Juliane

Juliane

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  • Juliane
    3/4 how to complain LOL". They will feel relief they don't live in 2024 where T was treated as a mental disorder. They will drink
    Juliane
    2/4 She will get a good grade and one professor will praise the credibility of her source material. Another will say "That Juliane sure knew
    Juliane
    1/ 4 Perhaps in 2224, some college student will use our posts as material for her thesis on how people suffered before the T cure came.
    Juliane
    I have now lived like this for more than a year. I can objectively say it is not worth it. I have had perhaps 2 non-horrific days
    L along the way
    Sorry.. don't know what to say.. i symphatize.. uff..
    L along the way
    I cannot believe this is what happened.. it's too sad for words.. gosh.. i hope we can all be free of this some how some day
    Juliane
    Has tinnitus made you become better or worse at saying no?
    View previous comments…
    RunningMan
    I'm more noncommittal, saying it depends how I feel. I hate to miss out, so I might just take some Ativan to help get me through, if needed.
    Pinhead
    Better. I speak my mind much more often, sometimes to my own detriment. But honestly, I can't really reflect on what I say anymore. I don't have any space in my mind for that. It's all noise now.
    crescentsky
    Better at saying no but makes me sad to do so. Makes me feel like a prisoner that can't go or do anything.
    Juliane
    I feel people here on TT are highly intelligent. I wonder if that predisposes you for T and if you are stupid, you go free LOL
    Juliane
    So glad I never had kids. It all makes sense. Such horrible sick genes
    crescentsky
    it's probably one of the only things I feel relieved about. I wouldn't have the capacity to care for them.
    Juliane
    I am worsening constantly now. No hope.
    View previous comments…
    L along the way
    Sorry.. i feel you.. what i say to myself is.. give yourself time.. pff.. trying to slow down, find some distractions, somehow untense as much as you possibly can (t i can't control, but somehow trying to find mindfulness calmth.. which more often than not i couldn't), and give yourself time..
    4Grace
    @Juliane - so sorry - i am with you at this moment. I feel and live this. I want to tell you comforting words. Something that would help you. What can we do.. how do we move forward.
    Juliane
    Juliane
    Someone I thought understood asked if my T is constant. Does she think I would suffer if it was not constant? I cannot do this anymore
    crescentsky
    the people around me think the same. they think it's like a brief few seconds of annoyance and everything is back to normal. They think we are all freaking out over nothing vs their issue (that is more important than T) that is easily fixed/managed by meds.
    gameover
    So sad @Juliane. It is a crazy condition. You were good and stable for so many years. One exposure and messed up. I went from all good to all bad right away. No warning. It seems once certain level is reached, it is only down from there, short of miracles.
    4Grace
    @Juliane - after 1.5 years my family telling me to take Mirt then I will be able to go to loud places and deal with the noise better. They don't want to hear it anymore yet I have been unable to have them truly understand. @gameover / it's true - just takes that last exposure.
    Juliane
    What to do if you have a horrible co-worker who talks constantly? It is making me physically ill :-(
    RunningMan
    I can relate. I never liked sharing an office due to all the extra chatter, noise, interruptions, food smells, etc. And that's with only 1 or 2 others before I had severe T. Fortunately, I eventually got my own office.
    Juliane
    For those who want to answer - do you still work with T?
    View previous comments…
    M
    @4Grace I agree with you. My tinnitus is so bad that there is nothing I enjoy. I have to work even though I struggle/suffer through it. I wouldn't be in a better situation by any means if I didn't have to work. My tinnitus is the kind that I can actually feel so it pierces through my ear drums like they're being cut
    4Grace
    @MiaVIL - how do you do it. You are so incredibly strong. Working is better but I physically could not… I worsen with the wind. I reached this new point 2 weeks ago. Can't drive for 5 min. My ears begin to burn and ring harder.
    M
    @4Grace I work from home and there is a tiny ounce- a very tiny ounce that I will recover. Even though it's minuscule.
    Juliane
    I have learned nothing from this experience. It has been utterly useless
    View previous comments…
    L along the way
    I wanted to do anything i could to improve my health. Started experimenting with diets, a plant based diet gave me amazing results overall healthwise. No hate against meat eating, but i think i feel more affinity with animals now, because they also have a nervous system and can feel joy and suffering.
    L along the way
    So, the animal industry, i don't view animals so much as an industry anymore. Eating animals i don't think is the worst, but just that they can have a natural and free life would be more humane
    L along the way
    That being said.. i would just like to add.. i do believe we as humans have more depth of experience, and are more valuable. But to value animals that they also deserve to be free of unnatural and unnesary suffering.. a more natural life
    Juliane
    I want my ashes thrown over the ocean. That image gives me a sense of freedom and relief. I will be foam on a wave, eternally moving
    Juliane
    Other patient groups are able to meet IRL and talk and support each other. We can't even do that. We are being tested like gladiators
    dipp
    There are some groups in my zone but I refuse to go and hear people complaining of mild cases. Don´t want to reassure that my case is so severe.
    Juliane
    I cannot continue. The indifference of "close ones" adds to the torture. If I develop a deadly disease I blame those family members
    Juliane
    No support from family. They don't understand how close I am to ending it all. Or they don't care
    RunningMan
    This is a common theme on here. People who don't have it severe don't get how much suffering it can cause.
    Juliane
    How can I keep hoping for better times when life today is so much worse than one year ago? When I think of the future I freeze with fear
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