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HI Tara,

Your Neurologist is correct in that things will calm down but haven't heard of the term rebound. As I have mentioned to you before tinnitus behaves is way in the early stages which can begin to calm down with time. I would like to ask what was the dosage of Klonopin your doctor advised you to take?

Michael
.05

This is driving me crazy I'm trying to be calm but I can't stand the noise.
 
HI Tara,

Your Neurologist is correct in that things will calm down but haven't heard of the term rebound. As I have mentioned to you before tinnitus behaves is way in the early stages which can begin to calm down with time. I would like to ask what was the dosage of Klonopin your doctor advised you to take?

Michael
HI Tara,

Your Neurologist is correct in that things will calm down but haven't heard of the term rebound. As I have mentioned to you before tinnitus behaves is way in the early stages which can begin to calm down with time. I would like to ask what was the dosage of Klonopin your doctor advised you to take?

Michael
This is just the hardest thing I've ever been through. Seriously.

What about the constant feeling of fullness?
 
Is it normal to feel like it's just noise coming out of your ears? Not even the typical high pitched "EEEEEE" ring. Just noise.

The neurotologist said it should calm down over time. Also told me to watch my diet.

Yeah that is totally normal. There are so many different ways that people perceive tinnitus. Some people also experience it as more of an almost physical, "brain buzz" sensation rather than (or in addition to) a noise.

I think eating healthily can really help. It makes you feel better in yourself, which makes things easier to cope with.

In my experience our perception of tinnitus has a strong psychological component. If I am really happy and settled and not thinking about it too much it seems like it's lot quieter. I don't know if it's ACTUALLY quieter or if I just don't notice it as much.

Because it's a sound produced by your brain, rather than a real sound like a lawnmower or something, the attention that you give it has a DIRECT result on how you perceive it. So the more you pay attention to it the more loud and annoying it will be. The more you turn attention away from it the more the sound will fade into the background.

You won't be able to fade it out instantly, by any means. It takes people months and years. That's why in the early days you just have to distract yourself and distract yourself. Just please have faith that it will get easier in time. Your mind and body are in shock right now and still adjusting.

And if you don't feel able to distract yourself right now then don't worry. Just take a bath, or lie on your bed with some heavy blankets over you and do some deep breathing. I remember in the early days there were times when literally just taking another breath was all I could manage. So if all you can do right now is breathe then do that. Just breathe. One breath after another, over and over. Get from this minute to the next. The minutes will turn into hours and then into days, and in time you'll realise time is passing more quickly and less painfully.

And when you do have energy to do something, anything, then do it. You might have to force yourself a bit. Don't worry if it doesn't feel enjoyable. Just go through the motions. One day you'll feel joy creeping back into your life unexpectedly. But until then just get through the days. Try and do things you used to enjoy, even if they don't feel that good anymore. Trust me, it is better than wallowing, and it will help you in the long-term.

I really feel for you Tara, I know it feels terrible and world-ending right now. But the world hasn't ended. This is just a crappy, crappy time that you are going through. Remember everyone goes through crappy, crappy times in life. This is just yours. It will get better. Give yourself lots and lots of time. Be really patient with yourself and listen to your body. Just do whatever you feel like you need to do to feel a tiny bit better in this moment. That's all you have to do. It will be ok. xxxxx
 
You won't be able to fade it out instantly, by any means. It takes people months and years. That's why in the early days you just have to distract yourself and distract yourself. Just please have faith that it will get easier in time. Your mind and body are in shock right now and still adjusting.

And when you do have energy to do something, anything, then do it. You might have to force yourself a bit. Don't worry if it doesn't feel enjoyable. Just go through the motions. One day you'll feel joy creeping back into your life unexpectedly. But until then just get through the days. Try and do things you used to enjoy, even if they don't feel that good anymore. Trust me, it is better than wallowing, and it will help you in the long-term.

This is excellent advice from @Hotspur2931 It will get better @Tara Lyons but takes time.....
 
Yeah that is totally normal. There are so many different ways that people perceive tinnitus. Some people also experience it as more of an almost physical, "brain buzz" sensation rather than (or in addition to) a noise.

I think eating healthily can really help. It makes you feel better in yourself, which makes things easier to cope with.

In my experience our perception of tinnitus has a strong psychological component. If I am really happy and settled and not thinking about it too much it seems like it's lot quieter. I don't know if it's ACTUALLY quieter or if I just don't notice it as much.

Because it's a sound produced by your brain, rather than a real sound like a lawnmower or something, the attention that you give it has a DIRECT result on how you perceive it. So the more you pay attention to it the more loud and annoying it will be. The more you turn attention away from it the more the sound will fade into the background.

You won't be able to fade it out instantly, by any means. It takes people months and years. That's why in the early days you just have to distract yourself and distract yourself. Just please have faith that it will get easier in time. Your mind and body are in shock right now and still adjusting.

And if you don't feel able to distract yourself right now then don't worry. Just take a bath, or lie on your bed with some heavy blankets over you and do some deep breathing. I remember in the early days there were times when literally just taking another breath was all I could manage. So if all you can do right now is breathe then do that. Just breathe. One breath after another, over and over. Get from this minute to the next. The minutes will turn into hours and then into days, and in time you'll realise time is passing more quickly and less painfully.

And when you do have energy to do something, anything, then do it. You might have to force yourself a bit. Don't worry if it doesn't feel enjoyable. Just go through the motions. One day you'll feel joy creeping back into your life unexpectedly. But until then just get through the days. Try and do things you used to enjoy, even if they don't feel that good anymore. Trust me, it is better than wallowing, and it will help you in the long-term.

I really feel for you Tara, I know it feels terrible and world-ending right now. But the world hasn't ended. This is just a crappy, crappy time that you are going through. Remember everyone goes through crappy, crappy times in life. This is just yours. It will get better. Give yourself lots and lots of time. Be really patient with yourself and listen to your body. Just do whatever you feel like you need to do to feel a tiny bit better in this moment. That's all you have to do. It will be ok. xxxxx
I just want my life back. This is a true nightmare. I don't understand this "loudness" that I feel in my ears. Aside from the ringing.
 
This is just the hardest thing I've ever been through. Seriously.

Yes I know how hard it is for you it was the same for me. If you are able to spend a little time with friends or family it can help to distract you....

What about the constant feeling of fullness?

I experienced fullness in my ears too. For months the whole of my head felt completely numb. I could hear but everything sounded as if my head was under water....

Is this a safe drug to take?

Medication is something that is prescribed by a doctor for a reason, and It's not for me to say too much about it. I advise you not to read up too much about medications online. I was prescribed Klonopin also knows as Clonazepam in 2010 when my tinnitus was very severe and it helped lower the tinnitus a lot. I still take it when my tinnitus is severe only for a few days. You should follow the advice of your doctor regarding medicines.
 
I hope it gets better. I hate waking up to the noise and going to bed to the noise.

I'm trying to keep my stress level low. But I can't.

I know it sounds crazy when people say "relax", "don't get stressed", when you are dealing with this crazy noise. I find that it's better to relax by doing an activity, rather than, say, trying to lie in bed and relax.

Also, try not to blame tinnitus for all your stress. Are you stressed at work? Stressed with a relationship? See if you can address these stresses first, and you'll find that this makes tinnitus more manageable as well.
 
I hope it gets better. I hate waking up to the noise and going to bed to the noise.
This is the worst part, waking up to the noise. After 2.5 years I still am not out of the woods with this part of tinnitus. But after I am in my car on the way to work it gets better. It is normal to feel that way when you wake up Try breathing relaxation for 10 minutes still lying down before you get out. Works for me.
 
I have very low tinnitus one day and extremely high static suicidal one the other, so my 'spike' is cyclic, almost every other day. I can't seem to get any help or figure out why and how to get out of the loop. It wouldn't be half as bad if it stayed in its lowest form...
Mine started like that and over 2 years got to the point where it basically stays at its lowest form.
 
This is excellent advice from @Hotspur2931 It will get better @Tara Lyons but takes time.....
I went to my cousins yesterday and the voices hurt my ears. Got a very loud spike and had to leave, they were going crazy for a while after. Do you suggest ear plugs. I don't know what to do, I feel like it's gotten worse but I am so focused on this it's all I think about. I don't watch tv or movies or do anything except worry about my ears.
 
I wasn't protecting my ears when this first started happening because I was under the impression this was part of a "migraine." Ugh. Of course I am super careful now with all noise but I'm hoping my stupidity didn't make it worse. :(

@Michael Leigh
@sssing
 
I went to my cousins yesterday and the voices hurt my ears. Got a very loud spike and had to leave, they were going crazy for a while after. Do you suggest ear plugs. I don't know what to do, I feel like it's gotten worse but I am so focused on this it's all I think about. I don't watch tv or movies or do anything except worry about my ears.

Voices hurting the ears not unusual as the same thing happened to me many years ago. I had to politely ask people to lower their voice when in conversation. This is a sign of hyperacusis. You can use "Noise reducing" earplugs these have filters in, and will reduce the level of outside sound. However, try not to use them too often as there's a risk of making your ears more sensitive to sound when you are not wearing the plugs. In the links that I sent you, there is a post titled: Hyperacusis, As I see it. Please read that as it explains more about hyperacusis and earplugs that you can use.

I know it's not easy but try to watch some tv even if you are not following what's going on, it will help take your mind off the tinnitus.

Michael
 
Voices hurting the ears not unusual as the same thing happened to me many years ago. I had to politely ask people to lower their voice when in conversation. This is a sign of hyperacusis. You can use "Noise reducing" earplugs these have filters in, and will reduce the level of outside sound. However, try not to use them too often as there's a risk of making your ears more sensitive to sound when you are not wearing the plugs. In the links that I sent you, there is a post titled: Hyperacusis, As I see it. Please read that as it explains more about hyperacusis and earplugs that you can use.

I know it's not easy but try to watch some tv even if you are not following what's going on, it will help take your mind off the tinnitus.

Michael
There is just such a horrible "loudness". I can't explain it. Is this the hyperacusis?
 
Voices hurting the ears not unusual as the same thing happened to me many years ago. I had to politely ask people to lower their voice when in conversation. This is a sign of hyperacusis. You can use "Noise reducing" earplugs these have filters in, and will reduce the level of outside sound. However, try not to use them too often as there's a risk of making your ears more sensitive to sound when you are not wearing the plugs. In the links that I sent you, there is a post titled: Hyperacusis, As I see it. Please read that as it explains more about hyperacusis and earplugs that you can use.

I know it's not easy but try to watch some tv even if you are not following what's going on, it will help take your mind off the tinnitus.

Michael
Hi Michael,

I read the article and I don't see the name brand of any type of ear plug?
 
Hi Michael,

I read the article and I don't see the name brand of any type of ear plug?

You can use any type of "Noise reducing earplugs" or Brand. It all depends what you are able to buy in the US? I live in the UK so didn't specify a particular type of noise reducing earplugs. You can buy them from Amazon or ebay. Make sure you buy "Noise reducing earplugs" These have filters in to reduce external sound. Do not buy foam earplugs as these block out all external sound.

Alpine Noise reducing earplugs are quite good and can be bought from Amazon. As I said you can buy any brand. Look for Noise reducing plugs that reduce sound by: 18 to 30 decibels....as I have said in my post try not to use them too often.

Michael
 
You can use any type of "Noise reducing earplugs" or Brand. It all depends what you are able to buy in the US? I live in the UK so didn't specify a particular type of noise reducing earplugs. You can buy them from Amazon or ebay. Make sure you buy "Noise reducing earplugs" These have filters in to reduce external sound. Do not buy foam earplugs as these block out all external sound.

Alpine Noise reducing earplugs are quite good and can be bought from Amazon. As I said you can buy any brand. Look for Noise reducing plugs that reduce sound by: 18 to 30 decibels....as I have said in my post try not to use them too often.

Michael
Thanks, always so helpful. I just went for a drive to get out of the house and I'm getting the terrible "loudness" although the radio was very low, just from the driving and the window down... crazy .

By "not too often" do you mean once a day for a few hours? Or once every few days?

I'm new to this, and certainly don't want to make anything worse...

Thanks for all of your help as always.
 
@Tara Lyons

I love thes e- the most comfy earplugs I've ever tried. I also have the molded musician plugs, and the earasers are more comfortable.

Earasers Musicians Plugs Small

https://www.amazon.com/dp/B00E2D9FHA/ref=cm_sw_r_cp_api_i_xgcWEbNXFKWKS

Hang in there... many of us are in the same boat... now that it's getting warmer out, I've been spending as much time as possible outside. It seems to help me.

tom
 
Since you have done your MRI and cleared it, you can be quite certain it isn't your brain. From what I know as a layman, the brain is responding to the ears but the source of the problem is not the brain but the ears. If you can, I suggest you do an extended audiogram? It may give you some more clues. Did your ENT check and rule out things like infection? Did he suspect the burning is a result of some infection? Do sounds cause the burning? There really is a good chance you'll get better, believe me!:)
Sorry I am just seeing this now. I am going to call ENT on Monday. This is out of control. Do you really think ears can cause this much insanity?
 
@Tara Lyons

Lots of us have been where you are so please trust us, take a deep breath and get yourself some help right now.

Have you seen your doctor? Are you taking any medications for depression or panic or sleep? Please talk to a professional about how you are feeling and let them help you.

What are you doing to relax? I know it's so hard to do when you have the noise in your head but there are ways to make it easier. For me strong physical sensations – like a hot bath or a massage or even sex – get me out of my head and into my body and make me feel better.

Have you seen an audiologist? Or are you doing any kind of therapy? I found CBT really helped me. When you are feeling this bad you really need to be seeing someone once a week at a minimum – it really helps to have a professional to check in with. They will be able to listen to you and tell you that you're not crazy. And they can teach you techniques to cope.

Also it sounds like you are going through a spike and you are just overwhelmed right now. It's normal for tinnitus to change a in the first few months. I think it will settle down to a more manageable level. Try not to monitor it, or give to much thought to the changes. It doesn't really matter in the end – what matters is getting you back to feeling better. And believe it or not you CAN feel better, no matter what your tinnitus is doing.

Lizzy
Xxx
Sorry just seeing this.

I feel like it's been so bad the lately. I don't know why! I'm terrified. It all changed so much since it started. They're both literally SCREAMING right now.
I've had burning, echoing, fullness, blaring noise which is what they're currently doing. It's insane and then I just get this horrible horrible "loudness"
Please help me, this is so crazy. I've been on antihistamines, idk if it's making it worse.
 
Thanks, always so helpful. I just went for a drive to get out of the house and I'm getting the terrible "loudness" although the radio was very low, just from the driving and the window down... crazy .

Once you begin to calm down and feel less stressed and not so frightened about what's going on you'll feel a lot better I assure you.

By "not too often" do you mean once a day for a few hours? Or once every few days

Whenever sound feels painful, discomforting or you're in a noisy environment then use the earplugs but try not to become too dependent on them or wear them continuously all day....

I'm new to this, and certainly don't want to make anything worse...

It is learning curve Tara. As time moves on you'll see what works for you. Try and go out even if it's browsing the shops and you're not buying anything, just to get out as a change of scenery can do wonders. Talk with family and friends will help distract you from the tinnitus. When at home even if you feel like not watching the TV put it on and set the volume at a comfortable level so it doesn't irritate your ears. Try to avoid quiet rooms especially at night - use low level sound enrichment.

Thanks for all of your help as always.

You are welcome take care
Michael
 
Sorry I am just seeing this now. I am going to call ENT on Monday. This is out of control. Do you really think ears can cause this much insanity?
Hi @Tara Lyons, can you check with ENT about the infection of the ears. Since you have done an MRI and it was clear. But if you are suspecting something, please ask your doctor and he can tell you more. From what I know it is an ear problem and the brain is responding to the ear damage. I agree with @Hotspur2931 that if you are feeling really bad, please do see someone who can help you. I went to see an online counsellor who also had tinnitus. It did help me in my desperation. It may not take the tinnitus away but the panic and anxiety did lessen a bit after talking about it and some stress management techniques. I also took medication for it. The advice @Michael Leigh about trying to get out or do things to distract yourself from tinnitus is very practical and good. Please hang in there. Things will get better for you. :)
 
I wasn't protecting my ears when this first started happening because I was under the impression this was part of a "migraine." Ugh. Of course I am super careful now with all noise but I'm hoping my stupidity didn't make it worse. :(
No their voices didn't made your tinnitus worse. I was just that sensitive to loud voices the first 6-7 months. It faded, and now I do stand most everyday sounds. The hyperacusis will get better, I promise.
 

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