Juliane

Juliane

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  • Juliane
    Theory: medication containing aluminium worsened my T. Might that be a sign that it is linked to heavy metal poisoning?
    Juliane
    This year has been beating me over and over. The result is that I no longer feel sad that my time on earth is limited.
    4Grace
    Hello - I see your own here. How have you been doing? I think everyone's knows how I have been doing. Holidays are hard. Everyone is so happy.
    Juliane
    Hi dear @4Grace. Trying to hang on but life is so tough at the moment that "tough" does not even cover it. I am very close to giving up but hanging on for my loved ones
    Juliane
    I am so sad to hear that you were on your own for Christmas ❤️
    4Grace
    "Tough does not cover it" So sorry. I understand this statement.
    Juliane
    Dear God. PLEASE help us all. Only light and goodness can make us better. I know that to be true. I am trying so to be good.
    4Grace
    Such beautiful words.
    gameover
    The more I ask or see people asking him for help, my disbelief in this fairy tale strengthens. Sorry.
    L along the way
    Lovely words, and I wish you the same. @gameover i'm double on this one.. on one hand i do believe in 'a good power', i'm not sure what it is, but i do believe there has to be some power of good. At the same time, i do believe in naturalness, t caused by unnatural extreme audio volume, it damaged the natural ears. I'm sad that i learned late, but now i try to live (eat well, rest well, etc) as intended by nature
    Juliane
    I wish all of you a peaceful happy holiday season. Not only that. I wish we all may have a peaceful happy new year. I really really do.
    Juliane
    I was such a hopeful smiling girl when I was young. I often found it difficult not to laugh. Oh my, where have that girl gone?
    Juliane
    2023 has absolutely been the worst year of my life. And I have had tough times before. But this year is disastrous
    View previous comments…
    kingsfan
    Each year has been progressively worse for me.
    Juliane
    @kingsfan That is so sad to read :-( In a way it has been the same for me, with some exceptions. 2019 sucked, 2020 was actually pretty cool in spite of the pandemic, 2021 had its hardships but was decent, in 2022 all stressors escalated and in 2023 my life as I know it kind of ended due to T and H which make all the previous setbacks look like a dreamworld :-(
    Juliane
    I am starting to think that I am paying off some kind of karma debt. I must have been horrible :-(
    Juliane
    Today is a very heavy, very dark day
    4Grace
    I am thinking of you. I am with you in that place. Hope and pray we find a better place … mentally soon. So sorry you are feeling like this. So, so sorry.
    Cmspgran
    In a similar place to you both, please let there be a better time ahead for everyone suffering.
    SarahMLFlemmer
    Get up, get out!
    Juliane
    How do you guys handle the horrors of fireworks during this month?
    gameover
    Good question. Last New Year's Eve I did not know what T or H is.
    tpj
    A lot of swearing and earmuffs.
    Juliane
    3/3 Significantly lowered and stable T would make me so happy that I would not even ask for silence. For me that would be silence
    View previous comments…
    gameover
    Agreed. I feel almost normal during better times, like right now. Hope you'll get there, too. You are a T survivor, there is a huge chance you'll survive again. Keep going.
    Juliane
    @gameover Reading how you have improved recently gives me a lot of hope. Happy for you❤️
    gameover
    It's up and down. I am down again :( But let's hope tomorrow will be better...
    Juliane
    1/ 3 Not even sad about everything I miss out on anymore. Could not care less! I just want peace and quiet and if I could get that, I'd be
    gameover
    I feel ya 100%. I still grieve things and experiences I need to give up, but in reality I'd be content with peace and quiet at home.
    Juliane
    Today crying. Again. Working through the week and hanging on and then when the weekend comes, it's all tears due to having time to think
    Juliane
    If one more "friend" tells me that I should try and think more positively, I am done with them. For good.
    View previous comments…
    L along the way
    Positive thinking on itself may be a good thing, but can't force that either. For me, ultimately what it boils down to (i know i'm repeating myself), is the hope that with enough resting, healthy lifestyle, and sleeping, t may heal over time...
    L along the way
    I also agree that it's complex, because the physical pain.. the way how it's interpreted psychologically.. it has a link on our experience. I am certain that my t has a physical cause. Psychology relates how we interpret experience, so i dunno.. i find it is complex, and i hope we find some calm & ease despite it all..
    Juliane
    @MindOverMatter I appreciate and admire your ability to choose positivity. Personally I am just too mentally broken by this - I don't know how to be positive anymore
    Juliane
    Family member acted weird and hysterically around me yesterday and my T became worse after. Connection?
    gameover
    Could be. My wife had a nervous breakdown on Thursday. I wasn't able to deal with it. I have had worse T since and inability sleep normally. I am 100% flipped, up at night, sleep during the day since then. Terrible thoughts back. I guess there is mental connection after all.
    Juliane
    gameover
    Thank you. Things are better since then, @Juliane. It's hard, but I am slowly getting used to status quo. I just hope it is not going to get worse. It probably will eventually, but maybe I will buy some time. Hope you will find some stability, too.
    Juliane
    I am not a communist but a "universal basic income" is not a bad idea. Would help people like us. A LOT
    Juliane
    If I could live a life entirely on T's conditions, I believe happiness would be possible. No work, no socializing, no mindless chatter
    4Grace
    @Juliane - I am trying to do this but finding it hard. More and more, socializing is causing me more suffering. Mentally and with my T. This condition is insane. I cannot even relate to others with a serious health condition. I can only relate to others with debilitating T.
    Juliane
    @4Grace I completely understand. I am also losing my ability to relate to other serious conditions. To me, T is the absolute worst disease you can get.
    Juliane
    Have had my teeth cleansed every 3rd month for years because I think it is worth it. Will dial it down to every 6th month due to T
    Juliane
    Success is, as John Lennon said, being able to do what you want from when you wake up until you go to sleep. Has nothing to do with status
    4Grace
    I have to respectfully disagree. I have been in this position for a year. Success is peace of mind. Peace of mind is king over everything in this world. Health and peace of mind.
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