My Posting Place
- Thread starter threefirefour
- Start date
Member
- Dec 21, 2019
- 319
- Tinnitus Since
- 2014, 10/2019
- Cause of Tinnitus
- School Band, Noxious Car Radio
The claims are insane, there is no scientific proof of their mechanism of action. Save your money, this is absolute pseudoscience. Total scam.
- May 9, 2017
- 929
- Tinnitus Since
- 2013
- Cause of Tinnitus
- Noise-induced
Source
Also:
Also:
- "The main difference is that those who find tinnitus troublesome, evaluate and perceive it as a threat, or an annoyance, rather than something of little or no consequence" (because loudness doesn't matter at all)
- "Sadly, some people think because tinnitus can return after TRT that 'the treatment has failed'. As the goal is to get rid of tinnitus reaction, rather than tinnitus perception – provided you have achieved this, then TRT is always successful, and permanent"
- "Once the truth about tinnitus, its natural, benign and fundamentally normal origin is known and understood, all the unpleasant reactions gradually disappear"
The thing is, people intuitively know better than this too. No one is offering opioids for canker sores because they know that level of pain doesn't give anyone severe distress.
It doesn't matter what neuro-psychologist say. They can idolize CBT, TRT and ACT till the cows come home. They are still wrong and people are starting to realize it.
JulianBrumbelow
Member
- Apr 5, 2018
- 219
- Tinnitus Since
- 03/14/2017
- Cause of Tinnitus
- loud headphones audio work
Gotta love that "TRT don't miss!!!" sentiment from www.retards.org love their publications nice ref!
What are some of your guys' favorite cop-outs/pieces of advice? Some of mine:
- It's your perception of tinnitus that's the problem, not the tinnitus itself *dunk, crowd goes wild* shoutout @Autumnly for the lob
- At least it's not "something worse" like cancer (no joke I'd rather have 50/50 odds of dying from some non-tactile based disease than this)
- Oh I've got that! I can hear it like in the doctor's office while I'm waiting.
- Tinnitus is not well-understood, that's why it's hard to fund/raise awareness
- Your ears are just as healthy as everyone else's; wear earplugs & attend concerts s/o ATA!
- Literally any of the ATA's success stories lmao
- Lots of people have it so it can't be that bad
John's gonna drop an EP inspired by Frequency's phase II trials this December, wait on it.
A couple other galactic brain takes:
-Celebrity X has tinnitus, and he isn't a massive activist, therefore it must not be that bad.
-Going to tinnitus forums is unhealthy because they disagree with me and my perspective is the only good one.
-But there is a cure. Have you ever heard of TRT?
-You're only a "tinnitus sufferer" if it bugs you. Ignoring it is as good as a cure.
-Okay, so TRT is pseudoscience. If it doesn't work but people think it works, then it's perfectly good. Also I don't understand the placebo effect.
The thing I don't get about this is that they don't try to say this for chronic pain. Yes pain is considered a more unpleasant experience than sound, but I had a few years of mild to moderate chronic pain and it simply wasn't as hard to put up with as loud tinnitus.
Nobody ever tried to tell me that it was only my reaction to the pain that was the problem, not the pain itself.
It is a taboo subject for anyone to raise awareness for a non-letheal disease. You have to understand how normies think. They want to serve a master and master doesn't care about their suffering.
I think society is increasingly sociopathic and they want an excuse not to care. What better excuse than victim blaming the sufferer for their suffering?
What's with this idea that if your doctor or audiologist doesn't have tinnitus he/she can't help you? Can bald men not cut hair? I have treated chronic feline herpes without having it myself. What a strange idea.
Look a Linux app for people with tinnitus!
http://www.webupd8.org/2017/06/ambient-noise-anoise-player-fixed-for.html
http://www.webupd8.org/2017/06/ambient-noise-anoise-player-fixed-for.html
2 bouts of chronic spine pain for years; would gladly trade tinnitus for it + another disease any day.
And with 5 votes this week, you all are voted off the island.
Attachments
The five who voted yes must all be from research teams who research tinnitus and CBT
- May 9, 2017
- 929
- Tinnitus Since
- 2013
- Cause of Tinnitus
- Noise-induced
To be honest, I was more shocked by the 17 votes for reduced tinnitus-anxiety. How is that going to help us?
Holy shit I totally missed that.
To be honest none of them were meat and potatoes research, but very little tinnitus research is. The DMT thing was funny but so impractical. I knew people would vote for it just because psychedelics are interesting to employ in clinical studies. Taking DMT for tinnitus would be batshit insane.
The more we suffer the more NIH grants go towards CBT and ACT. Your suffering is their career.
Meanwhile the boomers are all busy buying snake oil from shady infomercial clickbank scams.
What kind of reality are we living in?
Meanwhile the boomers are all busy buying snake oil from shady infomercial clickbank scams.
What kind of reality are we living in?
- Jan 1, 2019
- 708
- Tinnitus Since
- Steadily worsening since 2018
- Cause of Tinnitus
- Unknown
If they were well read on the subject and understanding of the emotional horror of tinnitus, they would be better at their job.
They learn these ideas from TRT and CBT and think they understand tinnitus, but many of us who have it don't feel they understand the first thing about it. Trusting my doctor is what made my tinnitus 10x worse and I'm very frustrated at that idiot talking about things he had no clue about.
Many people seem to feel that doctors are doing the equivalent of scoffing at a person without legs and telling them to suck it up and crawl out of the office. "If you were capable of positive thinking, you would be fine! Instead you focus on the fact that you have no legs and that's what's holding you back from walking out of here and going to work!"
- Jan 1, 2019
- 708
- Tinnitus Since
- Steadily worsening since 2018
- Cause of Tinnitus
- Unknown
Those paragraphs were supposed to be two different posts that got edited together in one post so it sounded like related ideas but they weren't.
The second point was in regards to the idea I see repeated that doctors can't help you because they don't have tinnitus themselves and don't understand when actually they could very well understand the science and the reality if they were interested.
- Jan 1, 2019
- 708
- Tinnitus Since
- Steadily worsening since 2018
- Cause of Tinnitus
- Unknown
- Jan 5, 2020
- 90
- Tinnitus Since
- 2011, Spike 2019, Spike 2020
- Cause of Tinnitus
- 1e Loud Music, 2e earwax irrigation, 3e padel tennis
@Autumnly
I was shocked by that as well. I mean come on, lets treat the problem not the side effects.
JulianBrumbelow
Member
- Apr 5, 2018
- 219
- Tinnitus Since
- 03/14/2017
- Cause of Tinnitus
- loud headphones audio work
- Dec 21, 2019
- 319
- Tinnitus Since
- 2014, 10/2019
- Cause of Tinnitus
- School Band, Noxious Car Radio
I mean the Cochrane review on CBT is not a bad paper. It actually highlights the lack of proof and efficacy from the protocol.
If people voted for it thinking like "we need more research on what the establishment think is a cure to debunk it" then why not. I don't know. There's no really good choice among the papers IMO. Unless with every vote comes a justification. Without that you end up thinking "so tinnitus patients do think we need more research on CBT" which is... not the case?
If people voted for it thinking like "we need more research on what the establishment think is a cure to debunk it" then why not. I don't know. There's no really good choice among the papers IMO. Unless with every vote comes a justification. Without that you end up thinking "so tinnitus patients do think we need more research on CBT" which is... not the case?
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