My Posting Place

Presumably there are sufferers who do benefit from therapeutics.
I have had no CBT or TRT but have benefitted from some in-house hypnotherapy.

Is it your ambition to close down all clinics and therapy centres.
What gives you the right to choose for other sufferers?
More money is spent on TRT and related therapies then research for a cure
@threefirefour do you have the list of the ATA's and BTA's budget?
 
More money is spent on TRT and related therapies then research for a cure
@threefirefour do you have the list of the ATA's and BTA's budget?
Exactly this. Anyone who says otherwise has no idea how these tinnitus institutions (like ATA and BTA) are spending their money. ALL of it needs to go to research.

And for the budget, I got ATA's tax exemption form and BTA's 2017 overview (page 7)
http://www.ata.org/sites/default/files/IRS_990_Jun2016_0.pdf
https://www.tinnitus.org.uk/Handlers/Download.ashx?IDMF=74ecb274-a577-45a7-8dfd-f95cfa852b88
 
So you would leave all sufferers without psychotherapeutic options.
Well, fortunately, of course, you will never get your way.
 
We do have to remember Tinnitus Talk is world wide and I know your not happy about TRT and I know it is on it's way out on the NHS in lots of hospitals and CBT in it's place as can be used for more problems other than tinnitus.
In the UK CBT,hearing aids,white noise generators and sound generators and support groups are most people's options and forums etc.

Lets hope more research for a cure for every sub type of Tinnitus is found .
Love glynis x
I do like looking on here .
 
We do have to rememmber Tinnitus Talk is world wide and I know your not happy about TRT and I know it is on it's way out on the NHS in lots of hospitals and CBT in it's place as can be used for more problems other than tinnitus.
In the UK CBT,hearing aids,white noise generators and sound generators and support groups are most people's options and forums etc.

Lets hope more research for a cure for every sub type of Tinnitus is found .
Love glynis x
I do like looking on here .
Thanks and I agree. A cure for all would be awesome. Still just because these are the only options doesn't mean we should spend money researching them. We need all proceeds from tinnitus organizations to go to actual treatments.
 
ATA,BTA,TT,TH and others do a fantastic job and research funds are needed desperately but not reducing the only help available at any cost .
Love glynis x
 
I can see why there's health condition frustration and it's a complicated environmental and economic situation. Most with tinnitus don't have bothersome issues. For the ones that do, then this is where the debates begin with the complex issues surrounding available treatments as seen on talk message boards. Many of us have posted valuable links of highly professional research with treatment options, but it appears that many don't bother to read. My guess would be that the average improvement rate for all treatments of moderate/severe tinnitus is beyond 20%. That's for both noise induced and physical cause. As to where to get many of these treatments is blowing in the wind.

One frustration is that treatment for tinnitus can at times be a catch 22. Vitamin C can help both with noise induced hearing loss and physical tinnitus as oxygen and circulation therapy matters. For a few, even a high intake of Vitamin C could cause other problems such as stones. The number one negative for those with neck tinnitus is heavy headgear or noise blocking headphones.

The Cleveland Clinic does studies and treatment for those with facial tinnitus trauma related to neck, jaw, TMJ/D and nerve imbalance with great success. For a fact, I know that the 2 largest hospital associations in my area for ENT consultation average 25 minutes. Most ENTs do not have the knowledge or time to go beyond standard treatment. There's an ENT site that anyone can visit, but it's hard to post unless you are a medical student or doctor. There's hundreds of topic conversations where ENTs ask each other dumb stupid questions that include how to treat those with tinnitus. And that famous phrase is often mentioned, but they do discuss often how much money they make and that's expressed as fast patient turnover. Some professional articles state that 50% can see at least a 25 percent tinnitus deduction with proper healthcare treatment.
 
ALL of it needs to go to research.

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What did Jazzer mean by this?

Fortunately sufferers will not be left high-and-dry without any
therapeutic support.
There are plenty of good people around who will see to it that this
scenario does not play out.
Just my opinion......x
 
Well considering that tinnitus is 24/7 anyways, I have absolutely no impact on that result. So it's not like it's "courtesy of TFF" anyways. In fact if anything, I'm helping them out because I'm shilling for actual research.
Fortunately sufferers will not be left high-and-dry without any
therapeutic support.
There are plenty of good people around who will see to it that this
scenario does not play out.
Just my opinion......x
Oh really? Well I'm sure they will, only charging a small fee of an obscene amount of money. Yeah "good people" indeed.
 
Can someone explain the difference between somatic and non somatic tinnitus? I hear my tinnitus create a new tone when I yawn or bite so I'm a somatic
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oi

also before I joined threefirefour assumed only TMJ neck/jaw tinnitus sufferers had somatic tinnitus
 
Can someone explain the difference between somatic and non somatic tinnitus? I hear my tinnitus create a new tone when I yawn or bite so I'm a somatic View attachment 18843oi

also before I joined threefirefour assumed only TMJ neck/jaw tinnitus sufferers had somatic tinnitus
Technically yeah to some degree, but somatic has come to mean any tinnitus that can be modulated so I went with that definition too.

And that means somatic luckily. Any tinnitus that can be modulated. But can you make it louder by doing anything?
 
@threefirefour I think you realize that the California healthcare system is very expensive and treatment appears to be miles behind Europe when it comes to tinnitus. There's many people in Cal and the insurance system is a mess. It can take up to 4 months or longer to see a well rated ENT or neurologist if you have physical tinnitus. The waiting room walls of other ENT offices called clinics are lined with patients. If you walk into an ER in my area complaining of ear ringing, it can take 8 to 12 hours to be seen where you will be asked to make an appointment with an ENT after a very quick exam. The waiting rooms in both ENT offices and ER services are filled with patients with sinus and ETD problems. Some areas such as San Francisco, Silicon Valley and parts of LA where the rich live, treatment is more detailed and appointment times are not usually long.
 
@threefirefour I think you realize that the California healthcare system is very expensive and treatment appears to be miles behind Europe when it comes to tinnitus. There's many people in Cal and the insurance system is a mess. It can take up to 4 months or longer to see a well rated ENT or neurologist if you have physical tinnitus. The waiting room walls of other ENT offices called clinics are lined with patients. If you walk into an ER in my area complaining of ear ringing, it can take 8 to 12 hours to be seen where you will be asked to make an appointment with an ENT after a very quick exam. The waiting rooms in both ENT offices and ER services are filled with patients with sinus and ETD problems.
ENT's are useless for tinnitus
 
Technically yeah to some degree, but somatic has come to mean any tinnitus that can be modulated so I went with that definition too.

And that means somatic luckily. Any tinnitus that can be modulated. But can you make it louder by doing anything?
yawning in a certain way
raw.png


however it feels like its creating a new tone.
 
upload_2018-5-31_19-24-39.png

I meet the criteria for all of these things but once again it feels like a new tone and I did not have it before hearing loss unless I yawned as loud as a could and it was extremely faint tonal noise. sorry if I didn't mention that the first time. Now if I yawn as loud as I could I hear an electronic screech
 
Can someone explain the difference between somatic and non somatic tinnitus? I hear my tinnitus create a new tone when I yawn or bite so I'm a somatic View attachment 18843oi

also before I joined threefirefour assumed only TMJ neck/jaw tinnitus sufferers had somatic tinnitus

The tinnitus in my right ear gets louder when I yawn, but it also gets louder when I turn my head to the right. Don't know what it means (if anything), but I do know that it is annoying.
 
The tinnitus in my right ear gets louder when I yawn, but it also gets louder when I turn my head to the right. Don't know what it means (if anything), but I do know that it is annoying.
The earliest treatments to hit market (sometime 2019-2020) are targeted at only these types of tinnitus. So it's definitely a lucky break.
 
@Contrast I can change my tinnitus from moving my tongue or touching my jaw, eyes or face. It's like a musical trying to open my mouth to brush my teeth or eat. I have lingual dystonia - moving tongue from whiplash complications of neck and jaw.
 
The tinnitus in my right ear gets louder when I yawn, but it also gets louder when I turn my head to the right. Don't know what it means (if anything), but I do know that it is annoying.
@Contrast I can change my tinnitus from moving my tongue or touching my jaw, eyes or face. It's like a musical trying to open my mouth to brush my teeth or eat. I have lingual dystonia - moving tongue from whiplash complications of neck and jaw.
me too. we are all somatic friends
images?q=tbn:ANd9GcSaYzFJgqR_MqMwgko93C43UjtCiZK9GFf-bTi5zznVWHhPXN3ZBA.jpg
 
@Contrast I can change my tinnitus from moving my tongue or touching my jaw, eyes or face. It's like a musical trying to open my mouth to brush my teeth or eat. I have lingual dystonia - moving tongue from whiplash complications of neck and jaw.
I can change mine by doing literally any sort of body movement. Even curling my toes.
MPP is growing fast.
More somatic friends join everyday
 
upload_2018-5-31_20-32-3.png

she has two crowns to represent being in the Hall of fames Hall of fame.
The HOF'S HOF
 
If my ears made externally audible noises when I modulated my tinnitus I'd literally be a walking instrument.

Somatics unite!
 
Maybe he's due for an oil change? Updating his meme databases or something...

jay777 robot.jpg

Real talk though he's probably fine he was last seen yesterday, maybe just taking a break from MPP. Gotta get meme ideas from somewhere you know... Still want him back though :cyclops:
 
@Greg Sacramento

Are you in the medical field? You seem to know more than most doctors I've seen from where I am. In fact, some of your posts are what informed and inspired me to look past the misdiganoses my doctors have given me. I have a strange trigeminal nerve condition that causes constant discomfort and sometimes pain (not neuralgia), which I think contributes to my tinnitus, but doctors were so quick to dismiss me as ''crazy'' without even performing protocol testing or doing a nerve conduction test...

Anyway, you're doing god's work friend. Thank you for taking the time out to help people around here with your vast knowledge. I just wanted to let you know that sometimes you help people whom you don't answer directly and I am one of those. I might try to pick your brain if what I think is wrong turns out to not be wrong, but of course answering is at your own leisure and discretion.

you-the-beth.jpg
 

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