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delta784
Hows your dysacusis brother
MatthewR
Everything pretty good. Still have annoying tinnitus, and it just seems like I can't hear perfectly. But I am fine. Kinda used to it now
delta784
happy for you brother reactive tinnitus kills me :(
N
Royally depressed. Hyperacusis has improved but reactivity is bad and variable. There are days I cannot listen to the radio at 50db without the tinnitus screaming over the top of it. How has your week been @Cmspgran
daydream
I'm new to the forum sorry if this isn't the right spot to reply, still learning how to navigate it.

I have a similar problem too Nick. My workaround was using an equalizer on my computer. I removed all frequencies higher than 5000 hertz so the offending frequencies wouldn't trigger the sound distortions. I use my computer for listening to all digital audio now as it is now the only viable way.
Cmspgran
Really sorry to hear @Nick47 , I know first hand the mental toll reactivity can have. Mines not great tbh it's so variable, you still trying a mix of treatments? Do you do any quiet hobbies that can try to take some of your mind off?
daydream
I got my reactivity to resolve. High quality fish oil, Magnesium malate and astaxanthin. I think these play a minor role in helping. Protecting my ears religiously and avoiding almost all sounds for a few months worked. had more to say. hit char limit, will make intro post. Does your own voice create the distortions?
N
Hi @ErikaS have you got over your bout of illness yet. My reactivity is still BAD and VARIABLE. How has your condition been over the last week?
ErikaS
Hey @Nick47 sorry I had a very busy week at work and wasn't coming on much. Yes illness is gone and thankfully no significant setback from that. All in all, I'm managing okay and better than 4 weeks ago. I have moments where it's a lot and reactivity is still super sensitive, but it's not nearly as constant.
ErikaS
@Nick47 last weekend I went out to dinner with a friend Saturday night at a medium level noise restaurant and was there for 3ish hours, then Sunday was at my sisters for a small gathering for her husbands birthday. Monday and Tuesday were exacerbated, but rebounded to more tolorable levels. I TRULY believe this is mainly me healing from the ear plugs and the effect they had on my nerves.
ErikaS
@Nick47 also currently doing .25mg during day and .5mg at night just from illness and very hectic work week. I will also say the mindset of keeping myself occupied/distracted very much helps me. Distortions are much quieter and crazy sounds that came on in August have calmed down a lot.
in_LA
Just wondering if anyone could fill me in with anything in research, any new drug companies trying to tackle hearing loss or tinnitus treatments
N
Hi @MAH1970 What's your dosage and strategy with the Gabapentin at the moment? You still going up & down on it?
MAH1970
Hi Nick, I have changed my Gabapantin dose quite a bit over the past couple years. Usually I have been on 300mg but have increased to get lower tinnitus but then it's always no fun having to back down. As well as deal with the drowsy side affects of being on a higher dose. There is always a tolerance issue with this drug as well I have noticed.
Katarinacl
7mo update: Same as last month, 2/10-5/10 high pitched hissing. I no longer think about it except in the car with the windows up and when trying to sleep. I'm no longer suicidal over it and haven't been for the last 2 months, but I still hope it continues to fade.
delta784
Hello is your morse code gone? I developed after medication called prednisolone (i am devastated at the age of 29 i also have sound distortions)
delta784
Do you also have nox,dysacusis and h ? alongside with T, i have loudness h (mild thank god), dysacusis and moderate t left ear severe t right ear. Most bothersome issue is always with my right ear
Nes
I finally got clonazepam prescribed instead of clorazepate! I really hope it will help spikes
adpolandam
Do sudden sounds hurt you?
Nes
@adpolandam no. White/fan/Ac noises give me tingling nerve pain in my face though
Sodlin
Always these meetings.... Everyone is polite and behaves until some random person 1 meter away from me starts to clapping hes hands like a maniac while someone talks for 5-8 seconds. I couldnt plug my ears since i was trying to listen to the other person 3 meters away that was talking. It was a small room 2x4 meters so it echoed very loudly. I hope this wont cause a spike, i was doing so good this week.
Nes
My noiseless pc setup using a steam deck is up and ready ! This console has been the best thing i bought in 2024
View previous comments…
Varda
Some of the PC cases produced by Fractal Design have sound dampening material lining the inside.
Nes
@Lurius I will probably make a post with the specifics (comments are way too short) , but I use sunshine and moonlight to stream my pc to my deck, which is connected to a monitor. It works surprisingly well with 0 latency
Nes
@Lurius another solution I've stumbled upon and which is my end goal is to use thunderbolt with a kvm extender and optical display port cables to use directly the pc from another room. More expensive and requires cables to run across all appartement, but better quality
Sointu
I am sick and tired of these flu induced ear and hearing issues. My left ear has been clogged for two weeks now making me feel like I cant hear with that ear. I feel pressure in my ears. I mostly hear tinnitus.
delta784
Hello i also developed dycasusis after steroid injections from my arm are you any better? and tininitus
N
@Cmspgran New routines would be getting some part time work in again. I'm self employed and had been working this yr upto September. Then back in the gym. I have asked GP about 10mg Nortriptyline and waiting to hear back. Other than that crack on with house jobs I was doing. I had to suspend these due to noise levels. Even sanding was too loud.
marqualler
Six months since my tinnitus worsening, plus ten years since joining Tinnitus Talk. Grateful that my tinnitus has become less intrusive since worsening, and grateful for the wonderful people and great community here!
BrOKeN_1
Curious how you gauge it as less intrusive even though it has worsened? When my T worsened and became unmaskable it became incredibly intrusive yet I became subjectively less emotionally reactive.
marqualler
Maybe how you put it, "incredibly intrusive yet subjectively less emotionally reactive" is a good way to put it, because I somehow turned a corner the last couple months and now even if I hear it in certain places, it doesn't bug me as much. I'm hopeful "worsening" is actually more like a "spike" that is getting slowly back to "baseline" for me.
BrOKeN_1
I hope that's the case. Even lower then base line would be great. Lol.
_Shoto_
After moving to this new apartment I understood that you can't escape dogs at 6 am. Not possible.
BrOKeN_1
Seems cliche af. But Mondays are always hell on my tinnitus. It's definitely my work schedule adjusting back to graveyard shift after the weekend I assume. But dammit it's like slowely acclimating all week just to go back to square one. *sigh*
Heal82
Have been coughing non stop.. wonder where will my H be by the time cough goes away. Any suggestions??
ZFire
You will be fine. Try not to overthink it. Coughing is a natural response when one is feeling ill. Take cough suppressants if you want. Try natural remedies like honey, ginger, peppermint, steaming, etc. I hear marshmallow root is good for coughs also.
Heal82
Thanks @ZFire..yes it's much better now and I don't think it has adversely affected my H or T even though I have been coughing and blowing my nose so much this past week. I wear Mac ear plugs when blowing my nose and also coughing.. In case I am about to cough and I don't have my ear plugs on then I just close my ears with my hands..🙂
N
Just checking in on you. Are you back in the gym? I'm feeling a little more miserable with it getting dark at 5pm. My pain and loudness hyperacusis has been better the last week. I now need to mentally get engaged in life a bit more again.
Believin' Steven
H got worse. Possibly due to lamotrigine. Pain all the time. Have to wear protection in quiet room. Trying to ride it out, been about a month. Struggling. Lost so many things since the first time I got nox. Again. Hard to keep the hope alive. Pray for me.
delta784
hey how is your distortions
Cmspgran
Hi @delta784 my distortions n haven't completely gone but they're nowhere near as bad as the first 6 months. Still get morse code beeps over certain sounds.
delta784
Hi Erika what caused your distortions may i ask
View previous comments…
N
@erik I'm thinking the ear plugs are a no for me. Over ear ONLY.
ErikaS
I'm telling you @Nick47 , my most significant spikes/worsenings followed using them. I'm one of the last people on this forum to tell someone what to do, but if someone like me who has reactive T and not loudness or pain H, and I am too sensitive for in ear protection, I can't help but think about those with H wearing them constantly and if it's causing further nerve sensitivity/aggravation.
N
@ErikaS it makes you wonder. Clinical staff don't know. Research says loudness hyperacusis is made worse though. Have you recovered from cold? Medicine change better?
delta784
Pinhead sorry to hear your story i have dysacusis as well with loudness hyperacusis(mild thankfully) and severe tinnitus in right ear i am so scared of dysacusis to be honest. and i feel like its getting worse i was only getting them on top of shower and ac fans now over Tv aswell what caused your tinnitus and dysacusis may i ask? Mine is caused by steroid injections from my arm.
delta784
Hey billie my tinnitus becomes severe on 24.10.2024 for no reason after fleeting tinnitus attacks twice last episode was in 26.10.2024 i am not sure if this was some sort of sshl or fleeting tinnitus or sbutt but can this get better? before that i had mild dysacusis and moderate tinnitus atleast it was liveable now it sucks so bad because my right ear constant 15.000 khz no hearing loss up to 16.000 khz
billie48
Thanks for contacting me. I think you should see an ENT to rule out any problems with the ears first. Without a medical issue, unstable ears tend to settle down after a while and your conditions may improve. That is only a general assessment but I am not a doctor, so it is best to seek medical opinion first.
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