The Toughest Lesson in the World

[fishbone]

Raspberries are awesome though

What makes them so awesome? Do you use 'em in a shake or something?

 

[coffee_girl]

What makes them so awesome? Do you use 'em in a shake or something?

Raspberry pie is the best, cant believe anyone would call them awful names, fruits are your friends mkay.

 

[fishbone]

Raspberry pie is the best, cant believe anyone would call them awful names, fruits are your friends mkay.

Can you make them pies? What did them fruits/pies, ever do to humanity to get such a harsh treatment?

 

[coffee_girl]

Can you make them pies? What did them fruits/pies, ever do to humanity to get such a harsh treatment?

Of course, yeah...fruit haters are not cool

 

[Vicki14]

@Jazzer

Excellent piece of writing there which conveys the true horror of INSTRUSIVE NON STOP Tinnitus. I'm so sorry too that your life has been turned upside down too. It's completely surreal living this anxiety ridden life knowing how fabulous it could be without this insane noise piercing our brain 24/7 with no sign of it stopping. How long can the body endure this level of stress? That's what truly frightens me! xx

 

[Jazzer]

Quite incredible.
I wrote a piece which I feel is highly relevant to those of us with severe tinnitus, only to be attacked by two members, who immediately came out and accused me quite openly of being uncharitable, uncaring and selfish.
What do you two people actually know about me, about my charitable efforts? Do tell?

You seem to be enjoying some kind of mutual 'love in,' which is all rather touching in its way - but I just don't understand why you attempted to slander me in the process.

I would consider apologies are in order,
but I won't hold my breath.
However, "all's fair in love and war,"
and TT spats - apparently.


PS - perhaps some kind soul could pass a message on to Coffee person for me.
Advise her to lay off the raspberries

• I'm sure she's got a touch of belly-ache!!

 

[JohnAdams]

this coming from a guy that wears ten layers of ear muffs to a supermarket..STFU loser...lol

Get a life before you try to make a joke at others....

Hey chill bro, when I was having a spike with hyperacusis the noise of the squeaky rattling wheels on the cart was almost unbearably loud and almost painful.

 

[fishbone]

Hey chill bro, when I was having a spike with hyperacusis the noise of the squeaky rattling wheels on the cart was almost unbearably loud and almost painful.

I cannot lie, them shopping carts (especially the small ones) drive me crazy. There been times when I have lifted and carried the cart with me as i was walking the supermarket. I fully get your point on this one....

 

[just1morething]

Physical injury of some sort which managed by some vile fluke of fate to destroy nerve fibres in our cochleas.

Your noise must really be severe, but it seems most people with severe tinnitus get a day of relief once per month or so for some reason. I don't recall if you lost hearing in both ears or just one or if your tinnitus is in your ears or head or both. I know musicians in general are more susceptible to tinnitus than the average person and that noise exposure can be cumulative.

 

[Jazzer]

Your noise must really be severe, but it seems most people with severe tinnitus get a day of relief day once per month or so for some reason. I don't recall if you lost hearing in both ears or just one or if your tinnitus is in your ears or head or both. I know musicians in general are more susceptible to tinnitus than the average person and that noise exposure can be cumulative.

Yes it can be cumulative,
but in my case was instaneous after an excessive blast.

 

[JohnAdams]

Yes it can be cumulative,
but in my case was instaneous after an excessive blast.

Same here. Did you feel it in your ears right when it happened like a moment of painful hyperacusis?

 

[Jazzer]

Who said anything about you lacking charity work? She just brought up a topic and I just replied. No one knew or said anything about you DOING or not DOING charity work. @coffee_girl just said that if you have had such a great life, then do some charity work and help others. Neither myself or her know you outside this forum.



Yes, you got me there. I don't know what severe tinnitus is and I guess -80db hearing loss is not good enough either

The assumption was that I did none.
("You might learn something about yourself.")

However - I'm glad that you are clearly impressed with all that I do.

Incidentally, like everybody else, I can only write from my own perspective.
You frequently ask me how my posts can possibly help others.
Try reading some of the comments I get.
Also I suggest, choose your friends wisely.

 

[Jazzer]

Same here. Did you feel it in your ears right when it happened like a moment of painful hyperacusis?

Yes - immediate pain.
Tinnitus was there the very next morning John.

 

[Jazzer]

@Jazzer

Excellent piece of writing there which conveys the true horror of INSTRUSIVE NON STOP Tinnitus. I'm so sorry too that your life has been turned upside down too. It's completely surreal living this anxiety ridden life knowing how fabulous it could be without this insane noise piercing our brain 24/7 with no sign of it stopping. How long can the body endure this level of stress? That's what truly frightens me! xx

Sending love Vicki,

Just wish I could send you peace,

Dave x
Jazzer

 

[JohnAdams]

Yes - immediate pain.
Tinnitus was there the very next morning John.

exact same here.

 

[Don Tinny]

I understand your feeling. It is depressing. In about 5 weeks I will go on vacation, but I do not feel any anxiety. I do not know how my tinnitus will be and what percentage of good days I will have. And I recognize that in this year I have had improvements, but it is still difficult.

Maybe we should think of those who had tinnitus 40 years ago and died with that. At least we will have a solution (partial or total) in the coming years. If the Mute Button works some will achieve it in 2019.

 

[Vicki14]

Just wish I could send you peace,

Right back at ya @Jazzer x

 

[Bam]

@Jazzer you know I couldn't agree more mate. This condition is the worst thing that has ever happened to me and will EVER happen to me. It's simply not possible to top this. And all those that disagree and don't understand why we write about our pain and suffering I cannot see eye to eye with and to be honest I deeply mistrust their motive for being here. No offence to anyone but this for me is the sound of suicide. A constant noise that drives you to take your own life...... What could possibly be worse?!?

I still don't know if I will survive it after over a year. I am nowhere near this mythical 'habituation'. When my T is louder and screams over a motorway roaring by beneath me how is ignoring it even possible? How can a human being be expected to adjust to such torturous conditions and be happy?!? I still have no idea. And no therapy seems able to brainwash me in to making some huge Stockholm syndrome leap in to making peace with my evil captor who has taken the most precious gift we all have....peace.

And still I go on. Hoping. That's all it is now. I live for love and a tiny slither of hope that fades in and out dozens of times a day as the relentless scream goes on and and on unabated.

@Vicki14 @Jazzer and many others understand me, make me feel less alone, less isolated......You cannot save me, nor can I you from this monster, but we can metaphorically hold each others hands as we struggle on in the hope of an end one day to this living hell. Because surely only silence will set us free.

I leave you with the words of Mother Theresa which whether you believe in God
or not, really do say it all......

'We need to find God and he cannot be found in noise and restlessness.
God is the friend of silence.
See how nature, trees, flowers, grass all grow in silence.
See how the stars, the moon, the sun all move in silence.
We need silence to be able to touch souls.'

 

[JohnAdams]

This condition is the worst thing that has ever happened to me and will EVER happen to me. It's simply not possible to top this.

no, dementia.

 

[Digital Doc]

I wear earplugs to a supermarket that has metal carts that rattle, loud beeping scanners, and staff who sometimes cause sudden loud noises. What's the problem?

Those beeping scanners are quite annoying. Wish I could turn them down a notch or two...

 

[fishbone]

The assumption was that I did none.
("You might learn something about yourself.")

However - I'm glad that you are clearly impressed with all that I do.

Incidentally, like everybody else, I can only write from my own perspective.
You frequently ask me how my posts can possibly help others.
Try reading some of the comments I get.
Also I suggest, choose your friends wisely.

Dave your ego is amazing. Ego leads us to nowhere in life.....

 

[Bam]

no, dementia.

This is surely a form of dementia?......The brain has fucked up big style.

 

[JohnAdams]

This is surely a form of dementia?......The brain has fucked up big style.

no dude. I spent my 20's constantly visiting my father in a nursing home, in the demetia ward. it is far far worse than what we are experiencing. I think....

 

[Vicki14]

and many others understand me, make me feel less alone, less isolated......You cannot save me, nor can I you from this monster, but we can metaphorically hold each others hands as we struggle on in the hope of an end one day to this living hell. Because surely only silence will set us free.

@Bam Have absolutely no fear! We are completely on your page! Like you said, it's such a lonely, isolated condition that no one could truly understand the horrors of unless they had the horrid misfortune of experiencing . We will always be here for you and understand your despair in a way that no friend/partner/colleague/neighbour can. We are all in this cruel underworld together, like some sick torturous game, getting through each day as best we can, whether that be a dog walk, trip to the David Lloyd or pint at the local... it's merely going through the motions of existence until we (I HOPE TO GOD/HIGHER FORCES) find that something shuts this f****** noise off!!!! Big hugs! X

 

[Bam]

no dude. I spent my 20's constantly visiting my father in a nursing home, in the demetia ward. it is far far worse than what we are experiencing. I think....

I'm sorry bud. That must have been soul destroying. It appears life has numerous ways of making life miserable as shit.

 

[JohnAdams]

I'm sorry bud. That must have been soul destroying. It appears life has numerous ways of making life miserable as shit.

actually that was nothing compared to tinnitus for my part of the experience.

 

[Jazzer]

My goal is to never make anyone, feel bad at all. I just asked how is this thread is helpful.

Because I speak with honesty, integrity, and an absence of bullshit........x

 

[fishbone]

Because I speak with honesty, integrity, and an absence of bullshit........x

Really? You insult others and keep doing it and then try to turn it around with your pussycat pics and your little story. People can read between the lines, I sure as hell can.....

And you got the nerves to say that I don't have severe tinnitus? lol

PS-If you want someone real, then at least @Bill Bauer is a real person, I respect him for at least being who he is....

 

[Bam]

actually that was nothing compared to tinnitus for my part of the experience.

I watched my Dad get obliterated in a high speed car crash. Yep, you guessed it, nothing compared to tinnitus for my part of the experience. This condition brings with it a depth of sadness, misery and loss that goes way beyond I could have imagined prior.

 

[Bill Bauer]

no, dementia.

Dementia is horrible for the family of the patient. Isn't the patient gradually descending into a possibly blissful state?