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  1. Rogi Cetpla

    Can Mild Tinnitus Remain Mild?

    Hi Kam75, I can confirm that you are not the only one to have had tinnitus worsening while wearing custom made earplugs. I also fully understand the frustration, pain and despair you are experiencing. At this stage my situation has unfortunately not improved but I am still hanging in...
  2. Rogi Cetpla

    Tinnitus for 8 Years Possibly from Long-Term Alcohol Use and Stress — Looking for Support

    Hi Morfsnz, Sorry for the delayed answer... only picked up on it now. This time around I did use medications to get me through this phase. All the details are on my profile. Take good care, Rogi
  3. Rogi Cetpla

    My Precious Sylvia Has Passed Away

    Dear Dave, Sincere condolences to you and your family. Stay strong, Rogi
  4. Rogi Cetpla

    What Do Doctors Need to Understand About Tinnitus?

    I wish they had understood and conveyed that tinnitus can and will get worse if you are not very careful. As much as it is annoying and bothersome when you are initially struck down with tinnitus, it is nothing in comparison to what it can become if you are not very careful... it can actually...
  5. Rogi Cetpla

    Clear Sound 911 by Phytage Labs Is a SCAM!

    Unfortunately can’t say I am surprised... Those who have had tinnitus for a while know that there is no real cure/treatment for this hell... at this stage... Nevertheless thanks for posting this and keeping everyone in the loop... This could help new members of this unfortunate club from...
  6. Rogi Cetpla

    Suicidal

    Hi BrStan@, I actually had time to view it and found it well done... and definitely better than not having it at all. Any type of information and viewpoint on this relentless hell is welcome. Wishing you all the best, Rogi
  7. Rogi Cetpla

    How Do You "Measure" the Volume of Your Tinnitus?

    I just input white and/or pink noise using my iPhone EarPods and notch up the volume until it masks my tinnitus... have always done this since the onset of my tinnitus which has enabled me to precisely measure its evolution over the years.
  8. Rogi Cetpla

    Blood Thinners and Tinnitus and an Embedded Success Story

    My tinnitus definitely spikes when I take Xarelto... this is temporary and fades as the blood thinner half life wears off. Unfortunately as my base line level tinnitus has increased over the years as have my Xarelto induced spikes... making them almost impossible to bear without taking...
  9. Rogi Cetpla

    Longtime Minor Tinnitus, Gotten Worse Lately for No Clear Reason

    Hi LightBrownPillow, Having experienced tinnitus for 10 years now I feel that, unfortunately, there is no escaping the intrusiveness over time... unless you lock yourself up and avoid any sort of noise exposure/life. Have a look at my profile should you wish to understand my journey. At this...
  10. Rogi Cetpla

    Noise-Induced Tinnitus — 5 Gigs Since Spike — Not Getting Worse

    Hi @Dhaych, I found this interesting interview of a musician, producer and music tutor... coping with tinnitus and living his life to the full... https://www.m-magazine.co.uk/creators/learning-to-live-with-tinnitus-an-interview-with-rupert-brown/ Stay strong, Rogi
  11. Rogi Cetpla

    Poll: Do You Mask Your Tinnitus When You Sleep?

    Yes, I use two mobile phones and two iPads to generate sounds all around the bedroom... from water fountains to birds... my bedroom is basically a jungle... it would be impossible for me to sleep in total silence...
  12. Rogi Cetpla

    In Loving Memory of Allan1967

    RIP my dear Allan for peace is what you truly deserve. This news hit me like a sledge hammer... it is extremely sad and painful to see someone go out like this in 2020. Whilst fighting my own battle I had been in and out of Tinnitus Talk over the Christmas period and had noticed that people...
  13. Rogi Cetpla

    It Upsets Me to Read Stories Like This: Hear Loss in Seattle Due to Siren Costs City $495K

    We are not all created equal... physically and mentally.
  14. Rogi Cetpla

    Two Decades of Ringing Ears — World War II Re-Enactment Involving Weapons Made It Worse

    Hi Roger Vincent, I can fully relate to your situation as, after 10 years of suffering from tinnitus with a few spikes here and there, I recently upgraded to a level of insanity... I, like you, was no longer eating and had to resort to medication, including Xanax, this time around. The volume...
  15. Rogi Cetpla

    Tinnitus for 8 Years Possibly from Long-Term Alcohol Use and Stress — Looking for Support

    Hi Geoff, I share your pain and fully understand your situation as, I now also, suffer from loud intrusive tinnitus. I have had tinnitus for a bit longer than you have but have only recently upgraded to this level of insanity. This is unfortunately an individual battle which, to this day, has...
  16. Rogi Cetpla

    Suicidal

    Hi Yuuls, You are now at a stage where you need medical help. I was exactly where you are a couple of month ago. I tried to fight this on my own but ultimately caved in and consulted various specialists. I have, since then, been on various meds which have greatly helped and without I would...
  17. Rogi Cetpla

    Tinnitus & The Body: Take the Survey

    Done.
  18. Rogi Cetpla

    Suicidal

    Hi Guys, Just to say I am also right there... with both of you... hanging in tight. Take good care.
  19. Rogi Cetpla

    Christopher Cederroth Recipient of Prestigious Award in Hearing and Tinnitus Research

    Source: https://news.ki.se/christopher-cederroth-recipient-of-prestigious-award-in-hearing-and-tinnitus-research Christopher Cederroth recipient of prestigious award in hearing and tinnitus research The Deutsche Tinnitus Stiftung Charité has announced the creation of “The Research Prize in...
  20. Rogi Cetpla

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    Thank you for the information... please let me know if you recontact them. I understand that Montpellier is an important centre in France for tinnitus research. I also found this site: http://www.inmfrance.com/inmfrance-j3/index.php/en/ I am currently in Switzerland and would also consider...
  21. Rogi Cetpla

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    Let's hope so... By the way I see you are French and live in the South... have you ever considered consulting Cilcare in Montpellier? https://www.cilcare.com/who-we-are-2/
  22. Rogi Cetpla

    Inner Ear Hair Cell Regeneration — Maybe We Can Know More

    https://hms.harvard.edu/news/reversing-hearing-loss
  23. Rogi Cetpla

    Hi there, I am hanging in there...still feel fighting. Hope all is well on your side.

    Hi there, I am hanging in there...still feel fighting. Hope all is well on your side.
  24. Rogi Cetpla

    What's Your Definition of Mild Tinnitus?

    I was not saying that my flare up was due to the "occlusion effect". My point was that even the so called "experts" cannot agree and consistently have diverging views... at this stage I still don't really know what caused this flare up.
  25. Rogi Cetpla

    What's Your Definition of Mild Tinnitus?

    I would like to re-emphasise that tinnitus affects all of us in different ways and the manner in which it reacts is also very different in each individual. I will give you an example of a famous tinnitus sufferer who has never stopped riding and continues to do so on various motorcycles with...
  26. Rogi Cetpla

    What's Your Definition of Mild Tinnitus?

    I ride a Suzuki 1000 GSXR and wear a Shoei GT-Air 2. I agree with your analysis but unfortunately we are not all made equal... our genetic make up and our noise exposure history accounts for a great deal. I know people who have tinnitus and ride Harley Davidsons with open face helmets and have...
  27. Rogi Cetpla

    Measuring Hearing Loss with Loud Tinnitus

    I can confirm that it was the same for me... hearing test or wearing earplugs is akin to torture for me.
  28. Rogi Cetpla

    Lenire — Bimodal Stimulation Treatment by Neuromod

    Hi Mathieulh, On the subject of treatment research... I have found that there is a ”specialised tinnitus/hyperacusis“ clinic in France... I am trying to find more information on this place. As you are French I wondered if you had heard of it? Looked into it? Have any...
  29. Rogi Cetpla

    Sleep Strategies for Tinnitus Related Sleep Problems

    Dear all, I have been dealing with tinnitus for almost 10 years but, unfortunately, have recently joined an “elite” group of sufferers... having had it increase to a very intrusive level. Whilst I was always able to use sound machines/iPad to distract and mask in the past to fall asleep. I...
  30. Rogi Cetpla

    Post Your Favorite Songs

  31. Rogi Cetpla

    Post Your Favorite Songs

  32. Rogi Cetpla

    Suicidal

    I agree and can fully relate to what you are saying @Ed209... I was living with a milder form of tinnitus... which had lightly increased over the years... but nothing like the recent increase in intensity and level... and like you have described... I currently feel crushed... having lost all...
  33. Rogi Cetpla

    What's Your Definition of Mild Tinnitus?

    I rode my motorcycle... which I hadn’t done in 10 years...ironically only because I had habituated to my previous tinnitus level(s) and felt comfortable enough that, providing I had custom made earplugs, I would be alright... I was until my 5th ride... I initially had hyperacusis after my...
  34. Rogi Cetpla

    Post Your Favorite Quote(s)!

    “If you’re going through hell, keep going.” Winston Churchill
  35. Rogi Cetpla

    Has Anyone Had Ultra High Frequency Tinnitus Soften or Change?

    Great! Hang in there until then... Good luck and keep us posted.
  36. Rogi Cetpla

    Tinnitus After Motorcycle Training

    Thanks for the insight.
  37. Rogi Cetpla

    Has Anyone Had Ultra High Frequency Tinnitus Soften or Change?

    Hi @Mathieulh, My post is not related to this thread. Even though I have had tinnitus for almost 10 years I have only recently joined.. .this due to the fact that my tinnitus has reached on all together level... Anyway, like most of us here I am looking at everything and searching everywhere...
  38. Rogi Cetpla

    Tinnitus After Motorcycle Training

    Hi @linearb, I just came across this thread and see that you mention having a motorcycle... I also have one but have stopped ridding it since my tinnitus flared up. I wondered if you still ride yours with earplugs on?
  39. Rogi Cetpla

    Poll: After Getting Tinnitus, How Long Did It Take You to Start Sleeping Normally Again?

    I really think the answer depends on the intrusiveness and intensity of your tinnitus. Having gone through the various “forms” of tinnitus over the last decade I can tell you that the situation is not equal...What is equal is the importance of sleeping...this will your first step to recovery...
  40. Rogi Cetpla

    Coping with the Guilt — My Tinnitus Is My Fault

    A lot of us are in the same situation... including myself... I believe the key is looking forward not back... "Acceptance of what has happened is the first step to overcoming the consequences of any misfortune." William James
  41. Rogi Cetpla

    Hi Billie, I would like to mirror Zigs compliments and questions. Wishing you all the Best, Rogi

    Hi Billie, I would like to mirror Zigs compliments and questions. Wishing you all the Best, Rogi
  42. Rogi Cetpla

    Suicidal

    Stay strong and remember that most of us are in the same situation... "Acceptance of what has happened is the first step to overcoming the consequences of any misfortune." William James
  43. Rogi Cetpla

    Guitarist Al Di Meola Speaks Up on His Catastrophic Tinnitus

    https://www.ultimate-guitar.com/news/general_music_news/al_di_meola_speaks_up_on_catastrophic_tinnitus_diagnose__how_it_affects_his_playing.html "I have a severe, what they categorize as 'catastrophic tinnitus.' Catastrophic means that the level is so loud that it's off the charts. "I have to...
  44. Rogi Cetpla

    NHS (UK) Audiology Appointment Experiences from Tinnitus Patients?

    Thank you for your response. I have to say that I seriously doubt the veracity of your profile and information provided in general. You seem to have had all varieties of tinnitus... from mild to very bothersome... from continuous to alternating... you seem to have covered the full...
  45. Rogi Cetpla

    NHS (UK) Audiology Appointment Experiences from Tinnitus Patients?

    Thank you for your positive and optimistic views /messages . Having 10 years experience and having had various degrees of tinnitus I would nevertheless add a slight caveat to your analysis. Intrusive tinnitus is a very different animal to Mild or Bothersome tinnitus. Therefore the approach...
  46. Rogi Cetpla

    Ringing Tinnitus Spike and Going Insane — Could Earbuds Have Caused This?

    I would definitely recommend seeing a specialist and trying a hearing aid. I have read that it has helped people and reduced their tinnitus... unfortunately no guarantee but worth a try... I wanted to try out myself but, although I have intrusive tinnitus, my hearing loss is not sufficient to...
  47. Rogi Cetpla

    What's Your Definition of Mild Tinnitus?

    Having had Mild, Intrusive and Very Intrusive Tinnitus I would define as follows: MT: You hear it sometimes (usually at night or very quiet environment. You are mostly in control and can mask it easily. IT: You hear it most of the time in daily activities (usually masked by louder noises; i.e...
  48. Rogi Cetpla

    Suicidal

    Hang in there... a lot of us on are the same boat... in very rough seas. I am also personally in the same situation but believe that the body and mind will ultimately adjust... time is an essential component today... a component different for us all. I have been in a dire place before...
  49. Rogi Cetpla

    Suicidal

    Good question... if only I knew... I would say most probably a combination... but cannot be certain.
  50. Rogi Cetpla

    Major Relapse in Tinnitus Severity After Riding Motorcycle

    Dear Nagler, Allow me to introduce myself; I am a 52 year old male currently living in Switzerland suffering from acute atonal intrusive tinnitus. In brief, I have had noise induced tinnitus for almost 10 years now… after years of excessive noise exposure (army, motorcycle riding and loud...
  51. Rogi Cetpla

    Suicidal

    I have had minor spikes following noise exposure in loud areas (restaurants/bars - always with earplugs) which have returned to base line but unfortunately for the major ones... following brutal and/or prolonged noise exposure (dentist and motorcycle in my case - always with earplugs) has...
  52. Rogi Cetpla

    Suicidal

    I have had tinnitus since 2010 but has increased three times since... last increase, which I describe as Very Intrusive Tinnitus, was two month ago. It does not fluctuate... except it increases at night as I also take blood thinners for another issue. I rate my severity at 9/10 during the day...
  53. Rogi Cetpla

    Suicidal

    Hang in there Acute... we are all on the same boat... in a hell of a storm... but there will be calmer days. I have had tinnitus since 2010...unfortunately it has increased threefold since...I have habituated every time even though I didn't think it was possible...which, ironically, is why I...
  54. Rogi Cetpla

    Suicidal

    I have had tinnitus since 2010 but has increased three times since... last increase, which I describe as Very Intrusive Tinnitus, was two month ago. It does not fluctuate... except it increases at night as I also take blood thinners for another issue. I rate my severity at 9/10 during the day...
  55. Rogi Cetpla

    Suicidal

    Stay strong Pete...My tinnitus is at a very high level also...have slept an average of 2 hours a night for the last few weeks...I have had equally negative thoughts but am hanging in there...I distract myself as much as possible...put on maskers all over the place and take sleeping pills for the...