S

Strawberryblonde

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  • S
    Does anyone else get a static version of fleeting T? Not the typical Eeeeee sound.
    View previous comments…
    twa
    Hi, yes static is my best sound. Usually, when I'm relaxed, well-rested, happy I'll experience static. I remind myself this is my best sound. Ringing is the worst, usually after being in a loud environment or the weather changes.
    S
    Yeah i get them randomly but they aren't loud, it's a very gentle static that is sort of felt around my whole head, but when that happens it's all I can hear. It dissappates after a few seconds. @NYCGuy
    S
    I too love the static sound @twa
    I experience it like you do. Mine doesn't seem to react to the weather that I'm aware of though lol maybe cause in the UK its been cold and dull lately with the odd bit of sunshine ☀:)
    S
    Managed to somehow sleep without my masking noises last night. Took mental strength but I slept decently. Don't think I can manage 2 nights.
    J
    for me it is impossible without masking,it is nauseating to be hearing the tinnitus.and masking is alsoshit,it is distracting yourself from one sound for another,you end up fatigued,this simply stinks,we want silence,not to change one sound for another.
    S
    My t reacts to masking sometimes so I'm between a rock and hard place :( basking in my misery and hoping I can beat the brain inducing sound. The brain put it there and I'm trying to un put it there :( sounds silly but with T you'll try anything.
    S
    My mum has hissing buzzing T and she can fall asleep so easy so I'm trying to be like her!! We have the same genes so I want it to work for me also :(
    S
    Loud multitonal day today. Ugh! Can't be arsed with another day and night of this! Mental struggle is just something else!!
    ErikaS
    Hi! Are you in the midst of trying TRT? I thought I saw you mention that elsewhere but I could be wrong.
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    S
    My T seems to be reactive at times. My morse code becomes louder and competes with my masking noises then sometimes it doesn't and the morse code dissappear aswell. Tbh I've no idea what to do and not what too do with this. @ErikaS its more complicated the second time around:(
    ErikaS
    @Strawberryblonde its so frustrating. I'm to the point I can even effectively describe my T and make it make sense. The volatility of it coming in and out, more intrusive, less intrusive, sounds coming to the forefront then being more back ground. Then just feeling like I have piercing 14k hz going through my ears. It's a torture chamber we can't escape.
    S
    We certainly drew the short straw with this!! But I guess we just have to take it day by day.
    @ErikaS :)
    S
    When I breath through my nose I sometimes hear and feel it in my ear. Does anyone else experience this?
    S
    Need to go back 10 months in time and slap some sense into myself!!
    NYCGuy
    Don't suffer about the past, nothing we can do about it. Focus on the better future that will come ahead.
    S
    Just having a pity party, anxiety is really kicking me. Just want some proper sleep Zzzzz.
    T
    Was it the antibiotics or the MRI that did you in?
    S
    Morse code off the charts again last night. Sleep deprived again and it's the working week again :( Just great!!
    S
    Anyone on here ever had a synacthen test for adrenal insufficiency? Suffering bad stress. Declined as unsure what would be injected into me.
    View previous comments…
    S
    Thanks @ErikaS i didn't know about the saliva collection, but will enquire at next appointment. My endocrinologist didn't even mention that when I told him I was very nervous about injections ect!
    Learn more off TT and others than the Dr's lol.
    ErikaS
    @Strawberryblonde I am in the US so not sure where you are or what is their go to, but yes I just had to collect my saliva in a tube 4x in one day and return it to the lab where I picked up the kit from.
    S
    @ErikaS I am in the UK so rely on the NHS for health care. Slight waiting times but not to bad. May look into going private for that test too if not available on our health care system.
    TheCapybara
    Heya Strawberry, how are you doing lately?
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    TheCapybara
    Yeah, breaks from here every now and then are good but glad to see you're still around too :) I'm doing alright now, had been recovering from covid for two weeks now, first time I ever got it and it's not pleasant lol.
    S
    Covid sucks, you'll better soon :) i had covid in Sept 21 and it knocked my taste and smell out the park for a while, came back though phew! Still around just not as often as I once was and taking it day by day till that magic cure of the dr susan shores device appears haha. :)
    TheCapybara
    Thanks Strawberry, it's mostly better now :) I also lost taste and smell for about a little over a week, luckily it came back. I got worried when I read stories on people not getting it back after months or at all. It's good that you're taking it easy, and let's hope Susans device ends up delivering, a lot of people have high hopes for it.
    S
    Hearing my jaw crunching in my ear is not another noise I wanna contend with.
    View previous comments…
    NYCGuy
    This is new to me and is driving me crazy, every time I speak I can hear it. I also have pulsate tinnitus in one ear, regular T in both ear, plus MEM/TTTS in another and now this crushing sound. The TMJ destroy my ears for sure. I'm wearing splint, doing PT and daily massages etc but still no improvements.
    S
    Hi @NYCGuy I've had jaw problems for about 14 odd years now and I guess I've just gotten used to it. I have a bite brace but I don't think it's any use bar stopping my teeth grinding. My jaw crunches clicks aches and is misaligned. :(
    S
    @NYCGuy sorry to hear you are going through so many things with your T/ears/jaw problems. Have you ever seen a maxcillofacial specialist for your issues? Not sure if you have done? I do wonder if it's what's causing my T issues, I suspect noise trauma though but with T who really fully knows.
    S
    Phonophobia is certainly getting the better of me lately. How does one overcome this? Panicked at a hedge cutter next to me with plugs in!
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    S
    @makeyourownluck think I'm gonna have to resort to something sooner rather than later. Struggling more now that I was a few months ago.
    makeyourownluck
    I toughed it out for 8ish months. Got to the point where I was afraid to leave my house. I regret not taking benzo sooner tbh. Could of saved myself a lot of stress.
    S
    Got a few around the house that I keep for emergencies as Dr's aren't always that keen on handing them out. It may even help the head buzz too, one can only hope :)
    S
    Received my WNGs yesterday. Feels so strange having audio in your ear even on a very low volume. Been told to try them and see how I get on.
    View previous comments…
    S
    Also sounds felt amplified like a hearing aid. Told my hearing therapist at appointment that I could hear things louder and he said that it wasn't set to be a hearing aid and that was it. Gonna go with my gut instinct with this one and not use them again.
    Michael Leigh
    WNGs should be introduced slowly. I have posted information in the forum a few times how to do this.
    Sammy0225
    You made the right choice I think that's ENTs cure all pill for people to slap hearing aids on already overstimulated ears. I do believe sound enrichment works but natural sounds not artificial
    Ryan Edwards
    I had a spike recently from going to a very loud club and my near ear plugs were not fitting properly
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    AnthonyMcDonald
    @Ryan Edwards Don't ever go to clubs again if you don't want your tinnitus to get permanently worse. I hope it settles
    Ryan Edwards
    I think you are right. I had hoped high db level earplugs would allow me to but perhaps not. It's terrible at the moment I wonder if I am stuck with it like this :-((
    S
    Hopefully it'll settle down but it may take time :) as much as clubs can be fun, when someone has T, in my eyes it's just not worth the risk of increasing the T level even with plugs foam or filtered.
    S
    Guy fawkes night tonight in the UK. Fireworks galore!! Oh so fun when you've got T.!!
    View previous comments…
    S
    Two other people there with T went out to watch fireworks no problem and not even an ear plug. Tbh I was quite jealous lol I sat inside like a scared animal haha. Dreading new years eve now!
    SamRosemary
    @Strawberryblonde Are your ears spiked or you good? Seems the worry and panic were the main issue. Sometimes I don't know if T or my panic issues are worse.
    S
    I think its most likey anxiety contributing as I missed a dose of medication I'm on cause of order issues which effects anxiety . But with loud sounds and exposure to them is also making me anxious. I've honesty never heard fire works that loud, it was like a bomb lol glad I was indoors away from it though.
    Nadia231
    Hey! Whereabouts in the UK are you from? If you don't mind me asking
    S
    T seems more hissy then tonal eeee but reactivity morse code chiming has made another appearance which is making sleep a delight :-(
    S
    6 months nearly since my T increased. Can't say it's any better although some days hours or minutes it seems lower. What a shit show it is!.
    View previous comments…
    S
    It was a mild hiss/buzz that was completely forgettable. Had to strain to hear it and when I did I'd forget about it straight away. Had it for 6.5 years till it all went shit (my own fault but anxiety played a part too as well as other health issues). I can handle my increased hiss/buzz. I just can't get a grip of the intermittent morse code that flares up randomly. Makes it harder to sleep.
    S
    It's good that you can forget about it or tune it out for the most part as you say. Anxiety and stress are the biggest obstacles with this, when I've got a hang of that on some days my brain doesn't even think or search for the T even though its there. It's a hard mind game. I hope you get there too @SamRosemary.
    SamRosemary
    Thanks, appreciate it.
    S
    Currently on a dopamine receptor agonist once a wk for pituitary tumour and not sure if it causing a change as I've taken it in b4 no issue.
    Flowergirl
    @Strawberryblonde I had a brain scan a few yr ago it showed 'cyst on pineal gland'. Dr said it's nothing, very common.i wonder about that. Idk what dopamine receptor agonist is. Hope u feel better
    S
    Maybe you should ask your Dr for more information regarding your cyst? Too see it effects your T in any way :) not sure how to explain what a dopamine agonist is, Google will explain better than me lol its helping with my mood though which in turn is helping my T :).
    Flowergirl
    S
    Both ears have changed to a higher pitched sound this past week. Hope its just a spike and not the new normal. Too many changes!!
    Forever hopeful
    Probably a spike. Apart from the medication you said hasn't bothered you b4 any other possible triggers?
    S
    Think I am just stressed and I assume all changes will be permanent ones. This T fluctuates and changes that its hard to get used too. My new med can exacerbate depression to but helps other symptoms so stuck between rock and hard place.
    S
    Hearing therapy appointment tomorrow, hopefully I'll get something out of it :).
    View previous comments…
    S
    But unless I get my anxiety under control then I know I'll obsess over it as I have done with other things in the past.
    S
    @Joe Cuber thank you :) everything feels so much better in my self when the negativity has lessened, the heavy feeling almost goes :) just gotta learn to keep it that way, but the brain is a sneaky little thing it loves to play games lol.
    Forever hopeful
    @Strawberryblonde @Joe Cuber, I think I would feel less guilt if I didn't put myself in the situation. I mean if this just came out of nowhere I guess I would be a little better about the self blame. I've been making use of peer support on ATA. All say the same. Don't give it the attention it wants. That's the only way they habituated.
    S
    Watching people walk past my window wearing headphones is making me green with envy. I miss my old past time doing that.
    TheDanishGirl
    For me I have double feelings about it. I envy the carefree-ness of it, but I also cant help thinking that at some point some of them will probably be struck by these conditions and suffer so badly from it, and I cant prevent it, cause most people dont care. They only care once they are hit and then maybe its too late.
    S
    @TheDanishGirl correct. Unless one experiences this then there is no way too fully explain to them how it feels. Words don't do it justice. I do miss how carefree and in my own world it felt. Nothing else quite compares for me now.
    Forever hopeful
    I totally get the Envy part. I had a birthday celebration over the weekend for a friend of mine. I could only do part of the activities with earplugs. The other 10 women not a care in the world. Went to bars, karaoke, all screaming at each other. All I could think was oh back when I had fun.
    S
    I love hearing church bells ringing away on Sunday morning. But not when it's coming from your own ear :-P.
    View previous comments…
    S
    Thanks @Forever hopeful. Struggling to mask it at night as its become slightly reactive which I hope will die down too. Think I've overprotected too much and my hyperacusis has worsened.
    How is your spike today?.
    Forever hopeful
    @Strawberryblonde, Spike is no better. Thanks for asking. Can't mask at all. I used to have spikes this bad but I always knew that they would get better so I never really freaked out -never lasted long. This is now 17 days. I'm so afraid of sound now that I agree with you that we may in fact be overprotecting when we shouldn't. My only symptom of hyperacusis is reactivity.
    S
    Maybe this spike is just taking longer to recalibrate back to normal. You were very well protected, plugs, took breaks at the concert etc. Don't think that it'll never go down as that'll just reinforce it. Silly as it sounds with T, but I still think one day mine will get better and it keeps me going. You've healed twice before and you can do it again it may just take longer this time :).
    S
    My bf has high pitched tinnitus in one ear that can't be masked (according to him). Doesn't faze him at all. I need to be like him!!
    View previous comments…
    S
    He told me as as there's nothing he can do about (he has some hearing loss in that ear), that he just doesnt let it bother him. I guess he's fully habituated as he can fall asleep in an instant.
    T
    Hey strawberry, sorry for such a late post... Did it bother him at the beginning? How much did it bother him? How long did it take him to get used to it?
    S
    He said he's never been bothered by it ( nearly 20yrs he's had it) and that's because he has no control over it so he doesn't let it bother him mentally.
    He says he can hear it over most things like at night watching TV and in bed at night, but he can fall asleep pretty quick. @tniuf
    S
    Does anyone else's ringing get louder when they lie down in bed? It's not this bad when I am up right and standing.
    View previous comments…
    S
    Think it's become reactive as it seems to compete with whatever noise I'm playing at night. Too loud and all over the place to listen to without noise. So no sleep for me last night. Absolutely shattered. Had it since Monday night out of nowhere :(.
    BrOKeN_1
    I'm sorry. I know how your feeling. Loosing sleep is absolutely the worst. T is hard enough to manage with good/decent sleep. Since my T became reactive in May I've had to re-jigger my process. I hope you find something that works for you SOON! Don't forget to use your toolbox. You have some experience managing T already.
    S
    My old T was so easy never changed just got better and forgetful over the years. Until the idiot I am messed up when I had something soo good. Guilt feeding the anxiety and frightened itll be this way forever more. Trying to think positive. Thankyou @BrOKeN_1
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