[lapidus]

WHAT CURED THIS GUYS TINNITUS?????

Like Valeri said, trobalt/retigabine. He was the first one here to try it.
https://www.tinnitustalk.com/threads/retigabine-trobalt-potiga-—-general-discussion.5074/

 

[maltese]

I would also like to use my expertise to help find a cure for tinnitus, I don't know a lot of hearing companies hiring software engineers though... a transition into bioinformatics would be awesome.

Software engineer here as well.

You can do image processing, it's a lot of fun and it's often an important part of medical software.

No, seriously, if I wanted to transition to bioinformatics I'd totally attempt to do it that way.

 

[Marcos Que]

I am planning on becoming a doctor and this will be my field of research. Imagine curing yourself and others along with you.

I would also like to use my expertise to help find a cure for tinnitus, I don't know a lot of hearing companies hiring software engineers though... a transition into bioinformatics would be awesome.

I'm having these same thoughts to, since I don't have kids or any major financial responsibilities at the moment. I wouldn't mind going back to school and getting into the medical field for inner ear research.

 

[SilverSpiral]

Like Valeri said, trobalt/retigabine. He was the first one here to try it.
https://www.tinnitustalk.com/threads/retigabine-trobalt-potiga-—-general-discussion.5074/

Did his T continue to have stopped after he stopped taking it? Or did he have to take it to relieve his symptoms indefinitely? Will it stop hearing distortion related to hearing loss?

 

[wags]

I wouldn't mind going back to school and getting into the medical field for inner ear research.

MIT (school in America) offers a ton of open courses for biology and the sciences - if you want to wet your whistle before committing, you could see if the topics/course material interest you. They actually even have about 7 graduate classes all centered around the ear (https://ocw.mit.edu/courses/find-by-topic/#cat=science&subcat=biology):

HST.720 Physiology of the Ear
HST.721 The Peripheral Auditory System
HST.722 Brain Mechanisms for Hearing and Speech
HST.723 Neural Coding and Perception of Sound
HST.725 Music Perception and Cognition
HST730 Molecular Biology for the Auditory System
HST750 Modeling Issues in Speech and Hearing

Some are a bit dated (2005), and it would require a lot of reading, but the idea is there.

 

[lapidus]

Did his T continue to have stopped after he stopped taking it? Or did he have to take it to relieve his symptoms indefinitely? Will it stop hearing distortion related to hearing loss?

From what I remember, he took it for some time, then stopped and the T never returned. He considered himself cured. But there is no way of knowing if it was the drug or just time itself since his T was quite new. The drug is being taken off the market anyway because of how dangerous it is. A lot of people on here had negative side effects from it.

 

[Kekistan]

I am definitely in and would do it and I love and would want to visit Paris so why not then.