I don't mean to act ignorant or anything but come on @kelpiemsp, you are active on here all day bro. The least you can do is answer our questions. I understand that you have a newborn but you stay logging on here all day, and you know what it feels like to have tinnitus & hyperacusis. What you're doing is not cool brotha.
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University of Minnesota Tinnitus Research with Acoustic and Body Stimulation
- Thread starter kelpiemsp
- Start date
Member- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Hey!
Sorry for the delays. Things are wild around here and I just had a gum graft last week. I was a little concerned if this would affect my tinnitus (it did not). A couple of answers to some questions:
Sorry for the delays. Things are wild around here and I just had a gum graft last week. I was a little concerned if this would affect my tinnitus (it did not). A couple of answers to some questions:
- It's really unknown how long the "treatment" should suppress tinnitus. That is an open ended question
- I have silence during the day, a little noise at night. It's a noise I mentioned I had previously not heard, I think it was just being masked by other tones.
- I had two prominent tones. Bi-Modal stimulation is not focused on canceling these sounds, so it doesn't focus on one sound and then another.
- The sound I heard (which was tailored to the individual) was like a puff of steam.
- I'm really not on that much. I read the forums maybe every other day and I'm usually not browsing this thread. Sorry
Great to get an update. I do have a follow up question though which I'm hoping you might have an answer to or at least a hum, but I get it if you don't.
You said you had multiple tones, so do I. How is the treatment working for that? I imagine you might have asked about it. Can they treat both tones at once or separately or is it not possible at all?
Also one of the tones I'm hearing is probably not a clear one frequency tone but more a hiss with a mesh of different tones. Do you think someone like me is going to be able to benefit from the treatment if and when it becomes available?
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Bi-Modal just doesn't care about your tones. It is a question that can't be answered. It's irrelevant. It focuses on shrinking your brain maps, not on tones. Sorry I can't help.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
You may want to go to the MuteButton thread. In the Q&A with CEO Ross O'Neill he states "tonality, intonality, it doesn't matter".
The whole point of bimodal neuromodulation is to modulate the hyperactive neurons that drives the tinnitus, by repeating this process over and over again, it is speculated that this drives plasticity and can change these overactive neurons regardless of how your brain receives this (eeeeeeee, whhhoooooshhhh, etc etc)
@kelpiemsp, before treatment what was your tinnitus score out of 10? And after treatment what was your tinnitus score out of 10? For how long after treatment did you continue to get results and did it go back to baseline eventually?
Sorry if you've already answered this, but your tones, whatever the frequency, diminished in volume, correct?
And when I ask that I don't mean your emotional reaction or your specific focus on them, but the actual volume, like as if you searched your consciousness for the tones would they would be less as loud or gone?
With all these companies, it sounds like some results are coming in. I want to hear someone post, that #hit is gone. When I hear that I'm going to knock down doors and reach across desks at the VA to get something going. It's in their benefit to not have to pay disability.
If the stress of tinnitus combined with PTSD drives them to suicide then they dont have to pay disability.
I really feel for and respect soldiers. I'd have a nervous breakdown after hearing a single pistol shot, for fear of having worsened my tinnitus. And there are people volunteering and serving for years among rifles, helicopters, artillery and God knows what. They are truly better than I am.
Bimodal stimulation really seems like it's going to be our ticket out guys. Pack your bags, we're leaving Tinnitusville soon.
Heck, my tinnitus is mild (audible in 30-35 dB environments). This or the MuteButton should knock mine out completely. I'm crossing my fingers mine will go below 20 dB (threshold of hearing).
I believe @kelpiemsp could hear his over cars? Man if it can do this much for him, what can it do for those mild sufferers like myself.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
I've had similar scares that turned out to be nothing. Beyond those issues, I've had lipomas in my arms since I'm a small child. Most lumps are benign. Try and stay positive for now.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
My THI was on the 100 point scale. I went from 89 to 18. I believe if I took it again it would be lower than 18.
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
- Dec 19, 2018
- 108
- Tinnitus Since
- 10/2018
- Cause of Tinnitus
- ETD possibly, or neck and jaw, or maybe anxiety?
This is Hubert Lim's trial correct? Oh yeah, Neuromod's gonna clean up. This is great news.
The THI is completely subjective and you could be a habituation expert and have a change of mood one day and go from a high score to a low score. I've taken 3 of them in the last 2 weeks and there are zero questions about the loudness of your tinnitus.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Right, but if this device purports to lower the tinnitus volume then how can they tout measures from a criteria that doesnt include loudness?
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
Who touted what? You seem to be confused. I was asked my THI before and after my trial.
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
@kelpiemsp I'll ask the question I think people are looking for. Did they do a dB SL loudness match? And if so, is it possible to share the results before and after? Congrats on the substantial declines in your THI.
Thank you for all of your updates.
Thank you for all of your updates.
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
We did it all the time through out the trial. It was measured in volts and I was blinded to this result.
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
The important thing to determine is whether this class of treatment can work in general. If it does, and information of that spreads, then it's a foregone conclusion that it will come to market sooner or later.
Oh, and again, if this winds up getting held up in patent disputes I strongly suggest delivering flaming bags of turds to the doorstep of the CEO of the company responsible.
Oh, and again, if this winds up getting held up in patent disputes I strongly suggest delivering flaming bags of turds to the doorstep of the CEO of the company responsible.
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