Susanna Reid — UK TV Presenter Talks About Her Tinnitus
- Thread starter Sam Bridge
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Great, now people think all we need is acupuncture. Forget regenerative medicine.
Somebody on this thread said that Tinnitus Talk should speak with one voice.
Well that wouldn't be a forum would it?
That would be a political party under the control of a chief whip.
Tinnitus can be more than a minor irritation.
Yes - obviously good that it gets talked about on air.
The subsequent tweets prove that.
I just feel that to give a realistic exposure to this condition, the severity and the extent it can reach should be mentioned.
That happens to be my own point of view.
Is that so terrible?
I'm not asking anybody to agree with me.
Discussion and disagreement is healthy.
Perhaps I should retire - disgracefully - or should I consider other options......?
Well that wouldn't be a forum would it?
That would be a political party under the control of a chief whip.
Tinnitus can be more than a minor irritation.
Yes - obviously good that it gets talked about on air.
The subsequent tweets prove that.
I just feel that to give a realistic exposure to this condition, the severity and the extent it can reach should be mentioned.
That happens to be my own point of view.
Is that so terrible?
I'm not asking anybody to agree with me.
Discussion and disagreement is healthy.
Perhaps I should retire - disgracefully - or should I consider other options......?
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
#reframing This isn't the issue. The issue is downplaying someone else's experience because they are able to cope with it. You are creating an issue out of something that is not in the scope of criticism.
I can be a very negative person after years of ill health but this forum
can take the biscuit. The point is his tinnitus resolved after a decade. Bloody hell!!
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
Most of us that know what severe tinnitus is, know that Susanna Reid's tinnitus is mild like millions of people around the world that have it and easily habituate to it. Mild or moderate tinnitus is completely different from loud intrusive tinnitus, or to put it more simply: Severe tinnitus. This type of tinnitus can be very debilitating and can affect a person's mental and emotional wellbeing considerably. To post on Twitter and say "My tinnitus is really bad" proves this person hasn't got a clue what severe tinnitus is.
My tinnitus is quite unusual as I have a full range of intensity. From complete silence, mild, moderate, severe and extremely severe.
Michael
My tinnitus is quite unusual as I have a full range of intensity. From complete silence, mild, moderate, severe and extremely severe.
Michael
This is the impression that I have of her tinnitus.
It is clearly not a case of 'Hell on Earth.' IMNSHO.
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
Michael you know I am grateful for your contributions in this forum, and I am not trying to antagonize but... How are you so sure that her tinnitus is not "severe" to her? If I rang a bell and ask 15 people to rate the loudness from a scale of 1-10...I would have 15 different answers.
What makes a person's pain and suffering less than or equal to another? And why must this measurement be considered vital to the recognition of its disease? Would she still be considered an "attention seeker" if she became suicidal over her "mild" tinnitus?
I am just wondering because I am curious as to the reasons, and personally it interests me because I do see you as an intelligent individual and I just want to empathize.
Tinnitus is the worst affliction I can possibly think of.
Totally continuous very loud intrusive noise inside one's head from whenever it started until whenever one dies.
It is raging now and I know of course that it will never stop - it will rage on for ever.......
Does such continuous noisy torment make for relaxed good humour?
Well what do you think?
There is never a moment's respite.
Never a solitary second of peace and quiet.
It is no surprise to me that severe sufferers of this permanent sinister terrorising affliction sometimes lose their usually self-appointed 'cool,' and are known at times to speak in acerbic tones.
This is not an attempt to excuse myself, or to promote a shoulder to cry on.
I am just stating the miserable facts.
Totally continuous very loud intrusive noise inside one's head from whenever it started until whenever one dies.
It is raging now and I know of course that it will never stop - it will rage on for ever.......
Does such continuous noisy torment make for relaxed good humour?
Well what do you think?
There is never a moment's respite.
Never a solitary second of peace and quiet.
It is no surprise to me that severe sufferers of this permanent sinister terrorising affliction sometimes lose their usually self-appointed 'cool,' and are known at times to speak in acerbic tones.
This is not an attempt to excuse myself, or to promote a shoulder to cry on.
I am just stating the miserable facts.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Because if you have the ability to cope... you don't have it bad.
It's why Stephen Hawking had a mild case of muscle weakness.
You can bet all the cool kids with real ALS just called him a poser... Same thing with tinnitus.
I'd love to be able to voice match mine at a quiet 60 dB but my 85 dB dental drill means nothing because I have a job. Lame, lame, lame.
Ann, me and @Bam discussed this video earlier in the thread (I posted it in another thread not too long ago). Her tinnitus could still be the same (with some flare ups), or it could have become worse since she tweeted about it. We don't really know, and I don't see why it really matters. It's not a competition to find out who is the biggest sufferer. I applaud her for speaking her mind on the issue as it creates good awareness.
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
So does that mean that people with "severe" tinnitus and are able to cope with it considered as "attention seekers" and "posers" too? Or people who survived stage 1 cancer vs someone who has stage 4 cancer... Are they less of a survivor?
- Aug 29, 2015
- 7,069
- Tinnitus Since
- 2004
- Cause of Tinnitus
- Meniere's Disease
I think videos are great for Tinnitus Awareness from mild to severe tinnitus.
Seeing the person, hearing the person and facial expressions work better than just the written word.
Seeing the person, hearing the person and facial expressions work better than just the written word.
I can't believe this thread is still going to be honest. It has become nothing to do with the awareness that Susanna created. We had a unique opportunity to capitalise on her tweet and discuss ways to further spread the message. Instead, this thread has morphed into a debate about tinnitus validity, and who has the right to talk about it?
Wouldn't it have been better if some of you used this time to tweet a few replies with video messages, or tweets about how it affects you personally? Remember that nobody sees messages on here other than other tinnitus sufferers. As I've said before, you're preaching to the choir. You need to preach your message to the masses.
Wouldn't it have been better if some of you used this time to tweet a few replies with video messages, or tweets about how it affects you personally? Remember that nobody sees messages on here other than other tinnitus sufferers. As I've said before, you're preaching to the choir. You need to preach your message to the masses.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Me personally, I was being very tongue in cheek. I agree with the questions you ask. I would like to know from someone that legitimately feels that way.
Is ability to work the only measure that matters? What if you do not have a profession to quit?
Does the member who can only hear their tinnitus in a quiet room yet quits their job due to their emotional state have it worse than the member with screaming loud tinnitus who manages to work?
I'm with @Ed209 and perhaps we should take this topic to a different thread.
I don't think it's the fact that people can lose their "cool" or even when stating their own personal opinion (which I welcome whether I agree with it or not), it's the fact that certain people think they have a monopoly on "severe tinnitus" and only they know what it is to suffer with this and if they deal with it different to them then they must not have "severe tinnitus".
Nobody truly knows how a person deals with tinnitus, that's personal to them and them alone. Just because somebody may have mild tinnitus doesn't mean they don't suffer, not everybody is built to handle this hell regardless of volume, It can be devastating as we have all seen with people taking their own lives.
People can be all too quick to judge and put down anybody who doesn't fit in with their narrative of tinnitus. It's extremely arrogant and shows a real lack of empathy.
I'm repeating myself now but it's not a competition of who deals with the best, who has it the loudest, surely it's about coming together and helping whatever way we can??
This forum is so helpful but it's also quite toxic and on that note I'll take my leave (which I've said a few times
) I wish everybody the best in fighting this beast I truly do (I'll still pop in to see the updates on various treatments but I doubt I'll be active on the forum, not that I make much of a contribution 
)- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
I have struggled absolutely, but no, I couldn't quit even if I wanted to, as my family is dependent on my income. But my 'severe' (because it's all about volume right?) tinnitus will make me a better person, of that I am sure.
I believe you when you say that you're not trying to antagonize me. Ms Reid's tinnitus may occasionally be noticeable particularly when focusing on it or in a quiet environment like so many people that have it mild or moderate. I do not believe it is "bad" as she claims for it would affect her work or to read a book during leisure time for instance. There is no mention of this.
If her tinnitus was severe or "bad" she wouldn't fail to mention she has attended ENT or been referred to a Hearing Therapist or Audiologist, to find a way to alleviate the symptoms. We all know there are various treatments available. One of the easiest is using "sound enrichment". All Ms Reid has said "I have mild tinnitus" On Twitter she writes: contact the BTA for information about tinnitus.
I do not believe this person experiences bad or severe tinnitus. She has tinnitus but it is very mild and I believe it could occasionally be intrusive but I doubt it's anything serious.
Michael
The intensity of her tinnitus is irrelevant. If her tweet made people google the word "tinnitus" then awareness was created.
The way I see our situation is a bit like this (using a very crude analogy):
I go out for a meal and I crash my car. I'm devastated, and a bit shocked, but realise that if I want to improve my situation I need to do something. So, I ring my breakdown company and my insurance, and start taking actions to improve the position I'm in. This represents the Markku's, Steve's, Hazel's, and Glynis's of the world, etc.
Or
I could go online and tell people what happened. I could vent relentlessly about how I wrecked my car and about how I'm stranded in the middle of nowhere. I could make it clear that I'm concerned and ask why they aren't helping me. This represents the vast majority of the tinnitus community.
This thread kind of proves it. We have to affect the change we wish to see in the world. Always. Never rely on others to do all the heavy lifting for you, and talking on here all day won't change a thing, or help the cause (objectively speaking). In fact, the tweet that some of you are criticising is probably worth more than all of your posts combined.
For support this place can be great, but this is the awareness section. It's time to either step up or shut up, in my humble opinion.
Which is superb, Dave. I'm not knocking everyone. I'm merely saying that the tinnitus community are catastrophically bad at supporting and raising awareness for their own condition. Every proactive thread I've ever read on here descends into chaos. How do we get from Susanna raising awareness to talking about tinnitus volume? This is what always happens and it achieves nothing. Everybody argues, the world learns nothing about tinnitus, and the next day rolls around. And the cycle repeats.
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