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  • Users: Karel
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  1. Karel

    What's the Real Difference Between Using Headphones and a Telephone?

    I know for a fact that talking on the phone can make T permanently worse, because that happened to me a few years ago. It wasn't a regular call though, it lasted several hours with only a few short breaks, and I also have H which probably has something to do with it too. (I did keep the phone...
  2. Karel

    Why Do I Keep Hearing That Everyone Has "a Sound in Their Ears"?

    Yeah, I've had this happen a few times too. I'll tell someone I have Tinnitus, then they say "Oh, yeah, I have that too!", then on further questioning turns out once or twice a month they hear a faint sound for a few minutes when they're tired or something.. :banghead:
  3. Karel

    Flying with Bad Tinnitus and (Especially) Hyperacusis, Experiences?

    It was the same kind of plane, and I was sitting in about the same seat, as far forwards away from the engines as I could afford. So yeah, my feeling is something went wrong at the airport.
  4. Karel

    Flying with Bad Tinnitus and (Especially) Hyperacusis, Experiences?

    Ah. Sure. In the end I did take that flight. And the flight there went fine, as before I wore noise-cancellation headphones the whole flight and that seemed to do the trick. However, after the return flight when I got home again it did feel like my T had worsened. While at the airport waiting...
  5. Karel

    Introducing My New Book "Living With Tinnitus"

    It seems I downloaded it with no problems here in the Netherlands (via the Dutch Amazon site). Thanks!
  6. Karel

    One of the Strangest Success Stories I Have Ever Read

    That sounds like a really bad idea.
  7. Karel

    Symptonen zijn denk ik ook wel iets minder dan het vroeger was ja. Ik denk dat als je er minder...

    Symptonen zijn denk ik ook wel iets minder dan het vroeger was ja. Ik denk dat als je er minder mee bezig bent je lichaam het ook minder opmerkt, of zo.
  8. Karel

    Hoi dboy, ik heb nog veel last. D.w.z., geluid is nog steeds luid, en ik vind het nog steeds...

    Hoi dboy, ik heb nog veel last. D.w.z., geluid is nog steeds luid, en ik vind het nog steeds vervelend om in lawaaiige omgevingen te zijn, en moet blijven uitkijken met vuurwerk en alarmen enz. Maar het begint ook wel weer een beetje te wennen, dat ik er iig niet meer 24/7 aan denk, dus dat is...
  9. Karel

    A Day of Silence / Trouble at Work

    Hoi @bekker, ik ben nog steeds niet begonnen aan de TRT, dat heeft vooral te maken met de kosten. Dat is geld wat ik op dit moment helaas niet echt kan missen. Misschien dat ik later alsnog TRT probeer.
  10. Karel

    This Picture Perfectly Sums Up Tinnitus Talk

    Pretty clever.
  11. Karel

    What Was Your Favorite Subject?

    Math! Woo!
  12. Karel

    Are Some More Vulnerable Than Others?

    My hearing definitely has been 'weak' all my life. I remember as a kid we had an old TV and its volume slider was broken, sometimes if someone touched it the TV would suddenly jump to the maximum volume. Whenever that would happen it always had me running for the hills. It didn't have that...
  13. Karel

    Flare Audio's ISOLATE Ear Plugs

    Oh, yeah, sure. I'll post here once I've received them and got to try them out for a while.
  14. Karel

    From Bad to Worse

    Yeah, I haven't heard that before. People can get T in all kinds of weird ways, the ears are so fragile, at least for some of us. :/
  15. Karel

    Flare Audio's ISOLATE Ear Plugs

    I backed it. I'm not sure they'll really do what they promise (always the problem with Kickstarter and the like), but if they do, I want a pair. Just pop one in my bad ear whenever I go to a potentially noisy place and I'll feel much safer. Still no going to fireworks shows or construction sites...
  16. Karel

    From Bad to Worse

    How did a mobile phone cause your T? EMF? Electromagnetic field? I got a big increase in my T&H from talking on a cellphone too long. Personally I think there's something dangerous about the type of sound they make.
  17. Karel

    Flying with Bad Tinnitus and (Especially) Hyperacusis, Experiences?

    Yeah, as I said, in most cases I found people report no lasting issues.. although there are also a few stories of people even getting T from flying. :S So I think a risk does exist. It's also my H that I worry about more than my T, it feels like the bigger vulnerability... Well, I'll see. But...
  18. Karel

    Tinnitus, Hyperacusis and Possibly Hearing Loss

    Same thing happened to me. I had moderate T&H for three years, stayed away from all loud noises to prevent exacerbation. Then I spoke on the phone about twenty hours divided over four days, I kept the phone only at my good ear and the volume all the way down. But after a few days I suddenly...
  19. Karel

    Flying with Bad Tinnitus and (Especially) Hyperacusis, Experiences?

    Hello again Sara. Yeah, wait, I know... But it's already been three months and I'm not sure it's even getting any better at all yet. How long before it improves? Six months? A year? Two? Well no one can say of course, but I feel like it's gonna be a long time. I don't want to just put my life on...
  20. Karel

    Flying with Bad Tinnitus and (Especially) Hyperacusis, Experiences?

    My situation; I've had moderate T&H for a few years now, but about three months ago I suffered a setback which made both of them much more intense. My T got a lot louder so it keeps me awake at night again, and I also got "morse code Tinnitus" now in addition to the other two, continuous sounds...
  21. Karel

    As for not letting it affect my life... I don't really have a choice. I'm in my late thirties, I...

    As for not letting it affect my life... I don't really have a choice. I'm in my late thirties, I live alone, and T&H are not a a valid reason for disability leave here. I'll have to keep going out to work, the supermarket, and other places... I don't really see an alternative. If some day my...
  22. Karel

    I try to avoid wearing earplugs because I've read in several places that that can actually make...

    I try to avoid wearing earplugs because I've read in several places that that can actually make the ears more sensitive. But my ear hurts so often, I think maybe it's time I start doing that too, yeah..
  23. Karel

    My way of life? Well, I'm trying to stay in quiet places as much as possible of course. I'm very...

    My way of life? Well, I'm trying to stay in quiet places as much as possible of course. I'm very lucky, I have a quiet job (office job with my own room) and the neighborhood I live in is tranquil too. But there's always some noise, and everything is too much for my hearing now it seems. I'm...
  24. Karel

    Up until this setback happened I could manage my T and H on my own so I never needed to try pink...

    Up until this setback happened I could manage my T and H on my own so I never needed to try pink noise before. I listen to it occasionally now, but sometimes I also feel it makes my ear hurt. But to be fair my ear hurts a lot at the moment so I'm not certain. I hear good things about TRT so I...
  25. Karel

    I try to remind myself that apparently for a lot of people H slowly gets better over time. It's...

    I try to remind myself that apparently for a lot of people H slowly gets better over time. It's been 2,5 months now since this happened to me but maybe it just needs more time.. Have you ever tried pink noise or TRT? I might do TRT in a few months.
  26. Karel

    Hello Sara, thank you for asking. Unfortunately not really. :/ My T might slowly be going down a...

    Hello Sara, thank you for asking. Unfortunately not really. :/ My T might slowly be going down a little bit, but it's still at least 50% louder than before. But my H is the real problem, it has taken on huge proportions. Even the buzzing of the fridge or the sound of my own voice are unpleasant...
  27. Karel

    Ridiculing People on Here for Following Doctors' Advice

    Medical professionals haven't really helped me with this either, more the opposite. None of them even ever mentioned steroids, I only found out about that on my own when it was way too late. When I first got this condition I asked if I could still go to noisy places with it, my ENT said "that's...
  28. Karel

    Tinnitus for 7 Weeks, Terrified and Suicidal, Only 19 Years Old — Please Help!

    It may seem impossible now, but most people eventually get used to (habituate to) their T and don't really get a strong negative emotional reaction to it anymore. It's normal for this process to takes months or longer. Patience, and try not to focus on it more than you need to. Just be careful...
  29. Karel

    Why Hasn't Long Term Use of Broadband Noise Improved My Hyperacusis?

    Indeed, they seemed to not want to really respond to my questions but rather tried to get me to just believe in pink noise / TRT. Yeah, I kind of get what you mean, there is something off about that place. And the forum software looks like something out of 2001 too, haha. Still, it's a site...
  30. Karel

    Why Hasn't Long Term Use of Broadband Noise Improved My Hyperacusis?

    I ordered the 'official' pink noise CD from The Hyperacusis Network a few days ago, waiting for it to arrive now. People there maintain that it's an effective treatment in most cases (over 90% it's claimed on that website). That is to say, the people affiliated with the Network say that, which...
  31. Karel

    My Story. Feel Like I'm Slowly Losing the Battle.

    Well, I don't know. I think it makes sense what they say; if one starts blocking all kinds of (normal level) sounds that would make the ear less used to those and thus even more sensitive, right? Currently I don't wear earplugs (always have them with me though just in case) but I just put my...
  32. Karel

    My Story. Feel Like I'm Slowly Losing the Battle.

    Well actually my H bothers me more than my T. My T only really troubles me at night, my H troubles me all day, and causes my earpain too (I think). But yeah, I'm trying to stay positive. I'm still hopeful it'll recede again eventually even though it's taking longer than I'd like, and/or that I...
  33. Karel

    Who or What Do You Blame for Your Hearing Loss, Tinnitus, or Other Challenging Thing?

    This. T is a chronic and potentially life devastating illness, and H even more so. And they can be caused by being in the wrong place for one evening or sometimes even just one time. I had no idea the human hearing was so fragile before I got this condition. If I had known that even ten seconds...
  34. Karel

    My Story. Feel Like I'm Slowly Losing the Battle.

    Hello Christine, thank you. It's been a month now since this happened to me and I would have liked to write something now along the lines of "it's all gone back to normal, phew, that was quite a scare!!" but unfortunately both my T and H are still worse than ever and haven't really gotten much...
  35. Karel

    Pokémon Go

    I'm up to level 10 now. This game has done the impossible, it's made going outside fun!! :D But seriously, it is good exercise, and encourages one to explore one's neighborhood as well. Win win I'd say.
  36. Karel

    Will the Depression Ever Lift?

    Well I hope it works out for you anyway. If I ever do end up going to Into Ears I'll let you know how it went there.
  37. Karel

    Will the Depression Ever Lift?

    I see! I live in Amersfoort but I'm willing to travel to any place in Holland if they have something that can help me. Currently my H bothers me more than my T though, so I think I need something also aimed at that. Into Ears seems to have that, so I think I'm going to put myself on the waiting...
  38. Karel

    Will the Depression Ever Lift?

    Sorry to hear it's not really going better yet. What T habituation course are you taking exactly? I'm still considering Into Ears myself, but the whole therapy costs like over a thousand Euro (not covered by any insurance of course) and there's a three month waiting list too..
  39. Karel

    The Best Things to Happen to You After Tinnitus

    I went on a holiday to Japan after I got T (and H too). Had a great time, and neither the flights nor the things I did there made my condition (permanently) worse. That felt like quite a victory for me. I had wanted to visit Japan for many years and I'm glad I didn't let T&H stop me from...
  40. Karel

    New Discovery on How the Inner Ear Works

    Yeah, that's how it seems doesn't it. New discoveries all the time, but then it takes like four years to convert it from research to reality, and then after all that somehow it always turns out it wasn't such a great solution as they thought after all... I believe Path Maker is right though...
  41. Karel

    Keyzilen (AM-101) Granted Fast Track Designation by the FDA

    Hm, ok. Guess we'll have to see how it pans out. It's good news either way, but the more people this can help the better of course.
  42. Karel

    Keyzilen (AM-101) Granted Fast Track Designation by the FDA

    So just to check; this drug is completely useless for people who've had T for more than six months or whatever, right? So great news for new sufferers, but I hope they'll invent something for people who've had this condition for years too.
  43. Karel

    Pokémon Go

    I just caught my first four Pokemon! :D Found an egg too!
  44. Karel

    Pink Noise: How Does It Work? (Does It Work?)

    Pink noise seems to be the de facto treatment for Hyperacusis, so as someone whose H recently went from 'moderate' to 'strong' I have been looking into it. However, there's a number of things about it I don't understand, I'm hoping perhaps someone here knows a bit more. 1) What's the...
  45. Karel

    Favourite Video Games?

    Ding ding ding! :D
  46. Karel

    Tell Me it Ain't So

    Good luck hartje, I hope you manage to find some relief somehow sooner or later!
  47. Karel

    Tips on How to Reduce and "Get Over" Tinnitus Faster

    Haha, exactly. Maybe when I'm retired, haha... (That's a joke, I'll have been cured, habituated, or have blown my own brains out long before then, in descending order of preference. :D)
  48. Karel

    Tips on How to Reduce and "Get Over" Tinnitus Faster

    I'm not sure about some of your tips but I like this one a lot, haha. I wish this was an option for me. :D
  49. Karel

    Favourite Video Games?

    Can anyone guess my favorite game of all time? :D Another game I play a lot (and I mean a LOT, recently passed 5000 hours) is Team Fortress 2. And it just got a big update so yay.
  50. Karel

    Traveling with Bus

    Might want to look into noise-cancelling headphones if you really worry. I flew to Japan and back wearing those with no (permanent) worsening of my T. They're expensive but I'd say worth it for people with our condition who still want to travel.
  51. Karel

    My Outlook Is Deteriorating, from Mild Tinnitus to Bad Tinnitus and Hyperacusis (Getting Worse)

    Acoustic trauma was what started this all for me, being exposed to the sound from a megaphone at very close range to be exact. Yes, I was very surprised when I realized what was happening. I had my iPhone on the lowest volume setting and kept it away from the ear my T is in so I thought that...
  52. Karel

    Poll: How Long It Took Until You Started to Feel OK Again?

    Had moderate T&H, was mostly habituated after 1,5 years or so. Now I've recently had a setback, the intensity of both my T and H went to 'severe', so back to square one.
  53. Karel

    Kerrang! Magazine: "Worth the tinnitus."

    There's a dance club in Germany called Tinnitus. Yeah.
  54. Karel

    A Day of Silence / Trouble at Work

    Yeah, okay. But it will be a while. First I have an appointment with the ENT next month and I'm sure Into Ears has a waiting list too..
  55. Karel

    Don't Know How to Take This Anymore

    I've read stories of people that say they've habituated to 'jet engine' level T, so it should be possible, yes. The sound won't hurt you (it's not even real), it's only the negative emotional reaction that harms us. The trick is to learn to not let the T trigger fear or panic anymore, just...
  56. Karel

    A Day of Silence / Trouble at Work

    Hm, I see. Yes, I did a quick search for 'Xanax' on this forum and a lot of warnings popped up... And I guess it just makes H go away temporary, not permanently, else lots more people would be using it right? Too bad, I'd be willing to suffer almost any torment for a few weeks if it meant my H...
  57. Karel

    A Day of Silence / Trouble at Work

    Xanax, I looked it up, sounds like that's something that calms the nerves? Or did it actually reduce the intensity of your H too? Then I'm definitely gonna ask my ENT about it next time I see him. My T is louder than ever but I think I could get used to it again. But this H... street...
  58. Karel

    A Day of Silence / Trouble at Work

    Yes, indeed, but I guess we should stick to English, haha. And yes it is... GPs usually don't know much more about T&H than that it exists and that there's no cure, and even the ENT I've been to basically just told me "you'll get used to it, good luck". Yes, I know there's no cure, but can't you...
  59. Karel

    A Day of Silence / Trouble at Work

    That's a terrible thing to say to someone in that situation, yeah, especially coming from a doctor!! Bizarre! I assume you switched to another one? I heard about that lady too, Gaby Olthuis. Shocking story... I'd like to think it's an exception though. Most people find a way to live with it...
  60. Karel

    Kyoto University and Boehringer Ingelheim Team Up to Fight Hearing Loss

    Sounds good. Gives me a bit more hope for the (long-term) future.