_Shoto_
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Sep 18, 2024 at 8:15 PM
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_Shoto_

Member, Male

On the other hand I found a new doctor who is able to prescribe me gabapentin. Thank got I didn't order it from India illegally for $50... Sep 18, 2024 at 7:29 PM

_Shoto_ was last seen:
Sep 18, 2024 at 8:15 PM
    1. _Shoto_
      _Shoto_
      I think my loudness hyperacusis comes back if I'm not exposing my ears enough during the day...I fear I'll have to do this permanently now:(
    2. _Shoto_
      _Shoto_
      Yesterday was my 4th month anniversary of this new reality. Yeah. Looks like habituation with my severity is going to take more time...
      1. Sansa and Christiaan like this.
      2. Utdmad89
        Utdmad89
        Tbf in the grand T/H world that isn't very long atall. I didn’t see improvement in my T till atleast 8 months in and it was a very very small improvement.
        Mar 25, 2024
        _Shoto_ likes this.
    3. _Shoto_
      _Shoto_
      Average people praying to gods. I'm praying to Auricle, XEN110, and BHV-7000. We are not the same :')
    4. _Shoto_
      _Shoto_
      Hyperacusis went away after 2 weeks of zero hours of noise cancelling headphones use. Looks like overprotection was an issue? Hmm. Okay...
      1. Utdmad89 and gameover like this.
      2. Utdmad89
        Utdmad89
        Don't say that too loudly lol apparently there is no such thing as overprotection!
        Mar 25, 2024
      3. Tryn2BHopeful
        Tryn2BHopeful
        You might of had sound sensitivity from over protecting your ears.
        Mar 25, 2024
    5. _Shoto_
      _Shoto_
      Today was a great day
    6. _Shoto_
      _Shoto_
      My T got 50% louder in my right ear and I'm not sure why. And it's kinda fluctuates this past day. Maybe I do have somatic T? It's weird...
      1. streifzug likes this.
      2. Utdmad89
        Utdmad89
        Can you modulate your T with neck or head movements?
        Mar 23, 2024
      3. _Shoto_
        _Shoto_
        @Utdmad89 no but 3 months ago I accidentally did something and my T got louder for 10 seconds. Yesterday was the second time this happened. However, I can't do this whatever I want. I try to open my mouth, yawn, touch neck and face but nothing happens. So weird
        Mar 23, 2024
      4. Utdmad89
        Utdmad89
        That does sound weird. I don't think yours is somatic. But tbf Doc Shore said mot was somatic even if you can't do it with movements.
        Mar 23, 2024
    7. _Shoto_
      _Shoto_
      Oh wow. Only one month left before my 22nd birthday. April is def going to be a fun journey for me. Oh my gosh. I should prepare myself...
      1. alwaysmasking likes this.
    8. lanterns&coffee
      lanterns&coffee
      Woah a user with similar interests hey hi
      Also is that link click in your pfp? I Never rlly got around to getting into that!!
      1. _Shoto_ likes this.
      2. View previous comments...
      3. lanterns&coffee
        lanterns&coffee
        @_Shoto_ i should definitely get into it then, I’ve heard it was good!!! I haven’t been watching much lately, last thing I watched was probably either one piece or blue lock
        Mar 24, 2024
        _Shoto_ likes this.
      4. _Shoto_
        _Shoto_
        @lanterns&coffee ohh I loved blue lock! When you have time I also suggest to watch Noragami. Probably my favorite anime of all time. It's very unique too! So far all my friends liked it lmao
        Mar 24, 2024
        lanterns&coffee likes this.
      5. lanterns&coffee
        lanterns&coffee
        @_Shoto_ I’ve heard of noragami but never really watched it, maybe I should :-)
        Mar 25, 2024
    9. _Shoto_
      _Shoto_
      Went to the beach. Never again. 3 concerts in bars/cafes, cars all over the beach, no access fo people, seagulls, 50% of cars blasting music
      1. Sansa likes this.
    10. _Shoto_
      _Shoto_
      I would sell my kidney for a ONE pet-free apartment in my city. Saturday 7am. LET ME SLEEP OH why would u let ur dog on a balcony at 6am?
      1. tpj, aab, Kittywus and 3 others like this.
      2. Kittywus
        Kittywus
        Child-free apartment too
        Mar 16, 2024
    11. _Shoto_
      _Shoto_
      Can't open a bag of chips without triggering H and TTS. Incredible life I've got at 21 year of my life
      1. alwaysmasking, Kittywus, aab and 3 others like this.
    12. _Shoto_
      _Shoto_
      I decided to find an audiologist who will agree to test my hearing up to 20 khz. I can sense that it's going to be hard in my town lol
      1. streifzug and Kiyomi like this.
      2. Tryn2BHopeful
        Tryn2BHopeful
        I had that test done. While informative it did little for the outcome at the end of the day. I have hearing loss starting at 9k - 14k then back up at 18k which makes no sense... age will play a part in extended frequencies as well.
        Mar 13, 2024
        _Shoto_ and Kiyomi like this.
      3. _Shoto_
        _Shoto_
        Never mind. No once in my city can do this test. Well...I expected this outcome :D
        Mar 13, 2024
        Tryn2BHopeful likes this.
    13. _Shoto_
      _Shoto_
      Consuming 3 different types of information right now so I can't think about my T and H :D Anime, news, background music, and drawing!
      1. Kiyomi
        Kiyomi
        What anime do you watch, what are your favs?
        I really enjoyed darker than black, talentless nana and angels of death, to name a few more unknown ones.
        I also started the one piece life action series and I love the nostalgic feeling.
        Mar 13, 2024
        _Shoto_ likes this.
      2. _Shoto_
        _Shoto_
        @Kiyomi To be fair I've watched so many I can't even remember 50% of the names. Currently, I'm watching Synduality: Noir. I've never heard of this anime but I really like it. I've always wanted to have a list of all the anime I've watched but it's too late to start now. The most nostalgic ones are definitely Bleach, Death Note, Attack on Titan, and Naruto. The Disastrous Life of Saiki is probably the funnies one :D
        Mar 13, 2024
    14. _Shoto_
      _Shoto_
      Waking up with a headache and T+H spike is not cool experience. Susan, respectfully, please, hurry up
    15. _Shoto_
      _Shoto_
      Headache, tooth pain, ear pain, louder ringing, this day is definitely a day... Hope y'all doing much better lol
      1. streifzug likes this.
    16. _Shoto_
      _Shoto_
      I want to live in a desert with no neighbors around. I was always against this idea but I'm done with loud music and dog barks at 1am/6am
      1. Kiyomi, gameover, tpj and 3 others like this.
      2. _Shoto_
        _Shoto_
        It's funny that my family indeed considers buying a cheap rancho in a desert that is just outside the city. I was always against this idea because everything is in an hour of driving but now... I am a new person lol. This idea is okay to be honest. I always wanted to live in a city center, now I want to live in a rancho with huge backyard with trees and enjoy birds singing. No bikers, no ambulances, no neighbors
        Mar 10, 2024
    17. _Shoto_
      _Shoto_
      Going to restaurant today. Will be wearing earplugs all the time, I hope I would be able to enjoy this day to the fullest!
      1. BrOKeN_1, Kiyomi, Sansa and 2 others like this.
      2. _Shoto_
        _Shoto_
        It was a good day and everything went well! I took out my earplugs for a second and oh gosh the restaurant is soo loud. Hyperacusis aside, the music, the people, the dogs, the dishes, the AC... No. I think I'll be wearing my silicone earplugs in restaurants even if we would have cure for hearing loss, tinnitus, and and hyperacusis. It's just a common sense lol
        Mar 10, 2024
    18. _Shoto_
      _Shoto_
      My left ear got a new tinnitus tone. It's so different compared to my left ear. The left one is around 17khz and the right one is 3-4khz...
      1. streifzug and Kiyomi like this.
    19. _Shoto_
      _Shoto_
      I like sleeping. I had a realistic dream with no tinnitus. I was alive. It felt so good. And then...I was back in reality lmao. I love night
    20. _Shoto_
      _Shoto_
      I'm getting fleeting tinnitus like 3-5 times a week. I've never had it before getting my regular T. What in the world is going on in my ears
      1. beefling, Kiyomi and streifzug like this.
      2. Kiyomi
        Kiyomi
        Fleeting tinnitus is a scary thing.
        Mar 8, 2024
        _Shoto_ likes this.
      3. _Shoto_
        _Shoto_
        Today I got 4 fleeting tinnitus(es). It's really weird. And all the time sounds are totally different. And different ears too. Today is only the right one, for example. What in the world...
        Mar 8, 2024
        Kiyomi likes this.
      4. _Shoto_
        _Shoto_
        Also, during fleeting tinnitus episodes I have to regular tinnitus! So technically I hear silence for 1-2 seconds after fleeting tinnitus. The only good thing about them :/
        Mar 8, 2024
        Kiyomi likes this.
    21. _Shoto_
      _Shoto_
      My only wish is to not hear my T during the day. Don't care about the night. I want to hear fridge buzzing and birds singing. That's it.
      1. Angieuurope, Kiyomi and streifzug like this.
    22. _Shoto_
      _Shoto_
      Today was a good day compared to yesterday...My mental health is insanely unpredictable, one moment it's so over, the next is all alright
    23. _Shoto_
      _Shoto_
      I'm also grateful to this forum. It's so nice to be able to write your exact thoughts and not disturb your friends/relatives with this BS!
    24. _Shoto_
      _Shoto_
      Every day I'm grateful for the supportive family. Mom mom and my grandpa. Beautiful people. I love them so much. They do everything they can
      1. streifzug
        streifzug
        I am also grateful for my family. :)
        Mar 7, 2024
        _Shoto_ likes this.
    25. _Shoto_
      _Shoto_
      Random bursts of sadness and loneliness make me cry every day since I got my T and H. I can't wait to finally habitulate this year.
    26. _Shoto_
      _Shoto_
      My tinnitus never was this loud before as it is today. Weird. This is the first time I can't sleep due to loudness. Maybe just anxiety?
      1. Tryn2BHopeful
        Tryn2BHopeful
        Benzo's can have a rebound effect if I understand correctly.
        Mar 6, 2024
        RunningMan and streifzug like this.
      2. _Shoto_
        _Shoto_
        Hi @Tryn2BHopeful, I hope you are right and it's just a side effect of Clonazepam. I want to believe this is all just anxiety in my head and nothing serious
        Mar 6, 2024
        Tryn2BHopeful likes this.
      3. RunningMan
        RunningMan
        @Tryn2BHopeful Yes, seems that's where you hear about the real struggles with benzos - trying to come off of them and interdose withdrawal effects of more anxiety. The hyperacusis and possibly T may improve over time after weaning off permanently.
        Mar 6, 2024
    27. _Shoto_
      _Shoto_
      My hyperacusis is back. Can't open tea bag without uncomfortable ear flatterings. Ringing is louder than usual. Literally all out of nowhere
      1. Marina Moon
        Marina Moon
        SAME! My ears flutter with opening tea bags, plastic bags, utensils clattering, but paper is awful!
        Mar 6, 2024
        _Shoto_ likes this.
      2. RunningMan
        RunningMan
        Ear fluttering sounds like TTTS rather than hyperacusis. I have both but experience TTTS myself sometimes to voices or typing and sometimes individual thumps spontaneously without external sounds. But, some sounds are perceived excessively louder than they really are due to hyperacusis.
        Mar 6, 2024
    28. _Shoto_
      _Shoto_
      People born in 2050 and getting T late in their lives wouldn't understand the hell we are experiencing right now in 2024 with 0 treatments:/
      1. Lorca
        Lorca
        We will see. Hope that’s the case for them. I think realistically the only way out of this is some sort of brain implant
        Mar 6, 2024
        _Shoto_ likes this.
      2. crescentsky
        crescentsky
        at this rate, I feel like even in 4000, we are still doomed lol
        Mar 6, 2024
        gameover, _Shoto_ and Tryn2BHopeful like this.
    29. _Shoto_
      _Shoto_
      Well. Today is definitely a day...and not a good one. Anxiety fuels tinnitus as hell. Trying watching anime/play games to distract myself :c
      1. streifzug and Kiyomi like this.
      2. View previous comments...
      3. _Shoto_
        _Shoto_
        Hello @streifzug, I have a question, do you have severe hyperacusis? I play games without headphones with volume 20/100 and 5/100 if with headphones. Still not great because I can only hear main dialogues but can't enjoy the background music and sounds
        Mar 6, 2024
      4. streifzug
        streifzug
        no. only mild hyperakusis. but near or catastrophic T left, right and center. my head is one loud fucking beep. I used to play with masking sounds in the background. now everything it gets drowned out by the t. no fun :(
        Mar 6, 2024
        _Shoto_ likes this.
      5. _Shoto_
        _Shoto_
        @streifzug I hope you'll feel better soon. It looks like your T may be worse than mine. I am so sorry this happened to you. I continue to play games and listen to music but I totally agree with you that it's not as fun as before. I can't enjoy many things now and probably nothing can do about it. I'm just hoping Auricle device will be able to help me...if I will have enough money to rent it
        Mar 6, 2024
    30. _Shoto_
      _Shoto_
      I wish I were given a 2nd chance with tinnitus. Like If it was only for a week or month. I did stop listening to loud music. Life is unfair
      1. streifzug, tpj, crescentsky and 4 others like this.
      2. View previous comments...
      3. RunningMan
        RunningMan
        Dr. Shore wouldn't or couldn't provide a price for the Auricle device, but Lenire is closer to $4K, so Auricle may be that much or more. We could have a lot of time to save up before it's widely available, though.
        Mar 6, 2024
        _Shoto_ and streifzug like this.
      4. _Shoto_
        _Shoto_
        @RunningMan 4K is insane amount of money for renting a device, wow. It looks like I should start saving up right now. But again, I hope they will be able to provide installment plans or something like this. Paying 4K in one go is too much
        Mar 6, 2024
        RunningMan likes this.
      5. RunningMan
        RunningMan
        Well $4K was just putting it in perspective of what I've heard of Lenire. I think I've seen someone say $3500 total also. But, the Auricle device could come in above or below that since they haven't given any estimates.
        Mar 7, 2024
        _Shoto_ likes this.
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  • About

    Gender:
    Male
    Tinnitus Since:
    11/2023
    Cause of Tinnitus:
    Unknown so far