The Current Year Is 2018

[dayma]

Just some random thoughts....

I read somewhere that T is a multi billion dollar a year industry that is currently untapped.

I am not sure how I feel about the research going on. I personally have some other medical issues that 95% of ENTs would deny even exists. So T is not he only thing that is not fully understood or even the brain itself. I also have other nerve issues that have zero solution to except to apply lidocaine to. Basically I am saying that T is on our minds nonstop but not he only medical issue that does not have a perfect solution to.

Nerve regeneration itself is something researched like nuts which I would say is a positive thing for T.

 

[dingaling]

We should make it a personal mission to get a Frequency therapeutics represenitive or researchers like Charles Liberman and Roland Schaette on Tinnitus Talk.

They could contribute greatly to research threads.

I have been fortunate to meet Roland Schaette and David Baguley personally and sat in on a couple of their lectures

 

[Contrast]

I have been fortunate to meet Roland Schaette and David Baguley personally and sat in on a couple of their lectures

wow, that's interesting. Did you have a chance to talk to him?

 

[dingaling]

wow, that's interesting. Did you have a chance to talk to him?

Yes, but not for long as he was teaching, but I have kept a presentation of his on hyperacusis

 

[Champ]

tinnitus caused by hearing loss (hair cell damage)
might really be able to be cured/reduced once Cochlear hair cell regeneration is available.

The brain will decrease central gain and hyper neuronal activity once the input is restored

The nerve's ability to transfer the sound isn't lost when you damage your ear, so this makes the most sense to me. What I imagine will happen when we restore hearing is that a tiny fraction of the tinnitus will be left because your restored hearing will remap to it's old frequencies. This in turn would cause the connections created post-tinnitus - to the jaw/neck muscles - to be diminished. They may even fade permanently. Until we can successfully regenerate the hair cells, we won't know though. So it's worth it to wait and see on this one.

 

[Rajin]

We should make it a personal mission to get a Frequency therapeutics represenitive or researchers like Charles Liberman and Roland Schaette on Tinnitus Talk.

@Contrast @threefirefour this may come off funny to ppl , but I really think if you guy's have the access to research, we will have a cure. Because you all care.

 

[Contrast]

@Contrast @threefirefour this may come off funny to ppl , but I really think if you guy's have the access to research, we will have a cure. Because you all care.

it's funny how the two most obnoxious shitposters on this website @threefirefour and myself are more interested in research and actually seeing a cure then most users on this website, not saying any names but some advocate habituation like it's a religious doctrine.

 

[dingaling]

View attachment 16594
it's funny how the two most obnoxious shitposters on this website @threefirefour and myself are more interested in research and actually seeing a cure then most users on this website, not saying any names but some advocate habituation like it's a religious doctrine.

I'm in both camps. All for research and long may it continue

But in the meantime, we have to live with T so we have to find ways of accepting it in some way or form and finding our own solutions using what is currently available.

I live with chronic back and neck pain (like many others). I have cried with it and been in the emergency room. Like tinnitus, pain is a very subjective experience. We can also make it worse or bearable for ourselves - either way, we have to live with it until a cure is found

 

[Berik]

It's 2018, which means it's been 2018 years since the splitting of time in the Gregorian calendar.
View attachment 16583

Even in the ancient Egyptians suffered T. They mummified their farao's. Build incomprehensible structures but could find a spell to fight T.

 

[threefirefour]

Even in the ancient Egyptians suffered T. They mummified their farao's. Build incomprehensible structures but could find a spell to fight T.

Well they had treatments. Just put honey on the ear. Sure it did nothing, but at least it was an attempt to do something. Nowadays with our CBT and TRT treatments, our treatments don't even try to do that. It's awful to think that treatment-wise, we're no better than we were 4,000 years ago. It's hard to find any other chronic disability that can say that.

 

[Contrast]

Well they had treatments. Just put honey on the ear. Sure it did nothing, but at least it was an attempt to do something. Nowadays with our CBT and TRT treatments, our treatments don't even try to do that. It's awful to think that treatment-wise, we're no better than we were 4,000 years ago. It's hard to find any other chronic disability that can say that.

That's why I refuse to call CBT and TRT treatments for tinnitus. By definition they are not treatments.

 

[David Dubros]

That's why I refuse to call CBT and TRT treatments for tinnitus. By definition they are not treatments.

But they are both therapies and good ones. Therapy whether its topical or psychological is still a treatment.

 

[threefirefour]

But they are both therapies and good ones. Therapy whether its topical or psychological is still a treatment.

 

[dingaling]

CBT and TRT are both management strategies. Yes, not for everyone but one needs an open mind

 

[Amv]

We are able to go to mars, to make last technology weapons, but we still don't know much about how the human body really works. It's not just T, there are many other diseases, like Multiple Sclerosis, Nerve Injury, Paralitics, Deaf People, Blind People, HIV, Cancer... it's not just T guys !!!!!

What can we do ? We have to support scientists, vote for political parties that have a strong research agenda, boost stem cells, support companies that drive for innovation, support associations with a real R+D agenda behind, that's what we have to demand as society

 

[IAmCalifornia]

Tinnitus is debilitating. Bad tinnitus, not the kind you forget about.

So, when I have bad tinnitus, the equivalent of a life sentence of Chinese torture, how do you think one is going to feel when one is told the only treatment is a therapy designed to make happy thoughts, but wait, here's the kicker, with your debilitating tinnitus, it'll cost you a god damn arm and leg.

The prices for these treatments are DISGUSTING. No other way to put it. It gets a bad rap because financially it takes advantage of severely anxious people to begin with. Ethically and morally, for what it offers, it is wrong, and no one will ever convince me otherwise.

 

[jay777]

I have been offered 5-18 hours of CBT, am I better off sticking my hand in the fire every day and saying it does not hurt?

 

[Gman]

I'm going to be contraversal here but rather than "wait" for a cure that could still be years away, people need to empower themselves and take control of their T.

Why wait when there are loads of options? Too many people moan and do nothing for themselves

I wish there was a lameness button.

Also it's stupid when people say T is just a symptom, like somehow that lessens it's significance. It's a condition and a debilitating one for many people. Just saying take control of it is glib. Who is to say someone hasn't tried or is still trying to? Really stupid baiting.

 

[Gman]

We are able to go to mars, to make last technology weapons, but we still don't know much about how the human body really works. It's not just T, there are many other diseases, like Multiple Sclerosis, Nerve Injury, Paralitics, Deaf People, Blind People, HIV, Cancer... it's not just T guys !!!!!

What can we do ? We have to support scientists, vote for political parties that have a strong research agenda, boost stem cells, support companies that drive for innovation, support associations with a real R+D agenda behind, that's what we have to demand as society

There are effective treatments, which are improving all the time, for some of these, as opposed to zero for T. T and hearing loss treatment research has been under researched until very recently.

 

[Amv]

There are effective treatments, which are improving all the time, for some of these, as opposed to zero for T. T and hearing loss treatment research has been under researched until very recently.

I understand what you are saying, but Fibromyalgia , HIV, Nerve Injury, ALS, Alzheimer, Ms, Blindness, Stroke Repair, Body Trauma... the list is really long. Because you are suffering from T makes you wonder about T, but the same happens for people that suffer from other ailments.

The world is evoluting fast, but medicine has been quite stagnant in terms of progression, we are using many medicines that were used many years ago, even from 50's or before.

We should support R&D investment, the knowledge of the human body and demand for more investment, because the knowledge on many of these diseases will also help ours.

 

[MBH]

@Amv- just my thought about the above stated causes in your statement the difference between T and them is acknowledgement those causes are well known in the medical world and docs dont turn there check at those disease, yes those cause are also hard to help but they recieve proper care.

 

[fishbone]

Think about that for a second. It's 2018, which means it's been 2018 years since the splitting of time in the Gregorian calendar. The earth has orbited the sun 2017 times since that splitting (Because there's no 0 A.D. So since the split; it's been:

63,658,828,800 seconds
1,060,980,480 minutes
17,683,008 hours
736,792 days
105,256 weeks
24,207 months

So why is there absolutely no treatment for tinnitus? I know it's hard but the fact is we haven't been really trying, as a research community until very recently. It's 2018 and the closest thing to a treatment is TRT, and of course, that isn't actually a treatment. If we were, I guarantee you that we would have at least a medicine that reduces noise or something. The fact that tinnitus treatments have literally never improved is embarrassing.

View attachment 16583

Many factors can cause tinnitus and it's related to the brain. This is a complex issue and it will be very hard to find a cure. In regards to treatments, TRT did solve and treat my hyperacusis issue over 30 years ago. It's great to seek a cure for tinnitus , but making threads like this will not solve our issues and get us a cure. Go live your life and not focus on the tinnitus. I was like you guys and I'd focus and try to find a cure and just rattle myself up. All it did for me was give me crushed dreams and hopes.

I speak from experience and I pass it on to this forum/board. If they find a cure (which I hope they do), that would be wonderful but don't rely and depend on a cure. Go and live your life, I suffer from intrusive/crap tinnitus and I do not let this garbage called tinnitus take over my mind and life.

Again, I been in all of your shoes and sympathize(with all members), but I careless about a cure. I care about living a life and not limiting myself.

 

[threefirefour]

but I careless about a cure. I care about living a life and not limiting myself.

The good news is the majority of the tinnitus community isn't like that. To any researchers reading this, just know that most of us DO NOT FEEL THIS WAY in any way, shape, or form. please keep that precious cure-sauce coming.

 

[fishbone]

The good news is the majority of the tinnitus community isn't like that. To any researchers reading this, just know that most of us DO NOT FEEL THIS WAY in any way, shape, or form. please keep that precious cure-sauce coming.

Hey I am all for them finding a cure, but to stop living our lives(people can live their lives, with all intensity levels of tinnitus) and not moving forward till a cure comes, that's where I draw the line....Tinnitus is a tough battle and a complex one. Like i said, I was in your shoes before and know how you and many feel here......

 

[fran dana]

these are the kind of threads I like

 

[threefirefour]

Hey I am all for them finding a cure, but to stop living our lives(people can live their lives, with all intensity levels of tinnitus) and not moving forward till a cure comes, that's where I draw the line....Tinnitus is a tough battle and a complex one. Like i said, I was in your shoes before and know how you and many feel here......

You just said you could care less about a cure. I'm sure you want a cure too, but it might be a good idea to phrase your quotes more accurately.

 

[fishbone]

You just said you could care less about a cure. I'm sure you want a cure too, but it might be a good idea to phrase your quotes more accurately.

I do care less. I don't obsess over a cure. I live my life! If they do find a cure, that's awesome but I will not stop living my life and creating threads like this

Ok. You are back on ignore

 

[fran dana]

meanwhile in 2020

+I feel something in my ear honey, like a beep or something
-Did you forget to take your annual pill for tinnitus sweetness? it must be that trauma from years ago that has returned
+Oh, it's true! forget to take them this year hehe. I go to the pharmacy to buy a blister right now

 

[threefirefour]

I do care less. I don't obsess over a cure. I live my life! If they do find a cure, that's awesome but I will not stop living my life and creating threads like this

Ok. You are back on ignore

Sorry I forgot you're passive aggressive. See you later.

 

[Charles_T]

It does say a lot about this community that there still isn't a cure. If we stopped saying we have a bunch of options when we don't have any real options then maybe the medical community would take us seriously