Ridiculing People on Here for Following Doctors' Advice

[Marie79]

I don't think this is right.

I totally get and love people pointing out what could have worked better for them and even if a doctors advice wasn't great for them... but people here are suffering from a medical issue and telling them that they are idiots for listening to doctors is awful.

Specifically with something with T and H trusting your doctor is VERY VERY VERY important. Making someone feel like there is no adequate medical help and they are all liars is pretty messed up.

I get that you are suffering too and the medical advice didn't work for you and I think that is part of the struggle of acceptance. Maybe some of us have a medical issue that simply can't be fixed with medical care. That is FUCKED up. I get it.

That does NOT mean that that medical care doesn't work for many or even the majority.

 

[gotyoubynuts]

That does NOT mean that that medical care doesn't work for many or even the majority.

Tell me for whom has medical care worked with tinnitus?

You're a sweetheart for believing in the fairy tale of doctors but they are useless......

 

[Sen]

Medical science doesn't know a whole lot about T and H. It's a good idea to be skeptical, but this includes being skeptical of "alternative" treatments.

 

[Marie79]

Medical science doesn't know a whole lot about T and H. It's a good idea to be skeptical, but this includes being skeptical of "alternative" treatments.

I agree it is important to be skeptical and research but there are people on here that have ridiculed me for listening to my doctors. The treatment for H is to not overprotect and it isn't just for people with light H either. I mean again I totally get if people say "hey that didn't work for me" but to say things in a joking way like "haha guess that treatment didn't work out for you!!" is different

 

[linearb]

people on the internet say the darndest things

 

[erik]

No one should be ridiculed for doing what they think is best for themselves especially with T and H. I also have both and know the struggles.

Sure, I know more about T & H than all the countless doctors I visited, however, that still did not stop me from seeking out medical advice with different prescriptions, CT scans, MRI's, audiograms etc - areas of which I do not know more than my doctor about.

We all experience different types and levels of tinnitus. You cannot expect me to exactly know what you are going through and vise versa. What works for you, may work for me and then again, it might not. That is why so many of the promising drugs have failed trials this year. I do not believe there is a one size fits all treatment for tinnitus.

 

[Marie79]

Tell me for whom has medical care worked with tinnitus?

You're a sweetheart for believing in the fairy tale of doctors but they are useless......

many people on here actually and people that I know in person. have you ever been to a tinnitus support group? Billie on here said he followed doctors orders on not to overprotect his ears. They also do things called "medical studies" on these things. I mean you act as if the entire medical industry is all bullshit. There have been actual medical research done on the treatment of H and you can look that up yourself.

 

[Hopeful1]

The problem is doctors know very little about subjective T.

One can get better advice from this forum than doctors. For example my Audiologist says i can go to loud clubs with ear protection, which is quite dangerous thing to do for people with T, countless accounts in this forum are testimony to that.

My ENT recommended an MRT 7 days since my T onset even though it is clearvthat mine is due too noise exposure. I used info. from this forum and my brain and did not go for MRI. My T is very reactive and i am sure it would have made it worse.

When i went to my GP 1 day after my T .... he sent me home saying that it will go on its own......now know it wont go...especially if it triggered by Hyperacusis like me( almost every one with H has T).

Neither my GP nor my ENT suggested prednisone....they say my hearing is perfect as per 19th century audiogram. I know i had hearing damage when my T started...my hearing was distorted and then it recovered after a few days. Opportunity to use steriods was missed as i came to know about predisone 2 weeks after my T.

My ENT says that T is always there my brain had learnt to listen to it, and i payed this genius £300 to tell that to me.

I am not arrogant, but i feel like i know more about T than an average audiologist/ENT/GP......when it comes to T most of them are useless.

 

[Telis]

I wouldn't go so far as to say you are a idiot for trusting your doctor, that's a bit harsh but I do think it's a bit naive.

Doctors can kill you and mess you up, it's just a fact of life. Maybe people watch too much TV where the hero doctor always saves the day, unfortunately it doesn't always work like that in real life. Haha

For me, better to be safe and question everything. For you, if putting full trust in your doc works, that's great too. It's whatever you feel comfortable with.

Check this link below, maybe you will think twice about just nodding your head and trusting everything your doctor and the medical system spews out next time.

http://www.cbc.ca/beta/news/health/medical-errors-deaths-1.3565736

 

[Aaron123]

Check this link below, maybe you will think twice about just nodding your head and trusting everything your doctor spews out next time.

There is reason to be skeptical about the idea that medical errors are the third leading cause of death: https://www.statnews.com/2016/05/09/medical-errors-deaths-bmj/

 

[Telis]

There is reason to be skeptical about the idea that medical errors are the third leading cause of death: https://www.statnews.com/2016/05/09/medical-errors-deaths-bmj/

Sure, there could always be errors in stats, some state that doctors are the number 1 cause of death in the U.S. (And not the third ) but you can get the idea, mistakes happen all the time, people die and are injured by doctors daily. Trusting them fully can be dangerous.

 

[Marie79]

I wouldn't go so far as to say you are a idiot for trusting your doctor, that's a bit harsh but I do think it's a bit naive.

Doctors can kill you and mess you up, it's just a fact of life. Maybe people watch too much TV where the hero doctor always saves the day, unfortunately it doesn't always work like that in real life. Haha

For me, better to be safe and question everything. For you, if putting full trust in your doc works, that's great too. It's whatever you feel comfortable with.

Check this link below, maybe you will think twice about just nodding your head and trusting everything your doctor and the medical system spews out next time.

http://www.cbc.ca/beta/news/health/medical-errors-deaths-1.3565736

again no one ever said to not be skeptical. in this situation I have gotten 2 or 3 2nd opinions.

 

[Marie79]

The problem is doctors know very little about subjective T.

One can get better advice from this forum than doctors. For example my Audiologist says i can go to loud clubs with ear protection, which is quite dangerous thing to do for people with T, countless accounts in this forum are testimony to that.

My ENT recommended an MRT 7 days since my T onset even though it is clearvthat mine is due too noise exposure. I used info. from this forum and my brain and did not go for MRI. My T is very reactive and i am sure it would have made it worse.

When i went to my GP 1 day after my T .... he sent me home saying that it will go on its own......now know it wont go...especially if it triggered by Hyperacusis like me( almost every one with H has T).

Neither my GP nor my ENT suggested prednisone....they say my hearing is perfect as per 19th century audiogram. I know i had hearing damage when my T started...my hearing was distorted and then it recovered after a few days. Opportunity to use steriods was missed as i came to know about predisone 2 weeks after my T.

My ENT says that T is always there my brain had learnt to listen to it, and i payed this genius £300 to tell that to me.

I am not arrogant, but i feel like i know more about T than an average audiologist/ENT/GP......when it comes to T most of them are useless.

I agree with all of these things. The medical professionals I have gone to aside from the ones in the very beginning I've been very careful to ONLY choose those that have specific experience in T and H. I agree the regular audiologist knew nothing. The ones I choose to go to regularly spend most of their career focusing on T and H.

 

[BobDigi]

Doctors can kill you and mess you up, it's just a fact of life. Maybe people watch too much TV where the hero doctor always saves the day, unfortunately it doesn't always work like that in real life.

Too true. Doctors have made me more I'll than when I first used them for a medical problem. Since that day the medication they have put me on has had irreversible effects on my health. They have good intentions. But they are trained in giving you medication. They don't cure anything. They treat with life long drugs. There's no profit in curing people. Even the cures require life long meds that will probably one day kill you in a round about way.

 

[undecided]

The medical professionals I have gone to aside from the ones in the very beginning I've been very careful to ONLY choose those that have specific experience in T and H.

So, you're all better now, only visiting those medical professionals with the 'specific' experience?
I'm reading on the other thread you need to go on an antidepressant?

 

[Marie79]

So, you're all better now, only visiting those medical professionals with the 'specific' experience?
I'm reading on the other thread you need to go on an antidepressant?

I said in my original post of course I'm not "all better." and that's the really sucky part. For many of us we won't be. That is the same for any sort of medical care out there. It doesn't mean it isn't valid even for the majority of people.

 

[william adams]

My doctor said you have to learn to live with it. Well that is exactly what I have had too do with some coaching and meds along the way...

 

[Sebastians]

A female colleague of mine was recently diagnosed with MS at age 30. She was told to 'learn to live with it' and 'not to change anything in her life'. Now where did we hear this before. Right, from those medical professionals.

There's a tendency among certain people to feel outraged or offended by any sort of criticism they encounter, even if it is meant jokingly or 'sarcastic'. Yet they always come back for help or advice, even making multiple threads daily, which receive mostly positive or well-meant comments, 'hugs' and whatnot.

This is the internet, where multiple opinions abound. Deal with it

 

[Beste]

My doctor is the reason that I got my T. So...

 

[Bobby B]

If you have some damage inside the inner ear then you need to protect those ears more than the average person has to do - pretty simple.

Which is irrelevant to H or T levels or perception those are just symptoms of the condition.
You don't fix H by exposing ears to noise if you have ear damage - there are no such studies or science behind that .
If you don't have damage - like having stress T or noise phobia or other mental issues around sound then you don't need to protect your ears more than the normal Db danger scale

 

[Marie79]

A female colleague of mine was recently diagnosed with MS at age 30. She was told to 'learn to live with it' and 'not to change anything in her life'. Now where did we hear this before. Right, from those medical professionals.

There's a tendency among certain people to feel outraged or offended by any sort of criticism they encounter, even if it is meant jokingly or 'sarcastic'. Yet they always come back for help or advice, even making multiple threads daily, which receive mostly positive or well-meant comments, 'hugs' and whatnot.

This is the internet, where multiple opinions abound. Deal with it

Opinions and ridiculing is different

 

[PaulBe]

Sure, there could always be errors in stats, some state that doctors are the number 1 cause of death in the U.S. (And not the third ) but you can get the idea, mistakes happen all the time, people die and are injured by doctors daily. Trusting them fully can be dangerous.

This is a very complex area, and my work in my last pre-tinnitus/hyperacusis years had touched on it (same thing gets reported in Australia BTW). Much Medical negligence occurs in General and Specialist Private Practice here, and I think a lot of that is because there aren't the systems in place to monitor and control what happens. Too much money on offer corrupts decision-making, and laziness and complacency abound because there's always something that brings in the money if something else (like us) is not understood. "Do no harm" easily becomes "I'm not even going there" even though doing nothing is sometimes also doing harm. Alternatively the drive to cover things up or smooth things over is pretty compelling, after all Private Medicine is a business and reputation sells appointment time (unless like me you are in the country, which means simply being there sells appointment time). Things in the public sector (like you have in Canada) are a bit different because Doctors don't completely rule the roost, and there is so much emphasis on reporting, not just incidents but near-incidents as well, and scrutinizing of processes, that it appears that Public Healthcare is more dangerous than actually it is, if the volume of reporting alone were any guide.

 

[Sebastians]

My doctor is the reason that I got my T. So...

He forced you to take ad's?

 

[Owen]

Just as one person is entitled to have faith in doctors, another is entitled to have none. Life experiences shape us. If you have had good experiences and been treated quickly and effectively, why would you question your doctor? I have been the victim of medical incompetence on more than 3 separate occasions, with either increased or prolonged suffering as a result - most recently of course is screaming, debilitating tinnitus.

Good luck to anyone looking to their doctor for help, but I would ask why they are looking for answers on this forum if the help they are receiving is already satisfactory?!?!

 

[Fangen]

Doctor 1: It'll go away, come back in a a few weeks.

One week goes by and one nurse says that I could have gotten steroids, but now it is too late (which it wasn't but I didn't know at that time.
Doctor/ENT 2 (works at the same place as the nurse): There are no such things as steroids for noise-induced T, people are just bullshitting online. There are nothing to give you.

Doctor 3: You have T because you might had water behind your ear (despite me specific telling him that I was at a concert), you don't have T due to loud noise (?????).

Doctor 4 (ENT): All looks good, you just need to learn to live with it.

I think you can trust a doctor in most cases besides T related issues. I am sorry but most doctors have NO idea what they are talking about when it comes to T.

 

[Karel]

Medical professionals haven't really helped me with this either, more the opposite. None of them even ever mentioned steroids, I only found out about that on my own when it was way too late. When I first got this condition I asked if I could still go to noisy places with it, my ENT said "that's impossible to say" and my GP said "should be ok as long as you wear ear protection and leave if you start feeling strange". If either of them had just said "oh no no, don't do that anymore!!", I wouldn't be in the mess I am now.
I was also never warned about the dangers of talking on the phone too long (with H), not even by an audiologist I went to see. Another thing I had to find out by myself, only after suffering great damage.

Now I'm not saying I don't have any fault in what happened to me, this whole thing wouldn't have happened at all if I hadn't made a catastrophic mistake a few years back. But this whole mess has taught me to never again blindly trust doctors, not even specialists. They don't know much about T, even less about H (besides the infamous "there's no treatments but you'll get used to it" of course), and any advice they give is not guaranteed to actually help, sometimes might even do harm. Always doublecheck. That's how I see it now anyway.

 

[PaulBe]

Specifically with something with T and H trusting your doctor is VERY VERY VERY important. Making someone feel like there is no adequate medical help and they are all liars is pretty messed up.

I do agree in principle with you though Marie. In the end one has to start somewhere, and if someone already has a good relationship with a GP they trust, well why wouldn't you start there? I can't say I've seen that much of what I'd call ridicule on here....more a "now you know' kind of thing.

I'd love just once though to see a Doctor who at least asked me about it as though they wanted to learn something.

 

[Marie79]

Doctor 1: It'll go away, come back in a a few weeks.

One week goes by and one nurse says that I could have gotten steroids, but now it is too late (which it wasn't but I didn't know at that time.
Doctor/ENT 2 (works at the same place as the nurse): There are no such things as steroids for noise-induced T, people are just bullshitting online. There are nothing to give you.

Doctor 3: You have T because you might had water behind your ear (despite me specific telling him that I was at a concert), you don't have T due to loud noise (?????).

Doctor 4 (ENT): All looks good, you just need to learn to live with it.

I think you can trust a doctor in most cases besides T related issues. I am sorry but most doctors have NO idea what they are talking about when it comes to T.

Yes I agree but the doctors I have been going to other than the very beginning have very specific experience in T. Not that they have some magic cure but after the beginning couple weeks I sought out specific health care professionals.

 

[Hopeful1]

The ENT I went to claimed to be T specialist.....T is currently unknown...so he a specialist of unknownable

 

[Fangen]

Yes I agree but the doctors I have been going to other than the very beginning have very specific experience in T. Not that they have some magic cure but after the beginning couple weeks I sought out specific health care professionals.

I did too, and she wasn't much better to be honest. She was a TMJ specialist with focus on T. But she was done in less than 10 min but I don't know. She didn't seem to care very much at all.