Thank you lord of the Ring...I guess you're right...sigh.Don't let that become your mantra, lassie. Life is beautiful before tinnitus and during tinnitus and nobody knows how it is after tinnitus. Probably very scary and silent
Thank you lord of the Ring...I guess you're right...sigh.Don't let that become your mantra, lassie. Life is beautiful before tinnitus and during tinnitus and nobody knows how it is after tinnitus. Probably very scary and silent
Thank you Roan ,Karen and Paul ,I'll read up about Adrenal Fatigue. Thank you all for being here, with so few people in real life who really understand what you're going through, it feels very lonely at times.Hi, @Roan,
I agree with you about the connection with adrenals and tinnitus. My tinnitus (which I had for many years, and was quite mild) got worse after I took blood pressure medicine for the first time. That was in 2010, and I experienced a lot of other bad symptoms around that same time.
Finally, I was referred to a lovely doctor who believes in natural cures. She tested me (saliva test) for adrenal fatigue back in 2011, and my tests came back positive. Adrenal fatigue is a tough thing to fight in itself, and I have tinnitus and pulsatile tinnitus as well!
I am feeling much better, adrenal-wise, and my tinnitus has improved, as well! I really believe that these things were somehow all connected. The central nervous system definitely plays a role in these processes, and when it goes out of whack, imbalances are created. Thanks for bringing up this topic!
Hi Karen, thank you so much for asking. I was so much better after a month of gingko biloba,b12,zinc, etc. but unfortunately I have to travel a lot and flying makes it worse , last time it took me 2 weeks to get back to normal, then I flew again and that too on small 8 or 10 seater planes, I used ear plugs, still I got very worse v depressed once again.Hi, Sherri,
Are you continuing to do better? How are you doing now?
Also, I should point out that I am hypothyroid. There is a connection between thyroid and adrenals, which could have set off my tinnitus. Do you still have the fatigue?
Sorry to hear that Roan, hope it gets better soon. Last night I just couldn't fall asleep, it was so annoying, cried all night. Trying to be brave, but not sure what's going to happen.....I think alcohol exacerbates my tinnitus. Sometimes I have a glass of wine at night, and the next morning my noise is worse.
Although I didn't have any alcohol last night, and today it is SOOOOO LOUD!!!! Ugh!!!
Thank you so much Karen, so kind of you to write this, makes me feel better and gives me hope, yes I do keep some white noise on at night and sometimes use the water sound from you tube videos. Today all day was not too bad, but suddenly it's loud now, just before bedtime, feeling sad once again. Thank you all for being here, feel lonely as family and friends really don't understand the pain I'm going through. Does sugar make it loud ! I did have one small piece of some sugary sweet after supper. Thank you xxSherri and Roan,
Sorry to hear that both of you are having problems. Tinnitus is so unpredictable, it's hard to tell sometimes what helps and what doesn't. Alcohol doesn't make mine worse, but I've had balance issues, so I prefer not to drink at all these days, except for maybe a glass of wine for special occasions.
Sherri --- I agree with you on the supplements you're taking. Those are all good ones, that, in time, will really help.
Sleep can also be a very real problem; I used to hate going to bed, because it was so hard to get to sleep. I don't exactly know what happened, but I am now sleeping again.
All I can tell you is that, if you can distract yourself with sounds (sounds of water work well for me), and/or with mental activities before bed, it seems to help. And, as most of us who've had tinnitus for awhile will tell you, it really does get better with time. (Hard to believe right now, I know, but true!)
Hi, @Sherri,
Yes, for some people, sugar can make it louder -- temporarily. In the earlier days of tinnitus, it's probably a good idea to watch your diet, and see what foods set off your tinnitus. Later on, you may find it doesn't matter so much what you eat. That's how it has been for me, at least.
Do you have a particular time of day when it gets worse? I've found that mine is worst in the late afternoon/early evening. It tapers off somewhat in the late evening. It is at its quietest for me in the morning. If you can figure out a pattern, you can learn to kind of work around it. Take care!
Thank you so much Karen , Roan. It's always great to hear from you both xox. Yes mine is always worse in the morning when I wake up then gradually it gets better, but these days I'm seeing a different pattern it's same all day long since I travelled and am in Montreal for a month, being not at my own place and own routine plus the noisy planes have made it worse. Before after a very long walk in the evenings it would get much better, I've been too tired to walk last 3 days, will start walking soon and see if anything changes. I've been reading up about adrenal fatigue. I know when the T started that week ad been very stressful and tiring for me and I had taken too many aspirins. My bp has never been high. Thank you for suggesting Adrenavive or Siberian Ginseng will start taking it immediately. I don't know about tv I never watch it anymore all spare time is spent researching the darn T thank you so much for your kind encouraging words this forum is keeping me alive. Will keep you updated, this Tuesday I'm going for Acupuncture and see a naturopath , she's Chinese, a friend suggested I go to a Chinese Acupuncturist. I had 5 sessions of acupuncture two weeks back too, no change other than that it relaxed me so much as long as the session lasted. Thank you so much , Karen, Roan xox just want my life back take care xxHi, @Roan,
Yes, I think there might be a connection between blood sugar and tinnitus levels. Did I mention that, when my tinnitus got really bad 3 years ago, I was diagnosed with adrenal fatigue? That kind of went along with it, I think. I was really careful about my diet after that, and am just now expanding on what I'll allow myself to eat. When the adrenal fatigue first started, I took herbal remedies that really helped. My naturopathic doctor suggested Adrenavive, which contains Siberian ginseng, etc. That really helped me a lot!
Interesting that yours is worse in the morning. Many of the people on TT have said theirs is worse in the morning. I think mine is definitely related to adrenals, because it's in the late afternoon that my cortisol level is low. As my adrenals have improved, my tinnitus has settled down, as well.
Yep, the sound of the T.V. is a problem for me, too. Don't know what it is about the level of the sound, but I find it hard to watch T.V. for more than about 1/2 hour at a time. Needless to say, I don't watch T.V. much any more!
I wish you and Sherri the very best, and know you will both find a way to cope with it. Take care!
Don't let that become your mantra, lassie. Life is beautiful before tinnitus and during tinnitus and nobody knows how it is after tinnitus. Probably very scary and silent
Hi Olivia sorry to hear about your PT, Karen wrote an excellent reply. Wanted to let you girls know my Acupuncurist had a cancellation and called me in this evening, as usual it did relax me a lot, but ofcourse I need to go few more times....which I cant as the place is far from my daughter's place just the cab cost me $40.00 and the first consultation and Acupuncture was $75.00Hi, Olivia, and welcome!
I have PT, too, and there are several other people on this forum who have it, as well. We're all searching for answers, and, as you may know, there are various causes for pulsatile tinnitus.
Here are my suggestions, from my own experience to date:
1) If your general practitioner is not able to help you, you might try going to either an ENT or a more specialized doctor, such as a neurologist or, if you have one in your area, a neurotologist. Neurotologists are specialized in otology as well as neurology, and may have a better understanding of your condition.
2) If the PT does not go away soon, you might suggest to your doctor (ENT, otologist, or neurotologist) that you have some tests done to rule out any specific problems, such as aneurisms, fistulas, etc. They can send you for tests such as a CT scan or an MRI, to test for these things.
3) If you haven't already, check out the website Whooshers.com. This website is a great source of information for pulsatile tinnitus sufferers, with a definition of what pulsatile tinnitus is, possible causes, and success stories of cured "whooshers". Also, from the website, you can join a closed group of PT sufferers on Facebook, and share information and stories with them.
You are going to be all right. Believe me, I know how annoying it is and how hard it is to sleep with the pulsating going on. The main thing I read over and over again on the Whooshers.com site is to "never give up". Pulsatile tinnitus is not the same as ringing tinnitus, and there may be a very different cause. If one doctor cannot help you, keep trying until you find one who can. Many doctors do not know much about our condition, so they can only tell us to "live with it". Keep trying until find that one doctor who can help!
In the meantime, it's important to stay calm and try to get some sleep. I've been using background sounds to help me sleep (water sounds work well), and, for me at least, taking magnesium just before bed really helps.
Stay strong, and please update us after you've seen your GP!
Hope you all are feeling better and have a good nights sleep and a good day. Stay strong everyone, and lets beat this horrible thing.Hi, Olivia, and welcome!
I have PT, too, and there are several other people on this forum who have it, as well. We're all searching for answers, and, as you may know, there are various causes for pulsatile tinnitus.
Here are my suggestions, from my own experience to date:
1) If your general practitioner is not able to help you, you might try going to either an ENT or a more specialized doctor, such as a neurologist or, if you have one in your area, a neurotologist. Neurotologists are specialized in otology as well as neurology, and may have a better understanding of your condition.
2) If the PT does not go away soon, you might suggest to your doctor (ENT, otologist, or neurotologist) that you have some tests done to rule out any specific problems, such as aneurisms, fistulas, etc. They can send you for tests such as a CT scan or an MRI, to test for these things.
3) If you haven't already, check out the website Whooshers.com. This website is a great source of information for pulsatile tinnitus sufferers, with a definition of what pulsatile tinnitus is, possible causes, and success stories of cured "whooshers". Also, from the website, you can join a closed group of PT sufferers on Facebook, and share information and stories with them.
You are going to be all right. Believe me, I know how annoying it is and how hard it is to sleep with the pulsating going on. The main thing I read over and over again on the Whooshers.com site is to "never give up". Pulsatile tinnitus is not the same as ringing tinnitus, and there may be a very different cause. If one doctor cannot help you, keep trying until you find one who can. Many doctors do not know much about our condition, so they can only tell us to "live with it". Keep trying until find that one doctor who can help!
In the meantime, it's important to stay calm and try to get some sleep. I've been using background sounds to help me sleep (water sounds work well), and, for me at least, taking magnesium just before bed really helps.
Stay strong, and please update us after you've seen your GP!
@Sherry,
That's great about the acupuncturist. It's too bad you can't go more often, but maybe the herbs will help. They sound calming, anyway! I don't know for sure that the increased tinnitus from the plane noise is temporary, but I've asked that question of other people about flying and tinnitus, and whether it made things worse. Those I talked to said it didn't do any permanent damage.
Hello Karen
Thank you so much. Yes the medicine is great.... Although I don't know if it was the med or the acu, I slept well and instead of the million crickets in my ears, there's about a half a dozen or less now lol ! Now there's a hissing sound which I prefer rather than the high pitch squeal and the crickets ! The naturopath had told me to take 8 pills 3 times a day, but I was too scared to take so much so I'm just taking 4 at bedtime only, and wondering if I should go again for Acu at least 3/4 more times.
Yes I have 3 married daughters and a 20 year old son, who's still my baby lol. And yes i have to live for them ! I have 2 little grand daughters and my daughter in Montreal is expecting her second baby that's why I came here to help her out as she has a toddler too ! It's hard trying to help and look and feel healthy while secretly you're going through hell ! My little grand daughter wakes up early and then of course I can't get any sleep ! Vicious circle ! god help me while I'm here lol ! How was your day Karen, hope you were better today too. Much love and thanks xoxox
You sound like you're around my age. I have two grown daughters, and I, too, feel I must get well for them, and for my little grandson ( 1 1/2 years old!).
Take care, XX
Karen
@Sherry,
That's great about the acupuncturist. It's too bad you can't go more often, but maybe the herbs will help. They sound calming, anyway! I don't know for sure that the increased tinnitus from the plane noise is temporary, but I've asked that question of other people about flying and tinnitus, and whether it made things worse. Those I talked to said it didn't do any permanent damage.
You sound like you're around my age. I have two grown daughters, and I, too, feel I must get well for them, and for my little grandson ( 1 1/2 years old!).
Take care, XX
Karen
Thank you for the update, Roan, hope the supplements work for you pls do keep us posted, thank you. Yesterday I decided to go back to what I had been taking in the beginning when I had gotten T and it had helped me so much....B12, 1000 mcg,gingko biloba 180 mg,zinc chelate 25 mg twice.and at bedtime magnesium 125 mg and 4 pills of An Shen Bu Xin Wan. The crickets have gone and the hissing is back which is not too horrible, plus I've been walking 2 hrs every evening. Thank you Roan and Karen.@Roan,
Hi! I'll be interested to see how these natural supplements work for you, for adrenal repair. Do you have reason to suspect that you have adrenal fatigue? I hope these help you to feel better; I know how devastating adrenal fatigue can be, and with tinnitus along with it --- well, it's not a walk in the park! Take care, and keep us posted.
Thank you Karen, for the update. I've noted down your supplements, thinking of adding these to the one million i already have no not taking the full dose of An Shen, just the 4 pills. Today am bit sad again , the crickets are back, I don't know what happened, except that I walked 1 hour and not 2. I do feel I'm better the day after the Acupuncture, but still confused, wasn't the walk or the Acu that made the T better the other day ? Got a book on Reflexology, will try that too. Karen , Roan my email is shireenhh1@gmail.com just in case we ever lose contact here. Roan, Karen, have you ever gone on a Gluten free diet ? Was reading online that it helped some people. Take care and thank you !@Sherri786,
That's great! I'm glad you've found some things that work for you. You're taking a lot of the same things I'm taking.
I take B-12, zinc, D-3, fish oil, moringa oliefera, spirulina, magnesium, plus a natural sleep aid that contains melatonin and valerian, plus vitamin D-6, etc. I walk every evening, too, but after work, the most I can manage is 45 minutes to 1 hour of walking!
So, are you now taking the full dose of the An Shen Bu Xin Wan? Any side effects?
Glad you're doing better!!