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It's a pretty reputable dude. Partner at YCombinator, arguably the best accelerator/incubator of the ZIRP era.

Y'all, the device is happening. I would not have gotten my Susan Shore tattoo if it didn't. As extremely difficult as it may be, patience is the only option.

Based on Dr. Shore's (well-understood) tight-lipped approach to sharing information about the study, the fact that she shared this at all is WILD.

Deep breaths, y'all. Just read that and take long, deep, breaths.

Gotta jump in a remind everyone that the study has barely been published for 4 months. The FDA won't look at a pre-submission (yes, multiple meetings occur prior to you being able to submit) meeting until then. It is highly likely it has not been submitted. This has nothing to do with the...

Yeah baby! At this point I believe that sustained use will eventually reset fusiform cells in the DCN to "homeostasis" and cure tinnitus altogether. It will just take longer depending on the overactivity that each one of us has. I'm thinking silent Christmas 2025. I have always dreamed of a...

You also have to remember that a system propped up to support $1B worth of annual claims has good reason to keep that 'system' in place. You know, for their own benefit!

Damn and half of it is venture debt too. It will be interesting to see how this plays out in terms of them pursuing US DoD contracts with the Auricle team on its heels. I would sure love to see the financials to see how they are justifying a $15M Series B (that probably puts them at a ~$100M...

In an effort to keep this thread optimistic, we have no idea about what sustained or long-term use could yield. The results were better with the trial time increased from 4 to 6 weeks. There could very easily be a reality in which consistent use or medium term use of the device reduces the...

The study is out! Reversing Synchronized Brain Circuits Using Targeted Auditory-Somatosensory Stimulation to Treat Phantom Percepts

Aside from @linearb's reports on this device, it's still wild that we haven't heard any other anecdotes. I believe this has to do with strict confidentiality agreements put in place in order to best steward this device through the proper channels (FDA). The data we all saw from the Palm Springs...

5 years : |

FX-322 fails. Damn. Dr. Shore remains the only player in the game! Really need Auricle to shock. my. face.

@bobthebuilder, are you back to baseline yet?

Off to the doc. Fml.

I had a nasty spike a few weeks back. It's settled. But I've had a slight/low grade nausea/dizziness almost constantly for a week or so now. Nothing else has changed. Could this be a Meniere's symptom?

"The treatment effect was so pronounced that subjects did not return to baseline during the washout period." Again, hate to get my hopes up but JFC!

So incredibly torqued about the Auricle news! Can't wait to solely view that thread here and counting the days until Susan shocks my face.

@Markku, thanks for being there! Do you think you should tell her about my possible tattoo or no?

Highly recommend everyone on this forum watch Stutz - new Netflix Documentary by Jonah Hill.

Anyone get their flu shot? I'm on week 2 of a horrid spike and worried about injecting virus, but heard this flu is quite bad.

Omg that's amazing. I feel like her divulging that is a big step. Did she respond to you this week?

Not to beat a dead horse but it's definitely been mentioned at least 10 or so times in this specific thread - not to mention others - but when conducting clinical trials it's imperative you design a study with results that can be ACHIEVED. Severe cases are more complicated and therefore harder...

One month from today it's *possible* Dr. Shore delivers us from evil. Prayers up!

I had to hop on really quick. I had a massage earlier today where they worked the lateral pterygoid muscles in my neck. I do this about once a month. But rarely do they hit the pterygoid muscles. Today after leaving the massage, I had a few SBUTT episodes, and now I just had another! Wild!

If we have to treat one ear at a time, as long as it works - no problem!

"4.5 Am I allowed to share details about the study and my personal experience within the study to the public via Internet, tinnitus support groups, newsletters, etc.? In a clinical trial there is potential for research participants to draw their own conclusions, based on their subjective...

This may be a good resource for some folks here. Flexible jobs for those w/ chronic conditions.

16m people seek medical attention for T every year. The TAM for Auricle is HUGE! $2500 x 16m = $40b. Take my money Dr. Shore! Shock my face!

@David1260, appreciate if you can share the dosage! Any thoughts on what caused your tinnitus?

Finally got Covid... anyone have any positive stories related to their T or did anything in specific to help them get better?

Saw a motorcycle hit a car from about 50 ft away earlier. Probably going 30 mph. Loud. But I don't think 'prednisone' loud : /

@Nick47, when it comes to getting a drug or device through FDA approval, setting narrow trial parameters is key. If they took every instance of whatever they were trying to treat under the sun, nothing would get through. You still may be right, but we have a few anecdotes of people who had been...

Saw that lol. But I would NOT put it past the tinnitus research community to have cured this thing 30 years ago and have it sitting on a shelf somewhere in Japan. It may sound a little harsh saying so, but so is my tinnitus ¯\_(ツ)_/¯

Stumbled across this study. Interesting they specifically mention sensorineural tinnitus. It appears to be an MAO-I.

Unfortunately the trial is still active - so who knows!

Holy sh!% Dr. Shore - let's get this show on the road!

@dan, definitely tap > swat. But there was sun lotion on my hands making the "tap" harder. Tinnitus still seems elevated unfortunately. But not out of the ordinary elevated. I can't believe I'm even writing this. Tinnitus is unreal. Fml.

Lol thanks @ajc.

I’ve been in the middle of a tinnitus spike for the past 10 days or so... This morning I felt like it was finally going away. When I was applying some face lotion, I put too much on my hands, and so I tapped it all over the place before I spread it in. I ended up tapping both my ears. Now my...

@ploughna, would you mind sharing the exact prescription? That way someone could reach out to a compounding pharmacy with exactly what they prescribed for the study. Assuming that’s what you have. Sorry if you’ve already done earlier in the thread.

How often? This particular opportunity is monthly travel all over the damn US. Consulting. Part of the additional fear is dinners, bars, client engagements. I unfortunately spike easily.

Looking at what Minbo Shim is doing (traveling to the US to train doctors), Soo Ji should probably do the same thing. If Minbo Shim is charging $9k per ear, certainly Soo Ji could charge double in the US than he is in South Korea and make a mint.

@Travis Henry, you could probably reach out to your PCP (or any receptive one) and show them this study. The study only shows 16 IU 4x daily so could also show them this patent filed that discusses examples of even higher doses (like the 45 IU @ploughna is dosing with).

@ploughna, did you see Dr. Newman to get the prescription after the study or someone else? If it was a different doctor, would you mind sharing? Thanks!

@ploughna, any update on whether or not this is still an effective treatment for you?

cymbals shake my ears in the dead. of. night.

I got the email too. Out of 191 participants; 95% of treatment compliant participants achieved an improvement in their tinnitus symptoms after 12 weeks of treatment with a greater average improvement in symptoms than reported in TENT-A1 91% of treatment-compliant participants experienced...

Thanks for your support. The laundry list of regrets since this shite began is quite long. I have a feeling the stress of travel and "loss of control" will just be too much to handle, regardless of the $$.

I have flown a handful of times. I'll never fully be able to control the environments I'm in. Unfortunately I'll probably have to pass.

It appears I'll be receiving an incredible job offer with otherworldly compensation at an incredible company. Think top 100 with a long track record of success in the tech. Problem IS... travel. Given the unpredictability of this condition I'm not sure I can accept it, given it's a sales job...

Nice! How many injections is the treatment? It's $9k per ear?

Whoa. So can anyone sign up with your physician to do this now?

Hey congrats @scotty03874! Wishing you success. A couple questions; Is Dr. Shim staying in the States to do the rest of your treatments? Cost? Is the Doctor's office you're receiving treatment at learning the procedure as well?

So it completely killed a tone and permanently reduced the volume? Did you end up receiving placenta derivatives in addition to Lidocaine? Did he mention any other foreigners coming? Because it’s only been 6 months I would wager you have some good runway left for natural improvement with your...

Thank you for checking! This is good news. Fingers crossed they both received reward for their risk!

Hey @Uklawyer, have you reached out to them yet? Could be great to theoretically get two "trip" reports this week. Thanks!