Drone Draper

Drone Draper

Member From U.K.
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  • Drone Draper
    I'm enjoying speech in noise tests. "Choose the words - book, cat, bells". Best video game I've played in a while.
    View previous comments…
    Drone Draper
    That's the one! I'm not sure why my score is variable. Probs hearing loss, ha.
    Manny
    My score is similar. As difficult as the test is I actually don't think it's a good representation of real-life speech in noise, as there are only 10 possible options for each answer ://
    Drone Draper
    Ha! True. The "choose the words" ones are way too easy.

    To be honest, I never struggle with speech in crowds, winds, etc.
    Drone Draper
    Gym playing music at 85db this morning! Seeing kids walk around with the same Bose headphones I have. Wonder if any of them will get T :/
    Arseny
    Only if they expose themselves to very loud sounds. Yes, they develop cochlear synaptopathy, but it won't show itself until they suddenly damage their hearing so brain can't adjust to it.
    I have 2 friends that blast headphones at 100% - no tinnitus.
    I was just like that and I had zero issues. But of the reasons it's so loud was this cumulative damage over 10+ years.
    Drone Draper
    Sure. Well, there are people who lose hearing with no tinnitus as well, I guess these people's hearing loss is more gradual, like mine was. Fuck.
    Drone Draper
    Telling someone with tinnitus that getting good sleep is a way to lower symptoms is like telling a paraplegic a good run lowers phantom pain
    View previous comments…
    J
    Since November 2017.
    Drone Draper
    Hellish disease. I'm hoping Lord Neuromod can save us. Otherwise I feel I will just live a zombie like existence.

    Any improvements?
    J
    Agreed. Neuromod, Susan Shore, and neural beamforming for T Uni of Minnesota will help us. All non-invasive.

    Well, improvements.. ups and downs. I attribute my worsening to big time social isolation and a heavy use of ear protection. Also stress, anxiety associated with this drama and now that tooth are working against me. A legit treatment is needed.
    Drone Draper
    Bagpipes do a good job of masking tinnitus. Only bad thing is, you have to listen to bagipes. Off to waste money on acupuncture.
    Drone Draper
    Decent morning, left ear damn near silent when I woke up. If I could get my right ear to be like my left, I'd be habituating like a normie.
    Drone Draper
    I lasted less than 72 hours on r/tinnitus before getting banned. Apparently I was playing Internet Doctor. LOL. Oh well, their loss.
    Bill Bauer
    Sounds like I would not last for long there.
    Drone Draper
    One of the things I told someone was to go to A&E and say they were exposed to a loud firealarm, rather than rock concert. This was apparently a big no-no and "deceiving doctors". Someone also asked me a question about their prednisone dose, I said "that sounds fine".
    Drone Draper
    Meanwhile, another poster said to a following poster that there was no point in living with loud tinnitus as it's going to drive you to many failed suicide attempts. No ban for him. Mmm.
    Drone Draper
    Nietzsche said "Life without music would be a mistake". I say "Life without silence is a living hell".
    Drone Draper
    T is disconcertingly low today. Did HBOT 2x yesterday and ended up sleeping 8 hours. My ears spiked badly after second HBOT, but today 2/10.
    View previous comments…
    Drone Draper
    Had a scare just now, popped out for coffee and a jackhammer was going off outside. FML. Ran past with my index fingers in my ears. I swear I'm going to turn into one of those guys with muffs on every time I step outside.
    jay777
    good luck to you 2/10 just a dream for me
    Drone Draper
    Thanks bud. I'm very much walking around like something bad is about to happen. I'm sure a spike will happen soon, but I'll take the blessings when I can.
    Drone Draper
    Registered with Dignitas. Complete cost of going will be 10,500 Swiss Francs. For that kind of cost, I'd to to Korea for some eardrum pokes.
    View previous comments…
    Drone Draper
    I agree, I think people should have access to euthanasia like they do in places like the Netherlands and Switzerland. We need to end the taboo about it.
    Drone Draper
    There are so many horrific cases of people trying to commit suicide when they are brought back to life against their wishes. We should all have the right to die with dignity.

    I think why I would want Dignitas is that I know it would be painless and legal. I wouldn't want to engage in something that could send the other parties to prison.
    SugarMagnolia
    I think that's exactly it: a taboo. The powers-that-be will kill us slowly with GMOs, BPAs, Monsanto, global warming, war, etc., but won't give us a voluntary, painless, dignified way to end our lives at the time of our choosing. Perhaps it's the autonomy that makes it taboo.
    Drone Draper
    Success Stories posts that include the phrase "I still have loud tinnitus" put the 'bitch' in "habituation".
    View previous comments…
    Drone Draper
    I think I can habituate to the mild T a lot of my rocker friends have where they will randomly hear a high pitch whine for a minute or two every now and then. That's what I'm shooting for ATM by the HBOT and supps. If I habituate to the moderate T I have now, I will keep it to myself.

    It IS a kind of success, but it is not in any way a true success and not the type of story I really want to read about.
    threefirefour
    Thanks ^_^. In the past it's definitely thankless work.

    And yeah I agree. But like polio sufferers before the vaccine we shouldn't have to do it.
    Drone Draper
    It needs to be done. Don't post things like "I consider myself 100% cured, I no longer care about my tinnitus or hyperacusis". That is 100% NPC right there.

    And most definitely. We shouldn't have to work with the tools at our disposal that may or may not help us when research into actually fixing what we have is so little!
    Drone Draper
    We don't need apps with rain sounds or campfires. Mindfullness nice, it doesn't remove electric hurricanes going off in our heads.
    Drone Draper
    I have 6 tinnitus relief apps on my phone, downloaded at the insistence of audiologists. Ooh! River brooks! Evening forest! Peaceful morning!
    Drone Draper
    This is like going to a cardiologist complaining about heart murmurs and getting told "We can't do anything about your heart through surgery or medication, but what we can do is play you the sounds of a normal heartbeat on these nifty apps so you don't notice the irregularity of your own degenerated organs".
    Drone Draper
    Probably the only good thing to come out of tinnitus is that I now have a rock-solid excuse to never go on a work night out again. Yaldi!
    Drone Draper
    Mirtazapine put me under, woke up this morning with my T pretty low, probably about a 3/10. Feeling naively optimistic it can go.
    Drone Draper
    Blindness separates people from things; deafness separates people from people.
    View previous comments…
    S
    I agree, silence & deafness sounds easier.
    Drone Draper
    The absolute worst would be deafness + T. FML, that is some "first plane to Dignitas" shit.
    Drone Draper
    Btw, I met my third audiologist.

    He told me his mother suffers from Meneire's disease. She's in her 70s.

    As a last resort to settle her T, the surgeons went in and REMOVED her cochlea.

    She is now deaf with tinnitus.

    I don't know how much bleach I would be able to get down me, but I would drink until the lights went out.
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