Juliane

Juliane

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  • Juliane
    If I have said in the past that I'd rather have cancer than tinnitus, I did not mean that. Tinnitus is horrible but I do not want cancer
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    Lurius
    Often, but not always. Both my parents had cancer in 2019. They got an operation. No chemo. Chemo is usually the last resort these days. For those who are in life-threatening condition.
    4Grace
    We can surely understand the sentiment when it was first said. Depending how bad someone has it ….
    Juliane
    Thank you for your understanding. Tinnitus has definitely made me despair and wish for bad things. But lately it has made me feel guilty to do so. It is not easy.
    Juliane
    I need to go get a CT scan and my anxiety is spiraling. Will the radiation make T worse?
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    Juliane
    No immediate difference? Did it come later?
    ECP
    I had a CT scan in July. It was very quiet and didn't affect T or H at all. I know it's a lot of radiation, but for me, it was the lesser of two evils, the other evil being the amount of noise that an MRI would make.
    Pinhead
    No, no difference at all, at least that I could directly correlate to the CT Scan.
    Juliane
    Does anyone know if CT scans are noisy? I never had one before. Thank you in advance!
    View previous comments…
    Ngo13
    I got one last year. It wasn't particularly noisy although there is some noise. It had no effects on my T.
    Varda
    There is a lot of controversy about the chemical they inject if they do a "contrast" CT
    4Grace
    It's not noisy. You can do it with or without the contrast.
    Juliane
    One year ago, I had tinnitus. Now I have tinnitus, eye floaters and irritable bowel syndrome. What is happening? Rapid decline.
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    tpj
    ❤️
    kingsfan
    I've had IBS since I was 14. Psyllium husk (metamucil) is magical. If you have IBS-C, Magnesium Glycinate (Qunol Extra Strength is very affordable) is very helpful and easy on the stomach. Ask your doc about pelvic floor therapy. IBS and Pelvic Floor Dysfunction are closely related.
    Juliane
    @kingsfan How do you manage with both tinnitus, IBS and eye floaters? I can't believe we are this cursed. We do not deserve this :-(
    Juliane
    Love you all. We deserve to be happy
    4Grace
    Yes. Agree. We also deserve to be at peace. Just peace. The other day I saw a homeless man sitting under a tree. Reading a book. He had a massive tent. Set up in a park. That can't be easy, I might be naive in saying this… I felt he was much better off than me. Is that sad? Is that wrong? That's what I feel like. No money is worth health.
    Juliane
    Nothing wrong about thinking. That's all you do. Reflecting over life. We all do. Some more than others. Especially when we are going through the dark night of the soul, which these years are for me. Hope this dark journey ends very soon and will be replaced with light.
    Juliane
    I used to be resourceful, creative, optimistic and resilient. You would think those traits led to a good life. What the hell happened?
    Juliane
    Feel I am entering a new phase of deep anxiety and sorrow. It manifests physically. I have lost all hope and faith in this life.
    Juliane
    I know it's easier said than done when struggling but if you have a clear vision with no floaters, please appreciate it
    Juliane
    I used to be the most active person. Now I prefer to stay in my bed with closed curtains most of the time
    View previous comments…
    Juliane
    @4Grace I know :-( when I stay in I do feel a bit more at ease but also incredibly lonely. I love my boyfriend dearly and he listens to me but I cannot talk to my family about my problems. They all more or less ignore me at this stage.
    4Grace
    I understand. I wish you better days.
    M
    Me too.
    Juliane
    Too scared to quit. Is it better to keep working as long as I can? Will the stress from unemployment be worse?
    4Grace
    In my humble opinion. Please try to keep working. If you don't you will have nothing to do but get up and stress about T. I do understand you wanting to leave. I have been home close to 2 years. I cannot work with this.
    Verify_Checked
    Yes. I agree with @4Grace. Not working made it worse.. for me at least. Are you able to take some time off instead if you need a break?
    Bob3382
    I almost quit in the first 6 months, but stayed on and talked to my manager. I told him I needed time to adjust to this horrid Tinnitus. He gave it to me.
    Juliane
    All the Covid nonsense put us all on high alert for years and messed with our nervous systems. We should all sue the government
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    Juliane
    Juliane
    @4Grace I am sorry :-( Do you think the shots may have caused all this?
    4Grace
    @Juliane - I would be guessing. I know for me it was something else but maybe the shots caused some damage. Some people did claim to get T just after the shots but who knows. So complicated a condition. Yours seems to be directly related to your ears due to noise trauma.
    Juliane
    I wonder daily if I am unhappy because I am ill, or did I get ill because I was unhappy?
    TheCapybara
    In my case, I was unhappy and had issues long before hearing became a problem. Tinnitus/distortions just added to the long list of life problems lol.
    Juliane
    My eye doctor says everyone has floaters. Then how come I never had any 2 weeks ago?
    View previous comments…
    Juliane
    Verify_Checked
    I wish I knew. I had a full work up on my eyes. The guy said I had too perfect of vision that I "notice everything." I 100% never had floaters before. Doctors give me the woman hypochondriac look and brush me off. Awful
    Juliane
    Gosh I am sorry. They are so full of sh...
    Juliane
    This forum works as a suicide prevention space for me. I really think it does. Being able to vent prevents the most desperate action
    Calapsodis
    I responded to someone on the Susan Shore thread about how people just like vent on this forum and I said well yeah, it's a SUPPORT forum. That's what it's for. You will get all colors of the emotions wheel here and that's okay. It's what it's for. It's why we're here for each other.
    4Grace
    @Juliane - I cannot imagine not having this place. Not one doctor knows anything about reactive T, H and N. Although sometimes I still feel like the only one,
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