Chit Chat and All That...

[Star64]

@emmalee @Star64 you guys have made me laugh, poor job wont know what's hits them if they log in

I'm doing ok, taking each day as it comes, that's all we really can do. I wouldn't mind if my T stayed the same but it's so crazy in terms of volume, I have 3 main tones and this morse code type of beep that just keeps coming and going. I should be more thankful as I do get the odd hour a few times a week were my T almost sounds silenced!

Stress most definitely has a effect on mine, I've been in hell the last few weeks and the last 2 days have been more mellow (still have the party in my head) it doesn't seem to be as angry if that makes sense.

So glad to hear your ok, I know how hard things can be especially when it comes to stress and dealing with tinnitus.

I am also glad you have come back with your sense of humour, you have been missed that is for sure.

Kermit the frog gave me a good laugh

 

[Star64]

You are more than welcome, Star.

As I have said in other posts, I found bennzobuddies after being prescribed clonazepam by my doctor. He did warn me about them and even encouraged me to learn all I could about their side effects.

The many life-altering stories from real, unsuspecting individuals on BB were an absolute eye-opener for me. I had no idea.

I still visit, it helps to keep me focused on my own close call with benzodiazepine use. There are a couple of blogs that have captured my attention and I am in awe of the struggle and subsequent strength of these women. Unlike the two ladies that you followed (so sorry to hear this) the women I have been following are going to come through to the other side. Unfortunately not everyone will make it and this is the sad, harsh truth.

Your open and honest posts here on TT are sorely needed and I, for one, am grateful to you for sharing your personal struggle with the members, here.

Tinnitus victims truly need all of the relief that they can get, and while benzodiazepines can offer short term relief, this is where it should end. Knowledge is power, and this is especially true when it comes to medications for tinnitus.

Medications and tinnitus are a big hit and miss. Unfortunately nothing has come on the market that specifically can help tinnitus.

Hopefully at some stage that changes and we have a choice, but that is probably still years away.

So we have to make the most of life as it is and that means for most of us never a silent moment.

 

[Jcb]

Good thoughts buddy.
You are so right.
We are all struggling with this thing.
We are all grieving for 'what was our life.'

I do meditate as you know.
But I still have some very tough days - and then some better days.
I guess we all do.

Sometimes I muse on the idea that I might actually be able to come up with some sort of psychological adjustment that might help me to cope so much better - and if so, pass it on to help us all.
'Pie in the Sky, I guess,'
- but I haven't given up on it yet.

It hasn't happened so far, but if it ever does, you my friend will be the first to know.

Best wishes Jcb

Dave x
Jazzer

Indeed mate, I guess all we can do for now is take the good with the bad and hope the good outweighs the bad in the end.
I keep trying with the ole meditation but it's hard, some times I think I've got the hang of it but then I'll go to a weird place in my mind that I don't like haha.
If you do find it let me know haha
Hate seeing people suffer because of this shit man, it still amazes me what this noise can do to your overall mental, physical health and overall sanity at times.
We are all in this together and can only be as helpful as we can to each other, be a shoulder to lean on and all that.
Here's to better days for us all.

 

[Jcb]

These are supposed to be a conversation between a dog and his owner and my simple brain found these hilarious

 

[Jcb]

View attachment 32991

So glad to hear your ok, I know how hard things can be especially when it comes to stress and dealing with tinnitus.

I am also glad you have come back with your sense of humour, you have been missed that is for sure.

Kermit the frog gave me a good laugh

who doesn't love sassy Kermit eh haha it's true though sarcasm is missed on so many people

your comment about the scammer and your family's reply made me laugh Star haha we need to keep up the good fight eh

 

[Star64]

View attachment 33014
who doesn't love sassy Kermit eh haha it's true though sarcasm is missed on so many people

your comment about the scammer and your family's reply made me laugh Star haha we need to keep up the good fight eh

Yep we sure do, if only it was this easy to get rid of tinnitus

 

[Jcb]

View attachment 33036
Yep we sure do, if only it was this easy to get rid of tinnitus

I love this gif Star had a chuckle at that. Hope you are doing as well as can be mate, it's heartbreaking to read what you've been going through, big hugs

 

[Star64]

I love this gif Star had a chuckle at that. Hope you are doing as well as can be mate, it's heartbreaking to read what you've been going through, big hugs

Thanks jcb, I am back in a wave as they say, everything has ramped up again. I live in hope, like we all do big hugs right back at ya!

 

[all to gain]

You are still so new to T mate, I was a mess early on as well (still am in some ways but a lot better in some ways as well) it's a journey nobody wants and it's a fu@%er of a ride. I still struggle with what was and slowly since I've got T I see changes in myself that I don't like but as Emma said we are no longer who we were.

I know not everybody can come to terms with this noise (I question if anybody truly does if I'm honest) but we have to come to terms that our life will never be the same again, make changes that we need to and keep hoping that tomorrow will be better as much as it sounds cliche. We will make new memories, take joy in the things that we can, see the places that we always wanted to, this is what I keep telling myself even when I just want to say f@#k it what's the point where's the rope.....

I hope you power on mate, give it time and let the grieving process takes its course. Keep yourself as active as you can, eat cleanly as possible, take joy in your loved ones when you can, try yoga? Meditation, try deep breathing exercises and who knows in the next few years we may see some possible actual treatments??

Thanks for the answer.

Everyone gives me good advice, but I find it hard to put into action. I am THAT down and depressed.

Grieving is very hard, especially when it is combined with real anger like I have. I cannot forgive myself, but more than that I cannot forgive my GP.

Every day I say it is my last, but I have two young sons...

 

[emmalee]

Stress most definitely has a effect on mine, I've been in hell the last few weeks and the last 2 days have been more mellow (still have the party in my head) it doesn't seem to be as angry if that makes sense.

Makes perfect sense to me, Jcb.

 

[emmalee]

So we have to make the most of life as it is and that means for most of us never a silent moment.

True words, unfortunately.

 

[Jcb]

Makes perfect sense to me, Jcb.

Hey Emma, how's things

 

[Jcb]

Thanks jcb, I am back in a wave as they say, everything has ramped up again. I live in hope, like we all do big hugs right back at ya!

I'm sorry Star I am mate, I sound like a bloody broken record but that's all we can as of now, cope anyway we can and take each day at a time and hope this crazy ride stops soon and we come out the other side stronger and with some sort of peace.

 

[Jcb]

Thanks for the answer.

Everyone gives me good advice, but I find it hard to put into action. I am THAT down and depressed.

Grieving is very hard, especially when it is combined with real anger like I have. I cannot forgive myself, but more than that I cannot forgive my GP.

Every day I say it is my last, but I have two young sons...

I think we are like that at times even more so at the beginning, I know these are just words but even when you feel like you can't take no more look at your two young sons and let them give you the strength you need. It's early days mate and I know it doesn't feel like it but you have a good chance of coming through this the other end even if your T doesn't go or the volume reduces you have a chance to live a somewhat normal life, I can't lie I know this may not happen for everybody but there is always hope. Your whole mind and body is still in fight or flight mode, it's in shock you need to give it time and fight on.

T is so unpredictable and you don't know what will happen tomorrow or the next or next day.

Forgiveness can be a hard one for anybody "forgiveness does not change the past but it does enlarge the future" as harsh as it sounds shoulda woulda coulda isn't going to help and once you learn and accept what is you might begin to see it differently?? This is what hit me as of late, I need to stop pining for what was and make myself want for the future. Try to let go of that anger my man, that's a nasty emotion to have constantly and can wreak havoc on your mind and body which isn't good.

I think all of us will grieve always as long as we have this, try and stay active as much as you can, keep your ears protected when around loud sounds and give your ears a chance to possibly heal.

I have to say my experiences with GPs since I have had this has been less than positive, so I get you there.

sorry for the long reply haha I hope it makes some sense mate or I could just chatting nonsense which wouldn't be out of the ordinary for me ha

 

[Jcb]

 

[emmalee]

Hey Emma, how's things

Good, Jcb.

I went and got my flu shot yesterday, big day out, lol! Seriously though, the last thing I want is the seasonal flu, or any flu for that matter. It was after a particularly bad fall and winter, resulting in bad colds and such, that my tinnitus started. I never used to take the flu shot, always took my chances, not any more.

Beautiful winter photos, by the way!

 

[emmalee]

I am different now. We probably all are.

I'm nowhere close to accepting my loss.

I have to agree with you. The person I used to be is all but a distant memory, now.

Unlike you, though, I have accepted my loss and have been able to move on the best way I know how. It has taken many months to reach this place.

I believe that given more time, you will experience a noticeable improvement.

 

[emmalee]

This is what hit me as of late, I need to stop pining for what was and make myself want for the future.

Yes, exactly. If I have a good day today, then I can very likely have an even better day, tomorrow.

 

[Jcb]

Good, Jcb.

I went and got my flu shot yesterday, big day out, lol! Seriously though, the last thing I want is the seasonal flu, or any flu for that matter. It was after a particularly bad fall and winter, resulting in bad colds and such, that my tinnitus started. I never used to take the flu shot, always took my chances, not any more.

Beautiful winter photos, by the way!

Oh nothing like a good day out to the doctors to get a big needle haha who doesn't love that..

To be fair I don't blame you, mine came on after a severe cold/chest infection but I had a ear infection a few weeks previous. It's scary what can cause this crap. I know you get crazy winters over there, so beautiful to look at but being in that beautiful picture is another story haha keep all wrapped up and I'd use it as an excuse to stay by the fire and drink some good wine.

 

[emmalee]

keep all wrapped up and I'd use it as an excuse to stay by the fire and drink some good wine.

Okay, yes sir! It will be tough, but I'll do my best!

 

[Jcb]

Okay, yes sir! It will be tough, but I'll do my best!

Haha if anybody dares say anything you tell them it's for medicinal purposes and that's all...

 

[Star64]

Thanks for the answer.

Everyone gives me good advice, but I find it hard to put into action. I am THAT down and depressed.

Grieving is very hard, especially when it is combined with real anger like I have. I cannot forgive myself, but more than that I cannot forgive my GP.

Every day I say it is my last, but I have two young sons...

And your sons will always need their Dad, even when then get older, one day you probably will have grandchildren so hopefully your will to live will keep going.

Not that I want you to suffer, I am hoping things settle for you or you find some way of coping all to gain, I really do.

It is hard for us all, but when we have family that rely on us we have to try and keep going for them.

 

[Star64]

Haha if anybody dares say anything you tell them it's for medicinal purposes and that's all...

I have friends that are nuns that love a drink, for medicinal purposes of course

 

[Star64]

Yes, exactly. If I have a good day today, then I can very likely have an even better day, tomorrow.

Hoping you are having an even better day today emmalee

 

[Jcb]

 

[Jcb]

Does anybody watch Schitts creek? I've just finished the latest season and it's so good, made me laugh more than a few times

 

[emmalee]

Hoping you are having an even better day today emmalee

I am doing very well, Star, thank-you. Of course, I hope the same for you, too.

Star, I read a post of yours, just cannot remember which thread it was posted on, lol. It definitely had something to do with sleep.

You mentioned meditation, and how someone had rated it as funny, which I detest for so many reasons, but that is a conversation for a whole other thread, which I won't be starting any time soon. I always say that we should read with the intent to understand not the intent to reply, at least not until we understand.

Dave, @Jazzer, has a thread about meditation. I am sure he won't mind me linking it, here. Meditation works for me, and many others. It is not a cure for tinnitus, it is a coping mechanism and a damned good one at that. I meditate while doing my yoga, without fail, every night before bed. No sleeping aids are required. Not every night is a dreamland state, but meditation is an absolute help.

https://www.tinnitustalk.com/threads/notes-on-meditation.35127/

Dave's advice on the soft jaw technique is quite helpful, I still use this due to my TMJ and teeth grinding.

 

[emmalee]

Does anybody watch Schitts creek? I've just finished the latest season and it's so good, made me laugh more than a few times

No, but I am going to have to, Jcb. Laughing is in such short supply in the tinnitus community, perhaps in short supply in life in general.

 

[Jcb]

I have friends that are nuns that love a drink, for medicinal purposes of course

 

[Jcb]

No, but I am going to have to, Jcb. Laughing is in such short supply in the tinnitus community, perhaps in short supply in life in general.

It's really good Emma, think it was shot in Canada as well? That's so true, I'll take any laughter were I can find it and luckily enough the stupidest things make me laugh