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Dan, If you would have been offered the therapy at no cost to you would you have done it?

The reason I knew for the first 2 weeks we(30 of us)were either given either the sham therapy or the real one. After 2 weeks we were told if we got the sham treatment or not(I was given the sham therapy for only the first 2 weeks)then we all received the real therapy. I started my therapy in Feb...

I was not given the sham therapy. I was given the choice to leave the implants in so that maybe later something might change with the settings of the therapy that might be beneficial. I decided to leave the implants in for now.

Update is as follows. Stopped the therapy last Wednesday with my final appointment. Been at it since Feb. and for me there was no improvement either way. The therapy simply did not work. I do not know about the other people that are involved in the study. We will just have to wait until the...

To be sure if I was not taking part in this study I would want some info also. After this many years I'm tired of this tinnitus s****. It has really screwed my life up and I have had to make some very big changes in my life just to get to this point in time. We all want the very same thing. This...

This is a serious trial. I simply want the most accurate data possible. I do hope you understand that.

Just to let you know I will remain quiet about the VNS study until it is complete. I'm sorry but that is how it has to be. I understand your frustration.

When my tinnitus first started as like most everyone else getting sleep was a big problem. Did some reading about what might help and read where the drug Amitriptyline might help. That did it. Small dose and it worked wonders.

Agree. I would try melatonin first. Might just work very well.

When my tinnitus first started dr's did not want to give me anything to help my sleep. To this day I can't figure that one out. Turned to alcohol and it worked for a few weeks but your body keeps wanting more. Finally came across an article about the drug Amitriptyline and how it might help with...

A cheap mp3($25)player,$12 Sony earbuds(using these you will not even realize you are wearing them)and a masking sound that works for you at a low volume will do wonders. Sound pillow is a good idea also. Very good advice on this thread.

I have met Mr. Shatner and we had a private conversation about our tinnitus and I can tell you that he did do TRT.

Still doing my daily therapy and it's been a short time for it. I'm just saying that in my situation I believe tinnitus can be a disability for some.

In my case yes.

Good to hear from you guineapig! Glad the surgery went well. I fully concur about this being an active/ongoing trial study. Yes we must be patient. I do hope everyone understands. Thanks!

I tried Wellbutrin at first and it did not help me in any way. When I finally tried Amitriptyline it helped a great deal with my sleep.

I would have to say that people should avoid every drug there is because none of them are 100% safe.

Maybe I missed it but could you let us know how you are doing?

When I was on Amitriptyline the dose I was on was 50mg. It worked at that dose so in my case there was no reason to increase it. It also did away with my daily headaches.

I have tried both and Amitriptyline is what worked for me. When sleep was issue at first(Huge problem as we all know)it corrected it in a very short time. Always just needed a low dose with no side effects.

Have you tried Nortriptyline or are you going to?

It's quite the read but this might be interesting. http://www.tinnitusjournal.com/detalhe_artigo.asp?id=442

Mine covered CT scans and MRI's. Those are the most costly by far. As far as maskers and hearing aids for me it would have been out of pocket. I think hearing aids for the majority are out of pocket but really don't know for sure.

Loudness and pitch. Wow. 2 words that have come into my T world. I'm one of the few who have been accepted to take part in vagus nerve stimulation study done in the US at four clinics. Have had tinnitus since 2000. 15 years. What really gets me down is what the past 2 days has brought. My wife...

This book is what I bought at the start of my tinnitus. It pretty much covers everything. Interesting information on the subject of masking. Very informative. http://www.amazon.com/Tinnitus-Questions-Jack-A-Vernon/dp/0205326854

Same situation when my tinnitus started. Lost 25lbs without even trying. Got down to 140lbs. I remember telling people I was nothing but a walking zombie. Amitriptyline(only needed a low dose)turned it around with the first pill. Hope this helps.

I'm interested in anything that will help. It sounds like TRT is treating you very well. I wish you continued success.

You can read what i'm doing in the Research thread. It's the Vagus Nerve Stimulation Study.

I did habituate for almost 4 years then August of 2009 it came back. I just woke up and there it was. I thought here we go again. And it's been quite the circus ride since then.

I know 2 people that went the Neuromonics route and both it did not work. I did consider it many years ago but everything I read about it the results were very fuzzy. I would have done it if it would have had some positive reviews. I stuck with a $25 Mp3 player and the Moses/Lang masking CD...

You did something a very smart person should have done. You asked questions. I think there answers speak for themselves.

And i'm one of the humans. This is a new much larger study in the United States. http://www.medicalnewstoday.com/articles/269207.php

It's funny but when my tinnitus first hit I was searching for answers and the first drug that said it might help tinnitus was Xanax. Never heard of it before. So I took the Xanax study to my doctor and he said he would never prescribe it. Much too dangerous he told me. Several months later I...

Just about every drug on the market is ototoxic. Have taken Xanax,Valium and Clonazepam for sleep. No side effects. What worked the best for sleep was Amitriptyline. You only need a low dose. Worked the first night I took the pill. Best advice is to take it 2 hours before bedtime.

Remember this is just a study. They are hoping it works out and at some point in time get FDA approval. If it gets approval I don't know what the cost will be. I have not brought it up but it's one step at a time. Last I heard maybe 40 people will get picked for this study.

Christian78, Yes the noise therapy(2.5 hours daily)contains tones that will stimulate your vagus nerve. Also I don't think guineapig gave up. Just had concerns over the surgery. This is what the daily therapy session looks like.

What was your concerns? Has been over a month for me since surgery and 3 weeks doing the therapy sessions. Maybe I could give you some answers. If you would like just send me a pm. Thanks!

guineapig, Have you made a decision yet?

This is the drug that really helped. Really helped with my daily headaches also. Big time. Zero side effects. I tried sleeping pills but they just did not work for me. Took a chance with this drug and for me gave me back my sleep. Remember i'm just telling you what worked for me. Only needed a...

Stink, Since you have had tinnitus this long have you tried any drugs that might help with your tinnitus and your insomnia? The reason I ask is because I have taken a couple of medications that have been a big help for both. The one really helped with my sleep and that really helped with my...

If he has had tinnitus like me since 2000 his case like mine just shows that not all tinnitus gets better with time. Really hate to put that fact out there on this site. If your tinnitus does not change I will agree your reaction to it will be different and for the most part you will not be that...

Stink, Is it correct that you have had tinnitus since 2000 like I have and still are quite bothered by it?

I'll skip the suicide talk but if you have not tried masking you should at least give it a try. I have been chided for years because this is what helps me get the much needed breaks from my intrusive tinnitus. I'm usually told that I will never habituate to my tinnitus like that should be the...

Agree with Stink. Your ENT should take care of it.

Won't know until I get much further into the sessions. I have decided not to do any updates until there is further news that will come from this study that i'm in. So far everything is very routine from day to day and it will no doubt stay like this for several weeks.

Just in a daily routine.

A low dose of Amitriptyline sure helped my sleep.

Keep doing your own research. It can only help.

thesaint, Very interesting! Many thanks for posting this.

Geo, My tinnitus got much worse in 2009. My tinnitus started in 2000. Up until 2009 I could mask my tinnitus with track #3 off the Moses/Lang Masking CD. Since 2009 my tinnitus got much worse and the masking CD would not even touch it. I was in a panic. Since then my tinnitus has increased at...

Has anyone tried a sound pillow at night? I have never tried one. What I use is an MP3 player with a soothing masking track. Volume is low and it helps with your sleep. I use the ear bud type headphones that tuck inside my ears and you don't even realize you are wearing them. Works pretty good...

Geo, Have you tried any type of masking? It's not a cure but by masking it just might help you to at least distract you from the daily noise torture that you are going through. If it would distract you then you would have more control over your tinnitus. In my case I found the Moses/Lang Masking...

Joe Blow, I do believe this is what a TENS unit looks like. http://www.amazon.com/truMedic-TENS-Electronic-Pulse-Massager/dp/B00DCEBLP4 As far as fixing TMJ/Tinnitus problems I would get at least get 2 opinions on the matter. In my case my dentist said my jaw,bite was normal.

It's never changed since my tinnitus started. To this day it's the same.

I think this happens to most people that dozing off will vastly increase there tinnitus. My biggest problem my T will be very low but if I even nod off for only 2 minutes anytime during the day I wake up with full blown screaming tinnitus. It does this 100% of the time. Also if I wake up...

Yes it is pretty boring but very simple. It's easy to get into a daily routine though.

Sjoerd, You are very much correct about the VNS for tinnitus is just a fraction of what they use for epilepsy. That was one of the reasons I decided to try it.

No I didn't feel any this time. Going to double check to see if thats normal. I know they tried to adjust it so I wouldn't feel anything but still going to check.

Rather boring. The tones you listen to just sound like your typical hearing test tone. I'm lucky cause i'm retired so i'm pretty much free all day. I just sat and watched tv with the close captioning on.

No i'm not on any brain meds. Even if a person was on them I think the time frame they are looking back is what you have been on in the last 2 months. I will try to find the answer for you.