I do not believe there is such a thing as reactive tinnitus. By this I mean I do not recognise it as a medical condition. Those that choose to believe in it that's their choice and will leave the matter there.
Tinnitus can react to sound. Most people that complain of this usually have noise induced tinnitus. Either they will have some oversensitivity to the auditory system or have full-blown hyperacusis which can be experienced in various degrees of severity. The belief that this oversensitivity cannot be treated is not true in my opinion. I have mentioned treatment using self help or seeking professional help in my post: Hyperacusis, As I see it.
Nowhere have I said oversensitivity to sound or hyperacusis should be masked. It should not be masked. Using low level sound enrichment or setting white noise generators at a low level helps to desensitize the auditory system over time.
I don't have hyperacusis or an oversensitive auditory system and don't experience spikes. This was cured over 20 years ago using white noise generators as part of TRT. I always use a sound machine at night for low level sound enrichment. I do not wear my white noise generators at night. It is not a good idea for anyone with tinnitus to sleep in a quiet room, as this allows the brain to focus on internal sounds within the body and head, as there's no external sound to distract it. This can allow the brain to increase the tinnitus which can make it louder during waking hours.
The oversensitivity to sound that you have can be treated but will take time and require a lot of patience. If one doesn't have success with self help, my advice is to see an Audiologist or Hearing Therapist that specialises in tinnitus and hyperacusis treatment. An Audiologist that I correspond with, told me all her patients have been cured of hyperacusis within 18 months. She recommends regular counselling and wearing one white noise generator not two, as the brain has only one auditory centre. She goes on to say, the only people that do not do well are the ones that do not follow her treatment plan.
Counselling helps to remove and demystify the negative thinking that is often attached to tinnitus and hyperacusis. For this reason it is recommend when using white noise generators one should have regular counselling with a tinnitus therapist.
Michael
Yes you have been consistent in saying you don't recognize
reactive tinnitus as a medical condition. But it's definitely a
subcategory of tinnitus because it has its own uniqueness that most tinnitus sufferers don't suffer with but small group of us for whatever reason do suffer with. One good example is making the TV louder. This only makes the tinnitus in my case louder in relation to the volume of the TV. There's a direct correlation there that exists. This is why I say (I wasn't implying you said it) that it's impossible to mask
reactive tinnitus. Ergo the problem with
finding the sweet spot you as well as audiologists keep mentioning & advising others to do with setting the sound generators or sound machine to just below the tinnitus level. Some also recommend that the sound should mix/blend with the sound of the tinnitus. That works great if your tinnitus does not react to sounds, hence
stable tinnitus, not
reactive tinnitus.
BTW, I have read many of your posts. Some a few times over. You have said you are 'cured' from your hyperacusis which took 2 to 3 years when you had TRT treatment 20 years ago. Did you notice any gradual changes over that period of time i.e. 3, 6, 9, 12, 15, 18 month's changes where your tinnitus was lowering and/or hyperacusis was less reactive to external sounds?
My audiologist is the only one who 'treats' tinnitus in my city with BTE sound generators using Pink Noise. He isn't TRT certified but is trying to replicate much of what you mention on here. I have one set of BTE sound generators, not two. But he programmed two different sounds I can toggle between back and forth. I had mentioned to him how making the volume louder with the sound generators makes my tinnitus louder.
The analogy I used which he finally accepted & has even used himself now was that of adding more volume of water to a swimming pool with a beach ball on top only pushes the beach ball higher & higher to no end. Now he is letting me decide in the future whether we should raise, lower or leave the volume of the Pink Noise at the same level. I also questioned him about
synaptic nerve damage within the auditory system from my noise induced tinnitus whether that may be reason for my reactive tinnitus or form of hyperacusis. He's not sure. He says there is a way to test for that but he doesn't have that equipment. He's also did a sound tolerance test on me which indicated I do suffer with very mild case of it but keeps referring to that as hyperacusis test which I believe is wrong as I believe the two are two separate entities where I suffer with both of them. There is no other audiologists in my city that even treats tinnitus.
I have mostly self taught myself to not react to my tinnitus in a way that will produce the fight or flight syndrome. Wearing the BTE sound generator helps as does my benzos with that for the most part. But when I take my BTE sound generator off at night, my tinnitus is peak loud making me question whether they are helping or hindering my progress. I'm not seeing any improvement when I'm not wearing them. They however do help cover majority of my tinnitus sounds & hyperacusis. So I view them more as a 'masking device' even though I can still perceive to some degree the higher pitched tones. The other problem is that when he resets the volume of the pink noise he depends 100% on me (the subject). So this is a
subjective approach in finding that 'sweet spot' where he is trying to mix/blend the pink noise with my tinnitus.
Can you leave us the name of the audiologist you correspond with? I would be interested in asking her some questions. She can claim anything she wants but there is no way that we can know for certain what she claims is true without her providing the evidence. TRT specialists & others make lots of grandiose claims. But when it comes to backing it up, that's a whole other story.