Matt G

Matt G

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  • Matt G
    Just checking in because I caught wind of the results from Dr. Shore's study. Wonderful news for a lot of us folks…
    Damocles
    For real @Matt G.

    Hope you're doing well also.
    Matt G
    Doing pretty well my man @Damocles

    Had a setback a few weeks ago because I put myself into a really bad situation but trying to stay calm, and continue things that made me feel better the first time.

    Still cannot believe the phase 2 results…happy days on the horizon
    Matt G
    Thank you everyone here on TT, this community has been paramount in helping me get back to a livable, and "normal" life. Take care :)
    Matt G
    With a combination of feeling immensely better, and the unfortunate news regarding OTO, I'm off here for awhile.
    Matt G
    Anyone with H & T ever see a spontaneous recovery in their symptoms? After 13 months, my symptoms are the best they have been since trauma.
    Matt G
    Don't want to jinx anything, but H & Severe reactive T are definitely healing. A few weeks ago I never guessed T & H could be this tame.
    GG_Ear
    What did you do to feel better?
    Matt G
    Friends took me out for my birthday on Saturday (29, yikes) and it felt good to just not give a fuck. T was fussy after, but such is life.
    View previous comments…
    Matt G
    @Wrfortiscue have you narrowed down your triggers? I'm finally starting to find out what makes my ear piercingly chirpy, and I've found that my voice is the biggest culprit :/ followed by digital audio
    Wrfortiscue
    @Matt digital audio for sure! Glad you found your culprit. Driving and my wife/kid yelling lol
    Matt G
    @Wrfortiscue yea I have to imagine if I had children that would 100% be a trigger too. Other peoples loud voices, and screaming should have been added to my previous list.
    Matt G
    Took a few weeks off here. Felt like I was doing pretty good. Past 3 days have been the loudest chirp/twinkle has ever been :/
    MartinPihl
    SAME! i was also away from here a while ago, for a week or two, thinking that noooow everything is okay...
    The furnace, jet engine and screeching came back with a vengeance :(
    Matt G
    To add to the below, I haven't had 3 quiet days of chirp T since this started 6 months ago. Hopefully turning the corner on this.
    Matt G
    Well, I hope I don't jinx myself, but I've had 3 days of pretty quiet chirp T. If this is the new normal, I can deal with it. Nox still mild
    Steph1710
    Hey @Matt G, glad you seem to be on an upward trajectory. My bird chirp has settle a lot too. I've noticed that it goes, but will come back occasionally if I have a loud noise exposure. I guess it's something to watch out for now. Gotta carry on protecting where possible. Never thought earplugs would be my best friend. X
    Matt G
    Barely got sleep last night because of a huge storm. T very loud today. Fuck it I'm wearing my headphones - can't get any louder lol
    Matt G
    Pain Hyperacusis does seem to be waning, albeit slowly. Thankful for that. Just can't get over how my T distorts when I type on a keyboard..
    Matt G
    Anybody else have fluctuations throughout the day? How is it half of yesterday my ear was quiet but the other half it was a reactive mess?
    View previous comments…
    aura
    Tbh,I don t even know anymore. In the first years ( 2012-2014) i had 3 stable tones. Then I was tinnitus free for 7 years. Now i keep adding tones, but some of them come and go. I.get periods with very loud T but i ve also experienced almost complete silence a few days ago for some good minutes.
    aura
    I think it s a new development, the " going to extremes" pattern. Maybe 2-3 months?
    Matt G
    Sounds pretty identical to me for the most part. Had head T for around 20 years. Picked up a new tone in 2017, and what I now realize was my first signs of hyperacusis. Didn't think too much of it as it went away.

    June 2021 everything changed.
    Matt G
    Fantastic day Tuesday. Thought I was turning the corner. No pain or chirp. Nope…louder and louder the chirp goes
    kingsfan
    That seems like the normal currency for having a good day unfortunately.
    Matt G
    Yep…I want to be positive and say that it's probably so amplified the past two days because I had a such a good day on Tuesday. At the same time it also seems objectively louder and more variable.

    Only time will tell.
    Matt G
    Chirp was not as bothersome in the month of April. Stopped using headphones around this time and changed my lifestyle and now I'm worse?
    Matt G
    Just so confused on how this is getting progressively worse. I stopped using headphones completely, eating healthier, consistent exercise..
    Wrfortiscue
    It can get worse at times for no reason. Doesn't mean it will stay this way or won't get better
    Matt G
    Chirp is here to stay. Is incredibly reactive and the loudest, most shrill T I've ever had. I can't escape this one.
    Steph1710
    @Matt G yup. Mine is too. I have better days where it behaves and is fairly quiet. However, the last few days it's been loud again - and reactive. Yay! -_- Hope you're okay? X
    Matt G
    @Steph1710 so annoying how variable this one is. It's been so shrill for the past week and reacts to everything.

    Quite honestly, I'm not doing okay and am thinking about going to see my doctor and seeing if I can get prescribed antidepressants. Never once in my 20+ years has T made my mood unstable. This chirp is a life changer.

    I hope you are doing better than I am.
    Matt G
    Sprained my knee at softball this week. Looks like I'll be forced to isolate now. Maybe this is a blessing in disguise.
    Matt G
    Been said a million times here and elsewhere but the fact we don't even have a viable treatment for this yet is absolutely insane.
    Matt G
    These conditions have turned me into a bright, positive young man that enjoys life to someone that cannot even enjoy my days off work.
    Marshall
    You could say that again
    Rockman
    You won't. It will get better.
    Rockman
    I'm just not sure when. Some just take a couple months others seems like forever
    Matt G
    How am I supposed to live the rest of my life like this? Honestly would take more pain H if reactive T would just fuck off.
    View previous comments…
    Marshall
    Imagine stable tinnitus and no h man what a dream
    Matt G
    @Guywithapug its insane. I don't react to my faucet at home but my friends faucet? Absolutely insane how loud the reactive t gets.

    @Marshall my original T for 20 years was stable. This is something completely different that I had no clue could ever get this bad. I really take it for granted…
    Marshall
    I never had stable T just straight to hell with this bs and h. But it's getting a lot better. I just gotta be on my toes for the rest of life lol
    Matt G
    Basically 20+ years of stable T, now I can't even predict what's it's going to be like hour by hour. So fucking over this shit.
    Wrfortiscue
    Damn I'm similar to you. Stable T for almost 2 decades and now unstable T that changes all day
    Marshall
    I went from no T to stable T to unstable T in the same week
    Matt G
    Reactivity still sucks, but haven't heard the "chirp" T for a few days. Ear discomfort only coming from voice. No more radiating face pain.
    Matt G
    No doubt that my TTTS is interconnected with my newly acquired pain hyperacusis. Still fairly mild pain. TTTS is just out of control tho…
    Matt G
    TTTS symptoms basically gone last week. Back in full force this week
    G
    • G

      GoatSheep

    Try supplementing with magnesium. Liquid kind preferably. I've seen people say it clears it up over weeks to months time.
    Brian Newman
    The middle ear pain, is not triggered by my voice anymore. My inner ear pain is getting triggered by it now. So if I have to talk I keep it short. If I'm feeling better I'll try and talk a little longer.

    It definitely is best to go by how you feel. Never push through the pain cause that royally fucked me lol.
    Matt G
    Yea I've been noticing that wearing ear plugs let's me talk without reactive T/ pain H. Gonna have to start doing that moving forward I guess.

    How can you tell the difference between inner and middle ear pain if you don't mind me asking?
    G
    • G

      GoatSheep

    The inner ear pain is normally like a cochlear stabbing sensation I believe. For me middle ear is a nerve pain that feels like a chisel is being ran through my ears till they are raw.
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