Avoiding loud environments and wearing earplugs when I drove mostly. I tried various supplements but not sure how much of a role they played if they even did anything at all. I think time, patience, and protection have been the biggest factors in my improvement.
My reactivity is intermittent but it was really bad at first. Lately even when there is reactivity it isn't that bad. It look a little less than a year for it to get to where it is now.
The whole "anxiety makes your tinnitus louder" theory really bothers me. My anxiety is usually because my tinnitus is louder. Not the other way around.
I imagine their drug supply for testing is closely monitored and regulated, as you mentioned. If it were discovered that he took one and injected himself, it would likely harm both his team and himself. It could also potentially delay the release of the drug.
I think @Nick47 is one of the least pessimistic or negative people on Tinnitus Talk. He probably posts the most research-related materials compared to other users on this board. He is very hopeful that something will be figured out. I think he tries to stay cautious and rational regarding...
I imagine Tinnitus Quest is something that has been in the works for a while.
We know from the data that this device will not work for everyone. I look at this device as a step on the road to superior treatments.
The starting point was three days of loud tinnitus, followed by only being able to hear it in a quiet room. Three weeks later, my right ear went out of control and became very reactive and loud. The only thing that would mask it was the shower. It made me panic almost daily.
Nowadays, I have...
You would likely be waiting a very long time for something like that. More studies are required to make it more effective. Improvements they make quickly would most likely be "quality of life" improvements that would make the device more comfortable or easier to use.
It's hard to say. All people can do is speculate about Auricle's lack of communication. I definitely understand that they don't want to mention anything regarding the FDA, but I don't feel there's a need for total radio silence. I said this in the past, but I think the FDA approval is the least...
You guys might have already thought about this, but you may want to reach out to veterans groups, too, since tinnitus is prevalent among military personnel. This may help you network and find funding or resources.
You can try caffeine and see if it affects your tinnitus at all. I personally haven't noticed a difference when I do or don't drink caffeine.
If you give it time and heal, you may be able to do those things again. I would give it at least a few months, though. If you do use headphones, be very...
I'm not really sure I had hyperacusis, but I did have very reactive tinnitus. The reactivity is now pretty low most days. Every once in a while, I get some stretches of extremely mild tinnitus. It's way milder on average than it used to be, but it's a toss-up on what kind of day I will have...
Many see this device as their best bet and are frustrated at the lengthy process. It's only natural for people to voice their frustrations. Either way, we're stuck waiting till the whole process is completed.
My only concern is that people keep equating the company's ability to get the product...
I think it's perfectly acceptable to yell and complain about Auricle taking so long. Still, it makes no logical sense to make inferences about the device's effectiveness based on them being slow.
I think this is one of the most promising treatments for tinnitus caused by hearing loss or acoustic trauma. It's also nice to see that tinnitus is their key focus compared to these other restorative approaches.
I did reach out to Cilcare about clinical trials for tinnitus. They did not provide much new information, but here is their response:
If you live in any of these areas, it may not be a bad idea to contact them and get your name on file for any clinical trials.
You're still pretty early in. Protect your ears, and there's a possibility yours can get better. My tinnitus was caused by a concert almost 10 months ago, and I am still slowly improving.
Hope you can experience it some day. My mood has been much better. I'm just hoping it stays this way. My left ear (my better ear) may be almost completely healed.
I understand that they just need to get it in the same ballpark. I think it was also mentioned that some people in the trial had more than one tone.
Hell, there's no way they could have the guinea pigs tell them what their tinnitus sounded like.
I'm not calling you out specifically, but I see this a lot in this thread. It's completely possible that the device could end up being junk, but the slow progress doesn't logically give us any clue about how effective it is.
If I were going to sell a piece of junk to a desperate population of...
It seems that a lot of researchers are developing different kinds of goop to inject in our ears. Let's hope one of these works. I'd sign up for a tinnitus trial if they ever do one.
I hope you can recover again. It might be time to swear off very loud events like concerts. Once our ears get damaged this bad, it just seems like they're permanently weakened.
Yep, I was in the same place, and sometimes I still am. My healing process has been non-linear. Some days it feels like my tinnitus is on its way out just to come back. Overall, it's a lot better than it was months ago.
In the meantime, protect your ears and stay healthy. Even with hearing...
Is it possible that the noise-canceling headphones are messing with your hearing? They technically play a frequency to cancel out the noise rather than actually blocking it. Some people have attributed their tinnitus worsening to them.
It's insane that no further information has been released about that study. It would be great if they could collaborate with Dr. Shore and her device. From my understanding, they customized the timing per patient in that study.
My tinnitus used to go crazy at night occasionally, but it stopped doing that after a few months. I still have tinnitus and am almost nine months in, but it has become milder and more manageable most days lately. Mine changes a lot, though, so we'll see if it stays that way.
I still have it and it is from a metal concert. Before that, I had no issues with my ears at all. It's a lot quieter on average than before. Some days, I barely notice it lately.
It can get better or go away, but it can take a long time. I've had mine for almost nine months, but it's better than it was before. Protect your ears in the meantime. I hope you recover.