Juliane
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  • How do you guys handle the horrors of fireworks during this month?
    gameover
    Good question. Last New Year's Eve I did not know what T or H is.
    T
    A lot of swearing and earmuffs.
    3/3 Significantly lowered and stable T would make me so happy that I would not even ask for silence. For me that would be silence
    gameover
    Agreed. I feel almost normal during better times, like right now. Hope you'll get there, too. You are a T survivor, there is a huge chance you'll survive again. Keep going.
    Juliane
    @gameover Reading how you have improved recently gives me a lot of hope. Happy for you❤️
    gameover
    It's up and down. I am down again :( But let's hope tomorrow will be better...
    1/ 3 Not even sad about everything I miss out on anymore. Could not care less! I just want peace and quiet and if I could get that, I'd be
    gameover
    I feel ya 100%. I still grieve things and experiences I need to give up, but in reality I'd be content with peace and quiet at home.
    Today crying. Again. Working through the week and hanging on and then when the weekend comes, it's all tears due to having time to think
    If one more "friend" tells me that I should try and think more positively, I am done with them. For good.
    L along the way
    Positive thinking on itself may be a good thing, but can't force that either. For me, ultimately what it boils down to (i know i'm repeating myself), is the hope that with enough resting, healthy lifestyle, and sleeping, t may heal over time...
    L along the way
    I also agree that it's complex, because the physical pain.. the way how it's interpreted psychologically.. it has a link on our experience. I am certain that my t has a physical cause. Psychology relates how we interpret experience, so i dunno.. i find it is complex, and i hope we find some calm & ease despite it all..
    Juliane
    @MindOverMatter I appreciate and admire your ability to choose positivity. Personally I am just too mentally broken by this - I don't know how to be positive anymore
    Family member acted weird and hysterically around me yesterday and my T became worse after. Connection?
    gameover
    Could be. My wife had a nervous breakdown on Thursday. I wasn't able to deal with it. I have had worse T since and inability sleep normally. I am 100% flipped, up at night, sleep during the day since then. Terrible thoughts back. I guess there is mental connection after all.
    Juliane
    gameover
    Thank you. Things are better since then, @Juliane. It's hard, but I am slowly getting used to status quo. I just hope it is not going to get worse. It probably will eventually, but maybe I will buy some time. Hope you will find some stability, too.
    I am not a communist but a "universal basic income" is not a bad idea. Would help people like us. A LOT
    If I could live a life entirely on T's conditions, I believe happiness would be possible. No work, no socializing, no mindless chatter
    4Grace
    @Juliane - I am trying to do this but finding it hard. More and more, socializing is causing me more suffering. Mentally and with my T. This condition is insane. I cannot even relate to others with a serious health condition. I can only relate to others with debilitating T.
    Juliane
    @4Grace I completely understand. I am also losing my ability to relate to other serious conditions. To me, T is the absolute worst disease you can get.
    Have had my teeth cleansed every 3rd month for years because I think it is worth it. Will dial it down to every 6th month due to T
    Success is, as John Lennon said, being able to do what you want from when you wake up until you go to sleep. Has nothing to do with status
    4Grace
    I have to respectfully disagree. I have been in this position for a year. Success is peace of mind. Peace of mind is king over everything in this world. Health and peace of mind.
    This whole planet is toxic! No wonder we are all suffering. 8 billion people on earth, still so many are lonely. Why?
    Another day of Surviving. What happened to living?
    BB23
    The old me died 8 months ago. Doctors with their miracle pills killed him.
    4Grace
    Who could have ever imagined such a condition exists. We are seem to be in a similar boat.
    Never thought I could be this heart-broken. And at the same time I am aware that things can always get worse. What a horrible horrible life
    L along the way
    Pfffuh.. i feel you.. i find this all an absolute nightmare too... hope it may get better with time to have some peace & quiet again some day... telling myself daily, it is possible to recover with time
    cjbhab
    This is the worst part of T.. knowing it can get permanently worse at any moment for any or no reason.
    Is this the real life? Does feel fake
    crescentsky
    I'm still hoping maybe I'll wake up tomorrow lol
    Tryn2BHopeful
    It does doesn't it. I keep thinking 6 months ago I was perfectly fine. Took the meds I was prescribed to help and woke up, literally at 3am to a never ending nightmare. Some shit isn't it.
    Juliane
    @Tryn2BHopeful It is just horrible and I am so sorry for us. I don't think I can ever learn to live with this
    Might sound stupid but considering starting smoking again after 10+ years. I mean why not? Does it make T worse? Any experiences?
    gameover
    Just don't. It's awful, poisoning your body will not make T better.
    4Grace
    @Juliane - I smoked a long time ago too and was thinking the same. No question it will make you feel worse. Don't do it. I am so sorry to hear you are not doing better. I really am because I know how you feel. ❤️
    What is awaiting me when I leave this world. Have I been good enough? What is good enough? Can't go on, not strong enough
    Juliane
    @cjbhab That is good enough for me
    cjbhab
    imagine if heaven is real and when you get there you still have tinnitus haha.
    Juliane
    @cjbhab I find that unlikely since tinnitus exists in our brain and ears, aka the body. Fortunately, the body, and all its stupid degeneration, dies when we do :-) But what do I know
    At this lowest point in my life, my heart is overflooded with love for all I was given, the good days shine brighter than the bad
    I feel so alone and I can't bear the thought of leaving my boyfriend all alone. I just can't. But how can we live for other people?
    I honestly don't want to be in this world anymore. It is too much, too much evil, too much torture. I just wanted a peaceful life
    I am approaching some kind of limit for what I can endure. Value you all so much. You have helped me emotionally and I am forever grateful
    Cmspgran
    Where are you up to with it all?
    Juliane
    @Cmspgran Just not coping at all at the moment. Wish I had better news. How are you?
    So Juliane since yours is noise induced do you have hair cell damage? I have sensorineural hearing loss and tinnitus and hair cell damage in extenddd high frequency. I think that's my mine is buzzing-static, electricity which now it is so much louder and I don't know why but there's no way I can deal if it gets worse, it hard to deal now as it is.
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