The Current Year Is 2018

[Zug]

Some of them can be used sarcastically but none of them are strictly negative.

I'm pretty sure that given enough time someone will be offended even by a happy rainbow

 

[Gman]

I repeat:

Alzheimer (no cure), Fibromyalgia (no cure and only treatments are AD which have nothing to do), ALS No cure, Nerve Injury No cure, Paralisis No Cure, Blindness No Cure... I can go on and go on, and all these diseases.

You consider that T is the worst because you have T, but there are many people with other ailments in other forums that feel exactly the same way as you do. I can tell you because a terrible thing happened to me some years ago and it is the same.

What we must do as T sufferers is to support scientists, and political parties that have a strong research agenda and support associations that promote awareness and research for T, that is what we all should be doing.

@fishbone I totally agree with you, you are an example of a real role model for all of us so thanks for your words!

Treatment and cure are two different things. Look up the definitions. Also who is to say that T is the only thing people have? You don't know. I have other things that are worse but don't mess with my sense of well being as much as T.

Everyone is looking for treatments for whatever ailments they have. So it should be no different for T sufferers.

 

[Gman]

@Michael Leigh what? what? does it really concern you that I may get treatment and I am not from your post code? my GP has not got clue about TRT.

He's protecting TRT for himself instead of helping you? This is a support forum. Unbelievable. Anyway don't rely on his advice. Ask another local doctor. You're being positive wanting to seek treatment. Don't let his negativity get to you please.

 

[Amv]

Treatment and cure are two different things. Look up the definitions. Also who is to say that T is the only thing people have? You don't know. I have other things that are worse but don't mess with my sense of well being as much as T.

Everyone is looking for treatments for whatever ailments they have. So it should be no different for T sufferers.

Gman, from all those ailments except (maybe) alzheimer, all have no treatment and cure. You said it, we are all seeking treatment for whatever ailments people have, that's the point, and everyone feels that his/her ailment is the most damaging for them.

What we have to do is raise awareness, help funding and associations that will specifically investigate the ear, and don't forget that good findings for other diseases will in turn help T (kv7 potassium channel was intended for epilepsy or frequency therapeutics started everything after stem cell research). What we must do is support research the most we can do, that''s the whole point!

 

[Gman]

Gman, from all those ailments except (maybe) alzheimer, all have no treatment and cure. You said it, we are all seeking treatment for whatever ailments people have, that's the point, and everyone feels that his/her ailment is the most damaging for them.

What we have to do is raise awareness, help funding and associations that will specifically investigate the ear, and don't forget that good findings for other diseases will in turn help T (kv7 potassium channel was intended for epilepsy or frequency therapeutics started everything after stem cell research). What we must do is support research the most we can do, that''s the whole point!

Exactly right. Push for treatments and ultimately a cure. Not be complacent and just accept it like people here advocate. The research for T has been woeful until recently. But you can be sure a lot of those other ailments have been actively researched for years. There have been recent breakthroughs for Parkinson's. People didn't just sit around meekly existing.

 

[annV]

There have been recent breakthroughs for Parkinson's. People didn't just sit around meekly existing.

Most people with Parkinson's do actually sit around meekly existing. They're given some drugs to help and try manage the symptoms but they don't do that much. Most with Parkinson's aren't doing anything. And look at yourself. What are you - or we - doing, complaining like a child on a tinnitus forum? You are meekly existing for all intents and purposes.

 

[Gman]

Most people with Parkinson's do actually sit around meekly existing. They're given some drugs to help and try manage the symptoms but they don't do that much. Most with Parkinson's aren't doing anything. And look at yourself. What are you - or we - doing, complaining like a child on a tinnitus forum? You are meekly existing for all intents and purposes.

That's not what I meant. There are awareness campaigns and foundations actively pushing for funding and research. Michael J Fox didn't just accept things.

Complaining like a child? Ok just give up. I'm trying my best to get past this ASD. I'm out everyday making a living for my family. Not meekly existing, I can assure you. But it's really tough. I am at my limit of what I can do, trying to work, take care of my family and trying to exist in this noisy world.

I know someone with Parkinson's and he's not sitting around meekly. He owns a company and keeps active.

 

[Gman]

Most people with Parkinson's do actually sit around meekly existing. They're given some drugs to help and try manage the symptoms but they don't do that much. Most with Parkinson's aren't doing anything. And look at yourself. What are you - or we - doing, complaining like a child on a tinnitus forum? You are meekly existing for all intents and purposes.

Oh yeah one other thing. You can be sure that people diagnosed with many of those ailments such as Parkinson's are treated with dignity and respect. They are actually able to get a diagnosis. Not just given the old ENT line 'just live with it, close the door on your way out'routine. There's a clear difference, Ann.
Their clinicians wouldn't make their conditions worse, unlike a money grubbing ENT or clueless audiologist.

 

[Hazel]

Credibility does comes from action.

Let's expand "donation" to mean not only money, but time volunteering. You can donate money, you can donate time, there are a lot of Tinnitus support groups and organizations around the World, there are a lot of ways to contribute to a cause.

From time to time there seems to be a thread with general complaints about the status of Tinnitus research and Treatment. That's fine, it's our right to be dissatisfied.

But maybe, just maybe, if more people found ways to contribute to a cause, instead of only talking about it, it would bring more progress to the cause and more credibility to the person doing the speaking.

I'm not talking about a specific person, to each one its own, I bet most people reading this could donate some money to Tinnitustalk or any other organization, or join a local support group, or help in any other way (as in Tinnitustalk advocacy, research, etc. efforts). Sadly, most people opt not to do anything.

I totally agree. And I would really like to hear from the people on this forum (you know who you are) who are so vocal about the uselessness of healthcare systems, the lack of attention from policymakers, the slow academic progress, etc.: What are you doing to further these or any related causes to improve the lives of tinnitus sufferers?

And in general: Yes, let's turn more names to yellow! There are people working behind the scenes (most notably, but not restricted to, Markku and Steve) without any monetary compensation, to keep TT up and running on a daily basis. And it's not just the forum, but a wide variety of efforts, e.g. collaborative projects with researchers, surveys, developing new resources for tinnitus sufferers, etc.

 

[Greg Sacramento]

Oh yeah one other thing. You can be sure that people diagnosed with many of those ailments such as Parkinson's are treated with dignity and respect. They are actually able to get a diagnosis. Not just given the old ENT line 'just live with it, close the door on your way out'routine. There's a clear difference, Ann.
Their clinicians wouldn't make their conditions worse, unlike a money grubbing ENT or clueless audiologist.

I agree that some ENTs and most in Northern California do not follow clinical guidelines listed in this link. If they did an examination would take many hours and several visits. Sometimes with one sided problems, there's something physical going on and that should be examined further.

http://journals.sagepub.com/doi/pdf/10.1177/0194599814545325

My cardiologists appointments are always at least 2 hours with several exams. Then sometimes I have a 24 hour hospital stay with multiple exams.

 

[glynis]

Giving support on here is lovely but getting involved in Tinnitus Awareness is amazing and feeling so proud for what a difference you can make.
I'm sure some members would love to get involved more.
Love glynis

 

[Rajin]

I joined a support group in Allentown PA , going there 19th April . Don't know what to expect. Hope not Doctors trying to sell me something. Just want to meet ppl ,that suffer with T face to face . Maybe become friends.

 

[Hazel]

Giving support on here is lovely but getting involved in Tinnitus Awareness is amazing and feeling so proud for what a difference you can make.
I'm sure some members would love to get involved more.
Love glynis

As usual Glynis, you have a lovely and diplomatic way of putting it
Probably much more effective than my crude call to action above.

 

[threefirefour]

Me and @threefirefour agreed. No need to defend him.

Most people can donate money or time. I find it hard to believe that someone that doesn't have the time can't spend a couple of bucks, and someone who can't spend a couple of bucks don't have the time. I do believe that most people who don't do anything will find a good excuse for the inaction.

I'm not aware of any lower limits to donate do TinnitusTalk, ATA, TRI, also, several times the moderators of TinnitusTalk have asked of help in some initiative.

My reasoning is simple: If you want to complain, It's better to act in the real world AND complain than just to complain.

So go ahead everyone, turn your names to yellow.

Best,
Zug

To be fair, I did get HOF earlier than most. There's a way to tell if someone posts good comments. With a rating-to-message ratio. likes/messages=likes on average.

Examples:
Michael Leigh: likes (4,361)/messages (4,531)= .96 likes per post on average.
Haz-G: 139/113= 1.23 l/p
Glynis: 4,936/5,523= .89 l/p

Following this math:
Threefirefour: 2,587/2,033= 1.27 l/p

So yeah I get a lot of likes per post. Rajin's got a point.

 

[Greg Sacramento]

I worked in healthcare for many years and not all of that was in medical care as about half of my employment time was in system improvement and operations. I bought baseball cards, football cards and non sport cards for children in pediatrics, the burn center and rehab units. I spend thousands of hours where I did not receive a salary. One year, I worked 352/365 days or nights, 9 to 13 hours because we were understaff and I could have received the same salary if I had worked a normal schedule. My mother died last year and my father before that. I gave them the best care that I give them as I was retired. I have an inferior complex and I always felt that I could have done more. My conscious always bothers me. There's so many here that give their time not only on TT, but to the their communities. I can't do community involvement anymore and it makes me sad. I can't even take my wife out with my conditions.

 

[glynis]

@Greg Sacramento ,
I am sure you could find something you can do that would be voluntary to help others.
Something as easy as being a telephone buddy for the elderly where you ring a pensioner once a week for a friendly chat...
Look in to elderly care agencies etc.
Love glynis

 

[Flamingo1]

There's a way to tell if someone posts good comments. With a rating-to-message ratio. likes/messages=likes on average...

Following this math:
Threefirefour: 2,587/2,033= 1.27 l/p

So yeah I get a lot of likes per post. Rajin's got a point.

And how many of those likes are yours?

 

[threefirefour]

And how many of those likes are yours?

Well for me, none considering you can't like your own comments. But maybe everyone else has a higher ratio because I have a habit of liking everyone's comments.

 

[Tinker Bell]

Well for me, none considering you can't like your own comments. But maybe everyone else has a higher ratio because I have a habit of liking everyone's comments.

How many are from fellow frequent posters on the MPP thread?

Actually, is there a way to tell where everyone is commenting? General versus support or research?

 

[threefirefour]

How many are from the MPP thread?

Actually, is there a way to tell where everyone is commenting? General versus support or research?

Good point. Idk if there is, but those MPP likes are still other people liking my memes.

 

[Andrei90]

Well for me, none considering you can't like your own comments. But maybe everyone else has a higher ratio because I have a habit of liking everyone's comments.

Let's be honest now. We both post on MPP and it's really easy to raise this figure when there's a small group of people constantly upvoting each other. This is why I don't bother looking at these numbers because they don't really mean anything. Unless, of course, you provide informative posts on Research. Those are upvotes that mean something.

 

[Tinker Bell]

Good point. Idk if there is, but those MPP likes are still other people liking my memes.

It's still a way to support one another, so no problem. Take allllll the likes.

Actually, I rate things often. I blame FB for conditioning me to do that.

 

[Tinker Bell]

Let's be honest now. We both post on MPP and it's really easy to raise this figure when there's a small group of people constantly upvoting each other. This is why I don't bother looking at these numbers because they don't really mean anything. Unless, of course, you provide informative posts on Research. Those are upvotes that mean something.

True, too. I'd give more credence to high ratings on research threads, which is why I'm curious about where ratings fall.

 

[threefirefour]

Let's be honest now. We both post on MPP and it's really easy to raise this figure when there's a small group of people constantly upvoting each other. This is why I don't bother looking at these numbers because they don't really mean anything. Unless, of course, you provide informative posts on Research. Those are upvotes that mean something.

True. The point I'm making isn't that likes mean something, just that if likes mean anything, then my formula is the best way to deduct popularity. Of course with my MPP likes, I'm producing meme's and comments people like, but that doesn't mean anything for my overall helpfulness.

It's still a way to support one another, so no problem. Take allllll the likes.

Actually, I rate things often. I blame FB for conditioning me to do that.

I've been conditioned to do it overtime because it's considered polite on the internet.

True, too. I'd give more credence to high ratings on research threads, which is why I'm curious about where ratings fall.

I do get high ratings on the signal timing thread but thats it. Make of it what you like.

 

[Andrei90]

Btw, this thread has really taken off since the last few days. A lot of rock throwing a few pages back. I like this kind of friction. Gets things moving.

*Looking at you Frequency*

People are angry. Get it done.

 

[Jcb]

Btw, this thread has really taken off since the last few days. A lot of rock throwing a few pages back. I like this kind of friction. Gets things moving.

*Looking at you Frequency*

Get it done.

View attachment 16693

Since I've been on here, these type of threads always have the same tribes, those who are for and against. It doesn't really solve anything as it seems to be the same thing over and over ( even though I think it's always good to discuss opposing views) I don't see any things moving, apart from the usual back and forth comments from certain posters.

 

[advocate21]

Since I've been on here, these type of threads always have the same tribes, those who are for and against. It doesn't really solve anything as it seems to be the same thing over and over ( even though I think it's always good to discuss opposing views) I don't see any things moving, apart from the usual back and forth comments from certain posters.

I agree.

 

[jay777]

when we start talking about fact instead of theory we might agree

 

[jay777]

This is where TRT is still available on the NHS and all are welcome.


Brighton and Sussex University Hospitals NHS Trust
Charles Swyer
Audiology Clerical Assistant
Audiology Department
Sussex House (Corner of Abbey Road and St. George's Road)
BN2 1ES

(350 yards from RSCH main buildings)

www.bsuh.nhs.uk/audiology

Tel: 0300 303 8360 Option 1 for Audiology & Hearing Aids
Fax: 01273 664806

 

[dpdx]

Think about that for a second. It's 2018, which means it's been 2018 years since the splitting of time in the Gregorian calendar. The earth has orbited the sun 2017 times since that splitting (Because there's no 0 A.D. So since the split; it's been:

63,658,828,800 seconds
1,060,980,480 minutes
17,683,008 hours
736,792 days
105,256 weeks
24,207 months

So why is there absolutely no treatment for tinnitus? I know it's hard but the fact is we haven't been really trying, as a research community until very recently. It's 2018 and the closest thing to a treatment is TRT, and of course, that isn't actually a treatment. If we were, I guarantee you that we would have at least a medicine that reduces noise or something. The fact that tinnitus treatments have literally never improved is embarrassing.

View attachment 16583

The reason why we dont have any treatment for Tinnitus is because there is not a lot of funding, it is also seen as a sprained leg, or better said a minor inconvenience. It is something that is brushed aside and thought of as not significant thus why we have CBT (useless). I think Tinnitus is going to become very common in a few years due to earbuds/ipods and other loud noises.