MuteButton
- Thread starter Jim
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Can you elaborate? Hyperacusis is somehow due to the brain malfunctioning in the same way as tinnitus is?
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
The brain is absolutely powerful enough to silence the sound for those with intrusive T. Just look at every person with hearing loss and no tinnitus.
That logic is quite unorthodox: Occam's razor would suggest that this person just doesn't have intrusive T (no genesis), not that s/he has T but somehow there is a mechanism that suppresses it on top of it.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
I understand the gate control theory differently. If the gate is open, we ALL have tinnitus. If the gate is closed we don't. That is how I would apply Occam's razor. And I see that as the only logical outcome. I have never seen a tinnitus genesis discussion. There isn't some protein, (such as in Alzheimer's or any of the Lewy Body diseases). Gate control and central gain explain how we can all develop tinnitus through mechanisms as hearing loss, or you can not.
IMHO, I do respect yours greatly @GregCA however.
Likewise! No problem discussing & challenging hypotheses & ideas!
Look at Susan Shore's model: she does hypothesize that the hearing loss triggers the maladaptive plasticity responsible for the tinnitus (ie the fusiform cells misbehavior). You could say that this maladaptive plasticity is the genesis, even though we do not know why it happens to some people only. In this view at least, it's not an inhibitory failure.
Perhaps both models are applicable in different circumstances. It wouldn't be surprising, given the complexity of the mechanisms involved in the perception of sound. We're just scratching the surface, really.
- May 9, 2017
- 929
- Tinnitus Since
- 2013
- Cause of Tinnitus
- Noise-induced
They are talking about 'reducing tinnitus symptoms' and 'positive therapeutic benefits' but nowhere does it say that it will reduce the volume... Tinnitus symptoms could also be distress or intrusiveness. Guess only time will tell. (I mean, if this device reduced tinnitus, wouldn't they say it? Why keep it a secret if it can lower the volume?)
The study protocol states that they were going to measure improvement using Tinnitus Handicap Inventory and Tinnitus Functional Index:
https://bmjopen.bmj.com/content/7/10/e018465
Neither THI nor TFI measures tinnitus loudness / tinnitus volume. That's why they cannot advertise reducing the volume. They can, however, advertise reducing tinnitus distress (which THI and TFI both measure).
https://www.irishtimes.com/business...just-the-start-for-neuromod-devices-1.2256123
"Mutebutton comprises a set of headphones, a small tongue pad and a compact control unit. O'Neill says it should be used for 30 minutes a day for a minimum of 10 weeks to get results.
In clinical studies carried out by NUI Maynooth in conjunction with The Hermitage Clinic in Dublin the device has been shown to reduce tinnitus loudness by 42 per cent."
The article is from 2015. Is that still valid or is the Neuromod device a new device different from MuteButton?
€2500 for a device which could potentially reduce tinnitus by 42% after at least 10 weeks of usage? Hmm. I am very skeptical honestly. I don't think that German health insurance will pay for this until some success rates are available.
Does remind me of the Neuromonics/Oasis device, which was sold at a similar price (even higher) and had not much effect.
Looking forward to reports from people who will use it.
Was there any trial?
What does this thing under the tongue exactly do?
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
My tinnitus distress could be reduced if my society would not be filled with noises loud enough to worsen my tinnitus. That is something they can do, but of course they will not.
It is very good to be skeptical, but reality is that we do not know enough to come to any conclusion about the device. There are things that speak to both sides.
Pros:
- large investments.
- scientists from universities from both the US and EU are on board.
- the device in a clinical trial right now with a plan to come to market in 2019. https://clinicaltrials.gov/ct2/show/NCT03530306
Cons:
- no data about trials to read about the device (maybe there is data to come by if you are in academia).
Are there other pros and cons that I have missed? I will say that I am a little biased because I want this to work so bad.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
This device is incredibly similar to Susan Shore's and if you follow the trail of research you would then be aware that people in this research team are ahead of Shore. That is, they were part of the original research that Shore then used to begin her research. This device, Shore's device, and the University of Minnesota device all work on the same principles, just by you using different nervous pathways. In reality, for some of us, this device will work best. For some of us Shore's, and for others UofM's. This is the way why certain medications work better for certain people. Don't fall prey to media and hype. The science is there.
This is no more or no less a scam than any other signal timing device.
This is no more or no less a scam than any other signal timing device.
I always love seeing your posts! They make me feel so optimistic.
I feel a little confused though. Is this company the same as the University of Minnesota that you are apart of? Or is this something different entirely? If it is something different than there are currently three different stimulation / timing devices being worked on?
Sorry for being so dumb.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Thanks! I do not know a ton about the MuteButton it's possible my trial is "similar". When looking at the research it seems MuteButton is closer to what I am receiving. But I don't know for sure. Sorry I couldn't help more!
I am very optimistic at the moment. Things are going great!
That goes against the data they are putting out.
https://www.thetimes.co.uk/edition/times2/tinnitus-the-buzzing-that-never-goes-away-hxs0vbcmr
"After 12 weeks of treatment an impressive 80 per cent of 500 patients experienced a lasting improvement. "To be honest the results are a bit better than expected," Langguth says. Indeed, they're so promising that the device may be approved in Europe for treatment next year, although he stresses that they offer an improvement, not a cure."
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
Haha, sorry but that statement just seems taken straight out of a "scammer's handbook"
I am very skeptic about this, VERY!
.....But I would love to see it work and be be proven wrong and forced to eat my words. LOVE IT!
There seems to be some confusion going on around this device. I keep seeing conflicting information left and right. What they are officially telling us seems to be wrong based on some users "hearsay" evidence.
Not sure what to believe.
- Apr 18, 2013
- 1,633
- Tinnitus Since
- 2003
- Cause of Tinnitus
- Flu, Noise-induced, Jaw trauma
The confusion is exactly what the Code of Conduct we're asking for comment on is going to address. Hearsay with no substantiation, presented as fact, misleads everyone.
Regensburg - where Berthold Langguth is based - have just presented good results from their trials. I know the people there and I haven't heard any different from them.
@EDDTEKK, please share the source and information you believe you have.
@TheDanishGirl, I do agree that the PR is not the best, it's a bit too polished for me. I'm sure there is a balance when doing these things, sometimes you just wish that they would come and ask those of us with tinnitus for an opinion on how it looks. We could be very helpful - and probably very blunt
Regensburg - where Berthold Langguth is based - have just presented good results from their trials. I know the people there and I haven't heard any different from them.
@EDDTEKK, please share the source and information you believe you have.
@TheDanishGirl, I do agree that the PR is not the best, it's a bit too polished for me. I'm sure there is a balance when doing these things, sometimes you just wish that they would come and ask those of us with tinnitus for an opinion on how it looks. We could be very helpful - and probably very blunt
So I am very interested in the reports on the Neuromod treatment.
I am confused about one particular aspect of what I have read.
@Steve - you reported on 9/16 that Berthold Langguth stated the treatment would be available late this year or early next year (in Europe).
But, in the article from thetimes.co.uk, Berthold Langguth states "the device may be approved in Europe for treatment next year."
@Steve and/or @Hazel - can you comment on these seemingly inconsistent reports as to when the treatment will be available?
I am confused about one particular aspect of what I have read.
@Steve - you reported on 9/16 that Berthold Langguth stated the treatment would be available late this year or early next year (in Europe).
But, in the article from thetimes.co.uk, Berthold Langguth states "the device may be approved in Europe for treatment next year."
@Steve and/or @Hazel - can you comment on these seemingly inconsistent reports as to when the treatment will be available?
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