Meniere's Disease

[jazz]

Here are some links for chiropractic care that have been to reported to help.

Who did they help? That first video is just an infomercial.

 

[ffJimmy]

@jazz

As I stated the second video I do and it helps for about 6 days

The first video is an infomercial of types. It's all information you can take it or leave it, but the atlas joint adjustment worked for me and they're finding different links between Ménière's disease and whiplash and cervical spine trauma. Even my specialist who gave me my regenokine shots said he is also noticing a connection with nerve issues in the neck to Meniere's

 

[jazz]

As I stated the second video I do and it helps for about 6 days

Thank you! That first video just captured my attention and I thought you were referring to it.

 

[Jay M]

Do many people with MD have T long, even years before dizziness starts setting in? Is it subtle in a way you feel a little woozy from getting up to fast or is it like you just got off the tea cups at Disney?

 

[ffJimmy]

@Jay M

For everybody Ménière's disease is different. For me personally my tinnitus I have had since I was a child it comes and goes it's never consistent. My symptoms of Ménière's disease started back in March 2014 and I just felt almost like I have the flu with bouts of nausea and vomiting and constantly dizzy. I've heard when you first get Ménière's disease the beginning symptoms are the worst. Eventually it settled into that woozy feeling like you stand up too fast all the time with severe attacks of superfast Disney teacups. Now I can correlate my tinnitus directly with my Ménière's disease I have bouts of complete hearing loss with tinnitus then that will subside I will get extreme ear pain and then I'll start having spinning attacks

 

[SueR]

I think that the onset is different with everyone too. I have very mild symptoms and progression seems to be very slow with me. Doc said she believes it's early stages. So, didn't come on suddenly with me, except the hyperacusis (which is now controlled, quite well in fact).

so far, just woozy feelings for me.

 

[Teri]

My condition started with what felt like fluid in my ear. Then T came on and progressively would get worse. Now I am with constant ear pressure with varying degrees, dizziness, feeling of unbalance, and brain fog. I also get headaches that cycle around.

Like, Sue, I too am more than likely in the early stages.

 

[MichaelM]

I had about 2 years before the dizziness and 3 years before the first vertigo attack. the first signs were mild.... easy ear pressure and sounds distorting. i have had mild T since the 90´s. with MD it took some years for the Tinnitus from Hell to start.
My feeling is that with MD T isnt the main problem for the most of the sufferers.

 

[MattL]

Do many people with MD have T long, even years before dizziness starts setting in? Is it subtle in a way you feel a little woozy from getting up to fast or is it like you just got off the tea cups at Disney?

My dizziness (full blown vertigo in fact) came only about 2 months after first getting the bad tinnitus. I remember at the time i was playing a first person video game and i simply put that vertigo attack down to motion sickness caused by the game.

It was only when i got the second attack that i realised something was wrong with me. This attack actually came while i was driving a car and it was terrifying. Fortunately i had a friend in the passenger seat who directed me to the nearest hospital. Since i was in an unfamiliar area i don't know what i would have done if i was alone.

I've since had at least 10 vertigo attacks over the 5 year period that i have had the tinnitus, and yes there are some warning signs of an impending attack. Increased tinnitus volume and distorted sounds are the ones i have noticed.

To describe them as best i can....they are simply brutal. When i try to walk i've usually got about 4 or 5 seconds to get to the nearest toilet before i'm vomiting, and then the vomiting usually lasts between 2 and 4 hours. At the same time i go into a full body sweat and my clothes end up saturated when it's all over.

It's a horrible feeling and to be honest i wouldn't wish it on my worst enemy. The only thing that stops me from having a meltdown about these attacks is knowing that in the end, they are harmless. And on a positive note, they are great for weight loss!

 

[MichaelM]

To describe them as best i can....they are simply brutal. When i try to walk i've usually got about 4 or 5 seconds to get to the nearest toilet before i'm vomiting, and then the vomiting usually lasts between 2 and 4 hours. At the same time i go into a full body sweat and my clothes end up saturated when it's all over.

It's a horrible feeling and to be honest i wouldn't wish it on my worst enemy. The only thing that stops me from having a meltdown about these attacks is knowing that in the end, they are harmless. And on a positive note, they are great for weight loss!

Sounds like my attacks....
i dont know what this is but today it´s 7 good weeks in a row. Amazing!
Next time i am in that dark tunnel of suffering from MD please remind of these weeks.

 

[Teri]

@MattL

I may have mentioned this before, Matt, but a constant in what I read about MD is that eliminating salt is a MUST. There are many posts listing various methods in treating symptoms but salt is always mentioned as a culprit.

Hope everyone is having better days. I am leaving for a retreat for a few days. It is a silent retreat which will be hard for me. YIKES...I like to talk too much! LOL

 

[MattL]

@MattL

I may have mentioned this before, Matt, but a constant in what I read about MD is that eliminating salt is a MUST. There are many posts listing various methods in treating symptoms but salt is always mentioned as a culprit.

Hope everyone is having better days. I am leaving for a retreat for a few days. It is a silent retreat which will be hard for me. YIKES...I like to talk too much! LOL

Hi Teri

Yes my doc went through diet with me. I have definitely cut back greatly on salt and have completely eliminated coffee and alcohol for the time being, however there is no way i could ever go "sodium free". I enjoy it too much unfortunately.

Hey!! Have a nice time on your retreat!!

 

[MattL]

Sounds like my attacks....
i dont know what this is but today it´s 7 good weeks in a row. Amazing!
Next time i am in that dark tunnel of suffering from MD please remind of these weeks.

That is such good news Mick! I have personally gone for 8 months symptom free at one stage. I hope you have a good break like i had! I think it's what keeps us going, and makes us realise that there simply must be a way to fix this bloody "disease".

Good luck!

 

[SueR]

Well technically there is no such thing as "sodium free", as its in many produce. Watch ALL packaged foods. Drop that bag of chips )potato crisps!) and make air-popped popcorn and add the salt yourself, sparingly. MUCH less sodium and still get that salt fix.

 

[MattL]

Well technically there is no such thing as "sodium free", as its in many produce. Watch ALL packaged foods. Drop that bag of chips )potato crisps!) and make air-popped popcorn and add the salt yourself, sparingly. MUCH less sodium and still get that salt fix.

Thanks Sue

But easier said than done

 

[1MW]

meniere is a word that describes some symptoms not the cause.
We must find the cause of symptoms.
Persistent bacterial infection can be a cause.
The are bacterial infections that are chronic and give not typical symptoms.
Have anyone tried iv antibiotics ?

Antiviral medications does not work there is not a antivirus drug that eliminate 100% a virus.
But there are antibiotics that can kill 100% all pathogenic bacteria if the antibiotic is correct.
Have anyone except from hyperacusis sensitivity to light ?

 

[SueR]

if it's not the cause, why is it progressive?

I have not had any bacterial infections in my Meniere's ear. At least not in the last decade or two.

 

[1MW]

have you checked for borrelia bartonela toxoplasma etc ?
Have you exposed to animals ?
When iam saying infection i don't mean topical in the ear but systemic infection.
In my opinion idiopathic meniere is urban myth.
There is a cause for symptoms autoimmune & immune responses to pathogens
can be a cause.
Anxiety can trigger an autoimmune response

 

[SueR]

I don't know who you are asking, but my answers:
I don't know.
and no.

 

[Teri]

I continue to feel this is somehow genetic. The path that I have been following with my inner ear problems mirror what my father has been experiencing.

 

[SueR]

maybe how your ear parts are made up from the beginning? propensity for the problems?

I think if you are born with particular parts that are weaker (and it runs in the family), and then you have some kind of insult to the ear parts, then that's where it comes from.

that's scientific-speak. lol

 

[Teri]

Yes, that makes sense. My dad had his violent vertigo attacks typically once a year. They came on when he was about the same age as I am. He has never cut back on salt which may be some of his problem.

 

[MichaelM]

have you checked for borrelia bartonela toxoplasma etc ?
Have you exposed to animals ?
When iam saying infection i don't mean topical in the ear but systemic infection.
In my opinion idiopathic meniere is urban myth.
There is a cause for symptoms autoimmune & immune responses to pathogens
can be a cause.
Anxiety can trigger an autoimmune response

Exposed to animals? I have a dog.

I believe that anxiety and stress can cause almost anything. I didnt believe it before but after experiencing
these MD-tricks i am a believer. MD might be somehow genetic, yes. Many disorders are. My mom and her mom both have/had ear problems.

That urban myth part you could explain a bit more. MD is a well known disorder. Goes perhaps back to ancient times.

 

[MattL]

meniere is a word that describes some symptoms not the cause.
We must find the cause of symptoms.
Persistent bacterial infection can be a cause.
The are bacterial infections that are chronic and give not typical symptoms.
Have anyone tried iv antibiotics ?

Antiviral medications does not work there is not a antivirus drug that eliminate 100% a virus.
But there are antibiotics that can kill 100% all pathogenic bacteria if the antibiotic is correct.
Have anyone except from hyperacusis sensitivity to light ?

Ugh where do we start here?

Those are some interesting conclusions @1MW! Do you have any substantial information backing these claims? Exactly what antibiotic would you suggest beginning with, for the treatment of an ailment which has pretty much bafffled doctors since it was discovered?

If you really believe a persistent bacterial infection would behave the way Meniere's does, i don't think you really know much about it.

 

[1MW]

I don't suggest anyone antibiotic.
I suggest to take exams for bacteria that transmitted from animals (borellia/babesia/bartonela etc).
I you find some then you must check what antibiotics kill this specific bacteria
and is not ototoxic because most antibiotics are ototoxic but not all.

 

[SueR]

"Idiopathic" Ménière's is not an urban myth. It just means cause is unknown. And since we don't know the cause, hard to say "unknown" is a myth.

But as far as your animal theory-- I'm not an outdoorsy person and haven't been on a farm or to a petting zoo. And I hadn't even felt lousy. My H started last year November. morning I felt fine, H in the afternoon. Then I spent a full month in my bedroom and to/from work, that's it. By the time balance issues started, small trips to grocery store. So, no animal exposure.

 

[1MW]

Yes is urban myth there is cause for hydrops if exist.
I think in most cases hydrops does not exist and the symptoms have another cause.
I have these symptoms but one good doctor says me you have something but i don't know what is it
some others call it meniere but who knows what is in your head when you can't open to see it.
Meniere is just a word that says all that sympoms but in spot says nothing is descriptive word such headache such pain in stomach etc.None serious doctor does not make diagnosis "meniere" .
Chriari malformation has same symptoms how you know that you have meniere and not chiari
chiari is more frequent in general population.
http://american-hearing.org/disorders/chiari-malformation/

 

[MichaelM]

Chriari malformation has same symptoms how you know that you have meniere and not chiari
chiari is more frequent in general population.
http://american-hearing.org/disorders/chiari-malformation/

Three letters: MRI.
http://american-hearing.org/disorders/chiari-malformation/#diagnosed

 

[1MW]

Give you mri and an other radiologist.
Also autoimmune diseases exists that have the same symptoms like meniere.
To find solution unfocus from ears have other systematic symptoms ?
For example from eyes have itchy red eyes ? Do you have photophobia ?
Some illnesses are systematic but because the symptoms from labyrinth are more severe the other atypical
symptoms gone unnoticed for long time.

 

[SueR]

* hydrops only confirmed on autopsy.
* still no known reason for hydrops.

therefore, "idiopathic" is the appropriate medical term.