Juliane

Juliane

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  • SharonBell
    Can yall wear earplugs? I asked my audiologist how come my tinnitus is so different that I can't wear earplugs and everybody else I have talked to with tinnitus can. They close my ears up so the high frequency in my ears the Buzzing-static and my head gets so much louder.
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    SharonBell
    Tryn28Hopeful yeah I know it's not gonna make the T less, but I understand what you say about it being louder. How do ear plugs do your T? Does it make yours louder to?
    Tryn2BHopeful
    @SharonBell I rarely wear ear plugs TBH. Honestly I would have to say its pretty neutral, on one hand its louder because I am isolating other sounds, on the other its not being as reactive from the sounds around me.
    4Grace
    Honest, ear plugs or muffs are now painful. It makes my already unbearable T super loud. I wish someone could hear it. Honest to God I feel like I'm a solid 11 out of 10. SOLID. With ear muffs I feel like the sound of my T is spiking me. It hurts. Feels like a lazed is cutting the inside of my ear. Man.,, I'm trying so hard. Make progress but it's getting worse,
    Juliane
    Don't turn on your TVs. It is crazy out there. Seems the whole world is suffering
    TheCapybara
    There's really no avoiding the bad news anywhere. Social media, it's just all negativity.
    Robster
    Main reason why I stopped watching the news. It's beyond depressing.
    SharonBell
    Same thing everyday this noise in my ears and head I'm so sick of it. If I could get a break but it never stops. Noises make it worse. I hate to go anywhere why can't this buzzing-static in my head be a different noise. I hate it!! Don't know what to do.
    Tryn2BHopeful
    There is no getting away from it. It sucks. Your best option at this moment in time is learning to accept it and practice cbt. Fighting it will get you no where.
    4Grace
    @Tryn2BHopeful - I have honestly become better and not fighting it. A small amount of progress. The confidence has me going out but I'm getting worse. Feeling better is making my T worse. :(
    SharonBell
    Juliane do you know what your tinnitus is caused from? They said, mine was noise induced. I have hair cell damage. I have SNHL. I thought you said, you had hyperacusis.
    Juliane
    Dream of "soft exit": me on a beach in the Carribean, a few cocktails and then 20 sleeping pills before swimming out in moonlit ocean....
    object16
    not supposed to provide any advice regarding your last idea. I've done a lot of reading on the internet how to go.
    object16
    But obviously I've already had similar thoughts (for years); my preference is either leave the funds to my kids or make charitable donation rather than waste on airfare.
    object16
    I actually can't even tolerate air travel, so I would still hang on if I were you. There may still be hope.
    Juliane
    Dear T & H community. How do you handle social life? Do you cancel everything or still see people? I find this so hard.
    Juliane
    Might have overdone b6 vitamin... had no idea it was neurotoxic! Is that why I have new sounds? Just can't win with this condition, can we?
    Tryn2BHopeful
    I stopped taking supplements of any kind and try to eat decent and let my body balance itself out... has that done anything... no idea... but I don't worry about a supplement causing problems... so that's a win I guess.
    object16
    meds like mirtazapine, clonazepam, Seroquel can help with sleep issues, I find that if I manage to sleep, my brain does a bit of recovery and recuperation. Meds are Band-Aid, I know, but can help cope and promote sleep.
    object16
    Hi Juliane, I often feel the same way. I'm not sure what keeps me going either. All I can offer is tomorrow might be a better day. So many times I'm so devastated, and then tomorrow ends up a better day. I've had days where I just cry and cry and cry, finally I've run out of tears, nothing much has been accomplished.
    Juliane
    Sorry for rambling. Despairing fast and badly. I am not strong enough for torture without end. Why would I be? Hating life
    4Grace
    Please ramble all you want if it helps you. That's why we are here. I am so sorry this happened to you. You were wearing muffs. You should be okay. Some of the spike may have been caused because of the anxiety.
    Juliane
    But not the peltors, less heavy muffs only silencing with 26db. Thanks for answering ❤️
    Juliane
    I no longer believe that this universe wants me to stay alive. I feel hated by it, abused and tortured
    Juliane
    F.... Church Bells spiked me! Unbearable. I was wearing hearing protection but wasn't enough. I am devastated
    4Grace
    The spikes and set backs are when we have to be our strongest. It's hard to find the words because I know how it feels. You sacrifice so much then a moment can set you back. It will probably settle. Please give it some time.
    Juliane
    I am already isolating. From now on, I will isolate even more. Too dangerous to leave my home. Loud shit EVERYWHERE
    4Grace
    At this point I'm not sure if the isolation is killing me more then my T. Either way. Still looking for solution. I am sorry you are feeling this way.
    Juliane
    People with no health challenges (and currently not in a war or other catastrophe) have no right to complain
    Tryn2BHopeful
    Its all relative
    4Grace
    You only know when you know. Do people with other disabilities talk like we do? Why do I think they do not. This is so different. It like being allergic to air.
    Juliane
    T was behaving OK this morning. Now ramping up due to online meetings, coffee, moving around? Who the hell knows. Cant stay in bed all day
    MindOverMatter
    T winding up is quite normal when you have what we would refer to as "bothersome tinnitus" @Juliane You will get to the point where you accept it, for now, for what it is. Winding up doesn't mean you get worse, and you will get better, with time, to handle it. Yes, it is tiring and bothersome, but the less you react to it the less it will bother you. Acceptance is key imo.
    Juliane
    Everything is just so nightmarish. Cannot explain it in words. Too horrible. I am waiting to wake up but this is life. Unbearable
    L along the way
    Well.. I sometimes feel like.. i don't want do be disencouraging and be negative.. but honestly when i read some stories of you & others.. of course i don't wish suffering upon anyone, but it kinda comforting for me too that im not the only one going through such hell ride...the faith that time can be a healer is what helps me through.. hug
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