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First thanks to all the smart people on this forum that contribute their knowledge and have hung with the research tenaciously hoping for at least a viable treatment of tinnitus. A couple of basic questions please... - With trials and hopefully subsequent approval running their course in...

To Bart's good points, seems complicated to drive plasticity if say the hearing loss deficit continues which I presume would continuously drive plasticity toward tinnitus. Won't the signal timing stimulus machine end up being a tug of war between the two prevailing stimuli?...hearing deficit...

Thanks for the comprehensive response linearb, much appreciated. Do you know what the procedure is for using the device? How much time during a day the black box must be used to decouple the cross-talk of touch-sensing nerves which pass through the temporomandibular junction from audio...

linearb, In your informed opinion, is Somatic tinnitus the type of tinnitus potentially most improved by this technology? Thank you.

I used to be a competitive rider and ride about 5-6K miles per year now. I still ride with the fastest riders in town in spite of my advancing years. My tinnitus stays about the same...when I start versus when I finish. But, my tinnitus varies a fair amount daily if not hourly from mild to...

The term cure maybe too encompassing. I believe within the next 5 years there will be treatment for tinnitus either pharma or viable medical procedure. This will help. Cure to me is really at the cellular level…what I believe truly at play here. Some have already started down the road of...

Agree with the above poster. More distraction and more life and exercise is the best recipe for tinnitus and not being withdrawn and fearful which promotes the exorable repetitive do loop of focusing on it and obsession. As you may be able to tell by my avatar cycling is a big part of my life...

BobbyH, I sent you a PM wondering if you received your new Signia Hearing Aids with Notch Therapy? If so, curious if they have lowered your tinnitus? If you get a chance, please provide an update and hope you are well.

Greg a question please. Both Michael and you are well studied when it comes to tinnitus. Do you believe that headphones of any ilk...maybe what a hearing aid is in terms of augmented frequency response and may in fact be therapeutic to tinnitus as we have talked...headphones are not injurious...

I can't figure it and problem solving is generally my strength. Lack of sleep probably biggest root cause and/or stress but to share a bit more for me... Wednesday, I had a rare low T day...about 2 out of 10 after a few days in a row of moderate T. Thursday about 3 out of 10. Friday about 4...

If there is an argument against the pedantic detail oriented obsessive personality type predisposed to tinnitus, sounds like its you and Glynis. You both handle tinnitus with such grace. I do better when my tinnitus was a low volume level. But when it recently spiked I struggled to habituate...

Our paths are indeed similar Greg. I can tell you so many related stories of sufferers throughout the world with what we have. Yes, dental implants have likely precipitated an epidemic throughout the world of IAN injuries. I have corresponded with many. Also common with jaw relocation...

Yes, we will stay in contact for sure Greg and thanks for your detailed description. You have been through a lot...perhaps more than me and you have my profound respect for your lucidity. I have read about Botox for nerve numbing. Issue I have with it...seems like a last resort. Of course...

GregCA and Jason, You guys are helping me so much with your great advice about hearing aids. I am so grateful to you all, Bobby and everybody that has struggled so much with this scourge and come here to help others like me in the same boat. Many if not all of you guys prefer over the ear aids...

I remember our discussions as well.... My situation has been the challenge of my life and tinnitus basically came along for the ride. Quite an unexpected companion I would have never dreamt of being tinnitus illiterate most of my life. A unnamed prominent neurosurgeon performed an ablation...

Great post Ed. So easy to obsess about tinnitus and let it be the excuse not to do all the things you want. Meanwhile life slips by. Your words are spot on. Ride the wave brother.

Only advice I have as a fellow loud T sufferer at times is, when you change your lifestyle around your T you will obsess about it more which will make it more debilitating. You need to develop the courage to get out there and live and what will happen is...your T will go more into the...

Jason, Precisely the advise I was looking for to supplement Bobbie’s great advice. Thanks so much for coming here and adding your experience. I am going to wait on Bobby but based upon his and your advice, I am leaning toward the Signia notch therapy hearing aids. Your comments about...

Sorry. If you want to make a specific point, you are going to have to break it down a bit...what is transformative about the outcome that turns people into an egotistical jerk? Why because it works for them?...even if placebo? Some people are helped by religion because its a belief system...

If you read the forum, lots of people here having spikes right now including me. A suggestion and only that is try to live your life as normally as you can. Distraction and being out in ambient noise works best for me. Choose hope, your spike will abate once you remove what you believe caused...

I think its just you...or rather you hold your views personally and they aren't universally shared. I don't judge others desperate to find a solution to their tinnitus even if grasping for straws. I don't align ego with or being a jerk with pursuit of TRT even if I believe a TRT program isn't...

How about you Dr. Ancill? You wouldn't happen to have obsessive compulsive tendencies would you? How about a need for order? :D

What you write is compelling and applies to me. Neuroticism aside, I believe I am perhaps characterized as neurotic tempered with strong boundaries and logical thought with heavy science background. But I have vestiges of perfectionism and OCD. Perhaps you nailed it DirM with your...

Nice to hear from you Ed and sorry your tinnitus hasn't improved such that you are still around. What I did because my T baselined for a year or so at a 3-4 or so as I habituated and then accepted it on some level, is...put my hopes into pending Research so I mostly lurked on the Research...

Your last sentence in particular I can relate to. I do much better when I am outside whereby natural environmental sounds really mask my tinnitus. But when back home and if alone, I find my mind focuses more on the high frequency hiss. So a hearing aid white noise filter may help me as well...

Thank you Glynis. How effective is your white noise filter? May I ask what NHS stands for? Are hearing aids a big help to cope with your tinnitus...or a small help in your opinion based upon personal experience? Hope all is well.

Greg, Is Costco a good place to buy hearing aids at? Or...how about an on line source like...

Bam, Many of us have suffered and know your pain. Can you get some meds to chill you out to take some of the sting of T away...and/or some noise masking as mentioned by other poster. We feel for you. Take care and feel better. This tinnitus scourge seems to go in cycles. I hope you get to a...

Greg. When vetting an audiologist, is there a check list you can refer me to on the web of what to look for...for best tests perhaps specific to tinnitus sufferers? In other words, like hearing aids with different features, I presume audiologists aren't all the same. Is there a litmus test to...

Thanks so much Bobby. You have been through so much with your tinnitus. Like yourself, I am looking to at least take the edge off if hearing aids will help. You identified much of why the latest hearing aids...how the tech has moved forward for those with tinnitus in particular. Bobby, you...

Nice to hear from you Greg and greatly appreciate your advice as you know so much about tinnitus. Do you have a suggestion on brand and/or model of hearing aid? Thanks again.

Hugs and hope things go ok for your consultation. Thanks for your comments Glynis.

So nice to hear from you glynis… I have been off the forum mostly because I have little to add and many are suffering with this condition more than me…until recently where my T has taken a turn for the worse which puts me in with those that struggle. Do you know the brand and model of your...

First a bit of background. Been a while since I have been on the support forum and have mostly come back because lately my tinnitus has been raging and I am trying to figure out my best strategy moving forward. My story is a bit complicated. I have a pretty profound jaw/facial nerve injury...

I grew up in the classic rock era and without question, in the top five who ever lived, Eric Clapton is considered among the best. So, when I read this article, I had to post it here as we more ordinary citizens share the same affliction with this legend and others who have had unimaginable...

Just stopped in to share the same outrage others feel about this weird inheritance called tinnitus. If it goes down, and most of us know the phantom noise is brain generated, and the brain is largely chemically controlled, why can't brain chemistry be tweaked to damp aberrant neurons that...

Hi Paul, I will speak honestly as I try to do. I found the support forum a bit overwhelming. I felt the pain of the big sufferers and like yourself, Glynis, Michael and countless others tried to help those in the greatest pain. We as you know are pretty powerless other than 'acceptance' and...

No. Tinnitus is simple. Humans are stupid. Time travel maybe a bit tricky tho. ;) My view is, believing it is uncurable is an untenable position. Modern man has been on the planet 200,000 years and the cell phone was just invented a few years ago. Now it would completely suck if they found...

Day in day out, mostly loud or annoying tinnitus, interrupted by distracted focus and ambient noise that obscures the dreaded hiss. Then...for no reason, no change in stress, diet, exercise or sleep, my tinnitus reduces to what can be described as a more livable level. Never lasts long...

Why would signal timing therapy be short lived? If plasticity morphed aka a bonefide shift in excited neurons creating a new plastic state inducing tinnitus...and this neural track can be damped with competing signal timing, why doesn't it have memory to change permanently? Thought being, for...

Can you explain the difference?

A bit more clear now. Your snake oil reference was a dissing of cumin oil which you feel is unrelated to UBC. My point, is the Dr. could have screwed up with his post. They are seemingly unrelated I agree. I don't know his background. I guess we will see if he responds. If he doesn't you...

Now I will state my view. I find your criticism course and crude. I am a scientist FWIW and I understand technical discourse. Your snake oil reference was banal and obtuse. What you didn't go on to say is why the Dr. is wrong other than your generic and scathing repudiation that 'he was...

As I read your post with my morning coffee with backdrop of hiss in my head...aka my handle stop-hiss...I have to believe with all the different approaches being researched, there will at least be therapies that will diminish this noise. I believe it will be solved. Time horizon is hard to...

Can you elaborate on what you mean about having to do with snake oil? You seem to be obtusely relating snake oil to pre-disposition. Are you saying the findings are credible and applicable to possible cure or abatement of tinnitus and somewhat unrelated to the doc's assertion about...

Dr., Are you going to come to this forum and announce when your video will be available? I suspect my tinnitus is neck related....T frequency changes if I arch my back in the morning rising from bed raising thorax vertebra of upper back with my head. The tone of my tinnitus changes based upon...

My tinnitus seems to be at least partly related to neck position due to sleeping, reposing while watching TV etc...and there can be a change in pitch and/or volume when yawning or opening my jaw widely. Not that I am expected to understand why signal timing would be related to what I presume is...

If not discontinued, they are electing to withhold updates from the public. This could be concern over the efficacy without more testing...or...it has real veracity and they don't want to tip their hand about how viable it is. To me, part of the lack of disclosure to the tinnitus community is...

I see, you are no longer taking it due to perceived risk even though Trobalt was overwhelmingly effective in quieting your tinnitus. Could you shed some light on why there is any reason to believe that what you coin 'safer versions of retigabine' being developed and/or tested are indeed safer...

If you say the long term side effects of taking Trobalt are too severe and not worth the risk, why do you take it? Apparently the risk is worth it to you, or you would take it. Could you expand a bit? Thanks.

Thanks for your reply which makes sense but I think of my tinnitus in terms of loudness. Yes, I have some variation in frequency aka tone, but my tinnitus varies sometimes hour to hour and day to day in how loud I perceive it to be. If you don't think of your tinnitus in terms of loudness in...

If you take Trobalt three times a day, do you notice your tinnitus becoming louder just before taking each dosage...or just as you wake after a night's sleep before taking your first pill in the morning? thanks.

People ask both questions all the time. Answer to 1st question is, some human's have learned to decipher rat speech aka their language. Yes, a bit scratchy and almost unintelligibe but if listening carefully which isn't easy with tinnitus, many times you can hear them talking about it....when...

will only add and say thank you linearb for your contribution to this thread. You write with great lucidity and fingers crossed signal timing manifests improvement for a subset of tinnitus sufferers.

I am not a big Dr. Phil watcher but stumbled upon an episode about OCD which is a common characteristic of tinnitus sufferers….I am somewhere on the spectrum of feeling comfortable with daily rituals and get more out of sorts when deviating in large degree for example. I would say I am 'mildly'...

For me, I get at least a T reduction after running the vacuum. But I don't get a break often because I hate to vacuum. ;)

Agree...there is the morality question...but honestly reconnecting nerve axons on the microscopic level has no veracity. Nerves cannot even be repaired individually let alone collectively to have any quality of life without copious pain. Spinal cord surgery isn't even feasible with current...

You know what would be a bummer? Getting a new head....with new found ability to play the piano and maybe the ability to brake dance and moon walk, perform differential calculus and speak six languages...and then...with new brain you forget everything you learned about tinnitus. Excited about...

Just so you know...because this hasn't been shared with public at large... The reason for the recipient receiving a new head is to eliminate tinnitus. There is nothing wrong with the head on the guy currently other than its a bit noisy. Oddly, the brain in the new head is quite different...

What Glynis said. Why don't you tell your girlfriend its OK to take a break because you understand you are difficult to live with if its meant to be with her, you will find your way back together if you recover a bit. I also like what Candy wrote. Bill we have had this conversation before...