My Posting Place
- Thread starter threefirefour
- Start date
Member
Ya, it's fucked. Funny because I would probably not being doing anything much different. It just that all downtime in my life sucks considerably. I'm not sure what makes me more angry, the noise in my head. or just the fact I have it
- May 29, 2018
- 1,161
- Tinnitus Since
- 10/2017
- Cause of Tinnitus
- Neck/stress
The noise in our heads never let us forget we have it......It's a double edge sword and both edges are nasty sharp.
I would find a MD board certified in Otolaryngology and Neurotology with many years experience.
I don't think I'd let an ENT poke a hole in my eardrum.
PolishSoldier87
Member
- Jan 16, 2018
- 209
- Tinnitus Since
- 12/2017
- Cause of Tinnitus
- acustic trauma, neuro-lyme/rx co-op toxins
@Jack Straw Hi, I'm fine thanks. What about you? My tinnitus is fading day by day. I think in a year or maybe half I will be tinnitus free but this is so unusual. I did some research. I did some vestibular tests and caloric test say that I have damaged left labyrinth but I have also ear canal asymmetry so it is not objective in my case. I did VHIT and they said it's all in normal range. Maybe it's all neuro lyme and it's all HERX reaction. Maybe lyme test is false positive and it's all ototoxicity. I don't know. But I know one thing... I hate this forum and it is so hard and depressive to read all these people post full of suffering so I avoid it. This forum is like hell. It's like dwelling with people that are suffering from fire and brimstone day by day. Hour after hour. It is crazy thing. Many topics and posts look funny but it is just expression of desperation and madness.
I am glad to see you are doing well and glad to hear that your tinnitus is fading!
I wish I could say the same for myself, but that's another story.
Get off here and enjoy the holidays!
"It's like dwelling with people that are suffering from fire and brimstone day by day."
We're one big happy family. Only one way out. And I'm not going anywhere, at least not anytime soon.
Demand experimental medicine, tell the doctors what they think about Frequency Therapeutics, Otonomy or Decibel Therapeutics active research to cure hearing loss and tinnitus. Let them know how you feel about the year 2018 being primitive and backwards time in human history where a man can lose his hearing without the right to try experimental medicine. They probably won't know because they just want to sell hearing aids.
Current research on hearing loss
Company name : Otonomy
Research : Repair cochlear synaptic ribbons
Status : Pre-clinical (trial begins 2019)
Resources below
http://investors.otonomy.com/news-r...ents-data-highlighting-potential-oto-413-otic
http://www.otonomy.com/pipeline/hearing-loss-programs/
Company name : Decibel Therapeutics
Research : Repair cochlear synaptic ribbons
no drug announced yet
These companies are making medicine that should improve speech in background noise which is the most common form of hearing loss. Everyone has some degree of this but more degenerative damage is noticable.
-------------------------------------------------------------------------------------------------------------------------------------------
Cochlear hair cell regeneration
Other clincial phase drugs like FX-322 are regenerating cochlear hair cells by tricking neighboring progeintor cells in the cochlea into regrowing new hair cells. This is meant for more degenerative forms of hearing loss because current research indicates that ribbon synapses die before hair cells.
Company name :Frequency Therapeutics
Drug name : Fx-322
Resources to follow them
https://www.tinnitustalk.com/threads/frequency-therapeutics-—-hearing-loss-regeneration.18889/
https://clinicaltrials.gov/ct2/show/NCT03616223
http://www.frequencytx.com/
What to do now?
In the mean time take magnesium and b-12 along with the steroid to atleast get the most recovery possible but once again this is a bad scenario to be in. Due to the fact that cochlear ribbon synapses are the most vunerable element in the inner ear even if the hair cells recovery your hearing will not be able to make a full recovery with current technology.
Scientific research I cited
Future medicine to regenerate cochlear ribbon synapse repair (Decibel Thearpeutics and Otonomy are practicing this)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4842978/
Future medicine medicine to regenerate cochlear hair cells via Frequency Therapeutics method
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5534485/
Tinnitus is the brain making a phantom noise due to a loss of hearing
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4208401/
A full recovery of hearing loss is impossible in current day due to ribbon synapse death
https://www.ncbi.nlm.nih.gov/pubmed/28087419
Magnesium helps restore hearing to a limited extent
https://www.ncbi.nlm.nih.gov/books/NBK507266/
So basically the whole auditory business is so fcking complicated and convoluted, even leaving T aside I will never hear music the way I did before I went to that stupid bar, is that right?
Kindly KMN, what is life without that beauty of music? Nothing, for me.
Seriously. I screwed it up and it's over. Wow. The finality.
@Contrast
sup yall i'll be a bit more enthusiastic and not so depressing for once
i've got mild hearing loss showing on audiograms so i won't put too much hope in it but i went to see a physical therapist specialized in jaws who diagnosed me with overworking jaw muscles because i can't properly close my jaw (not going to say TMD or TMJ because fuck that. spend 5 minutes reading about it and you'll realize it's everything and nothing mashed together)
gonna get a splint as soon as i can see a dentist in a month or so
tl;dr: possible tinnitus reduction after 5 minutes seeing some guy which costs me nothing(g*d bless euro healthcare)
btw never had jaw pain or jaw problems here so it isn't as obvious as it might seem so get it checked if there's someone close to you!
i've got mild hearing loss showing on audiograms so i won't put too much hope in it but i went to see a physical therapist specialized in jaws who diagnosed me with overworking jaw muscles because i can't properly close my jaw (not going to say TMD or TMJ because fuck that. spend 5 minutes reading about it and you'll realize it's everything and nothing mashed together)
gonna get a splint as soon as i can see a dentist in a month or so
tl;dr: possible tinnitus reduction after 5 minutes seeing some guy which costs me nothing(g*d bless euro healthcare)
btw never had jaw pain or jaw problems here so it isn't as obvious as it might seem so get it checked if there's someone close to you!
So British Tinnitus Clinic is just a way-overpriced scam under the guise of British high class?
How can playing the sound of your tinnitus be any different that actually hearing your tinnitus? This is more snake oil and isnt that what the FDA is supposed to be protecting us from? Snake oil?
PLEASE BE RIGHT XXXXXX
The problem is that contemporary medicine is, like never perfect.
I'm just picky about doctors.... as well as auto mechanics.
Why not go to a Otolaryngologist / Neurologist if it cost the same.
Good question. However, would you rather go to the one with more experience in the procedure as opposed to some title?
More experience as well as reputation and acceptance among peers. The titles are merited, they're excellent technicians who do surgeries and procedures on a routine basis. I'm not a big fan of "doc in a box" but I do realize there are many good doctors out there, auto mechanics too.
"Susan E. Adams is a skilled audiologist with unique expertise in the evaluation and treatment of tinnitus (also known as ringing in the ear) and hyperacusis. She serves as supervisor of CHC's Tinnitus and Hyperacusis Center and specializes in Tinnitus Retraining Therapy (TRT), a technique that has proven highly effective in alleviating the debilitating symptoms of severe tinnitus and hyperacusis. Having earned her audiology degree at Ithaca College with further studies under the esteemed Dr. Pawel Jastreboff, Susan serves an adult roster of clients with and without tinnitus. She is regarded as one of NYC's leading audiologists specializing in tinnitus."
Funny reacts only pls
Funny reacts only pls
Me too. Might as well spend New Year's Eve here too. I live a very exciting life these days. The people are good though.
That might be an exaggeration or you're being sarcastic... I still haven't figured you out, which is a good thing, more interesting.
Maybe you're serious, which is okay too.
Whichever it is, it's all good....
EEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEWEWWPPP
Last edited:
Log in or register to get the full forum benefits!
Similar threads
