My Posting Place

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I use the sound oasis machine at full blast, have a fan working etc to mask it.
damn man, that's rough. you're a very strong person for holding on. I wish there was more money going into a cure for us, especially you. I honestly feel like nobody gives an 'f' about us. I've been spending all of my extra time looking into this. Good chance that I may be on the path to failure but I don't care. It is worth a try. I'm doing this on a small budget, my wife and I only make about $100,000/yr, whereas the BTA makes $4.3 million per year and isn't interested in a cure. I think it is because they know they would be out of the job if there was a cure. I spoke with a chemist today about ly411575 and curcumin and he broke down the shapes of the two molecules for me and explained why they both cleave notch1 and why ly411575 is toxic and curcuminoids are not.

We know big pharma isn't going to look into this, because there would be zero dollars in it for them.

This means that there could be natural cures for all kinds of disease but it would never reach sufferers because no company would invest the funds required to go through FDA approval, which is millions and millions of dollars.

Therefore, the only medical treatments that we will ever get are things that are only made in labs, that require expensive and cryptic manufacturing processes, which most of the time turn out to have negative side effects. Isn't that awesome?
 
damn man, that's rough. you're a very strong person for holding on. I wish there was more money going into a cure for us, especially you. I honestly feel like nobody gives an 'f' about us. I've been spending all of my extra time looking into this. Good chance that I may be on the path to failure but I don't care. It is worth a try. I'm doing this on a small budget, my wife and I only make about $100,000/yr, whereas the BTA makes $4.3 million per year and isn't interested in a cure. I think it is because they know they would be out of the job if there was a cure. I spoke with a chemist today about ly411575 and curcumin and he broke down the shapes of the two molecules for me and explained why they both cleave notch1 and why ly411575 is toxic and curcuminoids are not.

We know big pharma isn't going to look into this, because there would be zero dollars in it for them.

This means that there could be natural cures for all kinds of disease but it would never reach sufferers because no company would invest the funds required to go through FDA approval, which is millions and millions of dollars.

Therefore, the only medical treatments that we will ever get are things that are only made in labs, that require expensive and cryptic manufacturing processes, which most of the time turn out to have negative side effects. Isn't that awesome?

I cant hear on my left ear the sine wave 10khz, on my right ear I can. I feel like my T is 10khz. My T is blasting loud and it can be heard over people's voices, faucets running full blast, tv on volume 50/60, when it is quiet it is like I have a fire alarm in my head. My T is a 7 most of the time but it can be 8 as well. Today its a 7/10 while yesterday and the day before it was a 8/10. I have moderate hyperacusis in L ear and Severe H in right ear, people talking or me talking causes me discomfort. Notice that I had this all since Jan 22 or so and I saw 0 improvement, it never changed, nothing improved. That should alone tell you how fragile our ears are and how susceptible to damage we are. I guess its this wish to resume my life where it left off. I really want to go back to when my T was mild Se 2017-Jan 14. It was barely noticeable and I remember telling my ENT that it dosent bother me, but she still insisted that I do the ear tests, because I might have some hidden ear disease or perhaps leukemia, thyroid cancer, parotid cancer, salivary gland cancer ,etc. I am going to the audiologist Tuesday Sep 11 to see if I still have the 25db drop in hearing or if it improved. I have a hard time hearing people in noise and picking up sounds f,th, and s.

The treatments are keeping me going, but not a day passes where I dont have dark thoughts. Yesterday I envisioned how my funeral would like. I am still going to fight strong and not let all my life go to waste. I have a degree in Mathematics and know multiple languages. One day I would like to return and get a Master in Mathematics so I can teach.

But let's see what happens, for right now I know that I am pretty much screwed when it comes to recovery because I passed the 8month recovery mark.
 
I use the sound oasis machine at full blast, have a fan working etc to mask it.

Try amping it up with several devices. Mine are random things added over the years.

A small two speed fan that will clamp to your nightstand is good. Makes noise, provides air flow, circulation and helps keep your face cool. T makes me intolerant of heat and clostrophobic.

Also a tower type ionizer, three speed, oscillates and has remote.

Also a large dehumidifier with compressor motor.

Mp3 player: plug it into a pair of computer speakers on your nightstand and play something helpful. I like Gregorian chant and similiar of monastic nuns and monks. I've been trying Mozart, meh...

Run the house/apt. fan constantly, and tv.
 
Hey MPP,

Just wanted to pop in and say hello while on vacation. I hope you guys are doing alright and hanging in there.

Thanks for the memes. They made me chuckle and brighten my mood as always.

Jack
 
That's a common fear. Don't buy into it.

You've almost had T one year. Not much time to process a change in your life. Humans perceive change as a hostile force.

We fell into a statistic, thinking we would always be healthy.

It could be worse, we're not alone. Someone had a tragic car crash today, they were hit by someone texting. They're having a bad day too.

T is a change you do not want to accept. We want our old life back. You still deserve to be pissed off. But soon you will accept this and adapt.

You will get your old life back, or one similar. You're a fighter. It will take some time, but you'll be okay.

I hurt too and share your pain. Life goes on and life is good. Whether we like it or not.

I'm reaching out because no one reached out to me. Except for my wife, thank God for her.
Honestly this is like, the last place people on the site want to be lectured on. Especially someone suffering as much as dpdx who has heard this a million times, and it never becomes any less of a platitude. I'm not saying you should stop, just be aware of this.
 
That's a common fear. Don't buy into it.

You've almost had T one year. Not much time to process a change in your life. Humans perceive change as a hostile force.

We fell into a statistic, thinking we would always be healthy.

It could be worse, we're not alone. Someone had a tragic car crash today, they were hit by someone texting. They're having a bad day too.

T is a change you do not want to accept. We want our old life back. You still deserve to be pissed off. But soon you will accept this and adapt.

You will get your old life back, or one similar. You're a fighter. It will take some time, but you'll be okay.

I hurt too and share your pain. Life goes on and life is good. Whether we like it or not.

I'm reaching out because no one reached out to me. Except for my wife, thank God for her.

Thank you. When my T reduces and H fades to 0 I will be back. Notice that I am 8 months in with the 2nd acoustic trauma.

Anyways, what does your audiogram look like? Have you done DPOAE? Audiogram above 8khz?
Is your T mild? moderat? dO YOU HAVE H?

:) :)
 

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