MuteButton

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#2,011
Paulmanlike said:
Can you still hear 11-12 kHz on a stimulator? If so, I suspect this treatment will work for you as you probably haven't lost all dB in that frequency.
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And even higher. I have excellent hearing. So the main issue is the hearing loss. No hearing loss is better for the patient? All you need is to be able to listen to there sound audio output, and the more you can hear it the better? Clare stated that she didn´t have hearing loss but a tonal T which is not high frequency. Thanks for the info.
 
#2,014
JohnAdams said:
Is Neuromod its own small startup company trying to treat tinnitus or is it part of a larger conglomeration of pharmaceutical products companies?
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What the hell is your problem? You have already been answered by @linearb. Neuromod is a startup, originally funded by individual millionaires with tinnitus, now it has gotten an influx of venture capital money.

Neuromod IS NOT part of a conglomeration of pharmaceutical products companies. If you are trying to make a point otherwise, prove it. Or shut up.
 
#2,015
Fake actors eh? I can't imagine they would do something like that.

Daniel Toh would however.
 
#2,017
Helheim said:
Oh no I really didn't need to read this right now lol.
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The Neuromod guy only said a small no. of patients got worse and in most this reversed. Trials have a history of underreporting adverse events with the truth about drugs/devices not emerging til years later; that won't wash in the age of social media. Hopefully he's just being admirably honest.
 
#2,018
If it got worse this already shows bimodal neuromodulation being able to modulate tinnitus; what can be turned up can be turned down. There was someone here who did a DIY bimodal and theirs increased; which isn't a bad thing because you're modulating the tinnitus.

It's all about parameters and then finding the optimum 'dosage' to get to achieve the greatest level of efficacy. They're working on that.
 
#2,019
Paulmanlike said:
If it got worse this already shows bimodal neuromodulation being able to modulate tinnitus; what can be turned up can be turned down. There was someone here who did a DIY bimodal and theirs increased; which isn't a bad thing because you're modulating the tinnitus.

It's all about parameters and then finding the optimum 'dosage' to get to achieve the greatest level of efficacy. They're working on that.
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This is true. With my DIY version I was able to both modulate my tinnitus up and down. Doing it consistently was my issue. So yes, I failed, but at the same time I think it made me have some hope for these devices.

I know some of the other DIY guys on here had similar experiences.
 
#2,020
dayma said:
This is true. With my DIY version I was able to both modulate my tinnitus up and down. Doing it consistently was my issue. So yes, I failed, but at the same time I think it made me have some hope for these devices.

I know some of the other DIY guys on here had similar experiences.
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This shows the theory behind bimodal neuromodulation works, at least for Dayma. I guess the guys working for Neuromod will have to work out the best parameters to achieve optimum efficacy.
 
#2,021
The fact that Hubert Lim from Minessota is working on this device is great news for us. We already know that device nearly silenced @kelpiemsp's tinnitus after one correct session for a whole weekend.

I think this could be the end for most tinnitus sufferers. Sure, some of us won't have relief, but other devices should follow suite soon after when the medical industry sees the profit Neuromod reap, if this IS the real deal here, then these guys might be billionaires months from now.

At any rate, I plan on getting a device in the next few weeks on launch. This might finally be the treatment until Gene Therapy/CRISPR/FX-322 come around to cure the root cause.

At least for me, I can forget about Tinnitus if this works, I'll have to remind myself in the future to get the cure when it comes out since under the hood the cause will still be there years down the road.
 
#2,024
I have asymmetric hearing above 15 kHz. One of my tinnitus tones is extremely high pitched, probably well above 16 kHz. I can hear 16 kHz quite easily on the left ear, and can hear up to 18 kHz or so on the left ear at normal volumes. I have to raise the volume to hear 16 kHz more clearly on the right ear, and I seem to be out at 16.5-17 kHz on the right ear, even at a fairly high volume on my phone frequency generator.

I have read that bimodal stimulation will not work for you if you can't hear your tinnitus frequency.

I'm really worried that MuteButton may not work for me, because I can barely hear my tinnitus frequency out of one ear, if at all. I really don't want to end up with 16-17 kHz+ tinnitus for the rest of my life. :(
 
#2,026
Heinrich_S7 said:
The fact that Hubert Lim from Minessota is working on this device is great news for us. We already know that device nearly silenced @kelpiemsp's tinnitus after one correct session for a whole weekend.

I think this could be the end for most tinnitus sufferers. Sure, some of us won't have relief, but other devices should follow suite soon after when the medical industry sees the profit Neuromod reap, if this IS the real deal here, then these guys might be billionaires months from now.

At any rate, I plan on getting a device in the next few weeks on launch. This might finally be the treatment until Gene Therapy/CRISPR/FX-322 come around to cure the root cause.

At least for me, I can forget about Tinnitus if this works, I'll have to remind myself in the future to get the cure when it comes out since under the hood the cause will still be there years down the road.
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CRISPR is not targeting hearing loss, but things like sickle cell disease and it's being investigated for genetic disorders. I'm sure CRISPR Therapeutics is starting a Phase 1 for sickle cell disease, but CRISPR is all about gene modification. The best hope is in FX-322 which makes the most sense scientifically for hearing loss.
 
#2,029
Nathan said:
I'm really worried that MuteButton may not work for me, because I can barely hear my tinnitus frequency out of one ear, if at all. I really don't want to end up with 16-17 kHz+ tinnitus for the rest of my life. :(
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That's not true. Tinnitus frequency has nothing to do with MuteButton. It is calibrated to your hearing profile, not tinnitus profile.
 
#2,031
Paulmanlike said:
They released it in 2015, withdrew it from the market, and a 4-year wait followed. Hope it is worth the wait.
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I think they saw what Minnesota and Susan Shore were doing and decided to bring out a marketed device using the same methodology. It's probably why they flew Doctor Lim over.

I'm thankful they're putting a device in our hands, can't say the same for Shore or Minnesota who are too busy poking around with testing.
 
#2,033
Allan1967 said:
I was after a definite answer. I heard first quarter too.
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There is no definitive answer, they did target for 2018 originally but they can't be rushed Allan, give some respect to them, if it was a sham treatment it would have been released ages ago, instead they've poured lots of money into 3 trials to convince the community of its efficacy.

You've just got to be patient my man and put up with with it for a bit longer before being able to try if bimodal stimulation works for you.
 
#2,034
Agrajag364 said:
However the Neuromod guy did discuss some patients worsening during the trial in the Q and A.
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It seems to me that anything which has the capacity to *impact* tinnitus (or any condition) can probably make it better or worse. With tinnitus we already know that various drugs (antidepressants, benzos, etc) in some cases cause tinnitus and in other cases can reduce it.

Basically, if something is a metabolically active agent which is causing real changes in the body, there's some risk of it having undesirable effects. So, the fact that bimodal has the potential to push tinnitus in either direction, makes me think it's more likely that there's an actual treatment in there somewhere.

The effect of the device is very self limiting and wears off after a few days of not using it. Based on my experience using the UMich device I would not be concerned about worsening; it would almost certainly be quite short term, and correctable with a tweak to signal timing.
 
#2,036
linearb said:
It seems to me that anything which has the capacity to *impact* tinnitus (or any condition) can probably make it better or worse. With tinnitus we already know that various drugs (antidepressants, benzos, etc) in some cases cause tinnitus and in other cases can reduce it.

Basically, if something is a metabolically active agent which is causing real changes in the body, there's some risk of it having undesirable effects. So, the fact that bimodal has the potential to push tinnitus in either direction, makes me think it's more likely that there's an actual treatment in there somewhere.

The effect of the device is very self limiting and wears off after a few days of not using it. Based on my experience using the UMich device I would not be concerned about worsening; it would almost certainly be quite short term, and correctable with a tweak to signal timing.
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Can you say for definite the University of Michigan device helped your tinnitus? How much volume decrease did you get? Say before treatment 7/10 and after treatment what did it decrease to?

Do you think this Neuromod device will last beyond the therapy period if they've tweaked their device?
 
#2,039
TimmyC said:
I wonder if @Steve is going to give this a shot when it comes out?
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Yes @Steve,
@Markku and @Hazel, I am curious what your thoughts - as the people running this website - are on Neuromod and what your 1view is on this particular treatment?? Your opinion would be appreciated?

Also keen on @Aaron123 and @attheedgeofscience's opinions as well and if they would consider trying this treatment (if ATEOS still has tinnitus).
 
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