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[JohnAdams]

January launch looks like bullshit to me. I'm thinking more like Spring.

Ya I'd really like a solid launch date...

Or an open source hardware and software explanation of how it works so anyone can make one and help suffering people faster and cheaper.

I would rather die than make one cent off of people's suffering.

I would break even or take a loss and sleep on the ground first.

 

[PDodge]

Or an open source hardware and software explanation of how it works so anyone can make one and help suffering people faster and cheaper.

I would rather die than make one cent off of people's suffering.

I would break even or take a loss and sleep on the ground first.

Agreed.

 

[MidnightOilAudio]

I have the financial means to buy this today if I want, and I would of course report back to the Tinnitus Talk community.

I also at work at the moment and can't wade through the entire thread: do we have a firm release date?

 

[Markku]

I also at work at the moment and can't wade through the entire thread: do we have a firm release date?

Currently the information in our Q&A video is the most up to date one;

When will Neuromod's device be available and where will it be released first?
(Click the link, then Play, and it starts playing from the correct spot).

 

[spedgas]

Currently the information in our Q&A video is the most up to date one;

When will Neuromod's device be available and where will it be released first?
(Click the link, then Play, and it starts playing from the correct spot).

Obviously there are details on multiple fronts that need to be addressed before release. I understand these things take time. I feel like getting audiologists on board and training them will be time consuming. He doesn't even mention US availability and "2019" in the same sentence.

 

[Eric N]

Obviously there are details on multiple fronts that need to be addressed before release. I understand these things take time. I feel like getting audiologists on board and training them will be time consuming. He doesn't even mention US availability and "2019" in the same sentence.

He mentioned they will try to get FDA approval in 2019 so it should not be too long afterwards?

 

[Don Tinny]

He doesn't even mention US availability and "2019" in the same sentence.

So... Argentina 2045.
I will wait. Lol

 

[ruud1boy]

You can sign up on Neuromod's website for updates on products, clinical trials, company news etc. I did so about 3 months ago and to date have received...…………...nothing.

There is no chance on God's green earth that this thing will be live in January. My guess would be Q3 at the absolute earliest. Richard Branson has been promising commercial space travel is 'months away' for the last 15 years and that's something that's been done before. Don't hold your breath people.

 

[dayma]

You can sign up on Neuromod's website for updates on products, clinical trials, company news etc. I did so about 3 months ago and to date have received...…………...nothing.

There is no chance on God's green earth that this thing will be live in January. My guess would be Q3 at the absolute earliest. Richard Branson has been promising commercial space travel is 'months away' for the last 15 years and that's something that's been done before. Don't hold your breath people.

Wasn't their product on the market before when they pulled it? How do we know how many devices they have in their warehouses that just need a software update? This is assuming that the actual device was the same one that was already produced and yanked.

 

[SignalExec]

I'm getting a bit fed up with Neuromod. Their whole communication strategy resembles the way Apple, or any other tech company, tries to hype a product before its release. Rumours, whispers: it's all we have.

How hard can it be for Neuromod to:

• Communicate a release date?
• Communicate a release plan (how and where will the device be available)?
• Communicate about the effect of the device? Hiding behind peer review is bullshit. No journal will reject your paper if you have communicated about the results before. Also, apparently posting cherry picked patient stories on the website is no problem for peer review.

Anyway, I was quite hopeful until recently. However, I'm starting to get a bad vibe. To me, it seems that Neuromod is just trying to boost initial sales with this market strategy such that they sell a bunch of devices before the disappointing stories start piling up.

PS: I've seen the Q and A. My impression was not favorable. The whole thing could have been reduced to 10 minutes without loss of information.

To be clear: I'm not criticizing @Steve for putting this together. I appreciate the effort and without this we would know even less.

 

[spedgas]

I'm getting a bit fed up with Neuromod. Their whole communication strategy resembles the way Apple, or any other tech company, tries to hype a product before its release. Rumours, whispers: it's all we have.

How hard can it be for Neuromod to:

• Communicate a release date?
• Communicate a release plan (how and where will the device be available)?
• Communicate about the effect of the device? Hiding behind peer review is bullshit. No journal will reject your paper if you have communicated about the results before. Also, apparently posting cherry picked patient stories on the website is no problem for peer review.

Anyway, I was quite hopeful until recently. However, I'm starting to get a bad vibe. To me, it seems that Neuromod is just trying to boost initial sales with this market strategy such that they sell a bunch of devices before the disappointing stories start piling up.

PS: I've seen the Q and A. My impression was not favorable. The whole thing could have been reduced to 10 minutes without loss of information.

To be clear: I'm not criticizing @Steve for putting this together. I appreciate the effort and without this we would know even less.

I don't think Neuromod is here to make a sneaky quick misleading money grab. If they are, those motivations will quickly be discovered once the device is available. The damage from that will surely be felt. If they are guilty of anything at this point I think it's starting the hype machine a little too soon. Feeding us only the information they want us to see and making us wait for non study patient experiences will only serve to bring skeptics forward.

The one thing they have early on is that it's clear it won't work for everyone. If it doesn't work those people can easily be cast off as a subgroup. It's one of those you don't know if it will work for you until you try it yourself. Maybe it will be clearer once the data is available, but even they don't seem to have total knowledge over exact typing and who succeeds.

What about the subtypes they excluded from the study to begin with? That's somewhat expected of a condition with so much variability in cause and presentation.

 

[Manny]

If they are guilty of anything at this point I think it's starting the hype machine a little too soon. Feeding us only the information they want us to see and making us wait for non study patient experiences will only serve to bring skeptics forward.

Agree, though for this reason itself I am slightly optimistic - you'd think they'd try and make the Q&A reasonably close to release so as to feed sales based off of interest.

 

[SignalExec]

I don't think Neuromod is here to make a sneaky quick misleading money grab. If they are, those motivations will quickly be discovered once the device is available. The damage from that will surely be felt.

I want to agree. However, think about this from Neuromod's perspective: they have no way of knowing for sure whether audiologists and patients will pick this device up in the long run. There are at least two reasons for concern on their part:

1. Sure, they (say to) have some positive results in a trial. However, their device does not seem to be the wonder cure. Any treatment trial I ever read reports a decreased impact of tinnitus over time (as opposed to silencing the tinnitus) (**). Also, if I understand correctly from the Q&A, the trial did not have a sham treatment condition.
   
2. The second point is that they must be feeling the hot breath of other treatments — for example, the Shore device. Being the first to market is a vast but temporary advantage.

This gives them one sure shot at turning investment into profit: exploit the first-to-market advantage to sell as many devices as possible in the shortest time window possible. Once the hype wears off, who knows what will happen to the sales? But sure money now is better than possible money later.

I am sorry to be so cynical. However, without being cynical, I can't understand why it is so difficult for Neuromod to communicate openly with us. E-mails are answered with corporate speak. Their Twitter account replies to anything with the same precompiled lines of text. Signing up for the newsletter will not get you any news. Finally, their websites newsfeed only lists new hires. But likely, we have a few curated 'patient' (read: trial participant) stories on their website to keep us keen.

Again, I apologize for my negativity, but I hope we can have an open and critical debate about things. In fact, I would feel better if someone were to counter my arguments and prove me wrong.

Footnote: (**) Now we're on the topic, I want to say that I am also a little bit skeptical about the story of Clare on this forum. I do not doubt her story, and I am grateful she's sharing it. However, seeing that her tinnitus disappeared six months after stopping the treatment makes me worried that the treatment was not the cause of her remission. Also, we don't even know which treatment group she was in (the study was double-blind). From the Q&A, I gather there is 66% chance she was in one of the groups that were designed to be contrasted with the standard treatment protocol. Therefore, there is 66% chance she was in a group that was not supposed to work.

 

[spedgas]

I want to agree. However, think about this from Neuromod's perspective: they have no way of knowing for sure whether audiologists and patients will pick this device up in the long run. There are at least two reasons for concern on their part:

1. Sure, they (say to) have some positive results in a trial. However, their device does not seem to be the wonder cure. Any treatment trial I ever read reports a decreased impact of tinnitus over time (as opposed to silencing the tinnitus) (**). Also, if I understand correctly from the Q&A, the trial did not have a sham treatment condition.
   
2. The second point is that they must be feeling the hot breath of other treatments — for example, the Shore device. Being the first to market is a vast but temporary advantage.

This gives them one sure shot at turning investment into profit: exploit the first-to-market advantage to sell as many devices as possible in the shortest time window possible. Once the hype wears off, who knows what will happen to the sales? But sure money now is better than possible money later.

I am sorry to be so cynical. However, without being cynical, I can't understand why it is so difficult for Neuromod to communicate openly with us. E-mails are answered with corporate speak. Their Twitter account replies to anything with the same precompiled lines of text. Signing up for the newsletter will not get you any news. Finally, their websites newsfeed only lists new hires. But likely, we have a few curated 'patient' (read: trial participant) stories on their website to keep us keen.

Again, I apologize for my negativity, but I hope we can have an open and critical debate about things. In fact, I would feel better if someone were to counter my arguments and prove me wrong.

Footnote: (**) Now we're on the topic, I want to say that I am also a little bit skeptical about the story of Clare on this forum. I do not doubt her story, and I am grateful she's sharing it. However, seeing that her tinnitus disappeared six months after stopping the treatment makes me worried that the treatment was not the cause of her remission. Also, we don't even know which treatment group she was in (the study was double-blind). From the Q&A, I gather there is 66% chance she was in one of the groups that were designed to be contrasted with the standard treatment protocol. Therefore, there is 66% chance she was in a group that was not supposed to work.

I'm generally optimistic, but even I've been rolling my eyes at the Twitter feed. It would be better to just not answer people than repost the same "watch this feed" reply.

 

[spedgas]

I want to agree. However, think about this from Neuromod's perspective: they have no way of knowing for sure whether audiologists and patients will pick this device up in the long run. There are at least two reasons for concern on their part:

1. Sure, they (say to) have some positive results in a trial. However, their device does not seem to be the wonder cure. Any treatment trial I ever read reports a decreased impact of tinnitus over time (as opposed to silencing the tinnitus) (**). Also, if I understand correctly from the Q&A, the trial did not have a sham treatment condition.
   
2. The second point is that they must be feeling the hot breath of other treatments — for example, the Shore device. Being the first to market is a vast but temporary advantage.

This gives them one sure shot at turning investment into profit: exploit the first-to-market advantage to sell as many devices as possible in the shortest time window possible. Once the hype wears off, who knows what will happen to the sales? But sure money now is better than possible money later.

I am sorry to be so cynical. However, without being cynical, I can't understand why it is so difficult for Neuromod to communicate openly with us. E-mails are answered with corporate speak. Their Twitter account replies to anything with the same precompiled lines of text. Signing up for the newsletter will not get you any news. Finally, their websites newsfeed only lists new hires. But likely, we have a few curated 'patient' (read: trial participant) stories on their website to keep us keen.

Again, I apologize for my negativity, but I hope we can have an open and critical debate about things. In fact, I would feel better if someone were to counter my arguments and prove me wrong.

Footnote: (**) Now we're on the topic, I want to say that I am also a little bit skeptical about the story of Clare on this forum. I do not doubt her story, and I am grateful she's sharing it. However, seeing that her tinnitus disappeared six months after stopping the treatment makes me worried that the treatment was not the cause of her remission. Also, we don't even know which treatment group she was in (the study was double-blind). From the Q&A, I gather there is 66% chance she was in one of the groups that were designed to be contrasted with the standard treatment protocol. Therefore, there is 66% chance she was in a group that was not supposed to work.

I've also put some thought into the groups they mentioned as not their target. The TMJ group in particular. I believe I belong in that group. Part of the issue with TMJ induced tinnitus is the trigeminal nerve being starved of input due to inflammation and muscle disorders. Wouldn't increased input through the nerve via the tongue be helpful?

 

[PDodge]

They hired the Minnesota guy, that's what makes me think this is legit.

 

[EDDTEKK]

Please don't kill my hopes. I suffer so badly and this stuff sounds so promising... I would fly to Ireland to buy this device.

 

[OnceUponaTime]

We just have to be patient and wait and see.

 

[dayma]

Why are people thinking Neuromod is being nefarious with their communications?
Didn't this site (the admins) pursue THEM to do an interview?

It's not like they advertised a cure and then went silent...

 

[MarkLud]

I'm getting a bit fed up with Neuromod. Their whole communication strategy resembles the way Apple, or any other tech company, tries to hype a product before its release. Rumours, whispers: it's all we have.

How hard can it be for Neuromod to:

• Communicate a release date?
• Communicate a release plan (how and where will the device be available)?
• Communicate about the effect of the device? Hiding behind peer review is bullshit. No journal will reject your paper if you have communicated about the results before. Also, apparently posting cherry picked patient stories on the website is no problem for peer review.

Anyway, I was quite hopeful until recently. However, I'm starting to get a bad vibe. To me, it seems that Neuromod is just trying to boost initial sales with this market strategy such that they sell a bunch of devices before the disappointing stories start piling up.

PS: I've seen the Q and A. My impression was not favorable. The whole thing could have been reduced to 10 minutes without loss of information.

To be clear: I'm not criticizing @Steve for putting this together. I appreciate the effort and without this we would know even less.

This all seems a bit harsh. They didn't go out of their way to make a propaganda video, they were pursued and asked to do a Q and A about the product. Time will tell but Clare originally joined this forum years ago, well before she could've joined the trial. Just read her first ever post on here ... call me a sucker but that sure doesn't sound like someone who's gonna come on here and try and trick us or provide false hope. I'm guessing they just don't have a release date yet and don't want to get our hopes up when there is none yet.

I would like more hard data about its success rate/effectiveness too of course but I can see the reasoning behind being cautious to start out with that to not create extreme false hope -- I mean, almost immediately people on here were criticizing the patient videos that they have put up. So that backlash didn't take very long at all, lol.

Between her story, the video and all the Minnesota stuff we've read on here (from a person in that trial who's posted significantly about his success) AND the fact that one of the top Minnesota folks is working with Neuromod on this, I'm optimistic that one of these treatments is going to help us sooner rather than later.

As someone else said, if it was all complete smoke and mirrors that seems pretty pointless on their part because all it would take is a few people on here to purchase and relay their experiences of no improvement. And then they're a sunken ship.

Either way let's say worse-case scenario it doesn't work ... if they are able to push it to market in the next couple of months, that should get the Minnesota/Michigan folks pressing even harder to get theirs out to capitalize. Help is coming.

 

[Don Tinny]

We just have to be patient and wait and see.

Agree. But there are still several months left for users traveling to Ireland to bring news. And I do not know if the same thing happens to you, but sometimes I need to calm anxiety with news.

 

[Pabl692]

These things take time, unfortunately. I appreciate there are a lot of people struggling and are desperate. But at least the wheels are turning.

This time of year is slow, with holidays etc. Hang in there guys.

Also, someone mentioned somewhere they thought it might be priced around €500. I can't see it personally but who knows. If anyone at Neuromod reads these forums, take it from me: if it is priced around 500, it'll sell like hotcakes.

 

[Karl28]

Is there like any condensed information on this that I can show my parents?

Usually they think any treatment for tinnitus is rubbish. They probably wouldn't sit through a long video on this or read pages of info.

 

[Don Tinny]

Is there like any condensed information on this that I can show my parents?

Usually they think any treatment for tinnitus is rubbish. They probably wouldn't sit through a long video on this or read pages of info.

Maybe the explanation of Dr. Hubert Lim...

 

[ruud1boy]

Also, someone mentioned somewhere they thought it might be priced around €500. I can't see it personally but who knows. If anyone at Neuromod reads these forums, take it from me: if it is priced around 500, it'll sell like hotcakes.

If it does end up priced around £500 and it works, their main concern is going to be what they want to name their 4th superyacht in Monaco - the one they'll just use on weekends.

 

[OnceUponaTime]

but sometimes I need to calm anxiety with news.

Agree. Just trying to remain lady like here you know.

But I come here everyday to check for any news. Biting my nails! ugh!

Quisiera poder visitar Argentina algun dia.

 

[PDodge]

If it does end up priced around £500 and it works, their main concern is going to be what they want to name their 4th superyacht in Monaco - the one they'll just use on weekends.

Fine by me. Silence is my yacht.

 

[Bam]

Fine by me. Silence is my yacht.

You get released from guantinnitus bay you will never want for anything else ever again.

 

[PDodge]

You get released from guantinnitus bay you will never want for anything else ever again.

Oh ya. I'm going full hippy if we get fixed up. Where's my westfalia?

 

[Bam]

Oh ya. I'm going full hippy if we get fixed up. Where's my westfalia?

Same. I'm gonna drop the fuck out forever. You'll find good old Bam slapping a bongo in a tipi right at the back of the far corner of the end of fucking nowhere dressed in nothing and grinning at the moon.