The Current Year Is 2018

[fishbone]

I do sympathize with your issues. I faced them myself and I know just how horrible they can be. I have full compassion for those that suffer, I do. I had hyperacusis and it was brutal for 3-4 years and I never knew what it was. I read your post and the posts of many here and I see the pain and horrors that afflicted me. Things take time to get better, your case of tinnitus is fairly new and all of us including ME....struggled pretty badly.

So my post was to never demean your pain and your struggles, because i faced them too and still face many horrors daily. My posts are all about taking baby steps and moving forward. I was in the PITS many times and still am , but I wake up each day trying to make my life better. Some way, somehow. This intrusive tinnitus has no mercy on me. So i have to have mercy on me and push forward.

Give it some time, take baby steps and don't ever give up

@fishbone

I absolutely must jump in here.
When my noise ramped up I was in total despair. I wanted to die, as soon as possible. I was finished.
It was all over for me.
I asked my wife to take me to Dignitas.
She flatly refused.

Then I found some writings by fishbone, who told me,
"Dave - my noise is as loud as hell, maybe even louder than yours, but I face it with courage and determination, and I live my life.
If I can do it - you can too."

It was exactly what I needed to hear.
Somebody actually believed I could 'make it!'
He made a difference.
I learnt to believe what he said,
and guess what - he was right.

I have a very noisy head, which I don't like, but I no longer live in despair.

I would like to ask @Charles_T who thinks that fishbone's presence on this site is ridiculous, if he has ever been able to offer such concrete support to anybody, or perhaps he believes that supporting other sufferers is ridiculous?

Fishbone makes a difference !!!

If I have made an impact in just one person's life, then I have achieved my goal. I come here to help people and support people and it is great knowing that I am making a difference......

 

[Liam_Cairns]

As I have said several times, tinnitus is easier when you are already old and have lived somewhat of a life. If I only had 20 years left I could habituate aswell. But me and many others have much more time ahead of us. You will never understand what it is like to be young with tinnitus. So don't act like you understand, because you really dont and never will. So just stop and think before you post on threads like this.

I understand what you mean about moving on with your life, but you see tinnitus through a completely different lense to us. Moving on is hard when your life has barely begun. Most of you are retired and have time to emotionally process tinnitus, whereas a lot of us youngsters dont.

 

[Michael Leigh]

@Michael Leigh she told me NHS does not give TRT as a treatment. I asked her what has happened to all the therapisst of TRT, she told me she is an ex-TRT therapist. How can I have any trust in NHS treatments or lack thereof?

TRT is practiced at my NHS hospital. Although treatments for tinnitus will vary throughout the UK, there is usually some form of treatment available for a patient which is given completely free. If treatment isn't available at a person's local hospital and they are able to travel, then a patient can be referred to another hospital. I mean no disrespect with the following comments, but I suggest you follow my advice in my previous post as you are looking at this whole process quite negatively.

Michael

 

[threefirefour]

So I waited 5 months to get to NHS tinnitus clinic, Iwas told TRT was an old model with limited success and was offered 5-18 hours CBT, I do not have depression and anxiety I have torture.
The audiologist told me the sound machines were to distract me from the noise, they do not do that for me.

AM I REALLY MEANT TO BE POSITIVE ABOUT THIS?

It's sad but that's how it is. TRT is an obsolete model. The fact it's still around is awful.

 

[threefirefour]

TRT is practiced at my NHS hospital. Although treatments for tinnitus will vary throughout the UK, there is usually some form of treatment available for a patient which is given completely free. If treatment isn't available at a person's local hospital and they are able to travel, then a patient can be referred to another hospital. I mean no disrespect with the following comments, but I suggest you follow my advice in my previous post as you are looking at this whole process quite negatively.

Michael

I have a legit question. Would you continue to blatantly shill for TRT when a treatment comes out?

 

[Liam_Cairns]

It's sad but that's how it is. TRT is an obsolete model. The fact it's still around is awful.

I mean there is little to no actual scientific peer reviewed journal articles that actually back up TRT, im not a massive fan of CBT, but it at the very least has a lot of evidence supporting its use. So what she said is right sadly, its an outdated model.

 

[fishbone]

As I have said several times, tinnitus is easier when you are already old and have lived somewhat of a life. If I only had 20 years left I could habituate aswell. But me and many others have much more time ahead of us. You will never understand what it is like to be young with tinnitus. So don't act like you understand, because you really dont and never will. So just stop and think before you post on threads like this.

I understand what you mean about moving on with your life, but you see tinnitus through a completely different lense to us. Moving on is hard when your life has barely begun. Most of you are retired and have time to emotionally process tinnitus, whereas a lot of us youngsters dont.

As usual I have to chime in and comment on comments that are pure rubbish. I got my tinnitus as a teen and I lived through it all and that's why I can come here and help people. I been in your shoes and KNOW what you people go through. Also, It did not take me 20-30 years to habituate. I was a teen that had tinnitus and brutal hyperacusis.

Only difference is that now,I don't have hyperacusis but my tinnitus is WAY louder and intense and I am older and more mature.

So I fully know how it feels and I had the same issues as all youngsters had......

PS- as a 20 year old, I already had the hearing loss of a 40-50 year old. So I fully understand what pressures teens go through.....

PSS- Also, you have an advantage over me. You have this site and people like ME coming here and trying to help you and advise you. I never had a mentor as a teen, no one told me what @Michael Leigh posts on this site. If i had this site and all the warnings that @Michael Leigh or even @Bill Bauer puts out. I'd not have the intrusive and destructive tinnitus I have today. Count yourself very lucky that people like myself and other vets (people that have good knowledge and experience with tinnitus) exists and we come here to support this board...

If i had this board, my volume would probably be half as loud and much less intensity...

 

[Michael Leigh]

I have a legit question. Would you continue to blatantly shill for TRT when a treatment comes out?

I take a dislike to you referring me as a shill for TRT. Please put your question to me more politely and I know you can, then I may consider answering you.

Michael

 

[threefirefour]

I mean there is little to no actual scientific peer reviewed journal articles that actually back up TRT, im not a massive fan of CBT, but it at the very least has a lot of evidence supporting its use. So what she said is right sadly, its an outdated model.

The one big paper on TRT suggests that it's effective, but less effective than a WNG, and it's so bad that "part TRT" (half of TRT sessions) are more effective. It's hilariously outdated.

 

[Liam_Cairns]

As usual I have to chime in and comment on comments that are pure rubbish. I got my tinnitus as a teen and I lived through it all and that's why I can come here and help people. I been in your shoes and KNOW what you people go through. Also, It did not take me 20-30 years to habituate. I was a teen that had tinnitus and brutal hyperacusis.

Only difference is that now,I don't have hyperacusis but my tinnitus is WAY louder and intense and I am older and more mature.

So I fully know how it feels and I had the same issues as all youngsters had......

PS- as a 20 year old, I already had the hearing loss of a 40-50 year old. So I fully understand what pressures teens go through.....

PSS- Also, you have an advantage over me. You have this site and people like ME coming here and trying to help you and advise you. I never had a mentor as a teen, no one told me what @Michael Leigh posts on this site. If i had this site and all the warnings that @Michael Leigh or even @Bill Bauer puts out. I'd not have the intrusive and destructive tinnitus I have today. Count yourself very lucky that people like myself and other vets exists and we come here to support this board...

In that case I apologise and take back what I said. I am sorry I shouldn't have assumed.

 

[threefirefour]

I take a dislike to you referring me as a shill for TRT. Please put your question to me more politely and I know you can, then I may consider answering you.

Michael

If you don't want to be called a TRT shill, then don't shill for it.

 

[Michael Leigh]

If you don't want to be called a TRT shill, then don't shill for it.

I will continue to advise people on TRT as an when I feel it is necessary and if you don't like it that is your affair. In future, if you ask me a question and it is disrespectful then I will not answer you.

Michael

 

[Tinker Bell]

It's sad but that's how it is. TRT is an obsolete model. The fact it's still around is awful.

I have seen a dozen different ENTs, ear specialists and audiologists yet not one recommended or provided TRT. In fact, two leading ear specialists told me TRT was a poor excuse for a treatment. I saw doctors at highly regarded teaching hospitals in the U.S. who were knowledgeable about current research and studies. If they do not recommend TRT, then who is?

 

[Jazzer]

just stop and think before you post on threads like this.

Liam, now that you have a better understanding of fishbone's life story, what do you think?

 

[Liam_Cairns]

Liam, now that you have a better understanding of fishbone's life story, what do you think?

I think I shouldn't assume in future tbh. Especially if im ever going to make it as a Psych. I still disagree with a lot of what fishbone says, but at the same time I do agree with some of what he says on habituation and he is right about the fact at least I have access to this info and how helpful it could be at preventing further increases. I know what I said sounded quite aggressive but I genuinely believe that fishbone has good intentions.

 

[Jazzer]

Especially if im ever going to make it as a Psych

Intriguing stuff:
Psychiatrist - Psychoanalyst - Psychologist - Psychopath......which is it.....?

 

[jay777]

So the head of my NHS tinnitus clinic is lying to me? TRT is available?

 

[Liam_Cairns]

Intriguing stuff:
Psychiatrist - Psychoanalyst - Psychologist - Psychopath......which is it.....?

Psycopath 100%, nah but actually I hope to one day become a clinical Psychologist. Give my life some purpose by helping others. Why do you ask?

 

[Jazzer]

@Liam_Cairns

Though I've been a jazz musician and a retailer all my life, my hobby has been reading psychology.
It was absolutely born out of necessity.
In a nutshell:
Mentally sick mother, no bonding, rubbish drug therapy from idiotic psychiatrist, good psychoanalytic experiences etc....
but my in-depth reading was what made sense of my life.
Psychology is the Bisso- no question about it.
Good luck to you buddy.
Jazzer x

 

[Michael Leigh]

So the head of my NHS tinnitus clinic is lying to me? TRT is available?

It is up to you what you want to believe, I am only telling you certain truths. I will not divulge the hospital that I attend but I assure you, TRT is practiced there and it's the full treatment not a scaled down version of it. Counselling and white noise generators are prescribed.

Michael

 

[jay777]

Why will you not tell me the hospital?

 

[Michael Leigh]

Why will you not tell me the hospital?

It's something I do not do nothing personal...

You have been offered CBT which is a good treatment so I advise you to try it.

 

[threefirefour]

 

[jay777]

@Michael Leigh are you for real?

 

[Zug]

I wonder if those who are complaining have made a donation to ATA, TRI, even TinnitusTalk?

I don't see many people with the "Benefactor" badge. Why is that?

Complaining is easy.

Do your part first, than at least you can have some credibility when you feel like venting.

 

[jay777]

Why would someone hold back info on a hospital where I may get TRT?

 

[advocate21]

Why would someone hold back info on a hospital where I may get TRT?

Maybe he is afraid someone will dig up his real identity if he divulges the hospital he attends...

 

[threefirefour]

I wonder if those who are complaining have made a donation to ATA, TRI, even TinnitusTalk?

I don't see many people with the "Benefactor" badge. Why is that?

Complaining is easy.

Do your part first, than at least you can have some credibility when you feel like venting.

Not an argument.

 

[Michael Leigh]

@Michael Leigh are you for real?

I have tried to help you by answering questions and giving you advice. Try not to make negative thinking take a hold as it can stop you from habitating. Please do not follow or listen to the negative advice by some members of this forum CBT, TRT and other tinnitus treatments work but they won't if you convince yourself they will not. One assured way of achieving this is by listening to negative thinking people and there are quite a few here. If you put those people to one-side listen to positive thinking people such as @fishbone @glynis @Samantha R @Ed209 @billie48 and there are many more you have the chance of making steady improvement.

Michael

 

[Zug]

Not an argument.

Not an argument. A call to action.