My Lady Di you've certainly had your fair share,was taken back reading your post.You always sound up beat,but I know it's not always like that ,If I could send you flowers I would.So a big hug from me to you XX
Thanks, that's very kind.
Yes, in 1999 I had a massive cerebral hemorrhage, followed by a stroke, due to an undetected congentital aneurysm in my brain. I was in my mid-40s. Came out of nowhere. Most people do not survive this medical crisis, and the few who do often end up with brain damage, unable to walk or unable to speak. I was in a medically induced coma for three weeks.
I initially could not use my left hand or leg (talking, however, never was a problem! I apparently yacked away through my brain surgery). Today, I have a very slight left hand impairment that I never notice, because I am rightie, and very rare short-term recall issues because of an area of brain death. My neurologist and neuro-psychologist have speculated that area may be playing a role in my habituation, although it certainly did not cause my tinnitus. Doesn't really matter, because there isn't anything that can be done about it. I also never will be able to use any of the electro-magnetic devices being tested for tinnitus treatment -- but those that are strictly electrical should be OK.
So yes, I am a lucky girl. I try never to forget to be grateful.
Oddly enough, though, I have to say:
It was easier to recover from this very traumatic, usually fatal medical event (I was in the hospital, a nursing home and rehab for three months) than it has been from tinnitus. I think one reason is that from the moment I came out of my coma and realized what had happened to me, I had doctors and therapists and all kinds of people telling me I was going to get better, that they were going to help me. I believed them. And I believed if I worked hard, I would get better and I did.
When I suddenly came down with tinnitus and panic, I had doctors telling me they couldn't help me. They said there was nothing I could do (not true, of course). Friends told me I just had to "get over" my anxiety. I had to work out a treatment plan completely on my own and, in the beginning, without much support from anyone. The first real help and understanding I received, my first ray of hope, came from here: at Tinnitus Talk.
Anyway, sorry for a much longer post than you imagined you would generate,
@Marlene. But I have been wanting to tell this story for some time, and you opened the door for me. I wish every ENT out there would read this. They have no idea, when they are dismissive, how much they hurt our chances for success.