Juliane

Juliane

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  • Juliane
    Dear TT. Did any of you develop eye floaters after taking vitamins / supplements? I am trying to pinpoint what caused mine. Thanks!
    Calapsodis
    I've taken a lot supplements the past few years but nothing too out of the ordinary. Basic stuff like magnesium, zinc, vit A/C/E, D3, fish/algae oil. Can happily say they never gave me eye issues. Have you looked into setting up an appointment with a doctor or a specialist to get your floaters checked out?
    Juliane
    @Calapsodis Please be careful with b-vitamins, especially B3 and B6. I think B3 may have caused my eye floaters.
    Calapsodis
    Really? That's a first for me. I'm sorry that happened to you though. Fortunately I don't really take B vitamins that much except the occasional B12 when my diet hits the curb (which is usually most of the time). I've drank Vitamin Water in the past a lot and it says it contains 100% of your daily intake for B vitamins but I never linked it to my floaters. I'm still like 90% sure the prednisone did it to me.
    Juliane
    Due to floaters, I may need to get my eyes dilated. Any of you have any experience with this, and did it worsen T? Thanks in advance!
    crescentsky
    I have to go every 6 months and no effect on my T. There is also retina imaging which is a 360 scan of your retina. Pretty sure almost all the eye docs have it. You can probably opt for that, if that is an option.
    Juliane
    Juliane
    I am a horrible person, I do not deserve forgiveness, I deserve only suffering
    View previous comments…
    4Grace
    Like on TT I am destroying the people around me. How can I concentrate on something else. It's in my mind 24/7. I have become a massive burden on everyone.
    Juliane
    You are not @4Grace. But this world has been set up in a way so as to ignore and blame the people who are sensitive and suffering instead of making a world we can all live in. It is not our fault, any of it. We are too sensitive for this world, and imo this world can go f.... itself.
    4Grace
    Thank you for your kind words. I was once very kind. My heart became hardened over the years. This feels like punishment for a personality disorder I had not choice over. I can't do anything at all only because of my ears.
    Juliane
    I think my eye floaters are due to taking vitamin B3. It can cause eye issues. So incredibly stupid
    Juliane
    by gradually desensitize the brain? My eye floater onset started after illness and stress. The brain is working too hard
    Juliane
    I am thinking out loud, not wanting to offend anyone: if the brain is overstimulated (e.g. I now suddenly see eye floaters), could we heal
    Juliane
    If I had the talent and energy, I would study medicine. Why so many of us have eye floaters? Clearly this is an illness of the senses
    Juliane
    And that's why we are told "live with it". It is not MS or Parkinsons but our brains are ill in a way no doctors truly understand
    gameover
    I think there is more similarity to MS or Parkinson's than the doctors know. Some researchers may be finally getting some clue, but it is a long road ahead.
    Juliane
    I wonder if we, sufferers on TT, are somehow stuck between not having a full blown neurological disease (thank God) but at the level before
    gameover
    @Juliane. In my case it seems it is full blown neurological disease, and it is progressing with noise input.
    kingsfan
    I'd rather have a terminal illness. Maybe I secretly have Prions disease slowly unfolding the proteins in my brain.
    Juliane
    I have come to a realization: healing is natural. Not healing is abnormal. Why are we being kept in this abnormal state?
    L along the way
    In my case, i know it has been caused by acoustic harm. This scares me, because i know how much off limits the volume was, it shivers my spine when i think back about that event.
    L along the way
    I've come to realize, our natural bodies have to operate within natural limits. It's like.. natural harmony is just ahh, and everything that's not that is.. uff.. still i try to believe in healing with time, it's basically the only thing i got regarding to t.
    L along the way
    But i have no guarantees, which can be frightening. But then, there are basically no guarantees in life at all.. i just try to find hope, calmth, spiritual inspiration, untense, healthy lifestyle, and go with the day. Nice to read from you again btw
    Juliane
    Do y'all have loving harmonic relationships with your families? I don't. I wonder if disharmony predisposes you for illness...
    L along the way
    I also grew up in a broken family, sadly enough. I've seen how complicated life can be, and i think that harmony is something we all naturally long for. Disease, dis-ease, something not at ease, i mean.. we feel something is not right, and just naturally wish to find harmony again i feel like.
    L along the way
    I would love to feel like life is a gift, but most of it has felt like something to endure, sadly enough. Maybe a next life may be better, or i hope we can find healing in this life
    Juliane
    Do any of you guys have eye floaters? Any connection with T?
    View previous comments…
    gameover
    Thalamic dysrhythmia. Inhibition gets fucked up. I always get minor floaters (since maybe late teen years), got immediately worse with T. Visual Snow is the next stage of brain collapse that some have.
    kingsfan
    They get annoying from time to time, but I am so used to them I don't notice unless I'm in really bright light or looking at a bright screen.

    They're just clumped up pieces of collagen. If you move your eyes up or down or from side to side they will scoot out of the way.
    Calapsodis
    Always had minor but visible floaters before and after T first came around. I ran a course of oral prednisone a few weeks ago and ever since then I've noticed more floaters. I guess it's a possible side effect.
    gameover
    @Juliane. Hope you are still holding on.
    View previous comments…
    Juliane
    @gameover So so sorry. How are you handling work? Can you go on sick leave? Thinking of you. Hugs
    gameover
    Not too well for the past two weeks. Took some days off. I was doing okay before, but the couple "traumas", especially the last audiogram fucked me. The brain is disintegrating. This is not tinnitus, it is a form of a brain cancer.
    Yellowblue44
    Hey @gameover I've read that face massages really helped you. Can you send me a link or you tube video that you use please. Thanks
    Juliane
    4/4 friends to pity me. But they should be empathetic. I understand if they get confused by this. I hate it so much.
    View previous comments…
    L along the way
    I've gotten interested in mindfulness.. but the thing with this is.. if there is actual harm to the physical auditory nerves, like... how to find ease & stillness with this condition. The inspiration i've found for natural wellbeing.. feels so disturbed by this one.
    L along the way
    Also, if it were just 'annoying sound'.. but it's painful too, something has been truly harmed.. and it may be safe to say, it has a negative effect on our cognitive & emotional wellbeing states. I notice that i get a lot of thoughts around t.. and i feel like.. if i try to stop, and be with the actual experience & sensations, it's just painful and distressing, and i feel the want to escape that.
    L along the way
    That's why i maybe always crave for a better tomorrow, because the actual experience with this.. i find it hard to just be and settle within.. because it's just so discomfortable and it feels like it's disturbing more than it just is an 'annoying sound'. I guess.. i say again.. a better day.. i don't really know another way. Wishing it to get well and that we be okay.. pppffffttttt stay strong guys..
    Juliane
    3/4 becomes a burden socially. I don't want to be labelled "the sad one". Fuck that! But I am indeed the sad one. But I don't want my
    Juliane
    2/4 Then people say "Great to see you are better!" But it's a Lie. I'm not. Then I feel bad for being a fake. The thing is: being miserable
    Juliane
    1/4 Sometimes I get embarrassed by all my suffering. It's so miserable. Then I act as if things are better than they are. Out of pride
    Juliane
    The media running their stupid fear mongering campaign about war etc. So what if nuclear disaster strikes. I don't care !
    Juliane
    No, adversity does not make you stronger. It breaks you. That's the only thing it does.
    View previous comments…
    beefling
    I like to think of the sentiment as muscle building. You workout to fatigue, then rest your muscles to get stronger. But you *need* to rest. Tinnitus and its adjacent auditory related conditions do not relent. There is no rest period.
    L along the way
    Well, if I ever heal from this, then I guess I can say I've learned a lot and became stronger. That's only if it heals though. If not, then I'd rather never had to go through all this. There has to be a better day awaiting us.
    Pinhead
    Medical fact: stress makes you die sooner. Tinnitus causes catastrophic amounts of indominable stress. Therefore...
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