Do you have an understanding friend or a relative that lives somewhere quieter you could go to for a bit?Actually feel like I'm losing my mind. Thinking of going to the emergency room, worried about making it through the day.
Do you have an understanding friend or a relative that lives somewhere quieter you could go to for a bit?Actually feel like I'm losing my mind. Thinking of going to the emergency room, worried about making it through the day.
My tinnitus is very intense and I have poor hearing. I make the best of my situation. I have had to, change the ways of living to help my ears heal in any possible ways.Have you experienced distortion. For example where motors sound strange and over powering?
When? Just imagine an ocean snail who decided to move from Antarctica to Iceland.But seriously, mates. When do you think these drugs will be available for us?
2-5 years is my best guess for FX-322. I don't know how to convert that to snail ocean crossing units.But seriously, mates. When do you think these drugs will be available for us?
No please, I really want to know. How does it sound like?Don't want to tell how this crap sounds now... Just imagine it.
I do not. My home is quiet right now, but my anxiety is bad. I kept on re reading the Joyce Cohen/Azusa Plane stories. My parents live 2 hours away and now I'm worried I can't visit them because my car might be making my hyperacusis worse.Do you have an understanding friend or a relative that lives somewhere quieter you could go to for a bit?
Is there any possible way you can sleep for a bit? It helps reset anxiety and scale it back some.It's like I can't tell what thoughts are rational or not anymore. I thought I was a smart person but I feel like I'm becoming mentally ill, psychosis or something. It all started when I read of people with hyperacusis saying their ears burn and now my ears constantly burn and idk if it's because my hyperacusis is worsening or because I'm just paying more attention.
I guess that snail question belongs to another forum...2-5 years is my best guess for FX-322. I don't know how to convert that to snail ocean crossing units.
But seriously, mates. When do you think these drugs will be available for us?
Some are hoping for 2021 but an optimistic guess would be 2022 to 2023. Conservative guess 2024-2025.I guess that snail question belongs to another forum...
Hearing thresholds are inadequate as a reliable test to measure damage to the ear. Especially if you are using a headset at home, vs a carefully calibrated soundproof room set up like an audiologist. It's designed to fit a heating aid more than anything else. LDLs are a better indication of hyperacusis, but even then It's a subjective test.
Brain plasticity is very complicated, I personally find the most comfort in reading about the science so I understand it as much as I can. It's hard because not much research is understood yet. I found this site to have a pretty easy to understand but in depth explanation: https://hyperacusisfocus.org/central-auditory-system/
Even cutting edge science is just starting to figure out what's going on in this area, so I'd hold off from giving yourself a highly specific self diagnosis.
Hyperacusis symptoms can have so MANY causes, it's responsible of you to look into getting a tumor ruled out. Please avoid assuming the worst though, it could very well just be standard noise damage.Your probably right. Tonight we had a friend discuss problems she encountered with recent brain tumor. Sadly so many of the symptoms overlap. It would be probably more likely than my central gain theory. Tomorrow I'm going to my GP to push for an MRI to rule this one out. Hopefully I don't get refered to neurologist and slow things down to receive a scan. It's staggering how my life has changed in a couple weeks. I would say there would be an upside but there's really not any upside.
2 years I can maybe live with, but more than that sounds pretty unbearable. I hope that the letter(s) to Dr. Woodcock may help to expedite the release FX-322. And wouldn't the synaptopathy drugs in trials be potentially eligible to receive breakthrough status too?2-5 years is my best guess for FX-322. I don't know how to convert that to snail ocean crossing units.
Thank you fishbone. My problem is compounded by drug withdrawal that makes it unbearable. Warding off anxiety, depression, insomnia and unbearable tinnitus but failing. I know you mentioned you went through drug withdrawal in the past. It's hell squared. Not sure I'll make it.I have it that loud, bad and my hearing is very BAD. I sleep without benzos. Habituation is not impossible. Habituation is not even 100% possible, it might be, but I don't have it like that. Any habituation helps us live our lives with tinnitus. With habituation, we are able to push a little more forward in our lives with tinnitus and the noise/ringing will not afflict us like it did pre-habituation. All of this takes time, acceptance and working on your life, thinking and planning on a daily basis.
Tinnitus takes work, adjustments and just pushing forward. It's not easy, I never have it easy, but I still push each day. I plan ways, to help myself with this beyond horrible noise that afflicts me 24-7.....
Sorry to hear you are going through this @El BUZZ . I had constant worsening for almost one year. Now I'm off pregabalin but need a benzo to barely cope. I don't know if I can get through this. I have two kids but this monster seems impossible to beat. Let's stick together. Will you try len ire? I'm full of doubts.Hi @Chinmoku. My tinnitus started four years and five months ago. It has been intrusive since day one. Unmaskable. Loud. First year took me through the darkest and toughest passages a human being could go through. I felt like throwing the towel every single day. Then, little by little, I started to recover segments from my pre-tinnitus life. I reconnected with lots of aspects of myself which were completely abandoned. I have to admit that I sometimes fell back in the pit but my average day to day was pretty decent despite having that loud hiss/shrill/drill sound in my head. I habituated. I got tired of feeling bad about it or something. Don't know how the magic worked but I felt alive again. It takes time.
Now I am back to square one after a permanent worsening which started out of the blue almost two months ago. I am going through a lot of suffering and mental pain at the moment and I feel completely desperate ironically missing my old sweet LOUD & intrusive tinnitus. Don't want to tell how this crap sounds now... Just imagine it.
Longer car rides give me also too much ear pain even with hearing protection. Fortunately we have some quieter trains which I can use to travel longer distances.I do not. My home is quiet right now, but my anxiety is bad. I kept on re reading the Joyce Cohen/Azusa Plane stories. My parents live 2 hours away and now I'm worried I can't visit them because my car might be making my hyperacusis worse.
I would assume so but we won't know for sure unless they announce that.And wouldn't the synaptopathy drugs in trials be potentially eligible to receive breakthrough status too?
Sadly severe tinnitus is a cake walk compared to severe hyperacusis. I had no idea either. This is so horrible.Same. I had a feeling I was getting tinnitus. Took a break from the electronic drums, went to Mexico, came back then to what I refer the 15 minutes that wrecked my life when I tried playing them again. Problem is I kinda knew about tinnitus but had no clue what hyperacusis was & had developed it.
Some people have both or some hyperacusis-like symptoms.Sadly severe tinnitus is a cake walk compared to severe hyperacusis. I had no idea either. This is so horrible.
I would argue it's because most people with tinnitus understand that a psychiatrist probably can't do very much to help them.I work in Healthcare. I saw a psychiatrist at the Gym from where I worked a while back. I asked if he ever had anyone wanting to off themselves due to suffering from tinnitus. He had not.
He actually said more or less the same thing. "That's a tough one. I don't think I would be able to help you"I would argue it's because most people with tinnitus understand that a psychiatrist probably can't do very much to help them.
You are still pretty acute. There is a good chance it will get better. Hang in there.Feelings of jumping in front of a train are strong today.
And even when suicidal, we are afraid of benzos, SSRIs, gabapentin making the bad even worse.I would argue it's because most people with tinnitus understand that a psychiatrist probably can't do very much to help them.