BrOKeN_1

BrOKeN_1

Member 45 From Utah
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  • BrOKeN_1
    Even after all this time it's hard to imagine this condition being permanent. Staying positive one day I'll glimpse silence agian.
    View previous comments…
    L along the way
    Amen to that broken_1.. i tell myself every day.. time is a healer
    BrOKeN_1
    @kingsfan you and me both brother. My tolerance has gone to shit this week. Anxiety is spiking. And I'm contemplating getting back on the meds after 6 months of being free of them. But enough about me.. sorry to hear your having a rough go all around at the moment.
    Juliane
    I know exactly what you mean. It just goes against the very core of the human soul to accept or even adapt to this. Of course we want silence.
    BrOKeN_1
    Met a man with cochlear implants last night. Said he had loud tinnitus for decades and eventually went deaf. No T after implant. Insightful
    View previous comments…
    SarahMLFlemmer
    Say what?!
    BrOKeN_1
    @sakrt no choice but to take him at his word. If true that's good for him. I wish I would.of thought to ask if people sound different to him. Robotic even. Idk. It was a very short conversation in a poor environment for serious talk.
    Supersix
    My ENT told me he had patients who were deaf and had Tinnuits. He said it's worse for them because they can't mask the noise. I believe he said it was the nerve that caused it.
    BrOKeN_1
    Curious if anyone here has FLARE AUDIO products. I'm wondering if the CALMER may help those with hyperacusis or just loud sound in general.
    kingsfan
    I have them. They don't really do anything, maybe round off high freq sounds ever so slightly. They're also hard to get out of your ears. Had to use tweezers once.
    BrOKeN_1
    Been getting really mild dizzy/vertigo episodes lately. Don't know if it's related but it is rather annoying.
    kingsfan
    I live half my life in a dizzy, brain-fogged state.
    BrOKeN_1
    Nothing like a good headache to test your tolerance level. T sucks! It would be nice to get a break. I'm tired of this mental exercise. *-*
    makeyourownluck
    Got a cracker of a sore head myself, and my T is annoying me like crazy! Just drinking lots of water and hoping for the best. Fingers crossed. Hope it passes for you soon.
    BrOKeN_1
    I know its bad right now and I feel like hell. Tapered off meds and perception did swell. One coffin.. one nail.. No. I fight to get well.
    makeyourownluck
    @BrOKeN_1, needed a hug yesterday and feeling anxious last week. How's the taper going?
    makeyourownluck
    Didn't have you down as a rap fan @BrOKeN_1. Just looking through your posts. Was quite the surprise. Learn something new every day. I like rap too, usually just stuff that makes me giggle or reminds me of my younger partying years. Put links in the hip hop thread please :)
    BrOKeN_1
    @makeyourownluck My last concert before T was actually a NF concert in Salt Lake City, UT. Took my teenagers! It was so much fun. P.S. I quit tapering and am just gonna stick to a lower dose for awhile.
    makeyourownluck
    Sounds like the right thing to do re taper. The slower the better. YES! @BrOKeN_1, you one of those COOL dads :P!
    BrOKeN_1
    Feeling uncomfortable and just generally anxious today..
    BrOKeN_1
    @Joe Cuber there's a good chance it's due to my slow taper off Prozac..
    BrOKeN_1
    @Joe Cuber Just patience and measured breathing. Then find a distraction. I'm feeling a bit better now. Thanks everyone.
    Supersix
    @Joe Cuber I had my Dr prescribe Lorazepam for an emergency when I'm having a tough time. I only take it when needed and at bed time.
    RingerHisser
    I do take antidepressants, but my doctor is upping the dose. What is/was your dose and what antidepressant?
    BrOKeN_1
    Fluoxetine/Prozac 20mg currently. Works pretty good for me to suppress depression. Beats down the anxiety some as well.
    BrOKeN_1
    As far as I can tell caffeine doesn't effect my T. But damn the caffine headaches. I need to calm tf down. I live on the stuff. Lol
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    Lurius
    I just cut diet pepsi completely from my life. I'm expecting massive swings and spikes from this, it might become unbearable actually, but the aspartam was giving me tummy aches twice a week.
    BrOKeN_1
    @Lurius Its possible the carbonation was/is the culprit. I quit drinking carbonation about a year ago and I haven't had nearly the Stomach issues.
    Lurius
    Ok, that's good to hear because I was literally screaming in pain in the middle of the night. It felt like I had some kind of metal worm crawling around in my guts. Literally.
    BrOKeN_1
    Question? In your opinion would masking with a hearing aid be considered sound therapy? If not. What is your idea of sound therapy?
    View previous comments…
    Marshall
    When I play call of duty with 2 speakers next to my ears. About a foot or 2 away from each ear. After I'm down playing my tinnitus is extremely calm. And it's a constant 50dbs for hours and hours. My tinnitus has been getting better.
    Marshall
    I guess that's kings like sound therapy if you think about it
    BrOKeN_1
    @Marshall I had to give up the FPS when I went zero headphone use. Just not the same.
    BrOKeN_1
    T decided to migrate to the left ear adding new pitch. Managing changes is annoying and anxiety inducing. Never a dull moment.
    View previous comments…
    SamRosemary
    @BrOKeN_1 Honestly, I feel the same. I felt pretty good/almost habituated before covid and all the new T it came with. Also, anxiety and panic are major things I struggle with. So you're definitely not alone. Have you don't any CBT? I find it's helped my panic disorder a lot.
    S
    Anxiety is the devil in the mix of all this. You take that away to a manageable level and dealing with the T is so much easier. It likes to pull the rug out from under you at times just when things are looking up.
    BrOKeN_1
    @SamRosemary I've played around with CBT but the ADD in me makes it hard to stay focused. I use more sound therapy then anything else.
    BrOKeN_1
    Just spent the day at Disneyland.. yet I have conflicting emotions. I hate not being able to just enjoy something in its entirety. Oh well!
    View previous comments…
    kingsfan
    I went to downtown Disney once. The crowd noise wasn't too bad, but there was some loud music playing out of speakers by the D-land hotel. Fireworks show started while I was there and that made me very nervous. I went into a nearby store for escape. I wore my 26SNR custom earplugs.
    kingsfan
    I had a big spike afterwords, but I'm not sure if it was Dtown Disney or the really busy revolving sushi bar I went too beforehand that caused the spike. I'm most worried about crowd noise, noise playing from the speakers around the park, parade and show noise, and ride volume. Basically everything I guess.
    BrOKeN_1
    @kingsfan We never made it to downtown Disney. Is it worth it with the kiddos. Going down to Anaheim from Northern Utah takes some planning and we may have missed alot. My first time there. We may go agian in a couple years. The Financial aspects of Disney can be daunting if your not fully committed.
    BrOKeN_1
    Why is it so hard to accept that this is my life so I can just move on?
    Lurius
    Because it's not natural. You know in your mind and soul that it's not meant to be like this. Because you have a memory that reminds you of a time when it was better. It's something innately machine-like about the tinnitus noise that makes it so difficult to be creative. It's like your soul is on a ball and chain.
    twa
    @BrOKeN_1 I just had to accept it in order to move on. My life will never be what it once was, but we all change as we get older and progress through life.
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