Juliane

Juliane

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  • Juliane
    I wonder daily if I am unhappy because I am ill, or did I get ill because I was unhappy?
    TheCapybara
    In my case, I was unhappy and had issues long before hearing became a problem. Tinnitus/distortions just added to the long list of life problems lol.
    Juliane
    My eye doctor says everyone has floaters. Then how come I never had any 2 weeks ago?
    View previous comments…
    Juliane
    Verify_Checked
    I wish I knew. I had a full work up on my eyes. The guy said I had too perfect of vision that I "notice everything." I 100% never had floaters before. Doctors give me the woman hypochondriac look and brush me off. Awful
    Juliane
    Gosh I am sorry. They are so full of sh...
    Juliane
    This forum works as a suicide prevention space for me. I really think it does. Being able to vent prevents the most desperate action
    Calapsodis
    I responded to someone on the Susan Shore thread about how people just like vent on this forum and I said well yeah, it's a SUPPORT forum. That's what it's for. You will get all colors of the emotions wheel here and that's okay. It's what it's for. It's why we're here for each other.
    4Grace
    @Juliane - I cannot imagine not having this place. Not one doctor knows anything about reactive T, H and N. Although sometimes I still feel like the only one,
    Juliane
    I have decided to quit my job
    View previous comments…
    4Grace
    @Juliane - no judgment. I so understand. What ever you do I wish you the best always. You deserve it.
    ECP
    I hope the downtime will allow you to unwind so that your body can heal at a faster rate. Christina Applegate, who has MS and walks with a cane, said that when she went on vacation to Paris, she didn't need to use the cane as much as she expected.
    ECP
    I'm guessing that either the relaxation of being on holiday, or the distraction of novel stimuli, did something to her nervous system that enabled her legs to work better than usual. So maybe taking time off work and finding some relaxing things to do will help your ears and eyes.
    Juliane
    To die or not to die
    View previous comments…
    4Grace
    @Juliane - No. However, I have had a spiritual journey that nobody would believe. An extreme dark night of the soul. I have been exiled from earth/living. I was the server and host of most get togethers. I loved my family friends and life. I was not fully aware of how I might have been arrogant and full of way too much pride. Not for everyone but I know this was a lesson for me that is not over.
    4Grace
    @Juliane - I have a sense of how you feel every moment of everyday. I have been humbled to the ground with zero peace. I went from having everything to having nothing. I can only eat 5 or 6 things, Believe it or not most foods destroy my ears. Mine is ear and nerve related. It changes as I turn my neck. I also have massive nerve pain in my neck. My ear stings when I talk.
    4Grace
    @Juliane - sorry let me correct that… OCPD probably does impact me because I was a perfectionist. Most comfortable when everything was in order. I was at my best when things were perfect. Some people suffer so much in this life and handle it like it's nothing. It's amazing. I never knew. This is a really big problem. I need to let me family go so they can enjoy their life as best as possible. I am not good company.
    Cmspgran
    Thinking of you dear friend, still about on here and noticed how much you're suffering. You're in my thoughts and pray for us all.
    Juliane
    If I had a penny for every time I was told "You are overreacting"
    4Grace
    You can explain until your blue in the face. They can never know. I'm so sorry for all your suffering. You are in my prayers daily.
    Juliane
    ❤️
    Juliane
    I hate this world so much, I never thought I had so much hate in me
    View previous comments…
    Juliane
    @Pinhead I feel the same and it scares me. Are we right or are we going mad?
    4Grace
    @Pinhead - I am beginning to think I was like what you mention. As I look around I feel like most people, are very kind and loving. I never noticed how much until I became ill. This is probably just me. I always considered my self an empath now I am thinking a lot of it came from selfishness. Horrible realization for me, suffering teachers you a lot. I hate being this way. I hate it,
    Juliane
    @4Grace I understand. I have been manipulated my whole life. I learned that love and kindness are transactions and I never felt loved for who I truly am. For the rest of my life I am going to be ME, I don't care what people think. Oh, and I hope we meet one day in real life.
    Juliane
    Stupid imbecile crap world with no understanding for hypersensitive individuals such as us! I despise it
    Juliane
    Dear TT. Did any of you develop eye floaters after taking vitamins / supplements? I am trying to pinpoint what caused mine. Thanks!
    Calapsodis
    I've taken a lot supplements the past few years but nothing too out of the ordinary. Basic stuff like magnesium, zinc, vit A/C/E, D3, fish/algae oil. Can happily say they never gave me eye issues. Have you looked into setting up an appointment with a doctor or a specialist to get your floaters checked out?
    Juliane
    @Calapsodis Please be careful with b-vitamins, especially B3 and B6. I think B3 may have caused my eye floaters.
    Calapsodis
    Really? That's a first for me. I'm sorry that happened to you though. Fortunately I don't really take B vitamins that much except the occasional B12 when my diet hits the curb (which is usually most of the time). I've drank Vitamin Water in the past a lot and it says it contains 100% of your daily intake for B vitamins but I never linked it to my floaters. I'm still like 90% sure the prednisone did it to me.
    Juliane
    Due to floaters, I may need to get my eyes dilated. Any of you have any experience with this, and did it worsen T? Thanks in advance!
    crescentsky
    I have to go every 6 months and no effect on my T. There is also retina imaging which is a 360 scan of your retina. Pretty sure almost all the eye docs have it. You can probably opt for that, if that is an option.
    Juliane
    Juliane
    I am a horrible person, I do not deserve forgiveness, I deserve only suffering
    View previous comments…
    4Grace
    Like on TT I am destroying the people around me. How can I concentrate on something else. It's in my mind 24/7. I have become a massive burden on everyone.
    Juliane
    You are not @4Grace. But this world has been set up in a way so as to ignore and blame the people who are sensitive and suffering instead of making a world we can all live in. It is not our fault, any of it. We are too sensitive for this world, and imo this world can go f.... itself.
    4Grace
    Thank you for your kind words. I was once very kind. My heart became hardened over the years. This feels like punishment for a personality disorder I had not choice over. I can't do anything at all only because of my ears.
    Juliane
    I think my eye floaters are due to taking vitamin B3. It can cause eye issues. So incredibly stupid
    Juliane
    by gradually desensitize the brain? My eye floater onset started after illness and stress. The brain is working too hard
    Juliane
    I am thinking out loud, not wanting to offend anyone: if the brain is overstimulated (e.g. I now suddenly see eye floaters), could we heal
    Juliane
    If I had the talent and energy, I would study medicine. Why so many of us have eye floaters? Clearly this is an illness of the senses
    Juliane
    And that's why we are told "live with it". It is not MS or Parkinsons but our brains are ill in a way no doctors truly understand
    gameover
    I think there is more similarity to MS or Parkinson's than the doctors know. Some researchers may be finally getting some clue, but it is a long road ahead.
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